1
40
5
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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October 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2022 List
URL Address
<a href="http://doi.org/10.3389/fped.2022.887711">http://doi.org/10.3389/fped.2022.887711</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Facilitators and Barriers Affecting Implementation of Neonatal Palliative Care by Nurses in Mainland China
Publisher
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Frontiers in Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
death; neonatal; China; newborn; acceptance; emotional; social; analgesia; well-being; nurses; education; nurse; palliative; barriers; skill; human; article; female; male; adult; aged; therapy; scale; care; multicenter; attitude; Chinese; clinical; controlled; intensive; major; study; unit; decision; making; middle; facilitators; guidance; script; simplified; vocational
Creator
An entity primarily responsible for making the resource
Zhong Y; Black BP; Kain VJ; Song Y
Description
An account of the resource
Neonatal nurses in mainland China encounter various challenges when it comes to delivering palliative care to neonates. The aim of this study was to determine the barriers and facilitators of neonatal nurses' attitudes to palliative care for neonates in mainland China. A simplified Chinese version of the Neonatal Palliative Care Attitude Scale was piloted, administered, and analyzed using survey methods. Nurses in neonatal intensive care units in mainland China regardless of experience in the field were invited to take part in. Over a five-month period in 2019, we surveyed neonatal nurses from 40 hospitals in five provinces of China. The response rate was 92.5% (N = 550). This study identified eight facilitators and four barriers to neonatal palliative care implementation. In terms of nurses' attitudes on providing palliative care, younger and older nurses were more positive, whereas middle-aged nurses were less so. Nurses' emotional wellbeing was rarely impacted by neonatal death. They considered neonatal palliative care, particularly pain management, to be just as important as curative treatment. Parents were invited to participate in decision-making by nurses. Nurses reported having access to professional counseling and talking about their concerns with other healthcare professionals. The following barriers to neonatal palliative care were identified in this study that were not observed in the original English version scale research in 2009: a lack of clinicians, time, clinical skills, systematic education, neonatal palliative care experience, and social acceptance. Future research is required to investigate each barrier in order to improve the implementation of neonatal palliative care in mainland China. Copyright © 2022 Zhong, Black, Kain and Song.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3389/fped.2022.887711">10.3389/fped.2022.887711</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
acceptance
Adult
Aged
Analgesia
Article
Attitude
Barriers
Black BP
CARE
China
Chinese
Clinical
controlled
Death
decision
Education
emotional
Facilitators
Female
Frontiers in Pediatrics
guidance
Human
intensive
Kain VJ
Major
making
Male
middle
Multicenter
Neonatal
Newborn
Nurse
Nurses
October 2022 List
Palliative
Scale
script
simplified
Skill
Social
Song Y
study
Therapy
Unit
vocational
Well-being
Zhong Y
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
October 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2022 List
URL Address
<a href="http://doi.org/10.1017/S1478951522000797">http://doi.org/10.1017/S1478951522000797</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The Neonatal Palliative Care Attitude Scale: Psychometric properties for Portuguese neonatal nurses
Publisher
An entity responsible for making the resource available
Palliative and Supportive Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
End-of-life; neonatal; nursing; newborn; Neonatal; reliability; validity; education; nurse; palliative; Palliative; of; human; article; female; male; face; software; therapy; scale; validation; error; care; attitude; clinical; controlled; intensive; major; study; unit; factor; alpha; analysis; coefficient; confirmatory; consistency; convergent; Cronbach; degree; discriminant; experiment; Factor; freedom; internal; mean; quantitative; root; squared; supportive; terminal; Validation
Creator
An entity primarily responsible for making the resource
Sousa F P; Roldao MG; Rebotim AM; Figueira AR; Barbosa J; Fradique E; Santos Curado MA
Description
An account of the resource
BACKGROUND: This study is aimed to perform the translation and cultural adaptation of the Neonatal Palliative Care Attitude Scale (NiPCAS) and evaluation of its psychometric properties with Portuguese neonatal nurses. METHOD(S): The research started with a scoping review that allowed the identification of the NiPCAS. It was a methodological study with a quantitative approach. The semantic equivalence of the items was adjusted with the participation of 20 neonatal nurse experts. They performed facial and quantitative content validation. Psychometric validation of the NiPCAS was performed on a nonprobability nurses sample (n = 283) in 13 level 3 neonatal units between July 2021 and February 2022. Confirmatory factor analysis using the polychoric correlation matrix was performed to estimate factor validity using the "lavaan" package for R statistical software. Internal consistency was estimated using Cronbach's alpha coefficient, and item sensitivity was assessed using the asymmetry and kurtosis coefficients. Empirical indices were considered: chi-square over degrees of freedom; comparative fit index; normed fit index; Tucker-Lewis index, and root mean square error of approximation; average extracted variance and composite reliability were used to assess convergent validity. RESULT(S): Asymmetry and kurtosis were < 3 and < 7 , respectively, suggesting psychometric sensitivity. The convergent validity of the factors was: F1, FCF1 = 0.90 and for F2, FCF2 = 0.80, and a lower value for F3, FCF3 = 0.40. According to the squared correlation criterion average variance extracted (AVE) between the factors, there was no discriminant validity for F1 and F2, but there was discriminant validity for F1, F3, F2, and F3. SIGNIFICANCE OF RESULTS: This instrument has implications for providing end-of-life care to newborns and their families. The use of this instrument reveals several barriers and facilitating elements inherent in the organization and culture of the facility and nursing education.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1017/S1478951522000797">10.1017/S1478951522000797</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
alpha
Analysis
Article
Attitude
Barbosa J
CARE
Clinical
coefficient
confirmatory
consistency
controlled
convergent
Cronbach
degree
discriminant
Education
end-of-life
error
experiment
Face
factor
Female
Figueira AR
Fradique E
Freedom
Human
intensive
internal
Major
Male
mean
Neonatal
Newborn
Nurse
Nursing
October 2022 List
Of
Palliative
Palliative & Supportive Care
quantitative
Rebotim AM
Reliability
Roldao MG
root
Santos Curado MA
Scale
Software
Sousa F P
squared
study
supportive
terminal
Therapy
Unit
VALIDATION
Validity
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
September 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2022 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2022.05.009" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2022.05.009</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Provider Perceptions for Withdrawing Life Sustaining Therapies at a Large Pediatric Hospital
Publisher
An entity responsible for making the resource available
Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
child; human; female; male; article; perception; software; qualitative; health; hospital; life; analysis; therapy; practice; treatment; quality; study; erratum; clinical; withdrawal; drug; pediatric; neonatal; experiment; palliative; care; intensive; major; unit; sustaining; quantitative; guideline; coronary; data
Creator
An entity primarily responsible for making the resource
Sawyer K E; Carpenter AT; Coleman RD; Tume SC; Crawford CA; Casas JA
Description
An account of the resource
Context: More than 74% of pediatric deaths occur in an intensive care unit (ICU), with 40% occurring after withdrawal of life-sustaining therapies (WOLST). No needs assessment has described provider needs or suggestions for improving the WOLST process in pediatrics.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2022.05.009" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2022.05.009</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Analysis
Article
CARE
Carpenter AT
Casas JA
Child
Clinical
Coleman RD
coronary
Crawford CA
data
Drug
erratum
experiment
Female
guideline
Health
Hospital
Human
intensive
Journal of Pain and Symptom Management.
Life
Major
Male
Neonatal
Palliative
Pediatric
Perception
Practice
Qualitative
Quality
quantitative
Sawyer K E
September 2022 List
Software
study
sustaining
Therapy
Treatment
Tume SC
Unit
Withdrawal
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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September 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2022 List
URL Address
<a href="http://doi.org/10.1177/02692163221093145" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/02692163221093145</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Inequalities in Access to Bereavement Support Before and During COVID-19: Findings from Voluntary and Community Sector Bereavement Services in the UK
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
bereavement; child; hospice; human; female; male; attention; bereavement; palliative; organization; gender; welfare; therapy; support; study; pandemic; disease; 2019; clinical; population; abstract; conference; controlled; major; social; and; ethnic; coronavirus; disadvantaged; group; media; minority; sexual
Creator
An entity primarily responsible for making the resource
Selman L; Sutton E; Medeiros Mirra R; Goss S; Longo M; Seddon K; Penny A; Wakefield D; Nelson A; Byrne A; Harrop E
Description
An account of the resource
Background/aims: The COVID-19 pandemic has resulted in global mass bereavement; in the UK alone there have been 140,000 deaths to date, with a disproportionate impact on Black, Asian or minoritized ethnic (BME) communities. Voluntary and community sector (VCS) bereavement services including hospices play an important role in bereavement support. We aimed to determine services' perspectives on access to their support.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/02692163221093145" target="_blank" rel="noreferrer noopener">10.1177/02692163221093145</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
abstract
and
Attention
Bereavement
Byrne A
Child
Clinical
Conference
controlled
coronavirus
disadvantaged
Disease
ethnic
Female
Gender
Goss S
group
Harrop E
Hospice
Human
Longo M
Major
Male
Medeiros Mirra R
media
minority
Nelson A
Organization
Palliative
Palliative Medicine
Pandemic
Penny A
Population
Seddon K
Selman L
September 2022 List
Social
study
Support
Sutton E
Therapy
Wakefield D
welfare
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.genhosppsych.2009.03.012" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.genhosppsych.2009.03.012</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Coping, self-efficacy and psychiatric history in patients with both chronic widespread pain and chronic fatigue
Publisher
An entity responsible for making the resource available
General Hospital Psychiatry
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
adolescent; Female; Humans; Male; Young Adult; Pain; Adult; Attitude to Health; Emotions; Questionnaires; Chronic disease; Aged; Middle Aged; Comorbidity; Self Efficacy; Fatigue; Problem Solving; Severity of Illness Index; Activities of Daily Living; Regression Analysis; Depressive Disorder; Adaptation; Psychological; Stress Disorders; Chronic; Fatigue Syndrome; Fibromyalgia; Major; Post-Traumatic
Creator
An entity primarily responsible for making the resource
Smith WR; Strachan ED; Buchwald D
Description
An account of the resource
OBJECTIVE: To investigate the relationship of coping style and self-efficacy to functional impairment in a group of patients with both chronic widespread pain (CWP) and chronic fatigue, as well as the possible mediating role of psychiatric diagnosis. METHODS: We identified 138 consecutive clinic patients who met criteria for CWP and chronic fatigue. We collected demographic and clinical characteristics, as well as measures of emotion-focused and problem-focused coping styles, fatigue-related self-efficacy and self-reported general health. Psychiatric diagnoses were determined with a structured interview. Short Form-36 subscales of pain-related and fatigue-related functioning were the dependent variables in ordinal multiple regression analyses to identify the best-fit model for each. RESULTS: In the final model for pain, increased functional impairment was associated with increased emotion-focused coping as well as less education, lower general health scores and higher body mass index. Conversely, in the final model for fatigue, increased functional impairment was significantly associated with less emotion-focused coping, lower general health scores and lower self-efficacy. CONCLUSIONS: The unexpected finding that emotion-focused coping was associated differently with chronic pain and fatigue among patients who experience both symptoms is discussed in the context of the research on the effects of self-efficacy and possible treatment approaches.
2009-08
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.genhosppsych.2009.03.012" target="_blank" rel="noreferrer">10.1016/j.genhosppsych.2009.03.012</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Activities of Daily Living
Adaptation
Adolescent
Adult
Aged
Attitude To Health
Backlog
Buchwald D
Chronic
Chronic Disease
Comorbidity
Depressive Disorder
Emotions
Fatigue
Fatigue Syndrome
Female
Fibromyalgia
General Hospital Psychiatry
Humans
Journal Article
Major
Male
Middle Aged
Pain
Post-traumatic
Problem Solving
Psychological
Questionnaires
Regression Analysis
Self Efficacy
Severity Of Illness Index
Smith WR
Strachan ED
Stress Disorders
Young Adult