1
40
32
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Title
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November 2021 List
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November 2021 List
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<a href="http://doi.org/10.1542/peds.2021-051379" target="_blank" rel="noreferrer noopener">http://doi.org/10.1542/peds.2021-051379</a>
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Educational Priorities for Providing End-of-Life Care: Parent Perspectives
Publisher
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Pediatrics
Date
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2021
Subject
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interpersonal & communication skills; Medical education; Palliative Medicine; Parent perspectives; Pediatric
Creator
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Arora G; Caliboso M; Baird J; Rusch R; Greenman J; Obregon D; Serwint JR
Description
An account of the resource
OBJECTIVES: Partnership with parents is a tenet of pediatric medicine; however, initiatives to include parents in education and research have been limited. Through focus groups, we included parents at the beginning of curriculum development by asking them to identify the priorities, existing supports, and opportunities for improvement in their child's end-of-life (EOL) care. METHODS: English and Spanish-speaking bereaved parents whose child had been cared for by the palliative care team and had died >18 months before the study initiation were invited to participate. In-person focus groups and a follow-up phone call were used to elicit opinions and capture a diversity of viewpoints. Themes were identified and clustered through an iterative analytic process. RESULTS: Twenty-seven parents of 17 children participated, with the total sample size determined by thematic saturation. Four themes were identified as important to parents in their child's EOL care: (1) honoring the role of the parent, (2) having confidence in the care team, (3) receiving gestures of love and caring, and (4) navigating logistic challenges. CONCLUSIONS: We asked parents to be partners in guiding priorities for health care education and professional development to improve pediatric EOL care. In addition to strengthening skills in communication, confidence in the team, and compassion, parents in this study identified a need for hospital staff to anticipate financial and social stressors and provide supportive resources more readily. Additionally, parents described clinical and nonclinical staff as providing support, suggesting that a multidisciplinary and interdisciplinary curriculum be developed to improve pediatric EOL care.
Identifier
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<a href="http://doi.org/10.1542/peds.2021-051379" target="_blank" rel="noreferrer noopener">10.1542/peds.2021-051379</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Arora G
Baird J
Caliboso M
Greenman J
interpersonal & communication skills
Medical Education
November 2021 List
Obregon D
Palliative Medicine
parent perspectives
Pediatric
Pediatrics
Rusch R
Serwint JR
-
Dublin Core
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Title
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March 2021 List
Text
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March 2021 List
URL Address
<a href="http://doi.org/10.1177/1049909121990826" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1049909121990826</a>
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Implementation of a Multi-Modal Palliative Care Curriculum for Pediatric Residents
Publisher
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American Journal of Hospice & Palliative Care
Date
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2021
Subject
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palliative care; resident education; medical education; curriculum
Creator
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Romanos-Sirakis E; Demissie S; Fornari A
Description
An account of the resource
OBJECTIVES: To evaluate the feasibility and efficacy of a new multi-modal pediatric palliative care curriculum. We sought to determine the effect on comfort in palliative care, knowledge, and change in behavior by utilizing these skills with patients, and determine which modalities were most effective for residents. STUDY DESIGN: 25 pediatric residents were exposed to the 4-part curriculum. The modalities utilized in this curriculum included didactics, role-play, videos, case-discussion, small group activities, simulation, poetry and reflection. RESULTS: The pediatric residents self-reported an increase in comfort and knowledge of the components of pediatric palliative care after this curriculum. In addition, 74% of residents were able to identify a patient experience in which a component of the palliative care curriculum was utilized directly in patient care. The effectiveness of techniques utilized in this multimodal curriculum varied; residents reported that the poetry and reflection components were less effective, as compared with the role-play, simulation and other active learning components. CONCLUSIONS: Implementation of a multi-modal palliative care curriculum was effective in increasing knowledge in palliative care, comfort in breaking bad news, and caring for patients with palliative care needs. This can be translated into a change in behavior to utilize these new skills in the care of various patients in pediatrics. Among the various techniques used to teach this curriculum, residents reported that the techniques that most incorporated active learning and were directly applicable to the professional role of the resident were rated most valuable. This curriculum was well received, feasible and effective for pediatric residents.
Identifier
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<a href="http://doi.org/10.1177/1049909121990826" target="_blank" rel="noreferrer noopener">10.1177/1049909121990826</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
American journal of hospice & palliative care
Curriculum
Demissie S
Fornari A
March 2021 List
Medical Education
Palliative Care
resident education
Romanos-Sirakis E
-
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December 2021 List
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December 2021 List
URL Address
<a href="http://doi.org/10.2147/amep.s334872" target="_blank" rel="noreferrer noopener">http://doi.org/10.2147/amep.s334872</a>
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Title
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Ongoing Value and Practice Improvement Outcomes from Pediatric Palliative Care Education: The Quality of Care Collaborative Australia
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Advances in Medical Education and Practice
Date
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2021
Subject
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education outcomes; evaluation; medical education; palliative care; pediatrics; practice improvements
Creator
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Slater PJ; Osborne CJ; Herbert AR
Description
An account of the resource
PURPOSE: Novice and experienced professionals who care for children with life limiting conditions throughout Australia were provided with pediatric palliative care (PPC) education through the Quality of Care Collaborative Australia (QuoCCA). Impact evaluation has shown this education to be beneficial. This study examines the longer term outcomes reported by the participants more than 4 months following education. METHODS: An online survey measuring quantitative and qualitative education outcomes was sent to all participants of QuoCCA 2 education throughout Australia, at least 4 months following their education. There were 152 respondents between February 2018 and June 2020. RESULTS: More than 4 months after the QuoCCA education, 98% of respondents rated it as extremely valuable or valuable and 78% of respondents rated it extremely or very helpful in improving clinical practice. Improvements in knowledge, skills or confidence were reported by 90% or more respondents in the areas of PPC referral, responding to psychosocial needs, the benefits of the PPC approach, PPC resources and communication skills. Between 84% and 89% of respondents reported improvements in advance care planning, assessment and intervention, responding to physical needs, supporting spiritual needs and supporting health professionals and self care. Providing bereavement care improved in 85% of responses. The most valuable aspects of the education, changes in practice and barriers to the implementation of learning were discussed. CONCLUSION: The interprofessional QuoCCA education in PPC continued to provide value and clinical practice improvements for the majority of respondents more than four months after the session. Respondents particularly mentioned improvements in awareness of the network of care, the practical management of patients and communication skills. Reflection on clinical practice, in a proactive clinical learning environment, enabled the translation of education into improvements to the quality of PPC.
Identifier
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<a href="http://doi.org/10.2147/amep.s334872" target="_blank" rel="noreferrer noopener">10.2147/amep.s334872</a>
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2021
Advances in Medical Education and Practice
December 2021 List
education outcomes
Evaluation
Herbert AR
Medical Education
Osborne CJ
Palliative Care
Pediatrics
practice improvements
Slater PJ
-
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Title
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January 2022 List
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January 2022 List
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<a href="http://doi.org/10.3390/children8110971" target="_blank" rel="noreferrer noopener">http://doi.org/10.3390/children8110971</a>
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A Week in the Life: Pediatric Palliative Care through the Eyes of a Medical Student
Publisher
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Children
Date
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2021
Subject
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reflection; pediatric palliative care; medical education; narrative medicine
Creator
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Williams E; Jarrell JA; Rubenstein J
Description
An account of the resource
To complete the curriculum, learners rotating through a pediatric palliative care service are asked to submit a piece of reflective writing. Here, we share an edited version of the narrative one student submitted, accompanied by a brief consideration of the numerous benefits of reflective writing for medical trainees (including improved communication and professionalism skills, as well as increased levels of empathy and comfort when facing complex or difficult situations). Additionally, we describe how brief personal narratives may serve to reduce common misconceptions and confusion by educating patients, families, and clinicians about the reality and the role of pediatric palliative care.
Identifier
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<a href="http://doi.org/10.3390/children8110971" target="_blank" rel="noreferrer noopener">10.3390/children8110971</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Children
January 2022 List
Jarrell JA
Medical Education
narrative medicine
Pediatric Palliative Care
Reflection
Rubenstein J
Williams E
-
Dublin Core
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Title
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February 2022 List
Text
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February 2022 List
URL Address
<a href="http://doi.org/10.3389/fped.2021.752971" target="_blank" rel="noreferrer noopener">http://doi.org/10.3389/fped.2021.752971</a>
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Implementation of Quality Indicators of Perinatal/Neonatal Palliative Care One-Year Following Formal Training
Publisher
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Frontiers in Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
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neonatal palliative care; perinatal palliative care; medical education; quality indicators; learning transfer
Creator
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Wool C; Parravicini E
Description
An account of the resource
Objective: The aim of this study was to measure implementation of quality indicators (QIs) of Perinatal/Neonatal Palliative Care (PNPC) as reported by participants following a one-year training course. Study Design: A cross-sectional survey mixed-method design was used to obtain data from an interdisciplinary team of professionals one year after attending a PNPC training course. A questionnaire with 32 QIs queried participants about self-reported implementation of PNPC and that of their colleagues. Descriptive and frequency data were analyzed to measure the implementation of PNPC QIs. Qualitative data were examined using content analysis. Results: Response rate was 34 of 76 (44.7%). Half of the QIs are implemented in clinical settings by course attendees more than 90% of the time, and 15 QIs are implemented between 70 and 89.9%. Colleagues within the same healthcare system applied palliative care practices less frequently than those who attended the training course. When asked if quality indicators were "always" implemented by colleagues, the average difference in scores was 36% lower. Qualitative analyses resulted in three themes that addressed changes in clinical practice, and four themes that summarized barriers in practice. Conclusion: There is high frequency of implementation of QIs by professionals who attended an evidence based PNPC training course. PNPC is implemented by the colleagues of attendees, but with less frequency. Attending evidence-based education increases clinicians' opportunities to translate quality PNPC care into clinical settings.
Identifier
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<a href="http://doi.org/10.3389/fped.2021.752971" target="_blank" rel="noreferrer noopener">10.3389/fped.2021.752971</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
February 2022 List
Frontiers in Pediatrics
learning transfer
Medical Education
Neonatal Palliative Care
Parravicini E
Perinatal Palliative Care
Quality Indicators
Wool C
-
Dublin Core
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Title
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February 2022 List
Text
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Citation List Month
February 2022 List
URL Address
<a href="http://doi.org/10.1089/pmr.2021.0011" target="_blank" rel="noreferrer noopener">http://doi.org/10.1089/pmr.2021.0011</a>
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Title
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Gaps in Palliative Care Education among Neonatology Fellowship Trainees
Publisher
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Palliative Medicine Reports
Date
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2021
Subject
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Nicu; residency; medical education; curriculum; training program
Creator
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Wraight CL; Eickhoff JC; McAdams RM
Description
An account of the resource
Background: To provide proper care for infants at risk for death, neonatologists need expertise in many areas of palliative care. Although neonatology training programs have implemented a wide variety of palliative care educational programs, the impact of these programs on trainees' skills and effective communication regarding end-of-life issues remains unclear. Objective: To determine whether neonatology fellowship programs are providing formal palliative care education and assess whether this education is effective at increasing fellows' self-reported comfort with these important skills. Methods: An anonymous survey was sent to program directors (PDs) and fellows of ACGME accredited neonatology fellowship programs in the United States. Using a 5-point Likert scale, participants were asked about the palliative care education they received, and their comfort level with several key aspects of palliative care. Results: Twenty-four (26%) PDs and 66 (33%) fellows completed the survey. Fourteen PDs (58%) reported including palliative care education in their formal fellowship curriculum, whereas only 20 (30%) responding fellows reported receiving palliative care education. Of the responding fellows, most (80%) reported being uncomfortable or only somewhat comfortable with all assessed areas of palliative care. Fellows who received formal education were more comfortable than those without it in leading goals of care conversations (p = 0.001), breaking bad news (p = 0.048), discussing change in code status (p = 0.029), and grief and bereavement (p = 0.031). Conclusions: Most fellows report being uncomfortable or only somewhat comfortable with essential areas of palliative care. Formal palliative care education improves fellows' self-reported comfort with important aspects of end-of-life care. To promote a well-rounded neonatology fellowship curriculum, inclusion of formal palliative care education is recommended.
Identifier
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<a href="http://doi.org/10.1089/pmr.2021.0011" target="_blank" rel="noreferrer noopener">10.1089/pmr.2021.0011</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Curriculum
Eickhoff JC
February 2022 List
McAdams RM
Medical Education
Nicu
Palliative Medicine Reports
residency
training program
Wraight CL
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
n/a
URL Address
<a href="http://doi.org/10.2174/1573396312666161230145417" target="_blank" rel="noreferrer">http://doi.org/10.2174/1573396312666161230145417</a>
Dublin Core
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Title
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Improving cancer care for children in the developing world: Challenges and strategies
Publisher
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Current Pediatric Reviews
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Child Care;childhood Cancer; Accreditation; Antineoplastic Agent; Awareness; Cancer Diagnosis; Cancer Recurrence; Cancer Registry; Cancer Research; Cancer Survival; Cancer Therapy; Clinical Effectiveness; Clinical Trial (topic); Cost Effectiveness Analysis; Country Economic Status; Cultural Factor; Delayed Diagnosis; Diagnostic Error; Family Therapy; Health Care Availability; Health Care Cost; Health Care Personnel; Human; Job Change; Medical Education; Medical Technology; Palliative Therapy; Patient Abandonment; Patient Referral; Poverty; Priority Journal; Program Sustainability; Review; Sepsis; Stratification; Toxicity
Creator
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Al Lamki Z
Description
An account of the resource
Cancer is a global health problem particularly in developing countries where the burden of cancer is ever increasing and claiming the lives of about 100,000 children under the age of 15 years every year. Majority of these occur in the Low and Middle Income Countries (LMICs) where 90% of world children live. Contributing factors to this trend is the reduction of communicable diseases and emergence of new infections, improvement of nutrition and socio-economic conditions, industrialization and urbanization. However, due to its complexity, childhood cancer is given the least priority by the governments' funding. The weak health systems, poor and late access to diagnosis and care, fewer numbers of trained health care professionals and lack of cancer drugs are amongst the many challenges faced. A major challenge for the future is extending the work to reach the many children who die without access to cancer treatment and palliation. Given the inequalities in the survival rates of children with cancer there is therefore an urgent need to close the gap between developed and developing countries. Strategies at individual, institutional, country, regional and global levels must be implemented to improve cancer survival and its effects on human suffering. These strategies are able to strengthen the health systems, improve care and research, increase awareness and coordinate training of professionals thus meeting the challenges. Financial support should be an integral part of the strategy as the cost of drugs is often a substantial barrier to treatment of cancer in poor countries. However, in resource-limited settings without specialized services, much can still be done to support and offer curative and palliative treatment. As have been shown for several cancers, life can be extended with low-tech treatment protocols, which are effective at the same time, decrease sepsis and toxicity. The concept of twinning with privileged nations is paramount to the success of any national cancer program. International partnership offers the opportunity to provide expertise, advice, support and transfer technology from established pediatric oncology unit. Their mission is to build capacity for cancer treatment and research with a vision of developing network of dedicated advocates. The LMIC teams must locally drive projects and volunteers and funding organizations can help to make progress possible. This will require a tremendous effort on the part of both high and low-middle-income countries, if we are all to work together to achieve this goal.
Identifier
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<a href="http://doi.org/10.2174/1573396312666161230145417" target="_blank" rel="noreferrer">10.2174/1573396312666161230145417</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Accreditation
Al Lamki Z
Antineoplastic Agent
Awareness
Cancer Diagnosis
Cancer Recurrence
Cancer Registry
Cancer Research
Cancer Survival
Cancer Therapy
Child Care
Childhood Cancer
Clinical Effectiveness
Clinical Trial (topic)
Cost Effectiveness Analysis
Country Economic Status
Cultural Factor
Current Pediatric Reviews
Delayed Diagnosis
Diagnostic Error
Family Therapy
Health Care Availability
Health Care Cost
Health Care Personnel
Human
Job Change
Medical Education
Medical Technology
Palliative Therapy
Patient Abandonment
Patient Referral
Poverty
Priority Journal
Program Sustainability
Review
Sepsis
Stratification
Toxicity
-
Dublin Core
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Title
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August 2020 List
Text
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Citation List Month
August 2020 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2020.06.005" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2020.06.005</a>
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Title
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Pediatric Chronic Critical Illness: Training teams to address the communication challenges of patients with repeated and prolonged hospitalizations
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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Chronic critical illness; Communication; medical education
Creator
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Boss R D; Hirschfeld R S; Silvana B; Emily J; Arnold R M
Description
An account of the resource
CONTEXT: Children with chronic critical illness (CCI) have repeated and prolonged hospitalizations. Discrete communication challenges characterize their inpatient care. OBJECTIVES: Develop, implement and evaluate a communication training for inpatient clinicians managing pediatric CCI. METHODS: A one-day communication training for interdisciplinary clinicians, incorporating didactic sessions and simulated family and interdisciplinary team meetings. RESULTS: Learners had an average of 11 years' clinical experience. 34% lacked prior communication training relevant to pediatric CCI. Mean baseline competence across communication skills was 2.6 (range 2.4-3.2), corresponding to less than "somewhat prepared"; after the training this increased to a mean of 4.0 (range 3.5-4.5), corresponding to "well prepared." Skills with greatest improvement included conducting a family meeting, delivering bad news, discussing stopping intensive care, and end of life communication. After 1 month, perceived competence was sustained for 7/10 skills; for remaining skills, perceived competence scores decreased by 0.1-0.2. 100% of learners would recommend the training to colleagues; 89% advocated it for all clinicians caring for children with CCI. CONCLUSION: Interdisciplinary communication training regarding long stay patients is feasible and valued by novice and seasoned clinicians. The novel integration of intra-team communication skills alongside team-family skills reflects the reality that the care of children with CCI challenges clinicians to communicate well with each other and with families. Teaching interdisciplinary teams to share communication skills has the potential to overcome reported limitations of existing inpatient discussions, which can be dominated by one or two physicians and lack contributions from diverse team members.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2020.06.005" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2020.06.005</a>
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2020
Arnold R M
August 2020 List
Boss R D
Chronic critical illness
Communication
Emily J
Hirschfeld R S
Journal of Pain and Symptom Management
Medical Education
Silvana B
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Title
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October 2023 List
Text
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Citation List Month
October List 2023
URL Address
<a href="http://doi.org/10.3390/children10081407" target="_blank" rel="noreferrer noopener"> http://doi.org/10.3390/children10081407</a>
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Title
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Butterflies and Ribbons: Supporting Families Experiencing Perinatal Loss in Multiple Gestation
Publisher
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Children (Basel)
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
palliative care; communication; neonatology; prematurity; nursing; Pregnancy; parental perspectives; medical education; twins; perinatal loss; Butterflies; multiple pregnancy; triplets
Creator
An entity primarily responsible for making the resource
Boutillier B; Embleton ND; Belanger S; Bigras-Mercier A; Larone Juneau A; Barrington KJ; Janvier A
Description
An account of the resource
Introduction: In neonatology, multiple pregnancies are common. Unfortunately, it is not rare for one baby to die. Communication with parents in these circumstances has been demonstrated to be sub-optimal. Methods: Two educational programs were evaluated with pre- and post-course surveys, questionnaires administered to participants, and audits. Results: In the online Butterfly project (UK; n = 734 participants), all participants reported that the training exceeded or met their expectations, 97% reported they learned new skills, and 48% had already applied them. Participants expressed gratitude in their open-ended answers: "I feel a lot more confident in supporting parents in this situation". In the Ribbon project (workshop for neonatal clinicians, Quebec; n = 242), 97% were satisfied with the training and reported feeling more comfortable caring for bereaved parents. Knowledge improved pre-post training. Audits revealed that 100% of cases were identified on the incubator and the baby's/babies' admission card, all changed rooms after the death of their co-twin/triplet, and all had the name of their co-twin/triplet on the discharge summary. All clinicians (55) knew what the ribbon symbol meant when asked during surprise audits at the bedside. Conclusion: Different educational strategies to optimize communication with families after the perinatal loss of a co-twin are appreciated and have a positive impact.
Identifier
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<a href="http://doi.org/10.3390/children10081407" target="_blank" rel="noreferrer noopener">10.3390/children10081407</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Barrington KJ
Bélanger S
Bigras-Mercier A
Boutillier B
Butterflies
Children (Basel)
Communication
Embleton ND
Janvier A
Larone Juneau A
Medical Education
multiple pregnancy
Neonatology
Nursing
October List 2047
Palliative Care
Parental Perspectives
Perinatal Loss
Pregnancy
Prematurity
triplets
Twins
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2017 List
Dublin Core
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Title
A name given to the resource
Training Pediatric Fellows In Palliative Care: A Comparison Of Simulation-based Training And Didactic Education
Publisher
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Pediatric Blood And Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Curriculum; Palliative Therapy; Simulation; Cardiology; Child; Clinical Trial; Comfort; Communication Skill; Controlled Clinical Trial; Controlled Study; Family; Female; Hematology; Human; Human Versus Animal Comparison; Male; Medical Education; Neonatology; Nonhuman; Oncology; Physician; Pilot Study; Resuscitation; Single Blind Procedure
Creator
An entity primarily responsible for making the resource
Brock K; Cohen H; Sourkes B; Good J; Halamek L
Description
An account of the resource
Background: Although palliative care (PC) communication skills can be learned through trial and error, pediatric fellows have few opportunities to practice communication, and learning by doing may be harmful for families. Despite these issues and recommendations from professional societies, most fellowship programs either lack formal training or provide only lecture-based PC education. Simulation-based training has been successful in other high-stakes communication encounters, and has the potential to change PC education. Objectives: In this pilot study,we assessed: (1) the relative effectiveness of simulation-based vs didactic education, (2) communication skill retention, and (3) effect on PC consultation rates. Design/Method: Thirty-five pediatric fellows in hematology/oncology, cardiology, critical care, and neonatology at two institutions enrolled: 17 in the simulation-based group (single institution) and 18 in the didactic education group (second institution). Simulation-based subjects participated in a 2-day program over 3 months (three simulations and videotaped PC panel) where scenarios focused on: introducing PC, discussing goals of care and resuscitation preferences, and mediating disagreement between the family and medical team. Didactic-education subjects received written education designed to be similar in content and time. (1) Fellow selfassessments in PC comfort, knowledge, and adequacy of medical education, were measured at baseline, post-intervention and three months; mean between-group differences for each outcome measure were assessed. (2) Two blinded external reviewers rated each simulation-group fellow's encounters on nine communication domains. Within-group changes over time were assessed. (3) The simulation-based site's PC consultation rate was compared in the six months pre- and post-intervention. Results: Compared to the didactic group, subjects in the simulation-based group improved in PC comfort/ self-efficacy (16.4 vs 6.1, DELTA10.3, p = 0.003) and perceived adequacy of medical education (7.4 vs 0.4, DELTA7.1, p<0.001). Both groups had improved PC knowledge; this was not different between groups (1.1 vs 1.8, DELTA-0.7, p = 0.20). Reviewers noted non-sustained improvement in four domains: relationship building (p = 0.01), opening discussion (p = 0.03), gathering information (p = 0.01), and communicating accurate information (p = 0.04). PC consultation rate increased 64%, an improvement when normalized to average daily census (p = 0.04). Simulation-group fellows more strongly agreed that they would use the education in practice (p = 0.04), and recommended that educational methodology (p = 0.004). Conclusion: Well-trained physicians are necessary to providing high quality PC. This simulation-based curriculum is an effective method for improving PC comfort, education, and consults, although it does not lead to sustained improvements in communication competence or knowledge. More frequent, deliberate practice is likely needed to lead to sustained improvements in communication competence.
Identifier
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10.1002/pbc.26591
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Brock K
Cardiology
Child
Clinical Trial
Cohen H
Comfort
Communication Skill
Controlled Clinical Trial
Controlled Study
Curriculum
Family
Female
Good J
Halamek L
Hematology
Human
Human Versus Animal Comparison
Male
Medical Education
Neonatology
Nonhuman
October 2017 List
Oncology
Palliative Therapy
Pediatric Blood and Cancer
Physician
Pilot Study
Resuscitation
Simulation
Single Blind Procedure
Sourkes B
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2017 List
URL Address
http://www.ncbi.nlm.nih.gov/pubmed/28436742
Dublin Core
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Title
A name given to the resource
Training Pediatric Fellows In Palliative Care: A Pilot Comparison Of Simulation Training And Didactic Education
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Communication; End-of-life; Medical Education; Palliative Care; Pediatric Fellows; Pediatrics; Simulation
Creator
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Brock Katharine E; Cohen Harvey J; Sourkes Barbara M; Good Julie J; Halamek Louis P
Description
An account of the resource
BACKGROUND: Pediatric fellows receive little palliative care (PC) education and have few opportunities to practice communication skills. OBJECTIVE: In this pilot study, we assessed (1) the relative effectiveness of simulation-based versus didactic education, (2) communication skill retention, and (3) effect on PC consultation rates. DESIGN: Thirty-five pediatric fellows in cardiology, critical care, hematology/oncology, and neonatology at two institutions enrolled: 17 in the intervention (simulation-based) group (single institution) and 18 in the control (didactic education) group (second institution). Intervention group participants participated in a two-day program over three months (three simulations and videotaped PC panel). Control group participants received written education designed to be similar in content and time. MEASUREMENTS: (1) Self-assessment questionnaires were completed at baseline, post-intervention and three months; mean between-group differences for each outcome measure were assessed. (2) External reviewers rated simulation-group encounters on nine communication domains. Within-group changes over time were assessed. (3) The simulation-based site's PC consultations were compared in the six months pre- and post-intervention. RESULTS: Compared to the control group, participants in the intervention group improved in self-efficacy (p = 0.003) and perceived adequacy of medical education (p < 0.001), but not knowledge (p = 0.20). Reviewers noted nonsustained improvement in four domains: relationship building (p = 0.01), opening discussion (p = 0.03), gathering information (p = 0.01), and communicating accurate information (p = 0.04). PC consultation rate increased 64%, an improvement when normalized to average daily census (p = 0.04). CONCLUSIONS: This simulation-based curriculum is an effective method for improving PC comfort, education, and consults. More frequent practice is likely needed to lead to sustained improvements in communication competence.
Identifier
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10.1089/jpm.2016.0556
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Brock Katharine E
Cohen Harvey J
Communication
end-of-life
Good Julie J
Halamek Louis P
Journal of Palliative Medicine
June 2017 List
Medical Education
Palliative Care
pediatric fellows
Pediatrics
Simulation
Sourkes Barbara M
-
Dublin Core
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Title
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October 2018 List
Text
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Citation List Month
September 2018 List
URL Address
<a href="http://doi.org/10.1016/j.chc.2018.05.011" target="_blank" rel="noreferrer noopener">http://doi.o rg/10.1016/j.chc.2018.05.011</a>
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Title
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Making Meaning After the Death of a Child
Publisher
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Child and Adolescent Psychiatric Clinics of North America
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
bereavement; death; medical education; palliative therapy; storytelling; voice; article; child; controlled study; empathy; female; human; mother; narrative; skill; student; videorecording
Creator
An entity primarily responsible for making the resource
Clancy S; Lord B
Description
An account of the resource
Two bereaved mothers recount how they made meaning after the deaths of their children, recounting how opportunities to tell their stories in medical settings enabled them to construct narratives that promoted resilience and a sense of control. Pediatric palliative care can be conceived as opening space for patients and guardians to tell their stories outside of the specifics of illness, so medical teams can work to accommodate families' values and goals, thereby initiating the process of meaning making. Viewing videos of parent stories enables medical trainees to enhance their communications skills, empathy, and compassion.Copyright © 2018 Elsevier Inc.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.chc.2018.05.011" target="_blank" rel="noreferrer noopener">10.1016/j.chc.2018.05.011</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Article
Bereavement
Child
Child And Adolescent Psychiatric Clinics Of North America
Clancy S
Controlled Study
Death
Empathy
Female
Human
Lord B
Medical Education
Mother
Narrative
Palliative Therapy
September 2018 List
Skill
Storytelling
Student
videorecording
Voice
-
Dublin Core
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Title
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October 2023 List
Text
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Citation List Month
October List 2023
URL Address
<a href="http://doi.org/10.1089/jpm.2023.0072" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1089/jpm.2023.0072</a>
Dublin Core
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Title
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Evaluating a Pediatric Palliative Care Elective Rotation Through Prompted Reflective Writing and Aligning with Competencies
Publisher
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Journal of palliative medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
fatigue; Palliative Care; child; article; human; United States; population health; palliative therapy; hospice; resident; clinical evaluation; physical examination; intestine obstruction; medical education; Rotation; learning; writing; accreditation; professionalism; rotation; inductive reasoning
Creator
An entity primarily responsible for making the resource
Crawford C; Arevalo Soriano T; Lu S; Rubenstein J; Jarrell JA
Description
An account of the resource
Background: Hospice and palliative medicine is important in the education of pediatric residents. Little is known about if and how residents' learnings during a pediatric palliative care elective fulfill core competencies and Pediatrics subcompetencies as set forth by the Accreditation Council for Graduate Medical Education (ACGME) and published subspecialty competencies for residents in pediatric hospice and palliative medicine (pHPM). Objective(s): To evaluate what residents are learning on a four-week pediatric palliative care elective rotation at a single institution and how these learnings fulfill ACGME and pHPM competencies. Setting/Subjects: Prompted, written reflections were collected from residents completing a pediatric palliative care rotation at a large, urban academic center in the United States between academic years 2016-2017 and 2020-2021. Measurements: A qualitative, inductive reasoning approach was used to analyze reflections for emergent themes and codes. A deductive approach was used to map resulting codes to ACGME core competencies, Pediatric subcompetencies, and pHPM competencies. Result(s): Twenty-five resident reflections were collected. Inductive analysis revealed three primary themes and 102 codes. These codes were mapped to all six ACGME core competencies and mapped to most Pediatric subcompetencies with the exception of performing a physical examination, organizing and prioritizing patients, diagnostic evaluation, and community and population health. Codes mapped to most pHPM competencies with the exception of two symptom-based competencies, malignant bowel obstruction and severe fatigue. Conclusion(s): Residents' written reflections following a pediatric palliative care elective rotation demonstrated robust learnings that fulfill many core, specialty, and subspecialty competencies, particularly those that relate to patient- and family-centered care, communication, professionalism, and systems-based practice.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2023.0072" target="_blank" rel="noreferrer noopener">10.1089/jpm.2023.0072</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Accreditation
Arevalo Soriano T
Article
Child
clinical evaluation
Crawford C
Fatigue
Hospice
Human
inductive reasoning
Intestine Obstruction
Jarrell JA
Journal of Palliative Medicine
Learning
Lu S
Medical Education
October List 2050
Palliative Care
Palliative Therapy
physical examination
Population Health
professionalism
Resident
Rotation
Rubenstein J
United States
writing
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
April 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2019 List
URL Address
<a href="http://doi.org/10.1016/j.jpeds.2018.04.004" target="_blank" rel="noreferrer noopener">http://doi.o rg/10.1016/j.jpeds.2018.04.004</a>
Dublin Core
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Title
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Assessing Ethics Knowledge: Development of a Test of Ethics Knowledge in Neonatology
Publisher
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Journal of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Decision Making; Male; Surveys and Questionnaires; Humans; Adult; Female; medical education; Internship and Residency; medical ethics; assessment; milestones; professionalism; Ethics Medical/education; Neonatology/education; Psychometrics/education
Creator
An entity primarily responsible for making the resource
Cummings CL; Geis GM; Feldman HA; Berson ER; Kesselheim J C
Description
An account of the resource
OBJECTIVE: To develop and validate the Test of Ethics Knowledge in Neonatology (TEK-Neo) with good internal consistency reliability, item performance, and construct validity that reliably assesses interprofessional staff and trainee knowledge of neonatal ethics. STUDY DESIGN: We adapted a published test of ethics knowledge for use in neonatology. The novel instrument had 46 true/false questions distributed among 7 domains of neonatal ethics: ethical principles, professionalism, genetic testing, beginning of life/viability, end of life, informed permission/decision making, and research ethics. Content and correct answers were derived from published statements and guidelines. We administered the voluntary, anonymous test via e-mailed link to 103 participants, including medical students, neonatology fellows, neonatologists, neonatology nurses, and pediatric ethicists. After item reduction, we examined psychometric properties of the resulting 36-item test and assessed overall sample performance. RESULTS: The overall response rate was 27% (103 of 380). The test demonstrated good internal reliability (Cronbach alpha = 0.66), with a mean score of 28.5 +/- 3.4 out of the maximum 36. Participants with formal ethics training performed better than those without (30.3 +/- 2.9 vs 28.1 +/- 3.5; P = .01). Performance improved significantly with higher levels of medical/ethical training among the 5 groups: medical students, 25.9 +/- 3.7; neonatal nurses/practitioners, 27.7 +/- 2.7; neonatologists, 28.8 +/- 3.7; neonatology fellows, 29.8 +/- 2.9; and clinical ethicists, 33.0 +/- 1.9 (P < .0001). CONCLUSIONS: The TEK-Neo reliably assesses knowledge of neonatal ethics among interprofessional staff and trainees in neonatology. This novel tool discriminates between learners with different levels of expertise and can be used interprofessionally to assess individual and group performance, track milestone progression, and address curricular gaps in neonatal ethics.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpeds.2018.04.004" target="_blank" rel="noreferrer noopener">10.1016/j.jpeds.2018.04.004</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Adult
April 2019 List
Assessment
Berson ER
Cummings CL
Decision Making
Ethics Medical/education
Feldman HA
Female
Geis GM
Humans
Internship And Residency
Journal of Pediatrics
Kesselheim J C
Male
Medical Education
Medical Ethics
milestones
Neonatology/education
professionalism
Psychometrics/education
Surveys And Questionnaires
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
July 2016 List
Dublin Core
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Title
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Palliative Care In Undergraduate Medical Education—how Far Have We Come?
Publisher
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American Journal Of Hospice And Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Adelaide; Palliative And Supportive Care; Australia And New Zealand; Professional Education; Australia; Medical Education
Palliative Care; Undergraduate Medical Education; Medical School; End-of-life Care
Creator
An entity primarily responsible for making the resource
Danielle Fitzpatrick; Rebecca Heah; Simon Patten; Helena Ward
Description
An account of the resource
Purpose: There is an increasing demand for quality palliative care teaching within undergraduate medical education. Studies suggest that many junior doctors feel underprepared to perform end-of-life care. Previous systematic reviews on palliative care teaching within medical schools have identified significant variability and lack of consistency in teaching. This review aims to update the literature on the current status of palliative care teaching to undergraduates within medical schools. Method: A systematic review was undertaken on articles published from December 2001 to November 2015 on palliative care teaching for undergraduate medical students. In all, 650 abstract citations were obtained, of which 126 were relevant to the research questions. Thematic analysis was performed on remaining articles according to whether they discussed content and/or methodology of palliative care education, and data collated. Results: There is greater consistency in the content being delivered as part of end-of-life care education within medical schools. The most frequently taught topics include attitudes to death and dying, communication skills, and pain management. Pediatric care and religious/cultural issues are less frequently addressed. Teaching institutions are also utilising a broader range of teaching modalities. Conclusion: There is significant progress in palliative care education within medical schools. Ongoing challenges relate to correlating our current practice in medical education to professional recommendations and the expressed needs of junior doctors to practice competent end-of-life care.
Identifier
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10.1177/1049909116659737
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adelaide
American Journal of Hospice and Palliative Medicine
Australia
Australia And New Zealand
Danielle Fitzpatrick
End-of-life Care
Helena Ward
July 2016 List
Medical Education
Medical School
Palliative And Supportive Care
Palliative Care
Professional Education
Rebecca Heah
Simon Patten
Undergraduate Medical Education
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
August 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August List 2023
URL Address
<a href="http://doi.org/10.1017/S1478951523000500" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1017/S1478951523000500</a>
Dublin Core
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Title
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The Pediatric Serious Illness Conversation Program: Understanding challenges and experiences for clinicians after advance care planning training
Publisher
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Palliative and Supportive Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
child; article; human; neonatology; palliative therapy; advance care planning; awareness; physician; medical education; comfort; social worker; skill; tertiary care center; conversation; thematic analysis; nurse; hospice care; Advance Care Planning
Creator
An entity primarily responsible for making the resource
Doherty M; Gujral P; Frenette M; Lusney N; van Breemen C
Description
An account of the resource
OBJECTIVES: To explore experiences of pediatric clinicians participating in a serious illness communication program (SICP) for advance care planning (ACP), examining how the SICP supports clinicians to improve their communication and the challenges of implementing new communication tools into clinical practice. <br/>METHOD(S): A qualitative description study using individual interviews with a diverse group of pediatric clinicians who participated in 2.5-hour SICP training workshops at pediatric tertiary hospitals. Discussions were transcribed, coded, and arranged into overarching themes. Thematic analysis was conducted using interpretive description methodology. <br/>RESULT(S): Fourteen clinicians from 2 Canadian pediatric tertiary hospital settings were interviewed, including nurses (36%), physicians (36%), and social workers (29%), from the fields of neonatology (36%), palliative care (29%), oncology (21%), and other pediatric specialties (14%). Key themes included specific benefits of SICP, with subthemes of connecting with families, increased confidence in ACP discussions, providing tools to improve communication, and enhanced self-awareness and self-reflection. A second theme of perceived challenges emerged, which included subthemes of not having the conversation guide readily accessible, divergent team communication practices, and particular features of the clinical environment which limited the possibility of engaging in ACP discussions with parents. SIGNIFICANCE OF RESULTS: A structured program to enhance serious illness communication supports clinicians to develop skills and tools to increase their confidence and comfort in conducting conversations about end-of-life issues. Addressing challenges of adopting the newly learned communication practices, by providing access to digital SICP tools and conducting SICP training for clinical teams may further support clinicians to engage in ACP.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1017/S1478951523000500" target="_blank" rel="noreferrer noopener">10.1017/S1478951523000500</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Advance Care Planning
Article
August List 2030
Awareness
Child
Comfort
Conversation
Doherty M
Frenette M
Gujral P
Hospice Care
Human
Lusney N
Medical Education
Neonatology
Nurse
Palliative And Supportive Care
Palliative Therapy
Physician
Skill
Social Worker
tertiary care center
Thematic Analysis
van Breemen C
-
Dublin Core
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Title
A name given to the resource
2021 Special Edition 1 - Low Resource Settings
Text
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Citation List Month
2021 Special Edition 1 - Low Resource Settings
URL Address
<a href="http://doi.org/10.1177/2333794x211043061" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1177/2333794x211043061</a>
Dublin Core
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Title
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Exploring Health Professionals' Experiences With a Virtual Learning and Mentoring Program (Project ECHO) on Pediatric Palliative Care in South Asia
Publisher
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Global Pediatric Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
palliative care; hospice care; children; medical education; distance learning
Creator
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Doherty M; Modanloo S; Evans E; Rowe J; Newhook D; Palat G; Archibald D
Description
An account of the resource
Project ECHO (Extension of Community Healthcare Outcomes) is an innovative model of online education which has been proposed to enhance access to palliative care in resource-limited settings. There is limited literature describing how health care providers in low-and middle-income countries benefit from and learn from this type of training. This qualitative description study explores the learning experiences of participants in a Project ECHO program on pediatric palliative care in South Asia through focus group discussions. Discussions were transcribed, coded, independently verified, and arranged into overarching themes. We identified learning themes including the importance of creating a supportive learning community; the opportunity to share ideas and experiences; gaining knowledge and skills, and access to additional learning materials. Designing future programs to ensure a supportive and interactive learning community with attention cultural challenges may enhance learning from future Project ECHO programs.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/2333794x211043061" target="_blank" rel="noreferrer noopener">10.1177/2333794x211043061</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
2021 Special Edition 1 - Low Resource Settings
Archibald D
Children
distance learning
Doherty M
Evans E
Global Pediatric Health
Hospice Care
Medical Education
Modanloo S
Newhook D
Palat G
Palliative Care
Rowe J
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2016 List
Dublin Core
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Title
A name given to the resource
Pocket Reference Card Improves Pediatric Resident Comfort In Caring For Children At End Of Life
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Quality; Barriers; Perspectives; Palliative Care; Providers; Pain Management; Medicine; National-survey; Education; Health Care Sciences & Services
Medical Education; Pediatric Palliative Care; Resident education
Creator
An entity primarily responsible for making the resource
Emily M Balkin; Katherine Ort; Robert Goldsby; Jessica Duvall; Cynthia D Kim
Description
An account of the resource
Background: Studies have shown that pediatricians in all stages of training are uncomfortable managing patients at end of life. Our goal was to create and test a portable reference card to improve pediatric resident education in comprehensive care for children nearing end of life.
Methods: We evaluated the impact of the Pediatric End-of-Life Care Management Reference Card on residents' perceived comfort and knowledge through pre- and post-intervention surveys. The preintervention questionnaires and pocket cards were distributed to all first- and second-year residents, and then a follow-up survey was provided six months later. Based on Likert scales, questions focused on self-reported understanding of palliative care principles and knowledge regarding and comfort in performing end-of-life symptom management.
Results: Twenty-six pediatric residents completed pre- and post-intervention surveys. Following receipt of the reference card, no significant changes were noted consistently across all groups of residents. The majority of improvements were noted when comparing second to third year residents, including knowledge and comfort related to pain management, comfort in managing secretions and nausea, and documentation following death. The first to second year residents demonstrated improvement in knowing what language to use to tell a family that their child has died.
Conclusion: This study demonstrates that a portable reference card may be a convenient, simple, and useful component of education for pediatric residents in end-of-life care management. This reference card is a foundation from which to develop a standardized educational tool. Additional research is required to assess the impact of this type of intervention in pediatric palliative care education.
Identifier
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doi:10.1089/jpm.2016.0247
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Barriers
Cynthia D Kim
Education
Emily M Balkin
Health Care Sciences & Services
Jessica Duvall
Journal of Palliative Medicine
Katherine Ort
Medical Education
Medicine
National-survey
October 2016 List
Pain Management
Palliative Care
Pediatric Palliative Care
Perspectives
Providers
Quality
resident education
Robert Goldsby
-
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2023 Special Edition 5 - Low Resource Setting List
Text
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Citation List Month
2023 SE5 - Low Resource Setting
URL Address
<a href="http://doi.org/10.1177/10499091221149153" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1177/10499091221149153</a>
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Title
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Listening to the Residents: The Perception of Pediatric Palliative Care Education in a Residency Program in Brazil
Publisher
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American Journal of Hospice and Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
palliative care; pediatrics; child health; Brazil; Internship and Residency; medical education; comprehensive health care; medical residency
Creator
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Fiuza M; Silva Junior G
Description
An account of the resource
Background: In Brazil, a relevant portion and children suffer without receiving adequate control of their symptoms. Failures in pediatrician training may contribute to this problem. Objective: The goal was to characterize the educational failures perceived by pediatric residents for pediatric palliative care throughout their training. Methods: A cross-sectional study was carried out, with the application of the Pediatric Palliative Care Questionnaire (QCPP) to residents of three pediatrics and specialties of public limits at the Escola de Saúde Pública do Estado do Ceará (ESP-CE), Brazil. Results: The response rate was 68 out of 123 residents (55%). It was reported that they did not consider the specialty as patient care or death. He also feels comfortable explaining the physiological process of dying to his family. The time devoted to CPP teaching, as well as medical residency, was considered reduced. For those who attended a subspecialty, the number they signaled was "0 hours" at 82.40%. Conclusion: It can be said that the main flaws in the teaching-learning process of pediatric residents were the number of hours of training in teaching, communication skills training (through participation in conferences) and guidance on the practice of teaching suspension of invasive measures. It was observed that less time reserved for this learning is related to lesser knowledge and greater barriers to the use of palliative care. Those who declared themselves able to take care of children with life-organizing conditions received some teaching in CPP.
Identifier
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<a href="http://doi.org/10.1177/10499091221149153" target="_blank" rel="noreferrer noopener">10.1177/10499091221149153</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
2023 SE5 - Low Resource Setting
American Journal Of Hospice And Palliative Care
Brazil
Child Health
Comprehensive Health Care
Fiuza M
Internship And Residency
Medical Education
medical residency
Palliative Care
Pediatrics
Silva Junior G
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2017 List
URL Address
<a></a> <a href="http://doi.org/10.1177/1049909115617140" target="_blank" rel="noreferrer">http://doi.org/10.1177/1049909115617140</a>
Notes
<p>Using Smart Source Parsing<br />( (pp Date of Publication: 01 Apr 2017</p>
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Title
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Discussing Serious News
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The American Journal Of Hospice & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Education; Interpersonal Communication; Procedures; Psychology; Adult; Bereavement; Doctor Patient Relation; Emotion; Empathy; Female; Hospital; Human; Male; Medical Education; Palliative Therapy; Parent; Pediatrics
Creator
An entity primarily responsible for making the resource
Flint H; Meyer M; Hossain M; Klein M
Description
An account of the resource
AIM: The ability to communicate serious news to patients and families in a caring and compassionate way is a critical skill for physicians. This study explores the impact of a novel communication skills workshop that included bereaved parents in role play on pediatric residents' confidence to communicate serious news. METHODS: Following the workshop, pediatric residents were surveyed to assess their perceived efficacy of the educational intervention. The survey included anchored response and open-ended questions to yield qualitative and quantitative results. RESULTS: After completing the workshop, residents' confidence in discussing goals, managing emotions, and expressing empathy all increased significantly. Residents reported that the inclusion of bereaved parents was beneficial since it made the experience more realistic. In addition, they believed their ability to communicate with patients and families had improved. CONCLUSIONS: Including bereaved parents in this communication skills workshop improved the residents' confidence in discussing serious topics and enhanced the reality of the experience.
Identifier
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<a></a> <a href="http://doi.org/10.1177/1049909115617140" target="_blank" rel="noreferrer">10.1177/1049909115617140</a>
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2017
Adult
Bereavement
December 2017 List
Doctor Patient Relation
Education
Emotion
Empathy
Female
Flint H
Hospital
Hossain M
Human
Interpersonal Communication
Klein M
Male
Medical Education
Meyer M
Palliative Therapy
Parent
Pediatrics
Procedures
Psychology
The American Journal of Hospice & Palliative Care
-
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Title
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October 2023 List
Text
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Citation List Month
October List 2023
URL Address
<a href="http://doi.org/10.1016/j.ssmqr.2023.100324" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.ssmqr.2023.100324</a>
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"The medicine is the easy part": Pediatric physicians' emotional labor in end-of-life care
Publisher
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SSM - Qualitative Research in Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Terminal Care; child; terminal care; article; female; human; male; physician; clinical article; pediatrician; burnout; interview; wellbeing; university hospital; medical education; responsibility; work environment; drawing; seashore; emotional support; buffer
Creator
An entity primarily responsible for making the resource
Gengler AM
Description
An account of the resource
Physicians who care for children with life-threatening conditions are uniquely positioned to support families through the dying phase when treatment efforts have failed. Taking on this role for families requires a great deal of time and strategic emotional labor. Drawing on in-depth interviews with 12 physicians across two different children's hospitals on the east coast, I find that these physicians conceptualize this work as a fundamental responsibility to the children and families in their care despite believing that their formal medical training fails to prepare them for this component of their jobs. These physicians deliberately laid groundwork for the potential that children may die from their earliest interactions with patients and worked to shift families away from continued medical intervention when they believed such efforts to be futile. They described this work as deeply meaningful and rewarding, but potentially emotionally overwhelming. These physicians felt duty-bound to address what they perceived as a deficit in medical training by intentionally modeling emotionally intense exchanges with families for the next generation of practitioners. Though these dual commitments demanded extensive and potentially exhausting emotional labor, this particular group of physicians was able to use the structural features of their faculty positions in academic medical centers to buffer against potential burnout, maintain their emotional capacity at work and home, and protect their own well-being. My analysis shows that when physicians inhabit structurally favorable working conditions and conceptualize their jobs in ways that center emotional support for patients they may use these resources to work to mitigate disparities in care and take pride in their ability to provide sustained and substantive emotional support at the end of life.Copyright © 2023
Identifier
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<a href="http://doi.org/10.1016/j.ssmqr.2023.100324" target="_blank" rel="noreferrer noopener">10.1016/j.ssmqr.2023.100324</a>
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2023
Article
buffer
Burnout
Child
Clinical Article
Drawing
emotional support
Female
Gengler AM
Human
Interview
Male
Medical Education
October List 2042
Pediatrician
Physician
responsibility
seashore
SSM - Qualitative Research in Health
Terminal Care
University Hospital
Wellbeing
work environment
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.jcrc.2008.03.035" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jcrc.2008.03.035</a>
<a href="http://www.sciencedirect.com/science/article/pii/S0883944108001007" target="_blank" rel="noreferrer">http://www.sciencedirect.com/science/article/pii/S0883944108001007</a>
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Title
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Documentation of code status and discussion of goals of care in gravely ill hospitalized patients
Publisher
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Journal Of Critical Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
end of life; Code status; Goals of care; Medical education
Creator
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Holley A; Kravet SJ; Cordts G
Description
An account of the resource
Background Timely discussions about goals of care in critically ill patients have been shown to be important. Methods We conducted a retrospective chart review over 2 years (2003-2004) of patients admitted to our medical service who were classified as “expected to die.” Charts were evaluated for do-not-resuscitate (DNR) documentation and discussions of goals of care. Detailed chart reviews for demographic information, cause of death, site of death, length of stay, and duration of resuscitation attempt were performed. Results Of 497 charts identified, 434 (87.3%) had a DNR on file at the time of death. After exclusion of patients who died in less than 24 hours, 18 no-DNR charts remained. Seven noted a decision to continue aggressive care and 11 had no code status discussion documented. Younger patients and patients with cardiovascular disease were less likely to have a DNR. Resuscitation times were longer in the no-discussion group. All patients who died without a DNR died in the intensive care unit. Seventy-six percent of discussions were done by medicine housestaff. Conclusions Although the overall rate of DNR documentation was high, several trends emerged. Medicine housestaff in the intensive care unit would be a logical group to target for an educational intervention to address these discrepancies.
2009-06
Identifier
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<a href="http://doi.org/10.1016/j.jcrc.2008.03.035" target="_blank" rel="noreferrer">10.1016/j.jcrc.2008.03.035</a>
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Type
The nature or genre of the resource
Journal Article
2009
Backlog
Code status
Cordts G
End Of Life
Goals Of Care
Holley A
Journal Article
Journal of Critical Care
Kravet SJ
Medical Education
-
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Title
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February 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2019 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2018.10.042" target="_blank" rel="noreferrer noopener"> http://doi.o
rg/10.1016/j.jpainsymman.2018.10.042</a>
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Title
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Exploring Resident Physicians' Experiences Practicing in Pediatric Palliative Care: A Hermeneutic Method of Inquiry
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
death; grief; semi structured interview; pediatrics; palliative therapy; student; personal experience; resident; medical education; data analysis; genetic transcription; conference abstract; human; child; controlled study; perception; guilt; qualitative research; phenomenology; chronic patient; rotation
Creator
An entity primarily responsible for making the resource
Johnson A; Siden H; Charles G
Description
An account of the resource
Objectives: The experiences of medical residents during training in pediatric palliative care has recently become an area of focus within medical education literature. Residents' medical knowledge, skill development, and comfort in clinical practice in palliative care have all been investigated within recent studies. However, the current body of literature in this area is limited and under-developed as it has neglected the human experience of caring for children with life-limiting diseases. The primary objective of this study is to widen the understanding of pediatric residents who have completed training in pediatric palliative care.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2018.10.042" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2018.10.042</a>
2018
Charles G
Child
Chronic Patient
conference abstract
Controlled Study
Data Analysis
Death
February 2019 List
genetic transcription
Grief
Guilt
Human
Johnson A
Journal of Pain and Symptom Management
Medical Education
Palliative Therapy
Pediatrics
Perception
Personal Experience
Phenomenology
Qualitative Research
Resident
Rotation
Semi Structured Interview
Siden H
Student
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2016 List
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Title
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Palliative Care Education In Emergency Medicine Residency Training: A Survey Of Program Directors, Associate Program Directors, And Assistant Program Directors.
Publisher
An entity responsible for making the resource available
Journal Of Pain And Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Medical Education; Emergency Medicine; Palliative Care; Residency Training
Creator
An entity primarily responsible for making the resource
Kraus CK; Greenberg M; Ray DE; Dy SM
Description
An account of the resource
CONTEXT:
Emergency medicine (EM) residents perceive palliative care (PC) skills as important and want training, yet there is a general lack of formal PC training in EM residency programs. A clearer definition of the PC educational needs of EM trainees is a research priority.
OBJECTIVES:
To assess PC competency education in EM residency programs.
METHODS:
This was a mixed-mode survey of residency program directors, associate program directors, and assistant program directors at accredited EM residency programs, evaluating four educational domains: 1) importance of specific competencies for senior EM residents, 2) senior resident skills in PC competencies, 3) effectiveness of educational methods, and 4) barriers to training.
RESULTS:
Response rate was 50% from more than 100 residency programs. Most respondents (64%) identified PC competencies as important for residents to learn, and 59% reported that they teach7 PC skills in their residency program. In Domains 1 and 2, crucial conversations, management of pain, and management of the imminently dying had the highest scores for importance and residents' skill. In Domain 3, bedside teaching, mentoring from hospice and palliative medicine faculty, and case-based simulation were the most effective educational methods. In Domain 4, lack of PC expertise among faculty and lack of interest by faculty and residents were the greatest barriers. There were differences between competency importance and senior resident skill level for management of the dying child, withdrawal/withholding of nonbeneficial interventions, and ethical/legal issues.
CONCLUSION:
There are specific barriers and opportunities for PC competency training and gaps in resident skill level. Specifically, there are discrepancies in competency importance and residency skill in the management of the dying child, nonbeneficial interventions, and ethical and legal issues that could be a focus for educational interventions in PC competency training in EM residencies.
Identifier
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DOI: 10.1016/j.jpainsymman.2015.12.334
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Dy SM
Emergency Medicine
Greenberg M
Journal of Pain and Symptom Management
Kraus CK
March 2016 List
Medical Education
Palliative Care
Ray DE
Residency Training
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2929.2006.02479.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2929.2006.02479.x</a>
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Title
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How well do paediatric residency programmes prepare residents for clinical practice and their future careers?
Publisher
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Medical Education
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
PedPal Lit
Creator
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Lieberman L; Hilliard RI
Description
An account of the resource
Context Educators across Canada are presently discussing whether the current 4-year residency programmes adequately prepare paediatricians for their future careers. Studies carried out in the USA have repeatedly shown areas of weakness in residency training, but there are no studies looking at the overall adequacy of training across Canada. Objectives To assess practising paediatricians' perceptions of the adequacy of their residency training as preparation for clinical practice and to assess practising paediatricians' opinions about the required mandatory length of training. Methods A questionnaire based on previous studies was sent to 434 paediatricians certified between 1999 and 2003, asking for their opinions of their preparedness for practice in the broad areas of paediatrics and in the professional roles of the doctor-specialist. Results Overall, 239 (55%) paediatricians replied, 96% of whom indicated they were 'adequately' or 'very well' trained. Areas in which opinions on training were positive included emergency medicine, neonatology, endocrinology, haematology/oncology, neurology, infectious diseases and respirology. Areas where preparation was considered to have been less adequate included gynaecology, child psychiatry, behavioural psychology, surgical specialties, orthopaedics and adolescents. With respect to the roles of the doctor-specialist, strengths of training included the areas of medical expert, collaborator, ethics and professionalism, and communicator. Respondents felt they were less adequately prepared for the role of a medical expert dealing with palliative care, for dealing with bereaved parents and as manager of an office practice. Despite these weaknesses, 80% felt that 4 years of training was sufficient. Discussion The results of the study are comparable with those of previous studies carried out in the USA and reinforce the need for regular programme assessment. This study will hopefully lead to the improvement of current paediatric residency programmes and enhanced education and training of future paediatricians. Although overall satisfaction with training was high, paediatric programmes need to make some changes by providing more appropriate training with less tertiary care, hospital-based training and more community and ambulatory-based experiences.
2006
Identifier
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<a href="http://doi.org/10.1111/j.1365-2929.2006.02479.x" target="_blank" rel="noreferrer">10.1111/j.1365-2929.2006.02479.x</a>
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Type
The nature or genre of the resource
Journal Article
2006
Backlog
Hilliard RI
Journal Article
Lieberman L
Medical Education
PedPal Lit
-
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Title
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2023 Special Edition 3 - Oncology List
Text
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Citation List Month
2023 SE3 - Oncology
URL Address
<a href="http://doi.org/10.3390/children9060777" target="_blank" rel="noreferrer noopener"> http://doi.org/10.3390/children9060777</a>
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Palliative Care for Childhood Cancer
Publisher
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Children
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
child; Palliative Care; human; quality of life; family; home care; practice guideline; pain; Netherlands; cancer patient; physician; hope; health care quality; hospital care; health care planning; health care access; health care personnel; daily life activity; cancer palliative therapy; evidence based practice; medical education; editorial; nausea; child health care; collaborative care team; vomiting; hematopoietic stem cell transplantation; nurse; disease burden; advanced cancer; cause of death; patient worry; health care need; illness trajectory; childhood cancer/th [Therapy]; personalized cancer therapy
Creator
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Michiels EM
Description
An account of the resource
Cure rates for children with cancer are improving, but often at the cost of quality of life during treatment [...].
Identifier
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<a href="http://doi.org/10.3390/children9060777" target="_blank" rel="noreferrer noopener">10.3390/children9060777</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
2023 SE3 - Oncology
Advanced Cancer
Cancer Palliative Therapy
Cancer Patient
Cause Of Death
Child
Child Health Care
childhood cancer/th [Therapy]
Children
collaborative care team
daily life activity
Disease Burden
Editorial
evidence based practice
Family
Health Care Access
health care need
Health Care Personnel
health care planning
Health Care Quality
Hematopoietic stem cell transplantation
Home Care
Hope
Hospital care
Human
illness trajectory
Medical Education
Michiels EM
Nausea
Netherlands
Nurse
Pain
Palliative Care
patient worry
personalized cancer therapy
Physician
Practice Guideline
Quality Of Life
Vomiting
-
Dublin Core
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May 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2020 List
URL Address
<a href="http://doi.org/10.1177/1049909120913041" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1049909120913041</a>
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Title
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Pediatric Resident Perception and Participation in End-of-Life Care
Publisher
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American Journal of Hospice and Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
communication; end-of-life care; medical education; palliative care; pediatrics; resident education
Creator
An entity primarily responsible for making the resource
Niehaus J Z; Palmer M; LaPradd M; Haskamp A; Hatton A; Scanlon C; Hill A B
Description
An account of the resource
BACKGROUND: Despite advances in medical care, pediatric deaths are still an unfortunate reality. Most of these deaths occur within a hospital setting. End-of-life care is an important part of medical care for children with serious illnesses. Despite the importance, pediatric providers report a lack of comfort surrounding end-of-life care. OBJECTIVE: To assess categorical pediatric residents' perceptions and participation in providing end-of-life care to dying children and their families. STUDY DESIGN: This is a survey-based, descriptive, mixed-methods study. Survey was sent to categorical pediatric residents at Indiana University School of Medicine in June 2018 to obtain both quantitative and qualitative information on resident perception and participation in end-of-life care. Surveys were sent to 100 residents with a response rate of 68%. SETTING/PARTICIPANTS: Pediatric residents at Indiana University School of Medicine. RESULTS: The comfort and participation in end-of-life care are limited in all levels of pediatric training. Residents do not feel comfortable with 19 of 22 questions related to end-of-life care. Only 32% of residents felt their education prepared them to participate in end-of-life care. Almost one-fifth (19.5%) of residents report participating in zero aspect of end-of-life care. Themes discussed by residents include education, experience, communication, social norms, emotions, self-care, comfort, and family. CONCLUSION: More formalized education and training is needed to increase resident comfort with and participation in end-of-life care. Such future interventions should focus on communication surrounding difficult conversations and providing guidance for families.
Identifier
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<a href="http://doi.org/10.1177/1049909120913041" target="_blank" rel="noreferrer noopener">10.1177/1049909120913041</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
American Journal Of Hospice And Palliative Care
Communication
End-of-life Care
Haskamp A
Hatton A
Hill A B
LaPradd M
May 2020 List
Medical Education
Niehaus J Z
Palliative Care
Palmer M
Pediatrics
resident education
Scanlon C
-
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Title
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October 2023 List
Text
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October List 2023
URL Address
<a href="http://doi.org/10.1542/hpeds.2023-007225" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1542/hpeds.2023-007225</a>
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Title
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The Butterfly Effect: Supporting Pediatric Trainee Bereavement Through a Condolence Card Project
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Hospital Pediatrics
Date
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2023
Subject
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Bereavement; article; human; death; pediatrics; clinical practice; grief; terminal care; dying; wellbeing; comfort; resident; human relation; pediatrician; bereavement; medical education; frustration; coping behavior; work environment; posthumous care; anger; bereavement support; medical student; catharsis; gesture; loneliness
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Rabinowitz DG; Korus RE; Eastland SL; Bloomhardt HM
Description
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As medical students and residents, we have all grappled with patient death and dying at some point in our training. These experiences often remain with us, informing our clinical practice, our personal wellbeing, and the ways in which we build relationships with patients and families. One memory, among many, inspired our work to bolster and reform trainee bereavement practices. On Monday, I walked into the hospital apprehensively. I was nearing the end of a month-long rotation in the medical-surgical ICU, my first experience caring for critically ill children during residency. I heard the news from my coresident: my patient had died on Sunday. Although it was not unexpected, it still hurt all the same. It was 5:50 am when I rounded the hospital corner and approached his old room. As I peeked inside, my heart sank. Just 3 days ago, this room was full of people and things and sounds;...
Identifier
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<a href="http://doi.org/10.1542/hpeds.2023-007225" target="_blank" rel="noreferrer noopener">10.1542/hpeds.2023-007225</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Anger
Article
Bereavement
Bereavement Support
Bloomhardt HM
catharsis
Clinical Practice
Comfort
Coping Behavior
Death
Dying
Eastland SL
frustration
gesture
Grief
Hospital Pediatrics
Human
Human Relation
Korus RE
Loneliness
Medical Education
medical student
October List 2027
Pediatrician
Pediatrics
Posthumous Care
Rabinowitz DG
Resident
Terminal Care
Wellbeing
work environment
-
Dublin Core
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Title
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January 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2020 List
URL Address
<a href="http://doi.org/10.1371/journal.pone.0224325" target="_blank" rel="noreferrer noopener">http://doi.org/10.1371/journal.pone.0224325</a>
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Title
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Being there: A scoping review of grief support training in medical education
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PLoS One
Date
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2019
Subject
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learning; medical education; patients; pediatrics; physicians; psychological stress; trainees; workshops
Creator
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Sikstrom L; Saikaly R; Ferguson G; Mosher P J; Bonato S; Soklaridis S
Description
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INTRODUCTION: Medical education experts argue that grief support training for physicians would improve physician and patient and family wellness, and should therefore be mandatory. However, there is little evidence about the range of curricula interventions or the impact of grief training. The aim of this scoping review was to describe the current landscape of grief training worldwide in medical school, postgraduate residency and continuing professional development in the disciplines of pediatrics, family medicine and psychiatry. METHODS: Using Arksey and O'Malley's scoping review principles, MEDLINE, EMBASE, ERIC, PsychInfo and Web of Science were searched by a librarian. Two levels of screening took place: a title and abstract review for articles that fit a predefined criteria and a full-text review of articles that met those criteria. Three investigators reviewed the articles and extracted data for analysis. To supplement the search, we also scanned the reference lists of included studies for possible inclusion. RESULTS: Thirty-seven articles published between 1979 and 2019 were analyzed. Most articles described short voluntary grief training workshops. At all training levels, the majority of these workshops focused on transmitting knowledge about the ethical and legal dimensions of death, dying and bereavement in medicine. The grief trainings described were characterized by the use of diverse pedagogical tools, including lectures, debriefing sessions, reflective writing exercises and simulation/role-play. DISCUSSION: Grief training was associated with increased self-assessed knowledge and expertise; however, few of the studies analyzed the impact of grief training on physician and patient and family wellness. Our synthesis of the literature indicates key gaps exist, specifically regarding the limited emphasis on improving physicians' communication skills around death and dying and the limited use of interactive and self-reflexive learning tools. Most trainings also had an overly narrow focus on bereavement grief, rather than a more broadly defined definition of loss.
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<a href="http://doi.org/10.1371/journal.pone.0224325" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0224325</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Bonato S
Ferguson G
January 2020 List
Learning
Medical Education
Mosher P J
Patients
Pediatrics
Physicians
PLoS One
psychological stress
Saikaly R
Sikstrom L
Soklaridis S
trainees
workshops
-
Dublin Core
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Title
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June 2018 List
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Text
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Citation List Month
June 2018 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2018.03.019" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2018.03.019</a>
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Title
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From Fear to Confidence: Changing Providers' Attitudes about Pediatric Palliative and Hospice Care
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Journal of Pain and Symptom Management
Date
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2018
Subject
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educational workshop; hospice; medical education; palliative care; pediatric
Creator
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Vesel T; Beveridge C
Description
An account of the resource
CONTEXT: Children have limited access to hospice care: few existing hospice programs have dedicated pediatric teams, and adult hospice providers feel inadequately trained to care for children. OBJECTIVES: The aim of this study is to increase access to pediatric hospice care by empowering adult hospice providers to care for children through a comprehensive education program. Education empowers providers by changing their attitudes from inadequacy to confidence. METHODS: The authors developed a two-day education program to train interdisciplinary teams of adult hospice providers in pediatric care. The curriculum consists of thirteen modules to improve participants' knowledge, skills, and attitudes. Ninety-three providers across the US learned via multiple teaching methods including lectures, role-plays by professional actors, interviews of bereaved parents, and self-reflections. Learning was evaluated with assessments before, immediately after, and 6-months following the program. Responses were compared using a one-sided analysis of variation (ANOVA) with a significance level of alpha<0.05. RESULTS: Participants improved their knowledge in twelve of thirteen modules. Self-reported confidence levels with pediatric care improved significantly in all thirteen modules (p<0.05). After this program, 79% of providers reported feeling better prepared to care for pediatric hospice patients. Qualitative data reinforced that learners felt more prepared to care for pediatric patients. CONCLUSION: A two-day, high intensity low cost community based education program can improve adult providers' knowledge of and skill level with pediatric care, leading to a change in attitude from fear to confidence. This model has the potential to increase access to pediatric hospice care as it utilizes existing adult hospice infrastructure.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2018.03.019" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2018.03.019</a>
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2018
Beveridge C
educational workshop
Hospice
Journal of Pain and Symptom Management
June 2018 List
Medical Education
Palliative Care
Pediatric
Vesel T
-
Dublin Core
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Title
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2021 Special Edition 1 - Low Resource Settings
Text
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Citation List Month
2021 Special Edition 1 - Low Resource Settings
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2021.07.024" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.jpainsymman.2021.07.024</a>
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Pediatric Palliative Care Education Model in Low Resource Settings: A Mixed-Methods Evaluation
Publisher
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Journal of Pain and Symptom Management
Date
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2021
Subject
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Palliative care; pediatric; medical education; Bhutan
Creator
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Vesel T; O'Connor M; Vesel L; Beveridge C; McGann C; Jullien S; Nishizawa Y
Description
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CONTEXT: Globally, approximately 21.6 million children need pediatric palliative care (PPC). The greatest burden lies in low- and middle-income countries, where the demand for PPC exceeds available resources. OBJECTIVES: The objective of this study was to assess the impact of a PPC workshop on healthcare providers' self-efficacy, comfort and confidence related to the provision of PPC in a Bhutanese referral-level hospital. METHODS: This mixed-methods study included a one-and-a-half day PPC workshop with surveys administered to participants at three time points (before, immediately after, and six months after the workshop) to evaluate changes in self-efficacy, comfort and confidence. The study was conducted in January 2017 with healthcare providers at the Jigme Dorji Wangchuck National Referral Hospital in Thimphu, Bhutan. RESULTS: Forty-one providers participated in the workshop; 38 completed the post-workshop survey and 27 completed the six months post-workshop survey. Results showed statistically significant increases in comfort levels from pre- to post-workshop surveys across nearly all areas. Qualitative results supported these findings. CONCLUSION: The results of this study suggest that a short, interactive and interdisciplinary workshop, originally designed for the United States setting but adapted to a low resource context, is an effective way to improve providers' self-efficacy, comfort and confidence in the provision of PPC in resource-limited settings.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2021.07.024" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2021.07.024</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
2021 Special Edition 1 - Low Resource Settings
Beveridge C
Bhutan
Journal of Pain and Symptom Management
Jullien S
McGann C
Medical Education
Nishizawa Y
O'Connor M
Palliative Care
Pediatric
Vesel L
Vesel T
-
Dublin Core
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Title
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November 2018 List
Text
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Citation List Month
November 2018 List
URL Address
<a href="http://doi.org/10.1089/jpm.2017.0532" target="_blank" rel="noreferrer noopener">http://doi.org/10.1089/jpm.2017.0532</a>
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Title
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National Impact of the EPEC-Pediatrics Enhanced Train-the-Trainer Model for Delivering Education on Pediatric Palliative Care
Publisher
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Journal of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
cancer palliative therapy;childhood cancer;medical education;Pediatrics;Advance care planning;article;Canada;Child;clinical practice;health care quality;health practitioner;Human;professional knowledge;quality of life;self care;tertiary care center;total quality management
Creator
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Widger K;Wolfe J;Friedrichsdorf S;Pole JD;Brennenstuhl S;Liben S;Greenberg M;Bouffet E;Siden H;Husain A;Whitlock JA;Leyden M;Rapoport A
Description
An account of the resource
Abstract Background: Lack of pediatric palliative care (PPC) training impedes successful integration of PPC principles into pediatric oncology. Objectives: We examined the impact of an enhanced implementation of the Education in Palliative and End-of-Life Care for Pediatrics (EPEC?-Pediatrics) curriculum on the following: (1) knowledge dissemination; (2) health professionals' knowledge; (3) practice change; and (4) quality of PPC. Design: An integrated knowledge translation approach was used with pre-/posttest evaluation of care quality. Setting/Subjects/Measurements: Regional Teams of 3?6 health professionals based at 15 pediatric oncology programs in Canada became EPEC-Pediatrics Trainers who taught the curriculum to health professionals (learners) and implemented quality improvement (QI) projects. Trainers recorded the number of learners at each education session and progress on QI goals. Learners completed knowledge surveys. Care quality was assessed through surveys with a cross-sectional sample of children with cancer and their parents about symptoms, quality of life, and care quality plus reviews of deceased patients' health records. Results: Seventy-two Trainers taught 3475 learners; the majority (96.7%) agreed that their PPC knowledge improved. In addition, 10/15 sites achieved practice change QI goals. The only improvements in care quality were an increased number of days from referral to PPC teams until death by a factor of 1.54 (95% confidence interval [CI]?=?1.17?2.03) and from first documentation of advance care planning until death by a factor of 1.50 (95% CI?=?1.06?2.11), after adjusting for background variables. Conclusion: While improvements in care quality were only seen in two areas, our approach was highly effective in achieving knowledge dissemination, knowledge improvement, and practice change goals.
Identifier
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<a href="http://doi.org/10.1089/jpm.2017.0532" target="_blank" rel="noreferrer noopener">10.1089/jpm.2017.0532</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Advance Care Planning
Article
Bouffet E
Brennenstuhl S
Canada
Cancer Palliative Therapy
Child
Childhood Cancer
Clinical Practice
Friedrichsdorf S
Greenberg M
Health Care Quality
health practitioner
Human
Husain A
Journal of Palliative Medicine
Leyden M
Liben S
Medical Education
November 2018 List
Pediatrics
Pole JD
professional knowledge
Quality Of Life
Rapoport A
Self Care
Siden H
tertiary care center
Total Quality Management
Whitlock JA
Widger K
Wolfe J