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Tags: Lovgren M

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Parents' Experiences of Information and Decision Making in the Care of Their Child With Severe Spinal Muscular Atrophy: A Population Survey

OBJECTIVE:: This study aims to assess the experiences and wishes of parents of children with severe spinal muscular atrophy regarding information and decision-making throughout the course of the illness. STUDY DESIGN:: A full population survey,…

Tags: 2019, Beernaert K, End-of-life Care, Jeppesen J, Journal of Child Neurology, Kreicbergs U, Lovgren M, March 2019 List, Neonatology, Palliative Care, Pediatrics, Rahbek J, Sejersen T, Sma, Werlauff U

Telling the truth to dying children-End-of-life communication with families

Tags: 2019, Acta Paediatrica, Communication, End-of-life Communication, Families, Lovgren M, Melin-Johansson C, Palliative Care, Pediatric Palliative Care, Pediatrics, September 2019 List, Sveen J, Udo C

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