1
40
9
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Dublin Core
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Title
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April 2023 List
Text
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Citation List Month
April List 2023
URL Address
<a href="http://doi.org/10.1111/apa.16716" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1111/apa.16716</a>
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A Grounded Theory Study on the Dynamics of Parental Grief during the Children's End of Life
Publisher
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Acta Paediatrica
Date
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2023
Subject
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Child; loss; end of life; Only Child; palliative; bereavement; coping with grief
Creator
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Kochen EM; Grootenhuis MA; Teunissen Sccm; Boelen PA; Tataranno ML; Fahner JC; de Jonge RR; Houben ML; Kars MC
Description
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AIM: Parents are increasingly confronted with loss during their child's end of life. Healthcare professionals struggle with parental responses to loss. This study aimed to understand parental coping with grief during their child's end of life. METHODS: A grounded theory study was performed, using semi-structured interviews with parents during the child's end of life and recently bereaved parents. Data were collected in four children's university hospitals and paediatric homecare services between October 2020 and December 2021. A multidisciplinary team conducted the analysis. RESULTS: In total, 38 parents of 22 children participated. Parents strived to sustain family life, to be a good parent and to ensure a full life for their child. Meanwhile parents' grief increased because of their hypervigilance towards signs of loss. Parents' coping with grief is characterised by an interplay of downregulating grief and connecting with grief, aimed at creating emotional space to be present and connect with their child. Parents connected with grief when it was forced upon them or when they momentarily allowed themselves to. CONCLUSION: The parents' ability to engage with grief becomes strained during the end of life. Healthcare professionals should support parents in their search for a balance that facilitates creating emotional space.
Identifier
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<a href="http://doi.org/10.1111/apa.16716" target="_blank" rel="noreferrer noopener">10.1111/apa.16716</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Acta Paediatrica
April List 2023
Bereavement
Boelen PA
Child
coping with grief
de Jonge RR
End Of Life
Fahner JC
Grootenhuis MA
Houben ML
Kars MC
Kochen EM
Loss
Only Child
Palliative
Tataranno ML
Teunissen SCCM
-
Dublin Core
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Title
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September 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2022 List
URL Address
<a href="http://doi.org/10.1080/13607863.2022.2087209" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/13607863.2022.2087209</a>
Dublin Core
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Title
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Long-Term Psychological Consequences of Parental Bereavement Prior to Midlife: Volunteering Helps
Publisher
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Aging and Mental Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Child; Depression; Loss; Bereaved parents; Volunteer
Creator
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Huo M; Kim K; Wang D
Description
An account of the resource
OBJECTIVES: Losing a child prior to midlife may be a uniquely traumatic event that continues to compromise parents' well-being in later life. This study compared psychological well-being between bereaved and non-bereaved parents, and examined whether volunteering protects bereaved parents. Because most families have more than one child, we further explored whether the number of living children parents had differentiated bereaved parents in their well-being. METHODS: We analyzed a pooled sample of parents aged 50+ (N = 12,023) from the Health and Retirement Study (2010/2012-2012/2014), including parents who lost a child prior to 50 and those who never lost a child. Two-level linear regression models were estimated to test the associations between child loss, volunteering, and psychological well-being, and examine the moderating effect of number of living children. RESULTS: Bereaved parents reported more depressive symptoms and lower life satisfaction than their non-bereaved counterparts, which was more evident among parents with fewer children alive. Among bereaved parents, volunteering, particularly volunteering 100+ hours/year, was associated with better psychological well-being at baseline; yet, volunteering 1-99 hours/year led to a larger increase in life satisfaction over time. The benefits of volunteering held true regardless of the number of living children. CONCLUSION: This study adds to our understanding of the lasting effect of parental bereavement and suggests volunteering as a potential intervention aimed at helping bereaved older parents. Findings identify parents with fewer children as a particularly vulnerable population in the face of child loss and calls for more resources allocated to help them.
Identifier
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<a href="http://doi.org/10.1080/13607863.2022.2087209" target="_blank" rel="noreferrer noopener">10.1080/13607863.2022.2087209</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Aging & Mental Health
Bereaved Parents
Child
Depression
Huo M
Kim K
Loss
September 2022 List
Volunteer
Wang D
-
Dublin Core
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Title
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June 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2020 List
URL Address
<a href="http://doi.org/10.1080/15524256.2020.1745728" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/15524256.2020.1745728</a>
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Title
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Bibliotherapy and Bereavement: Harnessing the Power of Reading to Enhance Family Coping in Pediatric Palliative Care
Publisher
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Journal of social work in end-of-life and palliative care
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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bereavement; bibliotherapy; children; grief; loss; palliative care; pediatrics
Creator
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Rusch R; Greenman J; Scanlon C; Horne K; Jonas D F
Description
An account of the resource
Bibliotherapy is a therapeutic intervention that could potentially be utilized by pediatric palliative care social workers to aid in providing individualized support and adaptive coping techniques through end-of-life and bereavement. Multiple modalities of implementing bibliotherapy are considered, including applications in individual and group counseling. An institutionally supported bibliotherapy program that aims to provide therapeutic and recreational texts for patients, families and clinicians is described. Suggested guidelines and book titles for use in practice with bereaved siblings and families are provided alongside targeted description for use in clinical practice.
Identifier
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<a href="http://doi.org/10.1080/15524256.2020.1745728" target="_blank" rel="noreferrer noopener">10.1080/15524256.2020.1745728</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Bereavement
Bibliotherapy
Children
Greenman J
Grief
Horne K
Jonas D F
Journal of social work in end-of-life and palliative care
June 2020 List
Loss
Palliative Care
Pediatrics
Rusch R
Scanlon C
-
Dublin Core
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Title
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November 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2019 List
URL Address
<a href="http://doi.org/10.1016/j.midw.2019.102531" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.midw.2019.102531</a>
Dublin Core
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Title
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New understandings of fathers' experiences of grief and loss following stillbirth and neonatal death: A scoping review
Publisher
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Midwifery
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
Fathers; Grief; Loss; Neonatal death; Stillbirth
Creator
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Jones K; Robb M; Murphy S; Davies A
Description
An account of the resource
OBJECTIVE: To report on research conducted on men's experiences of grief and loss following stillbirth and neonatal death in high-income, Western countries. DESIGN: This review was guided by the following research questions: 1. The impact of perinatal death for men 2. The meaning of the loss for a father's sense of identity 3. The extent to which men were able to express grief while supporting their partners and, 4. how men's experience of grief was mediated by the support and care received by health professionals. DATA SOURCES: We searched the following databases: Medline; PsychINFO; CINAHL to identify relevant articles published from the year 2000 onwards. The searches were run between 1/04/2018 and 8/4/2018. REVIEW METHODS: A scoping review was conducted of nursing, psychological, medical and social science databases using these key words: fathers' grief, men's grief, perinatal loss and death, stillbirth and neonatal death. RESULTS: Studies indicated that men reported less intense and enduring levels of psychological outcomes than women but were more likely to engage in avoidance and coping behaviours such as increased alcohol consumption. Men felt that their role was primarily as a 'supportive partner' and that they were overlooked by health professionals. CONCLUSIONS: Further research is needed on men's experience of grief following perinatal death, especially on their physical and mental well-being. IMPACT: This review addressed the problem of the lack of knowledge around paternal needs following perinatal death and highlighted areas which researchers could usefully investigate with the eventual aim of improving care for fathers.
Identifier
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<a href="http://doi.org/10.1016/j.midw.2019.102531" target="_blank" rel="noreferrer noopener">10.1016/j.midw.2019.102531</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Davies A
Fathers
Grief
Jones K
Loss
Midwifery
Murphy S
Neonatal Death
November 2019 List
Robb M
Stillbirth
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1049909112460331" target="_blank" rel="noreferrer">http://doi.org/10.1177/1049909112460331</a>
<a href="http://ajh.sagepub.com.ezproxy.library.ubc.ca/content/30/6/566" target="_blank" rel="noreferrer">http://ajh.sagepub.com.ezproxy.library.ubc.ca/content/30/6/566</a>
Dublin Core
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Title
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Loss in the NICU Sibling Matters
Publisher
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American Journal Of Hospice & Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
bereavement; Family; Siblings; Intensive Care; sibling bereavement; loss; Neonatal
Creator
An entity primarily responsible for making the resource
Sandler CL; Robinson E; Carter BS
Description
An account of the resource
Siblings of patients that have lengthy stays in the neonatal intensive care unit (NICU) may be affected emotionally by their brother’s or sister’s condition, separation, or even death. In an effort to assess the effect of perinatal loss on siblings a student-led inquiry was designed and tested. A scripted interview was composed to determine whether or not children were effectively processing the loss of their sibling. While a single case is reported, the methodology proved useful and opens the door to further consideration of providing sibling-oriented grief and bereavement services in the NICU.
2013-09
Identifier
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<a href="http://doi.org/10.1177/1049909112460331" target="_blank" rel="noreferrer">10.1177/1049909112460331</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
American Journal of Hospice & Palliative Medicine
Backlog
Bereavement
Carter BS
Family
Intensive Care
Journal Article
Loss
Neonatal
Robinson E
Sandler CL
sibling bereavement
Siblings
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/15325024.2013.763548" target="_blank" rel="noreferrer">http://doi.org/10.1080/15325024.2013.763548</a>
<a href="http://dx.doi.org/10.1080/15325024.2013.763548" target="_blank" rel="noreferrer">http://dx.doi.org/10.1080/15325024.2013.763548</a>
Dublin Core
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Title
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Bereaved Parents' Perspectives on Informal Social Support: “What Worked for You?”
Publisher
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Journal Of Loss And Trauma
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
social support; health promotion; parental bereavement; loss; innovation
Creator
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Gear R
Description
An account of the resource
This study identified and explored the informal social supports that bereaved parents found helpful following the death of their primary school-aged child. Ten participants were interviewed using a semistructured interview schedule. Data were transcribed and analyzed using content and thematic analysis. Results indicate the existence of novel informal supports that enrich contemporary literature. Nine common characteristics of helpful support emerged from the analysis
the specifics of each depended on congruence with parents' unique framework of meaning. Parents also identified five ways to strengthen informal social support. Implications for health promotion research and practice in parental bereavement are discussed.
Identifier
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<a href="http://doi.org/10.1080/15325024.2013.763548" target="_blank" rel="noreferrer">10.1080/15325024.2013.763548</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
Backlog
Gear R
Health Promotion
innovation
Journal Article
Journal of Loss and Trauma
Loss
parental bereavement
Social Support
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.2190/8tnx-leby-5ejy-b0h6" target="_blank" rel="noreferrer">http://doi.org/10.2190/8tnx-leby-5ejy-b0h6</a>
Dublin Core
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Title
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Narratives And Story Telling In Coping With Grief And Bereavement
Publisher
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Omega
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Grief; bereavement; coping; loss; Narratives; Stories; Story Telling
Creator
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Bosticco C; Thompson TL
Description
An account of the resource
She waged the toughest battle of her life, but died of cancer in the middle of her thirteenth year. How does a mother cope with so tragic a loss? I told and retold the story. I talked about how we faced the chemo, the pain, and the fear together, about the fun we had, about the impact on our family, about the final days on the wish trip, about her death, about her friends, about the support of our faith community. I shared with all who would listen and, gradually, the storytelling helped me to make sense of things, to cope with the gaping hole in my world, to find a new normal for myself, to move on. My daughter stills lives--in eternity, in my memory, in the life I live as a result of having been her mom for those thirteen and a half years, and in the stories--hers, mine, ours.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.2190/8tnx-leby-5ejy-b0h6" target="_blank" rel="noreferrer">10.2190/8tnx-leby-5ejy-b0h6</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Backlog
Bereavement
Bosticco C
Coping
Grief
Journal Article
Loss
Narratives
Omega
Stories
Story Telling
Thompson TL
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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A Sociocultural Approach to Children's Perceptions of Death and Loss.
Publisher
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Omega: Journal Of Death & Dying
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Death; Prevention; Anxiety; Bereavement; Child Development; Cognition; Content Analysis (communication); Drawing; Emotions (psychology); Fear; Grief; Interviewing; Phenomenology; Attitudes Toward Death; Social Context; Thematic Analysis
Death; Drawings; Loss; Phenomenography; Young Children
Creator
An entity primarily responsible for making the resource
Sungeun Y; Soyeon P
Description
An account of the resource
By employing the phenomenographic approach, the present study explored children's cognitive understanding of and emotional responses to death and bereavement. Participants included 52 Korean, 16 Chinese, and 16 Chinese American children ages 5-6. Thematic analysis of children's drawings and open-ended interviews revealed that most children associated death with negative emotions such as fear, anxiety, and sadness. The majority of children used realistic expressions to narrate death. The core themes from their drawings included causes for death, attempts to stop the dying, and situations after death. This study contributes to the literature by targeting young children who have been relatively excluded in death studies and provides evidence in the usefulness of drawings as a developmentally appropriate data collection tool. The findings also enrich our knowledge about children's understanding of death and bereavement, rooted in the inductive analysis of empirical data with children from culturally diverse backgrounds.
Identifier
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<a href="http://doi.org/10.1177/0030222817693138" target="_blank" rel="noreferrer">10.1177/0030222817693138</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
anxiety
Attitudes Toward Death
Bereavement
Child Development
Cognition
Content Analysis (communication)
Death
December 2017 List
Drawing
Drawings
Emotions (psychology)
Fear
Grief
Interviewing
Loss
Omega: Journal Of Death & Dying
Phenomenography
Phenomenology
Prevention
Social Context
Soyeon P
Sungeun Y
Thematic Analysis
Young Children
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2017 List
URL Address
<a href="http://onlinelibrary.wiley.com/doi/10.1111/ajo.12661/abstract" target="_blank" rel="noreferrer">http://onlinelibrary.wiley.com/doi/10.1111/ajo.12661/abstract</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A survey of the experiences of families with bereavement support services following a perinatal loss
Publisher
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The Australian & New Zealand Journal Of Obstetrics & Gynaecology
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Bereavement Services; Experiences; Loss; Mothers; Perinatal Death; Survey
Creator
An entity primarily responsible for making the resource
Inati V; Matic M; Phillips C; Maconachie N; Vanderhook F; Kent AL
Description
An account of the resource
Background: Although there are many studies that explore complicated grief, no studies have examined the impact of bereavement support services on the progression to complicated grief. The aims of our study were to describe the types of bereavement services utilised by families who have experienced a perinatal loss, and explore the impact of these services on the families’ bereavement journey.
Methods: Women who experienced a perinatal loss were sent a survey consisting of the modified Perinatal Post Traumatic Stress Disorder (PTSD) questionnaire, items addressing use of bereavement services, and the Inventory of Complicated Grief. Respondents also provided free-text comments.
Results: Forty-seven women were included in the study (34% response rate); 75% had a perinatal PTSD score which indicated the need for support from mental health services and 75% accessed services. Forty-three percent met the criteria for complicated grief. Women whose PTSD scores were in the highest quartile were most likely to access services; 45% of surveyed women used SIDS and Kids of the Australian Capital Territory (SKACT) accessing counselling (90%), support groups (50%), playgroups (15%) and the helpline (10%). Fifty-seven percent of women surveyed accessed non-SKACT services and predominantly used psychologists (66%) and general practitioners (30%). Requests were made for grief training of hospital staff, and for referral to bereavement services to be offered after hospital discharge.
Conclusions: Following a perinatal loss, a high proportion of women had high PTSD scores and complicated grief despite utilising local bereavement services. Our findings support the continuation of current support services with modifications that may potentially improve recovery following a perinatal loss.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://onlinelibrary.wiley.com/doi/10.1111/ajo.12661/abstract" target="_blank" rel="noreferrer">10.1111/ajo.12661</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
August 2017 List
Bereavement Services
Experiences
Inati V
Kent AL
Loss
Maconachie N
Matic M
Mothers
Perinatal Death
Phillips C
Survey
The Australian & New Zealand Journal Of Obstetrics & Gynaecology
Vanderhook F