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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1017/s1478951505050029" target="_blank" rel="noreferrer">http://doi.org/10.1017/s1478951505050029</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Identification of patients with noncancer diseases for palliative care services
Publisher
An entity responsible for making the resource available
Palliative & Supportive Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Humans; Australia; Palliative Care/utilization; Critical Illness/nursing; Eligibility Determination/utilization; Health Services Needs and Demand/statistics & numerical data; Hospice Care/utilization; Needs Assessment/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Grbich C; Maddocks I; Parker D; Brown M; Willis E; Piller N; Hofmeyer A
Description
An account of the resource
OBJECTIVE: To identify criteria for measuring the eligibility of patients with end-stage noncancer diseases for palliative care services in Australian residential aged care facilities. METHODS: No validated set if guidelines were available so five instruments were used: an adaptation of the American National Hospice Association Guidelines; a recent adaptation of the Karnofsky Performance Scale; the Modified Barthel Index; the Abbey Pain Score for assessment of people who are nonverbal and a Verbal Descriptor Scale, also for pain measurement. In addition, nutritional status and the presence of other problematic symptoms and their severity were also sought. RESULTS: The adapted American National Hospice Association Guidelines provided an initial indicative framework and the other instruments were useful in providing confirmatory data for service eligibility and delivery.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1017/s1478951505050029" target="_blank" rel="noreferrer">10.1017/s1478951505050029</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Australia
Backlog
Brown M
Critical Illness/nursing
Eligibility Determination/utilization
Grbich C
Health Services Needs and Demand/statistics & numerical data
Hofmeyer A
Hospice Care/utilization
Humans
Journal Article
Maddocks I
Needs Assessment/statistics & numerical data
Palliative & Supportive Care
Palliative Care/utilization
Parker D
Piller N
Willis E
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1467-842x.2005.tb00754.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1467-842x.2005.tb00754.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Documenting end of life decisions in residential aged care facilities in South Australia.
Publisher
An entity responsible for making the resource available
Australian And New Zealand Journal Of Public Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Female; Humans; Male; Health Services Research; Sensitivity and Specificity; advance care planning; DNAR; Resuscitation Orders; Attitude to Death; documentation; South Australia; Palliative Care/ut [Utilization]; Advance Directives/td [Trends]; Homes for the Aged; Life Support Care/st [Standards]; Skilled Nursing Facilities; Life Support Care/td [Trends]
Creator
An entity primarily responsible for making the resource
Brown M; Grbich C; Maddocks I; Parker D; Connellan PR; Willis E
Description
An account of the resource
OBJECTIVE: This research examined the provision of palliative care for residents with a non-cancer diagnosis including the use of advance directives and advance care planning as part of palliative care policies in residential aged care facilities in South Australia. There are no guidelines for recording residents' wishes if they are no longer competent., METHODS: Stage 1 involved a survey of 90 randomly selected aged care facilities. Stage 2 involved case studies of 69 residents, appropriate for palliative care, from 17 facilities and interviews with 15 directors of care., RESULTS: Most residential aged care facilities used forms to record residents' wishes about end of life care, but there was little consistency. Some had no palliative care policy and few facilities required a formal advance directive. Not all residents had formally appointed a proxy., CONCLUSIONS: Residential aged care facilities should be required to develop and implement a palliative care policy acknowledging the Accreditation Standards and State legislation and including a simple tool for advance care planning. Case conferencing could assist in discussing and documenting the resident's wishes. Public education is essential to increase community and professional awareness in order to promote empowerment for the increasing number of older people who will die in residential aged care facilities.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1467-842x.2005.tb00754.x" target="_blank" rel="noreferrer">10.1111/j.1467-842x.2005.tb00754.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Advance Care Planning
Advance Directives/td [Trends]
Attitude To Death
Australian And New Zealand Journal Of Public Health
Backlog
Brown M
Connellan PR
DNAR
Documentation
Female
Grbich C
Health Services Research
Homes for the Aged
Humans
Journal Article
Life Support Care/st [Standards]
Life Support Care/td [Trends]
Maddocks I
Male
Palliative Care/ut [Utilization]
Parker D
Resuscitation Orders
Sensitivity and Specificity
Skilled Nursing Facilities
South Australia
Willis E
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1046/j.1440-1754.1999.00351.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1440-1754.1999.00351.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The role of palliative care in advanced muscular dystrophy and spinal muscular atrophy.
Publisher
An entity responsible for making the resource available
Journal Of Paediatrics And Child Health
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Subject
The topic of the resource
Child; Female; Humans; Male; Advance Directives; Adult; Respiration; Continuity of Patient Care; adolescent; bereavement; social support; DNAR; Nuclear Family; Artificial; Parents/px [Psychology]; Palliative Care/og [Organization & Administration]; Muscular Atrophy; Muscular Dystrophies/th [Therapy]; Needs Assessment; Terminal Care/st [Standards]; South Australia; Spinal/th [Therapy]
Creator
An entity primarily responsible for making the resource
Parker D; Maddocks I; Stern LM
Description
An account of the resource
OBJECTIVE: This study examines the potential role for palliative care services in the care of individuals with muscular dystrophy and spinal muscular atrophy, and the support of their families., METHODOLOGY: Semistructured interviews were conducted in South Australia with nine bereaved and four current family members of individuals with muscular dystrophy or spinal muscular atrophy. Issues explored during interview included: (i) the family perceptions of the difficulties in caring; (ii) the psychological and physical resources which were available to assist them; and (iii) family recall of the management of the terminal phase of the illness., RESULTS: Significant issues identified included: (i) a lack of coordination of care and access to skilled, competent carers; (ii) a lack of support for siblings; (iii) inadequate bereavement care; and (iv) limited discussion of options of ventilatory support and advance directives., CONCLUSIONS: The terminal care for individuals with muscular dystrophy and spinal muscular atrophy and their families requires improvement. Although many individuals with these conditions will die following an acute event, palliative care services may be appropriate for those who require a period of terminal care at home.
1999
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1046/j.1440-1754.1999.00351.x" target="_blank" rel="noreferrer">10.1046/j.1440-1754.1999.00351.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1999
Adolescent
Adult
Advance Directives
Artificial
Backlog
Bereavement
Child
Continuity Of Patient Care
DNAR
Female
Humans
Journal Article
Journal of Paediatrics and Child Health
Maddocks I
Male
Muscular Atrophy
Muscular Dystrophies/th [Therapy]
Needs Assessment
Nuclear Family
Palliative Care/og [Organization & Administration]
Parents/px [psychology]
Parker D
Respiration
Social Support
South Australia
Spinal/th [Therapy]
Stern LM
Terminal Care/st [standards]