Browse Items (179 total)
- Tags: Major Clinical Study
Youth With Chronic Conditions and Risky Behaviors: An Indirect Path
Tags: 2018, Adolescent, Akre C, Article, Barrense-Dias Y, Berchtold A, Chronic Disease, Controlled Study, daily life activity, December 2018 List, Eating, Education, Female, gambling, Gubelmann A, Health Status, high risk behavior, Human, internet addiction, Journal of Adolescent Health., juvenile, Major Clinical Study, Male, Newman CJ, psychological adjustment, statistical analysis, structural equation modeling, Student, substance use, Suris J C, vision, Wellbeing
Withholding life support for children with severe neurological impairment: Prevalence and predictive factors prior to admission in the PICU
Tags: 2023, Alexandre M, Archives de Pediatrie, Article, assisted ventilation, Brossier D, Child, Controlled Study, Disability, Duval C, February List 2024, Female, Functional Status, Human, Intensive Care, Intensive Care Unit, Major Clinical Study, Male, Palliative Therapy, Pediatric Intensive Care Unit, Pediatrician, Porcheret F, Prevalence, Retrospective Study, Roulland C, special situation for pharmacovigilance, Therapy, Toulouse J, Viallard ML
Wishing well, a home-based Pediatric palliative care service for childhood cancer in thailand
Tags: 2018, 52-26-6 (morphine), 57-27-2 (morphine), Bereavement, Brain Tumor, cancer center, Cancer Recurrence, Cancer Survival, Cancer Therapy, Chamnanprai S, Child, Childhood Cancer, Cohort Analysis, conference abstract, Controlled Study, Counseling, Death, Developing World 2018 List, Female, Follow Up, Home Visit, Human, Leukemia, Lymphoma, Major Clinical Study, Male, median survival time, Morphine, Nuchprayoon I, Pain, Palliative Therapy, Pediatric Blood and Cancer, Quality Of Life, Raksrithong T, solid malignant neoplasm, Thailand
Who Will Speak for Me? Disparities in Palliative Care Research with "unbefriended" Adolescents Living with HIV/AIDS
Tags: 2017, Adolescent, Adult, City, Clinical Trial, Controlled Study, D'Angelo LJ, December 2017 List, Female, Houston PE, Human, Human Dignity, Human Immunodeficiency Virus, Journal of Palliative Medicine, Justice, Kimmel AL, Lee BC, Lyon ME, Major Clinical Study, Male, Medical Decision Making, Mortality, Multicenter Study, Nonhuman, Palliative Therapy, Pediatric Hospital, Rana SR, Randomized Controlled Trial, Single Blind Procedure, Stigma
Who should discuss goals of care during acute deteriorations in patients with life threatening illnesses? A survey of clinicians from diverse pediatric specialties
Tags: 2019, Advanced Cancer, brain disease, Cancer Patient, cancer resistance, Child, Clinician, conference abstract, Controlled Study, Cote A J, Data Analysis Software, Decision Making, Deterioration, disease exacerbation, E-mail, Emergency Ward, Female, Gaucher N, Human, Human Tissue, Hypoplastic Left Heart Syndrome, Leukemia, Likert scale, Major Clinical Study, Male, nonparametric test, October 2019 List, Paediatrics and Child Health (Canada), Palliative Therapy, Payot A, Pediatrician, Perception, respiratory distress, Spinal Muscular Atrophy, vignette
Where children die: A retrospective analysis of child death overview panel (CDOP) data
Tags: 2019, anonymised data, Archives of Disease in Childhood, Asian, August 2019 List, British citizen, Cancer Diagnosis, Cause Of Death, Child, Child Death, Chromosome Aberration, Clarkson L, conference abstract, Congenital Malformation, Controlled Study, Data Analysis Software, Ethnic Group, Ethnicity, Female, Gender, Hartley D, Hospice, Human, Lyles L, Major Clinical Study, Male, Mayer A, McKeating C, Mortality Rate, Newborn, Palliative Therapy, Renton K, Retrospective Study, strategic planning, Terminal Care
What impedes timely pediatric palliative care consults? A preliminary report
Vulnerable Populations Receiving Palliative Radiation in a Children's Hospital: Reporting on the Underreported
Tags: 2019, Adult, Anesthesia, Asia, cancer radiotherapy, Central Nervous System Tumor, Child, conference abstract, Controlled Study, Death, electronic medical record, employer, Female, Follow Up, fraud, housing, Human, Hwang L, immigration, International Journal Of Radiation Oncology Biology Physics, Lee H J, Liu K X, lowest income group, Major Clinical Study, Male, Medical Record Review, Mental Stress, Neuroblastoma, Olch A J, Oncology 2019 List, Organization, Pain, Poverty, race, radiation oncologist, Radiotherapy, Retrospective Study, Rhabdomyosarcoma, School Child, South and Central America, Terminal Care, vulnerable population, Wong K, Young Adult
Use of paclitaxel to successfully treat children, adolescents, and young adults with Kaposi sarcoma in southwestern Tanzania
Tags: 2021, 2023 SE5 - Low Resource Setting, Adinani H, Adolescent, Adult, antiretroviral therapy, antiretrovirus agent/dt [Drug Therapy], Article, Bacha J, bleomycin/cb [Drug Combination], bleomycin/dt [Drug Therapy], bleomycin/iv [Intravenous Drug Administration], Campbell L, cancer combination chemotherapy, Cancer Palliative Therapy, Cancer Recurrence, Cancer Survival, Child, Children, Cohort Analysis, dexamethasone/dt [Drug Therapy], doxorubicin/cb [Drug Combination], doxorubicin/dt [Drug Therapy], drug contraindication, El-Mallawany NK, Female, Follow Up, Human, Human immunodeficiency virus infection/dt [Drug Therapy], Kaposi sarcoma/dt [Drug Therapy], lack of drug effect, long term survival, Major Clinical Study, Male, Mehta P, multiple cycle treatment, Paclitaxel, paclitaxel/dt [Drug Therapy], Quality Of Life, Retrospective Study, Slone J, Tanzania, treatment duration, Treatment Outcome, Treatment Planning, trend study, vincristine/cb [Drug Combination], vincristine/dt [Drug Therapy], vincristine/iv [Intravenous Drug Administration], virus load, Young Adult
Use of opioids in palliative care of children with advanced cancer
Tags: 2016, 52-26-6 (morphine), 53663-61-9 (opiate), 57-27-2 (morphine), 8002-76-4 (opiate), 8008-60-4 (opiate), Adjuvant, Advanced Cancer, Analgesia, Article, Child, Childhood Cancer, Cid Barria L, Constipation, Diagnosis, Drug Efficacy, Drug Safety, Female, Fernandez Urtubia B, Human, Major Clinical Study, Male, Medical Record, Morphine, Morphine/dt [drug Therapy], Nonsteroid Antiinflammatory Agent, Nonsteroid Antiinflammatory Agent/dt [drug Therapy], Oncology 2017 List, Opiate/dt [drug Therapy], Pain Intensity, Pain/dt [drug Therapy], Palliative Therapy, Palma Torres C, Retrospective Study, Revista Chilena De Pediatria, Rodriguez Zamora N, School Child, Sedation, Trevigno Bravo A, Visual Analog Scale
Unrealistic parental expectations for cure in poor-prognosis childhood cancer
Tags: 2020, Article, Bagatell R, Baker J N, Cancer, Cancer Palliative Therapy, Cancer Prognosis, Cancer Recurrence, cancer risk, Child, Childhood Cancer, Clinical Decision Making, Cohn S L, Cohort Analysis, confidence interval, Controlled Study, Cronin A M, Diller L R, Expectation, Female, Glade Bender J, Granger M M, High Risk Population, Human, Interpersonal Communication, Levine A, Mack J W, Major Clinical Study, Male, Marachelian A, Medical Record, Neuroblastoma, Odds Ratio, Oncology 2020 List, parental behavior, Park J, Patient Care, pediatric patient, Priority Journal, Prospective Study, Quality Of Life, Questionnaire, Rosenberg A, Shusterman S, Taddei S, theoretical model, Twist C J, Uno H
Unfolding parental knowledge, attitudes, and beliefs toward palliative care for children with cancer
Tags: 2023, 2023 SE3 - Oncology, Abboud MR, Article, Caregiver, Child, Childhood Cancer, Demography, Education, Educational Status, Emotion, Fares S, Female, Huijer HAS, Human, Lebanon, Major Clinical Study, Male, Multicenter Study, Noureddine S, Pain, Palliative Care, Palliative Therapy, Pediatric Blood and Cancer, Pediatrics, quantitative analysis, Questionnaire, Rassam RS, Smith EML, Structured Interview, Wolfe J
Turning Water into Wine: A New Community Pharmacy Workforce Delivering Paediatric Palliative Care Services Across Scotland
Tags: 2018, 7732-18-5 (water), Child, community pharmacist, conference abstract, February 2019 List, Funding, Health Care Delivery, Heart, Hospice, Human, Infant, Journal of Pain and Symptom Management, Major Clinical Study, McCusker K, nursing theory, Palliative Therapy, pharmacy, Scotland, stakeholder engagement, summer, water, wine, workforce
Trends in the aggressiveness of pediatric cancer near the end-of-life
Tags: 2018, Adult, aggressiveness, Artificial Ventilation, Cancer Patient, Child, Childhood Cancer, conference abstract, Controlled Study, Death, Diagnosis, Female, Fushimi K, Hematologic Malignancy, Human, Intubation, Japan, Major Clinical Study, Male, Matsumoto K, Oncology 2019 List, Pediatric Blood and Cancer, Resuscitation, School Child, Shinjo D, Terminal Care, Yotani N, Young Adult
Trends in incidence, prevalence, and mortality of neuromuscular disease in Ontario, Canada: a population-based retrospective cohort study (2003-2014)
Tags: 2019, Adolescent, Adult, Age, Aged, America, Amin R, amyotrophic lateral sclerosis, amyotrophic lateral sclerosis/ep [Epidemiology], Animals, APEC countries, Article, August 2019 List, Bai Y, Canada, Child, childhood disease/ep [Epidemiology], childhood diseases, Children, Chordata, Cohort Analysis, Cohort Studies, Commonwealth of Nations, Controlled Study, Data Base, death rate, Developed Countries, Disease Course, disease prevalence, Disease Progression, Eukaryotes, Female, Gershon A, Goldstein R, Health Care, health Insurance, Hominidae, Homo, Human, Human Diseases, Incidence, Infant, International Classification of Diseases, Katz S, Leasa D, Major Clinical Study, Male, Mammals, Man, McKim D, Middle Aged, Mortality, mortality rates, muscles, neuromuscular disease/ep [Epidemiology], Neuromuscular Diseases, Neuromuscular Disorders, Nonoyama M, North America, OECD Countries, Ontario, Palliative Care, Palliative Therapy, planning, PLoS One, Population Research, Preschool Child, Prevalence, Primates, Retrospective Studies, Retrospective Study, Rose L, School Child, sclerosis, spinal muscular atrophy/ep [Epidemiology], Spine, Survival, Tandon A, trend study, Trends, Vertebrates, Young Adult
Transforming a Face-to-Face Legacy Intervention to a Web-Based Legacy Intervention for Children With Advanced Cancer
Tags: 2020, Adolescent, Advanced Cancer, Akard T F, Article, Cancer Recurrence, cancer resistance, Caregiver, Child, Dietrich M S, Female, Friedman D L, Gerhardt C A, Gilmer M J, Given B, Hendricks-Ferguson V, Hinds P S, Human, Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association, Major Clinical Study, Male, Oncology 2020 List, Palliative Therapy, Satisfaction, Wray S
Timing of Pediatric Palliative Care Consults in Hospitalized Patients with Heart Disease
Tags: 2023, Advance Care Planning, April List 2023, Article, Artificial Ventilation, Bennett E, Bodily S, Cardiomyopathy, Catheterization, Child, Congenital Heart Disease, Consultation, Cook L, Delgado-Corcoran C, Disease Course, extracorporeal oxygenation, Female, Green DJ, heart disease, Hospital Patient, Hospitalization, Hospitalized Child, Human, Infant, information technology, Intensive Care Unit, Journal of Pediatric Intensive Care, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Male, Mansfield KJ, Medical Decision Making, Moore D, Mortality, Myocarditis, myopericarditis, Newborn, Olson LM, Palliative Care, Palliative Therapy, Patient Referral, pediatric patient, Pediatrics, pericarditis, pulmonary hypertension, Retrospective Study, Terminal Care, Wawrzynski S, Wilkins V
Timing of palliative consultation for children during a fatal illness
Tags: 2019, African American, Article, Cardiovascular Disease, Caucasian, Child, Childhood Disease, Cohort Analysis, Female, Fosselman DD, Hospital Pediatrics, Human, Humphrey L, Insurance, Ketner AR, Length Of Stay, Major Clinical Study, Male, May List 2023, Miller R, Only Child, outcome assessment, Palliative Therapy, private health insurance, Referral And Consultation, Retrospective Study, Rossfeld ZM, Tobias JD, Tumin D
Timing of palliative consultation for children during a fatal illness
Tags: 2019, African American, Article, Cardiovascular Disease, Caucasian, Childhood Disease, Cohort Analysis, Female, Fosselman D D, Hospital Pediatrics, Human, Humphrey L, Insurance, July 2019 List, Ketner A R, Length Of Stay, Major Clinical Study, Male, Miller R, outcome assessment, Palliative Therapy, private health insurance, Retrospective Study, Rossfeld Z M, Tobias J D, Tumin D
The Relationship Between Household Income and Patient-Reported Symptom Distress and Quality of Life in Children With Advanced Cancer: A Report From the PediQUEST Study
Tags: 2018, Advanced Cancer, Al-Sayegh H, Article, Bona K, Cancer, Cancer Patient, Child, Cohort Analysis, Distress Syndrome, Dussel V, Female, Feudtner C, highest income group, household income, Human, Ilowite MF, Kang TI, lowest income group, Ma C, Major Clinical Study, Male, Oncology 2018 List, outcome assessment, Pain, Palliative Therapy, patient-reported outcome, Poverty, Prevalence, Quality Of Life, Rosenberg AR, Secondary Analysis, Wolfe J
The Relationship Between Dyspnea Severity with Radiological and Laboratory Findings in Pneumonia in Children in Pediatric Palliative Care
Tags: 2023, Article, assisted ventilation, Atrophy, bacterial pneumonia, bone development, breathing muscle, bronchopneumonia, Caregiver, Çelik T, Cerebral Palsy, Child, Coskun M, Cross-sectional Study, Cubukcu D, Dyspnea, Epilepsy, February List 2024, Female, Genetic Disorder, Harputluoglu N, Hospitalization, Human, interstitial pneumonia, Journal of Pediatric Academy, laboratory diagnosis, Major Clinical Study, Male, medical device, modified Borg dyspnea scale, Nurse, Nutritional Support, Palliative Therapy, Pediatrician, physiotherapist, pneumonia/di [Diagnosis], radiodiagnosis, respiratory distress, scoring system, Social Worker, thorax radiography, virus pneumonia, X ray
The qualitative study on the experience and perception of healthcare professionals in pediatric palliative care
Tags: 2018, August 2018 List, Awareness, Child, conference abstract, constant comparative method, Death, Diagnosis, Grounded Theory, Home Care, Hospice, Human, Interview, Ireland, Major Clinical Study, Male, Palliative Medicine, Palliative Therapy, pediatric nurse, Pediatric Nursing, Perception, Qualitative Research, Quality Of Life, Salvaggio E
The integration of palliative care in Dr Congo "a Model of Sustainability": A field study
Tags: 2018, Analgesia, capacity building, Caregiver, Child, conference abstract, Congo, Congolese (Kinshasa), Developing World 2019 List, doctor nurse relation, Female, field study, Home Care, Human, Journal of Global Oncology, Leadership, Major Clinical Study, Male, Mubeneshayi Kananga A, Organization, Palliative Therapy, Practice Guideline, Primary Health Care, sensitization, Training, uganda, Volunteer
The Incidence and Evolution of Parkinsonian Rigidity in Rett Syndrome: A Pilot Study
Tags: 2016, 5 hydroxyindoleacetic acid, Adolescent, Adult, Age, ankle, Article, Barrowman N, Canadian Journal of Neurological Sciences, Cerebrospinal Fluid, characteristics, Child, Cohort Analysis, Cross-sectional Study, Disease Severity, Dopamine, Dystonia, Female, genetic susceptibility, homovanillic acid, homovanillic acid/ec [Endogenous Compound], Human, Humphreys P, hva, Incidence, Major Clinical Study, mecp2, methyl CpG binding protein 2, methyl CpG binding protein 2/ec [Endogenous Compound], missense mutation, mobilization, muscle rigidity, muscle tone, musculoskeletal disease assessment, neck, parkinsonism, Pharmacokinetics, Pilot Study, Priority Journal, Prospective Study, Quantitative Study, Rett syndrome, Rett syndrome rigidity distribution score, rigidity, scoring system, Speech, tone and motor problems, Trajectory, walking difficulty
The effect of web-based pediatric palliative care education on the palliative care knowledge level and practices of nursing students
The Effect of Pediatric Palliative Care Policy on Hospice Utilization Among California Medicaid Beneficiaries
The effect of L 5 hydroxytryptophan on self mutilation in Lesch Nyhan disease: a negative report
Tags: 1976, Anderson L T, automutilation, behavioral problems, carbidopa, Child, Clinical Study, Clinical Trial, Controlled Study, Dancis J, Drug Therapy, Herrmann L, Human, L-5-hydroxyl-tryptophan, Lesch Nyhan syndrome, Major Clinical Study, Neuropadiatrie, pharmacologic intervention, PLACEBO, self-mutilation, Therapy
The caregivers' psychosocial and economic effects of caring for terminally ill patients: The case of hospice Africa Uganda
The burden and scope of childhood cancer in displaced patients in Jordan: The King Hussein Cancer Center and Foundation Experience
Tags: 2023, 2023 SE5 - Low Resource Setting, Article, bone sarcoma, Brain Tumor, cancer center, Cancer Patient, Cancer Registry, Child, Childhood Cancer, drug cost, Female, Follow Up, Foundations, Frontiers in Oncology, Health Care Cost, Human, Iraqi, Jeha S, Jordan, Jordanian, Leukemia, Lymphoma, Major Clinical Study, Male, Mansour A, Nababteh M, Neoplasms, Overall Survival, Palliative Therapy, Public Health, refugee, retinoblastoma, Rihani R, Rodriguez-Galindo C, Social Support, Sultan I, Syrian, Yemeni
The aggressive end-of-life care in pediatric cancer patients in taiwan
Tags: 2018, Cancer Chemotherapy, Cancer Patient, Child, conference abstract, Controlled Study, Death, Diagnosis, do not resuscitate order, Female, Hospice Care, Human, Intensive Care Unit, Intubation, Major Clinical Study, Male, Medical Record Review, Oncology 2018 List, patent, Pediatric Blood and Cancer, Retrospective Study, School Child, Taiwan, Wu LM
Talking to parents about their preferences for their child's place of death: A prospective study
Tags: 2018, achievement, Advanced Cancer, Al-Khabbaz E, Archives of Disease in Childhood, Bluebond-Langner M, Case Study, Child, Clinician, conference abstract, Craig F, Death, Dinsdale A, Female, government, Hematologic Malignancy, Henderson E, Hospice, Human, Langner R, Major Clinical Study, March 2019 List, Multidisciplinary team, outcome assessment, Palliative Therapy, Patient Care, Peake J, Prospective Study, social aspect, solid malignant neoplasm
Talking about the End of Life, Death and Bereavement with Children's Literature
Symptoms and Suffering at the End of Life for Children and Young Adults with Life-Threatening Complex Chronic Conditions (S756)
Tags: 2020, Adult, Central Nervous System, Child, Chromosome, Chronic Disease, conference abstract, Data Analysis, DeCourcey D, Dyspnea, Female, Human, Journal of Pain and Symptom Management, Kao P C, Ma C, Major Clinical Study, Male, March 2020 List, Marcus K, Medical Technology, Pain, Prospective Study, Wolfe J, Young Adult
Supportive care in children with spinal muscular atrophy type 1: Results from a french multicentric study
Tags: 2019, August 2019 List, Barnerias C, Cances C, Caregiver, Chabrol B, Child, Clinical Research, conference abstract, Controlled Study, Cuisset J M, Death, Desguerre I, Developmental Medicine and Child Neurology, Drug Therapy, Female, France, Gastrostomy, History, Hully M, Human, Intensive Care Unit, Isapoff A, Major Clinical Study, Male, new drug, Noninvasive Ventilation, nusinersen, nutrition supplement, Palliative Therapy, Physician, Prospective Study, Rivier F, Ropars J, Sabouraud P, Sedation, Sedative Agent, standardization, Vuillerot C, Werdnig Hoffmann disease
Supporting parental caregivers of children living with life-threatening or life-limiting illnesses: A Delphi study
Tags: 2018, Article, Bally JMG, Basic Needs, Caregiver, Child, Consensus, Delphi Study, Diagnosis, Family Nursing, Feasibility Study, February 2019 List, Female, Hodgson-Viden H, Holtslander L, Human, Human Experiment, Journal for specialists in pediatric nursing : JSPN, Major Clinical Study, Male, Mpofu C, Nurse, Peacock S, Pediatrics, Physician, Self Care, Smith NR, Social Worker, Spurr S, theoretical study, Zimmer M
Specialized pediatric palliative care services in pediatric hematopoietic stem cell transplant centers
Tags: 2021, Advance Care Planning, Article, Bader P, Bereavement Counseling, Bereavement Support, Cause Of Death, Child, Children, Controlled Study, Corbacioglu S, Dalissier A, Descriptive Research, Ethics, Female, Galimard JE, Gjergji M, Hematopoietic stem cell transplantation, Hematopoietic Stem Cells, Home, Hospice, Hospital, Human, Hutt D, in-hospital mortality, July List 2023, Kenyon M, Kozijn A, Liptrott S, Major Clinical Study, Male, Mekelenkamp H, Mortality, Murray J, Palliative Care, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Place Of Death, relapse, Retrospective Study, Schroder T, Spiritual Care, Stem Cell Transplantation, Trigoso E
Specialist perinatal palliative care: a retrospective review of antenatal referrals to a children's palliative care service over 14 years
Tags: 2023, Article, Bertaud S, BMC Palliative Care, Brightley G, Child, Craig F, Crowley N, February List 2024, Female, Fetus, Heart, Hospice, Hospital Mortality, Human, Infant, Major Clinical Study, Male, Medical Record Review, Palliative Therapy, prenatal period, Retrospective Study, School Child, Trisomy 18, Uncertainty, Wilkinson D
Sign Me Up! Understanding Referral and Enrollment to Community-Based Pediatric Hospice and Palliative Care (FR420D)
Tags: 2020, Caliboso M, Child, Cohort Analysis, conference abstract, Controlled Study, Demography, Female, Hospice, Human, Insurance, Journal of Pain and Symptom Management, Lindley L, Lotstein D, Major Clinical Study, Male, March 2020 List, Neonatal Intensive Care Unit, Nervous System, Palliative Therapy, Patient Referral, Pediatric Hospital, Preschool Child, Retrospective Study, Speech, Total Quality Management, Wolfe J
Rett's syndrome: Characterization of respiratory patterns and sleep
Tags: 1987, abnormal respiratory problems, abnormal sleep patterns, Annals Of Neurology, ataxia, Autism, breathing difficulties, Central Nervous System, characteristics, Child, Dementia, Diagnosis, etiology, Frost Jr J D, Glaze D G, heredity, Human, hyperpnea, Major Clinical Study, Percy A K, Priority Journal, Respiratory System, Rett syndrome, Seizure, Sleep, sleep disturbance, Trajectory, Zoghbi H Y