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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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July 2019 List
Text
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Citation List Month
July 2019 List
URL Address
<a href="http://doi.org/10.1136/archdischild-2018-316382" target="_blank" rel="noreferrer noopener">http://doi.o rg/10.1136/archdischild-2018-316382</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Parents' experiences of requests for organ and tissue donation: The value of asking
Publisher
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Archives of Disease in Childhood.
Date
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2019
Subject
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article; child; female; human; male; palliative therapy; retrospective study; qualitative research; awareness; clinical article; coping behavior; coronary care unit; fear; hospice; multicenter study; neonatal intensive care unit; organ donation; organ donor; palliative care; parents; pediatric intensive care unit; terminal care
Creator
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Darlington A S; Long-Sutehall T; Randall D; Wakefield C; Robinson V; Brierley J
Description
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Objective: A proportion of children die, making them potentially eligible to be organ/tissue donors. Not all are approached for donation, and experiences of those parents are not well understood. The objective was to investigate to what extent organ and tissue donation (OTD) is discussed as part of end-of-life care and to explore parents' and healthcare professionals' (HCPs) experiences. Design(s): A retrospective qualitative study. Setting(s): Multicentre study with participants recruited through two neonatal intensive care units (ICUs), two paediatric ICUs, a cardiac ICU and a children's hospice. Patient(s): Bereaved parents, parents of a child with a long-term condition (LTC) and HCPs. Intervention(s): None. Main Outcomes and Measures: Parents' and HCPs' views and experiences of discussions about OTD. Result(s): 24 parents of 20 children were interviewed: 21 bereaved parents and 3 parents of a child with a LTC. Seven parents were asked about donation (13 not asked), four agreed and two donated. 41 HCPs were interviewed. Themes: complexity of donation process, OTD as a coping strategy, the importance of asking, difficulty of raising the topic,\textbackslash and parents' assumptions about health of organs (when donation is not discussed). Conclusion(s): The findings add new knowledge about parents' assumptions about the value of their child's organs when discussions about OTD are not raised, and that HCPs do not routinely ask, are sometimes hesitant to ask in fear of damaging relationships, and the reality of the complexity of the donation process. Given the current levels of awareness around OTD, the topic should be raised. Copyright © Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ.
Identifier
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<a href="http://doi.org/10.1136/archdischild-2018-316382" target="_blank" rel="noreferrer noopener">10.1136/archdischild-2018-316382</a>
2019
Archives of Disease in Childhood.
Article
Awareness
Brierley J
Child
Clinical Article
Coping Behavior
coronary care unit
Darlington A S
Fear
Female
Hospice
Human
July 2019 List
Long-Sutehall T
Male
Multicenter Study
Neonatal Intensive Care Unit
Organ Donation
organ donor
Palliative Care
Palliative Therapy
Parents
Pediatric Intensive Care Unit
Qualitative Research
Randall D
Retrospective Study
Robinson V
Terminal Care
Wakefield C