1
40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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April 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2018 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2017.11.080" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2017.11.080</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
We Built It…They All Came…Now How to Keep from Drowning? Pediatric Palliative Care Program Development 202: Skills in Your Toolbox for Growth and Sustainability (P20)
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
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Palliative Care; Program Development; Drowning; Near Drowning
Creator
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Kang T; Lotstein D; Humphrey L; Klick J; Williams C
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2017.11.080" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2017.11.080</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
April 2018 List
Drowning
Humphrey L
Journal of Pain and Symptom Management
Kang T
Klick J
Lotstein D
Near Drowning
Palliative Care
Program Development
Williams C
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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April 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April List 2023
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2023.02.009" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.jpainsymman.2023.02.009</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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From Hospital to Home: Referrals to Pediatric Hospice and Home-Based Palliative Care
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Palliative Care; Hospice; Pediatrics; Hospices; Referral and Consultation; Home-Based Palliative Care
Creator
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Lotstein D; Klein MJ; Lindley LC; Wolfe J
Description
An account of the resource
CONTEXT: Hospital-based pediatric palliative care (PPC) may help optimize referrals to community-based hospice and home-based palliative care (HBPC) for children with serious illness, yet little is known about their referral practices. OBJECTIVES: To describe community-based program referrals from a PPC team, identifying factors associated with referral type, and potential misalignment between patient needs and referral received. METHODS: Chart abstraction of patients seen in 2017 by the PPC team of a large, urban children's hospital, followed for at least 6 months or until death, including clinical and demographic characteristics, and referrals to hospice and HBPC. RESULTS: Of the 302 study-eligible patients, 25% died during the hospitalization of the first 2017 visit. Of the remaining 228 patients, 42 (18.4%) were referred to HBPC and 58 (25.4%) to hospice. Excluding patients referred to hospice care, only one-third with demographic eligibility were referred to HBPC; those seen in the ICU were least likely to be referred. Over half of the 58 patients referred to hospice died within the study period (n=34, 58.6%); descendants were more likely to have cancer (p=.002) and less likely to have a neurologic (p=.021) diagnosis. CONCLUSION: Despite demographic eligibility, a minority of patients seen by a hospital-based PPC team received referrals for hospice or HBPC. Children discharged from an ICU and those with neurologic conditions may be at higher risk of missing referrals best aligned with their needs. Future research should identify and address causes of referral misalignment. Advocacy for programs adaptable to patients' changing needs may also be needed.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2023.02.009" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2023.02.009</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
April List 2023
home-based palliative care
Hospice
Hospices
Journal of Pain and Symptom Management
Klein MJ
Lindley LC
Lotstein D
Palliative Care
Pediatrics
Referral And Consultation
Wolfe J
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
February 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2021 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2020.12.004" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2020.12.004</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The use of telemedicine for home-based palliative care for children with serious illness: a scoping review
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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Pediatrics; Telemedicine; Palliative Care; Home-Based Palliative Care
Creator
An entity primarily responsible for making the resource
Miller KA; Baird J; Lira J; Herrera Eguizabal J; Fei S; Kysh L; Lotstein D
Description
An account of the resource
CONTEXT: There is potential value to home-based palliative care for children with serious illness delivered via telemedicine (TM HBPC). Evidence to guide optimal design and delivery of TM HBPC is urgently needed. OBJECTIVES: To explore the existing literature to identify research on pediatric TM HBPC. METHODS: Systematic scoping review conducted following PRISMA-ScR guidelines. PubMed, Embase, Cochrane CENTRAL, CINAHL, Web of Science, PsycINFO, and ERIC were searched (January-April 2020) using keywords and controlled vocabulary. The Reach, Effectiveness, Adoption, Implementation, Maintenance (RE-AIM) framework was used to identify components in the literature that facilitate or limit dissemination of TM HBPC interventions. RESULTS: Seventeen articles were included. Most of the literature comprised small descriptive studies, such as case reports, and feasibility trials. Many studies focused on acceptability, and the TM HBPC model was generally acceptable to both clinicians and families. Few studies measured patient access to care, patient and family-centered health or quality of life outcomes. While included studies addressed multiple criteria for each of the RE-AIM dimensions, much of the information was qualitative and subjective. CONCLUSION: TM HBPC is a promising strategy to increase access to palliative care for children with serious illness. However, the current review found a need for more robust information describing implementation and effectiveness of TM HBPC models, adaptation across care settings, and maintenance over time in order to guide and facilitate broader dissemination.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2020.12.004" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2020.12.004</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Baird J
February 2021 List
Fei S
Herrera Eguizabal J
home-based palliative care
Journal of Pain and Symptom Management
Kysh L
Lira J
Lotstein D
Miller KA
Palliative Care
Pediatrics
Telemedicine