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40
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Text
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Citation List Month
May 2016 List
Dublin Core
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Title
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Lethal Fetal Abnormalities: How To Approach Perinatal Palliative Care?
Publisher
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Journal Of Maternal, Fetal And Neonatal Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Obstetrics & Gynecology; Anomalies; Prenatal-diagnosis; Malformations; Pregnancy; Professionals
Ethical Issue; Fetal Abnormality; Information; Palliative Care; Perinatal Medicine
Creator
An entity primarily responsible for making the resource
Tosello B; Haddad G; Gire C; Einaudi MA
Description
An account of the resource
OBJECTIVE:
Some of the antenatally diagnosed fetal pathologies are unlikely to get compatible with life. Still some women choose to continue with pregnancy. Subsequently, perinatal palliative care (PPC) has become a constructive demarche in such situations. Our study, based on a multicentric survey, reports some cases of fetal pathologies considered as lethal according to perinatal professionals and reveals the decisional process in each case.
METHODS:
We sent by emails a questionnaire to 434 maternal-fetal medicine specialists and fetal care pediatric specialists at 48 multidisciplinary centers for prenatal diagnosis.
RESULTS:
The participation rate was 49.3%. In total, 61 obstetric-gynecologists and 68 neonatologists completed the survey. The results showed that 35.4% of the pregnant women asked for the continuation of pregnancy and 24.7% asked for the termination of pregnancy. More than half of professionals (52.9%) took the initiative of informing women about the options for birth support (including PPC), while 32.7% of obstetric gynecologists did not take this initiative versus 10.2% of neonatologists (p < 0.01).
CONCLUSION:
This study demonstrates the absolute need to provide PPC training for professionals and to standardize its practices.
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Anomalies
Einaudi MA
Ethical Issue
Fetal Abnormality
Gire C
Haddad G
Information
Journal of Maternal, Fetal and Neonatal Medicine
Malformations
May 2016 List
Obstetrics & Gynecology
Palliative Care
Perinatal Medicine
Pregnancy
Prenatal-diagnosis
Professionals
Tosello B
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2022 Special Edition 4 - Low Resource Setting List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2022 Special Edition Low Resource Setting Issue
URL Address
<a href="http://doi.org/10.1590/1678-4324-2022210615" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1590/1678-4324-2022210615</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Overview of Perinatal Palliative Care in Brazil
Publisher
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Brazilian Archives of Biology and Technology
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
quality of life; palliative care; Brazil; mothers; epidemiology; pregnancy; Chordata; eukaryotes; health care; Hominidae; Homo; human diseases; Latin America; mammals; man; primates; South America; vertebrates; birth; America; animals; neonates; epidemics; gestation; women; guidelines; recommendations; birth defects; Community of Portuguese Language Countries; congenital abnormalities; congenital malformations; drug abusers; drug users; high Human Development Index countries; malformations; microcephaly; upper-middle income countries
Creator
An entity primarily responsible for making the resource
Saffi Junior MC; de Moraes AMSM; Favero GM
Description
An account of the resource
Significant attention to palliative care in terminally ill patients has only been effective in Brazil since the year 2000, although there have been isolated actions since the 1980s. When the case involves fetuses or neonates unable to cure, communication and care with the family members only received attention and effective organization starting in 2017. Notably in the years 2015 and 2016 there was an epidemic of microcephaly and along with the persistent crisis of drug users has raised the indices of malformations to a level higher than 3% of the world average. Here we aim the evaluation of: (a) social, educational and spiritual profile of the mothers; (b) structure of the specific teams related to palliative care in neonatology; (c) recommendations and protocols currently used in the country. The method used is an electronic retrospective on databases and government data; evaluation of the location and composition of palliative care teams in the country. The data found clearly point out that for Brazilian women, the characteristics of regionality in the country, educational level, religiousness and quality of life directly influence pregnancy and the acceptance or not of the possibility of death, directly influencing perinatal palliative care, which, by the way, is still developing methodologies for this type of action.
Identifier
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<a href="http://doi.org/10.1590/1678-4324-2022210615" target="_blank" rel="noreferrer noopener">10.1590/1678-4324-2022210615</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
2022 Special Edition Low Resource Setting Issue
America
Animals
Birth
Birth defects
Brazil
Brazilian Archives of Biology and Technology
Chordata
Community of Portuguese Language Countries
Congenital Abnormalities
Congenital malformations
de Moraes AMSM
drug abusers
drug users
epidemics
Epidemiology
Eukaryotes
Favero GM
gestation
Guidelines
Health Care
high Human Development Index countries
Hominidae
Homo
Human Diseases
Latin America
Malformations
Mammals
Man
microcephaly
Mothers
Neonates
Palliative Care
Pregnancy
Primates
Quality Of Life
Recommendations
Saffi Junior MC
South America
upper-middle income countries
Vertebrates
Women