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40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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June 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2020 List
URL Address
<a href="http://doi.org/10.1055/s-0040-1710031" target="_blank" rel="noreferrer noopener">http://doi.org/10.1055/s-0040-1710031</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Specialized Pediatric Palliative Care in Neonates with Life-Limiting Illness: A Systematic Review
Publisher
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American Journal of Perinatology
Date
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2020
Subject
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life limiting; outcomes; palliative care; perinatal; teams
Creator
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Zuniga-Villanueva G; Widger K; Medeiros C; Trenholm M; Streuli J C
Description
An account of the resource
OBJECTIVE: The aim of this study is to assess the impact of specialized pediatric palliative care (PPC) on neonates with life-limiting conditions compared to standard care. STUDY DESIGN: MEDLINE, PsycINFO, Cochrane Central Register of Controlled Trials, Web of Science, CINAHL, Scopus, and Embase databases were searched from January 2000 to September 2018. Randomized clinical trials, experimental or observational studies, and secondary administrative database analyses published in English, Spanish, French, and German were included. Two independent reviewers extracted data, and used the Newcastle-Ottawa Scale and the Cochrane Risk of Bias Tool for quality analysis. Discrepancies were resolved as a team. RESULTS: From the 37,788 records obtained, only eight articles met the inclusion criteria. A meta-analysis was not possible due to the heterogeneity in how the outcomes were defined; however, a qualitative synthesis of the results was possible; organizing outcomes into eight different categories: psychological, social and spiritual support; communication; location of care; symptom management; bereavement care; predicted versus actual neonatal outcomes; and parental coping, stress, and satisfaction. CONCLUSION: Specialized versus may have an impact on neonates with life-limiting conditions and their families. More studies that evaluate the impact of specialized versus in neonates with sound statistical analysis is warranted.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1055/s-0040-1710031" target="_blank" rel="noreferrer noopener">10.1055/s-0040-1710031</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
American Journal of Perinatology
June 2020 List
Life Limiting
Medeiros C
Outcomes
Palliative Care
Perinatal
Streuli J C
Teams
Trenholm M
Widger K
Zuniga-Villanueva G
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
June 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2020 List
URL Address
<a href="http://doi.org/10.1111/jpc.14885" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/jpc.14885</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Decision aids available for parents making end-of-life or palliative care decisions for children: A scoping review
Publisher
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Journal of Paediatrics and Child Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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child; decision support technique; palliative care; parent; pediatrics
Creator
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Medeiros C; Buckley L; Metcalfe K; Narayanan U G; Widger K
Description
An account of the resource
Aim: To identify and assess the quality of decision aids that align the decision, values and information provided for parents making end-of-life or palliative care decisions for children with life-threatening conditions. Method(s): Six databases and the grey literature were searched in December 2018. Two reviewers independently reviewed database citations, and one reviewed grey literature citations. Citation chaining via Scopus was conducted. Quality was assessed using IPDAS Collaboration Criteria. Result(s): After reviewing 18 671 database citations and 10 988 grey literature citations, 18 citations describing 11 decision aids remained. Decision aids targeted premature infants, children requiring airway management, children with cancer and children with scoliosis. Three aids underwent testing beyond initial development. Quality scores averaged 27 of 50 points. Conclusion(s): There are few high-quality decision aids available for use and a lack evidence of widespread clinical use. Additional research is needed to support systematic development and the use of decision aids with families. Copyright © 2020 Paediatrics and Child Health Division (The Royal Australasian College of Physicians)
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/jpc.14885" target="_blank" rel="noreferrer noopener">10.1111/jpc.14885</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Buckley L
Child
decision support technique
Journal of Paediatrics and Child Health
June 2020 List
Medeiros C
Metcalfe K
Narayanan U G
Palliative Care
Parent
Pediatrics
Widger K