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40
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Text
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URL Address
<a href="http://doi.org/10.1089/jpm.2010.0387" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2010.0387</a>
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Title
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Spirituality of parents of children in palliative care
Publisher
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Journal Of Palliative Medicine
Date
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2011
Creator
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Knapp C; Madden V; Wang H; Curtis C; Sloyer P; Shenkman E
Description
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Abstract Aims: To determine the spirituality of parents whose children have life-limiting illnesses and to determine the factors associated with parents' spirituality. Methods: Telephone survey of 129 parents whose children were enrolled in a pediatric palliative care program in Florida. The Functional Assessment of Chronic Illness Therapy-Spiritual Well-being (FACIT-Sp) scale was used to measure parents' spirituality. The Health Utilities Index (HUI) was used to measure health status. Results: Parents' average score on the FACIT-Sp meaning/peace subscale was 24.1 out of 32, and 12.5 out of 16 for the faith subscale. Parents' average total FACIT-Sp score was 36.6 of 48. Multivariate analyses show that parental black non-Hispanic race, "other" race, being married, as well as children's higher vision and hearing health status were associated with higher spirituality, as measured by the total FACIT-Sp. Two parent household and children's higher speech health status were associated with lower FACIT-Sp scores. Conclusions: Our results suggest that non-white parents have greater faith-based and overall spirituality than white parents. Spiritual assessments should be conducted for all parents as differing supportive services may be needed. The palliative care team should ensure that parents' spirituality is being incorporated, as appropriate, into their children's routine care.
Identifier
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<a href="http://doi.org/10.1089/jpm.2010.0387" target="_blank" rel="noreferrer">10.1089/jpm.2010.0387</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Curtis C
Journal Article
Journal of Palliative Medicine
Knapp C
Madden V
Shenkman E
Sloyer P
Wang H
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2008-2721" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2008-2721</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Pediatricians' perceptions of and preferred timing for pediatric palliative care
Publisher
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Pediatrics
Date
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2009
Creator
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Thompson LA; Knapp C; Madden V; Shenkman EA
Identifier
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<a href="http://doi.org/10.1542/peds.2008-2721" target="_blank" rel="noreferrer">10.1542/peds.2008-2721</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2009
2009
Backlog
Journal Article
Knapp C
Madden V
Pediatrics
Shenkman EA
Thompson LA
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1049909109358310" target="_blank" rel="noreferrer">http://doi.org/10.1177/1049909109358310</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Adolescents with life-threatening illnesses
Publisher
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The American Journal Of Hospice & Palliative Care
Date
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2010
Subject
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Adolescent Transitions
Creator
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Knapp C; Quinn GP; Murphy D; Brown R; Madden V
Description
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Adolescents have unique physical and psychosocial needs. Adolescents want to gain autonomy, yet they must still rely on their parents for support. These unique needs are further complicated by a life-threatening illness. Adolescents with life-threatening illnesses must rely on their parents, due to legal aspects of decision making, and they also face potential loss of peer interaction as they spend more time in hospitals and away from their friends. Adolescents may also be concerned with fertility, reproduction, and sexuality, issues that are often not addressed in palliative care programs. To meet the unique needs of adolescents, specific palliative care programs may need to be developed.
2010
Identifier
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<a href="http://doi.org/10.1177/1049909109358310" target="_blank" rel="noreferrer">10.1177/1049909109358310</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2010
Adolescent Transitions
Backlog
Brown R
Journal Article
Knapp C
Madden V
Murphy D
Quinn GP
The American Journal of Hospice & Palliative Care