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40
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Text
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Citation List Month
June 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Screening Of Newborns For Disorders With High Benefit-risk Ratios Should Be Mandatory
Publisher
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Journal Of Law, Medicine & Ethics
Date
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2016
Subject
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Medical Examination; Health Risk Assessment; Parental Consent; Laws Regulations And Rules; Infants (newborn)
Creator
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Kelly N; Makarem DC; Wasserstein MP
Description
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Newborn screening has evolved to include an increasingly complex spectrum of diseases, raising concerns that screening should be optional and require parental consent. Early detection of disorders like PKU and MCAD is essential to prevent serious disability and death in affected children. These are examples of high benefit-risk ratio disorders because of the irrefutable health benefits of early detection, coupled with the low risks of treatment. The dire consequences of not diagnosing an infant with a treatable disorder because of parental refusal to screen are wholly unacceptable. Thus, we believe that newborn screening for disorders with high benefit-risk ratios should continue to be mandatory.
Identifier
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DOI: 10.1177/1073110516654133
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Health Risk Assessment
Infants (newborn)
Journal of Law, Medicine & Ethics
June 2016 List
Kelly N
Laws Regulations And Rules
Makarem DC
Medical Examination
Parental Consent
Wasserstein MP
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
November 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2018 List
URL Address
<a href="http://doi.org/10.1097/01.pcc.0000537367.72140.25" target="_blank" rel="noreferrer noopener">http://doi.org/10.1097/01.pcc.0000537367.72140.25</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Caring for dying children in the paediatric intensive care unit [PICU]
Publisher
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Pediatric Critical Care Medicine
Date
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2018
Subject
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Pediatric intensive care unit;Child;child parent relation;clinical article;conference abstract;critically ill patient;Female;human;intimacy;Male;medical examination;nurse;palliative therapy;practice guideline;Sweden;terminal care
Creator
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Mattsson J
Description
An account of the resource
Aims & Objectives: Caring for dying children is complex and requires coordination of all resources. In PICU the main objective is to save lives and ensure vital functions in critically ill children. However due to the child's critical and life threatening condition, there is always the possibility the child will not survive. The acuity and technical nature of the intensive care context can provide an obstacle in the transition to palliative care and furthermore conflict with the affected families' needs. The study aim was to enlightening caring as it is represented in caring situations of dying children at PICU. Methods An Interpretative Phenomenological design was applied. The data collection was performed at three PICU in Sweden at 2011 and 2016. Caring situations of a total of 18 children were observed, six cases were estimated as end of life care or life threatening conditions. Nurses and parents were interviewed in direct connection to the observation. Results findings showed that for nurses, it was a challenge to change perspective from curative to palliative care. Medical examinations and treatment was experienced to disturb the dying child thus causing unnecessary suffering. Parents found it difficult to leave their dying children even just for a moment and the space in PICU did not support closeness and parenting but rather separated the dying child from her/his family. Conclusions In conclusion, these findings illuminates the importance of guidelines and training in palliative care in PICU. Children and their family ought to have the best care possibly when affected by life-limiting or life-threatening illness.
Identifier
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<a href="http://doi.org/10.1097/01.pcc.0000537367.72140.25" target="_blank" rel="noreferrer noopener">10.1097/01.pcc.0000537367.72140.25</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Child
Child Parent Relation
Clinical Article
conference abstract
Critically Ill Patient
Female
Human
intimacy
Male
Mattsson J
Medical Examination
November 2018 List
Nurse
Palliative Therapy
Pediatric Critical Care Medicine
Pediatric Intensive Care Unit
Practice Guideline
Sweden
Terminal Care