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Dublin Core
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Title
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July 2021 List
Text
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Citation List Month
July 2021 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2021.04.020" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2021.04.020</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Requests for Accommodation in Brain Death Cases: Emerging Role for Pediatric Palliative Care
Publisher
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Journal of Pain and Symptom Management
Date
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2021
Subject
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Pediatrics; Brain death; Bias; Accommodation; Death by neurological criteria; Trauma-informed care
Creator
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McEvoy MJ; Scott MJ; Sawyer KE
Description
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Death by neurologic criteria is a diagnosis that has presented complexities since its inception and pediatric cases are no exception. While rare, families may request accommodation to deviate from the traditionally defined diagnostic pathway based on their beliefs, mistrust of the diagnosis, or other complex reasons. Palliative care consultation offers a unique clinical perspective to complement the work of intensivists to support families through the diagnosis and possible resolution around accommodation requests. With misinformation and high-profile cases widely visible to the public through the media, these requests require a thoughtful and informed clinical approach by all members of the interdisciplinary clinical team. Common themes in many of these cases are trauma and bias and their impact on caregivers. We use a case-based approach to explore these complexities and clinical tools.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2021.04.020" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2021.04.020</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Accommodation
Bias
Brain Death
Death by neurological criteria
Journal of Pain and Symptom Management
July 2021 List
McEvoy MJ
Pediatrics
Sawyer KE
Scott MJ
Trauma-informed care