Browse Items (179 total)
- Tags: Major Clinical Study
Exploring the vagueness of Religion & Spirituality in complex pediatric decision-making: A qualitative study
Tags: 2018, Article, Barfield RC, BMC Palliative Care, Brandon DH, Child, Decision Making, Docherty SL, Father, genetic transcription, Health Care Personnel, Human, Human Tissue, Intensive Care, Interview, Life Sustaining Treatment, Major Clinical Study, Male, Medical Record, Mother, Narrative, Neonatology, November 2018 List, Palliative Therapy, Prognosis, Qualitative Research, Religion, Superdock AK, Thematic Analysis, Treatment Withdrawal
Attitudes of the four groups of population toward end-of-life care of their child: A nationwide survey
Tags: 2018, Adult, Cancer Patient, Caregiver, Child, Choi YH, conference abstract, Controlled Study, Female, Health Care System, Hospice, Human, Kim YS, Lee B, Life Sustaining Treatment, Lifespan, Major Clinical Study, Male, Multicenter Study, November 2018 List, Palliative Therapy, Park JD, Pediatric Critical Care Medicine, pediatric patient, Physician, population group, Questionnaire, Terminal Care, Yun YH
Paediatric palliative care: Are we doing enough? a retrospective review of deaths over 5 years in an academic tertiary hospital paediatric intensive care unit
Tags: 2018, Adolescent, Adult, Advanced Cancer, Analgesia, Artificial Ventilation, Cancer Patient, Cause Of Death, Child, conference abstract, Controlled Study, Demography, Drug Withdrawal, Female, Human, inotropism, Koh PL, Life Sustaining Treatment, Major Clinical Study, Male, Malignant Neoplasm, Medical History, Medical Record, Neurologic Disease, Ng MCG, November 2018 List, Palliative Therapy, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, pediatric patient, Resuscitation, Retrospective Study, tertiary care center
Are pediatric patients just short adults? most commonly prescribed drugs for pediatric hospice patients
Tags: 2018, acid, Adult, Cancer Patient, central nervous system cancer, Chi Square Test, Child, conference abstract, Constipation, Controlled Study, Corticosteroid, Death, Diagnosis, diazepam, diphenhydramine, drug formulation, Drug Therapy, Dyspnea, Female, Genetic Disorder, Haloperidol, Hospice Care, hospice patient, Human, hyoscyamine, Institutional Review, laxative, Length Of Stay, levetiracetam, Lorazepam, macrogol, Major Clinical Study, McPherson ML, metoclopramide, Morgan J, Morphine, Nausea, November 2018 List, ondansetron, Opiate, Pain, Paracetamol, patient information, pediatric patient, Postgraduate Medicine, Practice Guideline, Preschool Child, prochlorperazine, Retrospective Study, salbutamol, Seizure, Sera L, Unclassified Drug, vitamin
Primary palliative care skills in CF: Perspectives of adults with CF, caregivers, and CF care team members
Tags: 2018, Adult, Advance Care Planning, Awareness, Basile M, Caregiver, Chen E, Child, clinical assessment, conference abstract, Controlled Study, December 2018 List, Dellon EP, depression assessment, Education, Faro A, Female, Georgiopoulos A, Goggin JL, Goss CH, Hempstead SE, Hobler M R, Hospice, Human, Kavalieratos D, Kruskal Wallis test, lung, Major Clinical Study, Male, Pain Assessment, Palliative Therapy, Pediatric Pulmonology, Perception, Prognosis, Skill
Youth With Chronic Conditions and Risky Behaviors: An Indirect Path
Tags: 2018, Adolescent, Akre C, Article, Barrense-Dias Y, Berchtold A, Chronic Disease, Controlled Study, daily life activity, December 2018 List, Eating, Education, Female, gambling, Gubelmann A, Health Status, high risk behavior, Human, internet addiction, Journal of Adolescent Health., juvenile, Major Clinical Study, Male, Newman CJ, psychological adjustment, statistical analysis, structural equation modeling, Student, substance use, Suris J C, vision, Wellbeing
Pediatric intensivist end-of-life practices and attitudes in Vietnam
Tags: 2018, Child, Chronic Disease, Chronic Patient, Critical Care Medicine, Cultural Factor, Developing World 2018 List, doctor nurse relation, Education, Fadadu P, Female, Human, Intensivist, Kumbamu A, Life Sustaining Treatment, Liu J, Major Clinical Study, Male, Medical Technology, Ouellette Y, Palliative Therapy, Pediatric Hospital, Perception, Phan P, Qualitative Analysis, quantitative analysis, Resuscitation, Schiltz B, Semi Structured Interview, Terminal Care, tertiary health care, Tran X, Viet Nam, Vietnamese
Epidemiology of death in paediatric intensive care units (PICUS) in a developing country
Tags: 2018, Artificial Ventilation, Brain Death, Cause Of Death, Child, Chuah S L, conference abstract, Controlled Study, Decision Making, developing country, Developing World 2018 List, Drug Withdrawal, Female, Gan CS, Ho AMM, Human, inotropic agent, Isa MR, Jalil R, Length Of Stay, Life Sustaining Treatment, liver failure, Lum LC, Major Clinical Study, Male, Mortality Rate, organ donor, Palliative Therapy, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Prospective Study, Resuscitation, Secondary Analysis, Tang SF, Teh K H, Total Quality Management, Zainal Abidin AS
Ethical dilemmas encountered by a palliative care team at a Pediatric cancer center in guatemala
Tags: 2018, Adolescent, Adult, Bioethics, Blood Transfusion, Brain Death, Bustamante Tuchez LM, cancer center, Cancer Patient, cancer surgery, Cancer Therapy, Case Study, Child, Childhood Cancer, Close P, conference abstract, Developing World 2018 List, Drug Withdrawal, Female, Guatemala, Human, Intensive Care, Justice, Major Clinical Study, Medical Record Review, Multidisciplinary team, Palliative Therapy, Patient Autonomy, Patient Care, Paz G, Pediatric Blood and Cancer, Physician, Poverty, Pregnancy, Religion, Retrospective Study, Rivas S, Sound, substance abuse, Surgery, Treatment Refusal, Treatment Withdrawal, Valverde P, Zaidi A
Wishing well, a home-based Pediatric palliative care service for childhood cancer in thailand
Tags: 2018, 52-26-6 (morphine), 57-27-2 (morphine), Bereavement, Brain Tumor, cancer center, Cancer Recurrence, Cancer Survival, Cancer Therapy, Chamnanprai S, Child, Childhood Cancer, Cohort Analysis, conference abstract, Controlled Study, Counseling, Death, Developing World 2018 List, Female, Follow Up, Home Visit, Human, Leukemia, Lymphoma, Major Clinical Study, Male, median survival time, Morphine, Nuchprayoon I, Pain, Palliative Therapy, Pediatric Blood and Cancer, Quality Of Life, Raksrithong T, solid malignant neoplasm, Thailand
Impact of Pediatric palliative care initiative at tertiary cancer care hospital of nepal
Tags: 2018, Analgesia, Brain Tumor, cancer center, Case Study, Child, conference abstract, Developing World 2018 List, Diagnosis, Dyspnea, Female, Gastrointestinal Symptom, Hematologic Malignancy, Hospice, Human, Major Clinical Study, Male, Nepal, Palliative Therapy, Panthee S, Pediatric Blood and Cancer, Practice Guideline, Quality Of Life, Sarcoma, Sharma KS, Terminal Care, wound
Challenges of palliative care in children with inborn metabolic diseases
Tags: 2018, Adult, Advance Care Planning, Article, Attention, Borkhardt A, Child, Cohort Analysis, Controlled Study, Decision Making, Distelmaier F, February 2019 List, Female, Gastrointestinal Symptom, gastrointestinal tract, Hoell JI, Home Visit, Human, Janßen G, Kuhlen M, Major Clinical Study, Male, Metabolic Disorder, Neurologic Disease, Orphanet Journal Of Rare Diseases, Palliative Therapy, Patient Referral, Preschool Child, Resuscitation, Retrospective Study, Warfsmann J, Young Adult
Neonatal Palliative Care in the United States Deep South: Exploration of Patterns of Care and Health Disparities
Tags: 2018, Alabama, Bakitas M, Boss R, Chi Square Test, Child, conference abstract, Controlled Study, Currie E, Dionne-Odom JN, Ejem D, February 2019 List, Female, health disparity, Human, Infant, Journal of Pain and Symptom Management, Louisiana, Major Clinical Study, Male, Medical Record Review, Mississippi, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, race, Resuscitation, Statistics, Terminal Care, Wolfe J
Characteristics of a Perinatal Palliative Care Program Over 10 years
Tags: 2018, Child, Comfort, conference abstract, Controlled Study, Diagnosis, Doherty M, Dumond LG, February 2019 List, Female, Genetics, Hospice, Human, Infant, Journal of Pain and Symptom Management, Major Clinical Study, Male, Medical Record, Neonatal Intensive Care Unit, Neonatologist, obstetrician, Palliative Therapy, Patient Referral, positive end expiratory pressure, Resuscitation, Retrospective Study, Stoppels N, Williams R
Turning Water into Wine: A New Community Pharmacy Workforce Delivering Paediatric Palliative Care Services Across Scotland
Tags: 2018, 7732-18-5 (water), Child, community pharmacist, conference abstract, February 2019 List, Funding, Health Care Delivery, Heart, Hospice, Human, Infant, Journal of Pain and Symptom Management, Major Clinical Study, McCusker K, nursing theory, Palliative Therapy, pharmacy, Scotland, stakeholder engagement, summer, water, wine, workforce
Conflicting realities experienced by children with life-limiting and life-threatening conditions when transitioning to adult health services
Tags: 2018, Adult, Adult Child, Article, Bennett V, Child, Controlled Study, dilution, facilitation, February 2019 List, Female, Human, Interview, joint, Journal Of Advanced Nursing, Learning, Major Clinical Study, Male, Non Profit Organization, Noyes J, Palliative Therapy, Pritchard A, Pritchard S, Qualitative Analysis, Rees S, Secondary Analysis, Sibling, Skill, Social Isolation, social media, Social Support, Total Quality Management, Transition To Adult Care
Evaluation of End-of-Life Care Programs at Emily's House Children's Hospice
Supporting parental caregivers of children living with life-threatening or life-limiting illnesses: A Delphi study
Tags: 2018, Article, Bally JMG, Basic Needs, Caregiver, Child, Consensus, Delphi Study, Diagnosis, Family Nursing, Feasibility Study, February 2019 List, Female, Hodgson-Viden H, Holtslander L, Human, Human Experiment, Journal for specialists in pediatric nursing : JSPN, Major Clinical Study, Male, Mpofu C, Nurse, Peacock S, Pediatrics, Physician, Self Care, Smith NR, Social Worker, Spurr S, theoretical study, Zimmer M
Development and delivery of a one-stop multidisciplinary clinic to provide comprehensive palliative and supportive care for children with cancer
Tags: 2018, Ambulatory Care, Anis H, antibiotic agent, Arora R, Bagai P, Cancer Patient, Caregiver, Child, Chuki T, conference abstract, Crack L, dietitian, doctor nurse relation, Drug Therapy, Education, Female, financial management, Holistic Care, Hospital Patient, Human, Major Clinical Study, Male, Malignant Neoplasm, Multidisciplinary team, nutritional counseling, Oncology 2018 List, Outpatient, Pain, Palliative Therapy, patient coding, Pediatric Blood and Cancer, physiotherapist, Physiotherapy, Psychologist, Social Support, Taluja A, Terminal Care, wound
Aggressiveness of care at the end of life in children with cancer: A nationwide cohort study
Tags: 2017, Aggression, aggressiveness, Annals of Oncology, Cancer Staging, Cardoso A, Cause Of Death, Child, Cohort Analysis, Cohort Studies, developmental stage, Female, Gomes B, Hospitalization, Human, Icd-9, immunotherapy, Intensive Care Unit, Lacerda A, Lopes S, Major Clinical Study, Male, Martins BD, Morbidity, Multicenter Study, Oncology 2018 List, Only Child, Palliative Care, Palliative Therapy, Portugal, Prevalence, Quality Of Life, Resuscitation, School Child, total parenteral nutrition, vascular access
The Relationship Between Household Income and Patient-Reported Symptom Distress and Quality of Life in Children With Advanced Cancer: A Report From the PediQUEST Study
Tags: 2018, Advanced Cancer, Al-Sayegh H, Article, Bona K, Cancer, Cancer Patient, Child, Cohort Analysis, Distress Syndrome, Dussel V, Female, Feudtner C, highest income group, household income, Human, Ilowite MF, Kang TI, lowest income group, Ma C, Major Clinical Study, Male, Oncology 2018 List, outcome assessment, Pain, Palliative Therapy, patient-reported outcome, Poverty, Prevalence, Quality Of Life, Rosenberg AR, Secondary Analysis, Wolfe J
Illness and end-of-life experiences of children with cancer who receive palliative care
Tags: 2018, Article, Artificial Ventilation, Baker JN, Blazin L, cancer center, cancer susceptibility, Child, Childhood Cancer, Cohort Analysis, Controlled Study, Cost Effectiveness Analysis, data extraction, Death, DeMarsh S, Experimental Therapy, Female, Gushue CA, Hospice, Hospital Patient, Hospitalization, Human, Intensive Care Unit, invasive procedure, Jerkins J, Johnson LM, Kaye EC, Levine DR, Life Change Events, Lu Z, Major Clinical Study, Male, Morrison RR, Oncology 2018 List, Only Child, Palliative Care, Palliative Therapy, Pediatric Blood and Cancer, Personal Experience, phase 1 clinical trial, Quality Of Life, Resuscitation, Retrospective Study, Snaman JM, Sykes A
Palliative care referral patterns for children with cancer: A three-year retrospective study
Tags: 2018, Cancer Patient, Central Nervous System, Child, conference abstract, Diagnosis, Emergency Ward, Female, Hospice, Hospital Patient, Human, Infant, Intensive Care Unit, Kim CH, Kim MS, Korea, Leukemia, Lymphoma, Major Clinical Study, Male, Moon YJ, Oncology, Oncology 2018 List, outpatient department, Palliative Therapy, Patient Referral, Pediatric Blood and Cancer, pediatric ward, Quality Of Life, Resuscitation, Retrospective Study, School Child, Shin HY, solid malignant neoplasm, Song IG, statistical analysis, Terminal Care, time of death
Quality of end of life care in adolescent and young adults with cancer in Japan
Tags: 2018, Adolescent, Adult, Bone, Brain, Cancer Chemotherapy, Cancer Diagnosis, Cancer Patient, conference abstract, Emergency Care, Female, Health Care Personnel, Human, Ishida Y, Japan, Major Clinical Study, Male, Medical Record, Noguchi-Abe K, Oncology 2018 List, Palliative Therapy, Retrospective Study, soft tissue, solid malignant neoplasm, Supportive Care In Cancer, Terminal Care, time of death, Tsumura A, Young Adult
The aggressive end-of-life care in pediatric cancer patients in taiwan
Tags: 2018, Cancer Chemotherapy, Cancer Patient, Child, conference abstract, Controlled Study, Death, Diagnosis, do not resuscitate order, Female, Hospice Care, Human, Intensive Care Unit, Intubation, Major Clinical Study, Male, Medical Record Review, Oncology 2018 List, patent, Pediatric Blood and Cancer, Retrospective Study, School Child, Taiwan, Wu LM
Access to Pediatric Palliative Care in the Neonatal Intensive Care Unit by Minorities and Rural-Dwellers in the Deep South: Patterns of Care from 2009-2017 (S816)
Tags: 2019, African American, Alabama, Bakitas M, Boss R, Buckingham S, Caucasian, Child, conference abstract, Controlled Study, Currie E, Data Analysis Software, Dionne-Odom J, Ejem D, Female, Hospice, Hospitalization, hospitalized infant, Human, Infant, Journal of Pain and Symptom Management, Louisiana, Major Clinical Study, Male, March 2019 List, McKillip K, Medicaid, Medical Record Review, Mississippi, Mortality, Neonatal Intensive Care Unit, Palliative Therapy, Perna S, Prematurity, Resuscitation, Retrospective Study, Statistics, time of death, travel, Wolfe J
Introduction to a Novel Palliative Care Intervention for Family Caregivers of Children and Adolescents Living with Rare Diseases (TH308)
Tags: 2019, Adolescent, Advance Care Planning, Alderfer M, Caregiver, Child, Comorbidity, conference abstract, Controlled Study, Feasibility Study, Female, Fraser J, Fratantoni K, Friebert S, Gaines J, health disparity, Human, Human Experiment, Human Immunodeficiency Virus, Interview, Journal of Pain and Symptom Management, Lyon M, Major Clinical Study, Male, Malignant Neoplasm, March 2019 List, Medical Care, Needle J, Needs Assessment, Nonhuman, Palliative Therapy, Pediatrics, Rare Disease, rigor, Skill, Social Isolation, Uncertainty, videorecording, Wellbeing, Wiener L
Talking to parents about their preferences for their child's place of death: A prospective study
Tags: 2018, achievement, Advanced Cancer, Al-Khabbaz E, Archives of Disease in Childhood, Bluebond-Langner M, Case Study, Child, Clinician, conference abstract, Craig F, Death, Dinsdale A, Female, government, Hematologic Malignancy, Henderson E, Hospice, Human, Langner R, Major Clinical Study, March 2019 List, Multidisciplinary team, outcome assessment, Palliative Therapy, Patient Care, Peake J, Prospective Study, social aspect, solid malignant neoplasm
Hospital admissions into paediatric palliative care: A retrospective study
Tags: 2019, Anales de Pediatria., Article, Barcelo M, Child, de Noriega Í, Death, Female, García-Salido A, Gastrostomy, Hospice Care, Hospital Admission, Hospitalisation, Hospitalization, Human, Major Clinical Study, Male, Martino R, May 2019 List, Paediatric hospitals, Palliative Care, Palliative Therapy, Patient Care, Pediatric Hospital, Perez M A, Puertas V, Respiratory System, Retrospective Study
End-of-Life Decisions 20 Years after EURONIC: Neonatologists' Self-Reported Practices, Attitudes, and Treatment Choices in Germany, Switzerland, and Austria
Tags: 2018, Adolescent, Adult, Advanced Cancer, anxiety, Bradford M, cancer pain, Cancer Patient, Child, conference abstract, Controlled Study, Disease Course, Female, Human, Journal of Clinical Oncology. Conference, Lau N, Major Clinical Study, Male, May 2019 List, Nausea, Palliative Therapy, Pediatric Quality of Life Inventory, Quality Of Life, Randomized Controlled Trial, Rosenberg AR, Scott S, Secondary Analysis, Speech, Steineck A, stress management, Yi-Frazier J P, Young Adult
Physicians' attitudes when faced with life-threatening events in children with severe neurological disabilities
Tags: 2019, Adult, Article, childhood disease/ep [Epidemiology], Clinical Decision Making, Cross-sectional Study, Developmental Neurorehabilitation, Disability, Emergency Ward, Female, Follow Up, Health Care Access, Human, Intensive Care, Likert scale, Major Clinical Study, Male, May 2019 List, neurologic disease/ep [Epidemiology], Newman C J, Noninvasive Ventilation, Palliative Therapy, Patient Care, Patient Comfort, Pediatric Rehabilitation, Personal Experience, Physician Attitude, Priority Journal, profound intellectual and multiple disability, rehabilitation center, Resuscitation, Risk, risk factor, Spinal Muscular Atrophy, Swiss, Terminal Care, Tracheostomy, Wosinski B
Implementation of Pediatric Palliative Care (PPC) in a Neonatal Intensive Care Unit (NICU) in St.Gallen
Tags: 2017, brain hemorrhage, Child, conference abstract, Death, Decision Making, Drug Withdrawal, Female, Gudrun J, Human, June 2019 List, Major Clinical Study, Male, Neonatal Intensive Care Unit, Newborn, newborn period, Palliative Therapy, Pregnancy, Susanne A, Swiss Medical Weekly, Switzerland, Trisomy 18
Neonatal palliative care: A single site clinical audit
Tags: 2019, Bereavement Support, Broadbent A, Cause Of Death, Child, Clinical Audit, conference abstract, Delaney A, Female, Gill K, gold, Herbert A, Hong T, Hospital Admission, Human, Journal of Paediatrics and Child Health, June 2019 List, Major Clinical Study, Male, Mickan S, Moloney S, Music Therapy, Newborn, Newborn Death, Noyes M, Nursing Staff, Palliative Therapy, Physiotherapy, Retrospective Study, Scuffham P, seashore, Social Work, Speech, Terminal Care, Weir K
Timing of palliative consultation for children during a fatal illness
Tags: 2019, African American, Article, Cardiovascular Disease, Caucasian, Childhood Disease, Cohort Analysis, Female, Fosselman D D, Hospital Pediatrics, Human, Humphrey L, Insurance, July 2019 List, Ketner A R, Length Of Stay, Major Clinical Study, Male, Miller R, outcome assessment, Palliative Therapy, private health insurance, Retrospective Study, Rossfeld Z M, Tobias J D, Tumin D
Parents' experiences of services for their child with a life-limiting neurodevelopmental disability
Palliative Care in the Pediatric Emergency Department: Findings From a Qualitative Study
Tags: 2019, Annals of Emergency Medicine., Article, Child, clinical evaluation, Controlled Study, Cote A J, Critically Ill Patient, Distress Syndrome, Emergency Ward, Female, Gaucher N, genetic transcription, Human, Intensive Care, July 2019 List, Major Clinical Study, Male, Palliative Therapy, Patient Care, Payot A, pediatric emergency medicine, Qualitative Research, Software, Thematic Analysis, theoretical study
Increasing access to children's palliative care education through e-learning: a review of the ICPCN experience
Tags: 2018, Article, Child, Children, Daniels A, Downing J, E-learning, Education, Female, Human, Human Experiment, International Journal of Palliative Nursing, July 2019 List, Language, Learning, Major Clinical Study, Male, mandarin, Nonhuman, Nurse, Paediatrics, Palliative, Palliative Therapy, Pediatrics, Skill, writing
Costs of Care and Location of Death in Community-Based Pediatric Palliative Care
Tags: 2019, Adolescent, Adult, Article, cardiovascular disease/dm [Disease Management], Child, Child Death, Child Health Care, child health insurance, childhood cancer/dm [Disease Management], childhood disease/dm [Disease Management], Chirico J, Cohort Analysis, community care, community-based, congenital disorder/dm [Disease Management], Cost, Cromwell P, Dawson C, Donnelly J P, Dying, family income, Female, groups by age, Gupton A, Health Care Cost, health maintenance organization, Home Care, Human, Journal of Palliative Medicine, July 2019 List, Korones D N, Major Clinical Study, Male, Medicaid, Miller M, neuromuscular disease/dm [Disease Management], newborn disease/dm [Disease Management], Palliative Therapy, Pediatric Palliative Care, pediatric patient, Prematurity/dm [disease Management], Race Difference, Retrospective Study
Differences in Advance Care Planning and Circumstances of Death for Pediatric Patients Who Do and Do Not Receive Palliative Care Consults: A Single-Center Retrospective Review of All Pediatric Deaths from 2012 to 2016
Tags: 2019, Advance Care Planning, Article, Benson RJ, Brogden NK, Child, Controlled Study, do not resuscitate order, Female, Gilbertson-White S, Harmoney K, Hospice, Human, Journal of Palliative Medicine, Life Sustaining Treatment, Major Clinical Study, Male, Medical Record Review, Mobley EM, Palliative Therapy, pediatric patient, Physician, Retrospective Study, September 2019 List, Statistics, tertiary care center, time of death
Building trust and improving communication with parents of children with Trisomy 13 and 18: A mixed-methods study
Tags: 2019, adverse event, Article, Barrington KJ, Bourque CJ, Brazg T, Child, Clinician, Death, Decision Making, Disability, Ethics, Farlow B, Female, Human, Janvier A, Major Clinical Study, Male, Palliative Medicine, Palliative Therapy, Questionnaire, September 2019 List, Social Support, Thematic Analysis, Trisomy 13, Trisomy 18, Trust, Wilfond B