Innovative approach to providing 24/7 palliative care for children
end-of-life care; 24/7; Children’s hospice; paediatric symptom management
This study outlines an innovative, English hospice-based service that provides 24/7 care for children with life-limiting conditions and their families. Operational objectives were: symptom management; open access to families and professionals; choice in place of care and of death; and collaboration to develop shared pathways and management plans. Service standards were audited through questionnaires completed by professionals and families. Findings demonstrated that the nursing team filled a critical gap and met its pre-set standards. Keys to success were: having the right level and mix of specialist and advanced skills; funded on-call arrangements; anticipatory planning; symptom management plans; and clinical supervision. Further recommendations were to develop a multi-agency workforce strategy, and to increase capacity in the children's sector to undertake academic research measuring the impacts of interventions.
2014-07
Maynard L; Lynn D
Nursing Children And Young People
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.7748/ncyp.26.6.27.e445" target="_blank" rel="noreferrer">10.7748/ncyp.26.6.27.e445</a>
Development Of A Logic Model To Support A Network Approach In Delivering 24/7 Children’s Palliative Care: Part One.
Research; Palliative Care/organization & Administration
24/7; Children's Palliative Care; End Of Life; Funding Palliative Care; Logic Model; Out Of Hours; Symptom Management
BACKGROUND:
This is the second of a two-part article that discusses a research project that aimed to develop and evaluate a 24/7 symptom-management service for children with palliative care needs and a nursing logic model to enable a novel service approach to be generalised and replicated.
RESULTS:
Findings demonstrated that the service standards were met and exceeded expectations. Families valued the role, which enabled choice in location of care and perceived the service as a 'lifeline'.
DISCUSSION:
Team composition with the right level of specialist and advanced nursing skills, anticipating symptom-management planning, clinical supervision and funded on-call processes were key success criteria. The nursing logic model demonstrated relationships between context investments into the service and outcomes for children and families.
Maynard L; Lynn D
International Journal Of Palliative Nursing
2016
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
DOI: 10.12968/ijpn.2016.22.6.278