1
40
1
-
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Title
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Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
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<a href="http://doi.org/10.1016/j.nmd.2014.01.003" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.nmd.2014.01.003</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Hammersmith Functional Motor Scale and Motor Function Measure-20 in non ambulant SMA patients
Publisher
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Neuromuscular Disorders
Date
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2014
Subject
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responsiveness; Neurosciences & Neurology; Spinal muscular atrophy; trial; spinal muscular-atrophy; validation; neuromuscular diseases; Outcome measures; walk test; tone and motor problems; SMA1; tool development; scale development; HMFS; MFM
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Mazzone E; De Sanctis R; Fanelli L; Bianco F; Main M; van den Hauwe M; Ash M; de Vries R; Mata J F; Schaefer K; D'Amico A; Colia G; Palermo C; Scoto M; Mayhew A; Eagle M; Servais L; Vigo M; Febrer A; Korinthenberg R; Jeukens M; de Viesser M; Totoescu A; Voit T; Bushby K; Muntoni F; Goemans N; Bertini E; Pane M; Mercuri E
Description
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The aim of this prospective longitudinal multi centric study was to evaluate the correlation between the Hammersmith Functional Motor Scale and the 20 item version of the Motor Function Measure in non ambulant SMA children and adults at baseline and over a 12 month period. Seventy-four non-ambulant patients performed both measures at baseline and 49 also had an assessment 12 month later. At baseline the scores ranged between 0 and 40 on the Hammersmith Motor function Scale and between 3 and 45 on the Motor Function Measure 20. The correlation between the two scales was 0.733. The 12 month changes ranged between 11 and 4 for the Hammersmith and between 11 and 7 for the Motor Function Measure 20. The correlation between changes was 0.48. Our results suggest that both scales provide useful information although they appeared to work differently at the two extremes of the spectrum of abilities. The Hammersmith Motor Function Scale appeared to be more suitable in strong non ambulant patients, while the Motor Function Measures appeared to be more sensitive to capture activities and possible changes in the very weak patients, including more items capturing axial and upper limb activities. The choice of these measures in clinical trials should therefore depend on inclusion criteria and magnitude of expected changes. (C) 2014 Published by Elsevier B.V.
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<a href="http://doi.org/10.1016/j.nmd.2014.01.003" target="_blank" rel="noreferrer noopener">10.1016/j.nmd.2014.01.003</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2014
Ash M
Bertini E
Bianco F
Bushby K
Colia G
D'Amico A
De Sanctis R
de Viesser M
de Vries R
Eagle M
Fanelli L
Febrer A
Goemans N
HMFS
Jeukens M
Korinthenberg R
Main M
Mata J F
Mayhew A
Mazzone E
Mercuri E
MFM
Muntoni F
Neuromuscular Diseases
Neuromuscular Disorders
Neurosciences & Neurology
Outcome measures
Palermo C
Pane M
responsiveness
scale development
Schaefer K
Scoto M
Servais L
SMA1
Spinal Muscular Atrophy
spinal muscular-atrophy
tone and motor problems
tool development
Totoescu A
trial
VALIDATION
van den Hauwe M
Vigo M
Voit T
walk test