1
40
3
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0277-9536(03)00205-3" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0277-9536(03)00205-3</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Bereaved parents' experience of research participation.
Publisher
An entity responsible for making the resource available
Social Science & Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Female; Humans; infant; Male; Adult; Follow-Up Studies; Middle Aged; Attitude; Longitudinal Studies; Research; Regression Analysis; Ethics; Registries; adolescent; Preschool; Empirical Approach; Psychological; bereavement; infant; Newborn; Parents/psychology; Biomedical and Behavioral Research; Multi-site Ethics; Norway; Interview; Accidents/psychology; Medical/methods; Research Subjects/psychology; Sociology; Sudden Infant Death; Suicide/psychology
Creator
An entity primarily responsible for making the resource
Dyregrov K
Description
An account of the resource
Despite the ethical codes guiding bereavement research, few studies have been conducted to evaluate the perceived stress experienced by the bereaved, and to explore which methodologies cause least distress. This article investigates how bereaved and traumatised populations experience research participation, and they voice their recommendations for future research. The data are from a nationwide three-phase study in Norway among parents who had lost their child by suicide, SIDS, and accidents between July 1, 1997 and December 31, 1998. Whereas the first phase reported quantitative results of perceived psychosocial health and focused on offered and ideal support (N=262), the second phase investigated the same issues through in-depth interviews of a sub sample (N=69). Phase three, reported here, included the responses of 64 parents to a short questionnaire evaluating research participation in the two previous phases. The results show that 100% of the parents experienced participation as "positive"/"very positive", and none regretted participating. They linked the positive experiences to being allowed to tell their complete story, the format of the interview, and a hope that they might help others. Apparently, processes of meaning reconstruction and increased awareness of the bereavement process were facilitated by the interviews. However, three-quarters of the interviewees reported that it was to a greater or lesser degree painful to talk about the traumatic loss. Regression analysis showed that being a woman and high levels of psychic distress were the most important predictors of a painful interview experience. In order to protect bereaved and vulnerable populations from harm, already existing ethical codes must be strictly applied, and the researchers must listen respectfully to recommendations from bereaved parents.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0277-9536(03)00205-3" target="_blank" rel="noreferrer">10.1016/s0277-9536(03)00205-3</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Accidents/psychology
Adolescent
Adult
Attitude
Backlog
Bereavement
Biomedical and Behavioral Research
Child
Dyregrov K
Empirical Approach
Ethics
Female
Follow-up Studies
Humans
Infant
Interview
Journal Article
Longitudinal Studies
Male
Medical/methods
Middle Aged
Multi-site Ethics
Newborn
Norway
Parents/psychology
Preschool
Psychological
Registries
Regression Analysis
Research
Research Subjects/psychology
Social science & medicine
Sociology
Sudden Infant Death
Suicide/psychology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1056/NEJMp0801863" target="_blank" rel="noreferrer">http://doi.org/10.1056/NEJMp0801863</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Etiquette-based medicine
Publisher
An entity responsible for making the resource available
The New England Journal Of Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Humans; Physician-Patient Relations; Education; Professional Competence; Medical/methods; Patient Care
Creator
An entity primarily responsible for making the resource
Kahn MW
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1056/NEJMp0801863" target="_blank" rel="noreferrer">10.1056/NEJMp0801863</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2008
2008
Backlog
Education
Humans
Journal Article
Kahn MW
Medical/methods
Patient Care
Physician-patient Relations
Professional Competence
The New England Journal Of Medicine
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00003246-199309001-00053" target="_blank" rel="noreferrer">http://doi.org/10.1097/00003246-199309001-00053</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Communication between physician, patient, and family in the pediatric intensive care unit
Publisher
An entity responsible for making the resource available
Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1993
Subject
The topic of the resource
Child; Humans; Intensive Care Units; Grief; Physician-Patient Relations; Attitude of Health Personnel; Education; Professional-Family Relations; Communication; Physician's Role; Patient Satisfaction; Internal-External Control; Defense Mechanisms; Power (Psychology); Kinesics; Pediatric; Adaptation; Psychological; patient care team; Parents/education/psychology; ICU Decision Making; empathy; humanism; Medical/methods; Anxiety/prevention & control/psychology
Creator
An entity primarily responsible for making the resource
Todres ID
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00003246-199309001-00053" target="_blank" rel="noreferrer">10.1097/00003246-199309001-00053</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1993
1993
Adaptation
Anxiety/prevention & control/psychology
Attitude Of Health Personnel
Backlog
Child
Communication
Critical Care Medicine
Defense Mechanisms
Education
Empathy
Grief
Humanism
Humans
ICU Decision Making
Intensive Care Units
Internal-External Control
Journal Article
Kinesics
Medical/methods
Parents/education/psychology
Patient Care Team
Patient Satisfaction
Pediatric
Physician-patient Relations
Physician's Role
Power (psychology)
Professional-family Relations
Psychological
Todres ID