Browse Items (11 total)
- Tags: Long Term Care
The role of the courts in disagreements over the care of seriously ill babies
Bringing social context into the conversation about pediatric long-term ventilation
Tags: 2018, April 2018 List, Article, Artificial Ventilation, Boss RD, Child, decision support system, Family Decision Making, Henderson CM, Home Care, home care services, home environment, Hospital Patient, Hospital Pediatrics, Human, Life Sustaining Treatment, Long Term Care, Long-Term Care, Mechanical, Medical Information, Only Child, Patient-centered Care, Pediatrics, Personal Experience, practice gap, Quality Of Life, Social Environment, Tracheostomy, Ventilators, Wilfond BS
Challenges in assessing the need for beds in palliative care-The example of inpatient hospice care for children, adolescents and young adults
Tags: 2018, Adult, Artificial Ventilation, August 2018 List, calculation, Child, conference abstract, Death, Diagnosis, disabled person, Female, Funding, Germany, Home Care, Hospice Care, Hospital Patient, Human, Jansky M, Jaspers B, Length Of Stay, Likert scale, Long Term Care, Major Clinical Study, Male, Mortality, Nauck F, occupation, Palliative Medicine, Palliative Therapy, Politics, Prevalence, psychosocial care, quantitative analysis, Resident, Semi Structured Interview, Statistics, Young Adult
Children With Intellectual Disability and Hospice Utilization: The Moderating Effect of Residential Care
Tags: 2018, California, Child, December 2018 List, Female, Hospice Care, Hospital Admission, Human, intellectual impairment/th [Therapy], Lindley LC, Long Term Care, Male, Medicaid, Organization And Management, Patient Preference, Statistics And Numerical Data, Terminal Care, The American Journal of Hospice & Palliative Care, United States, utilization
The Long-Term Care Experiences and Care Needs of Parents Caring for Children With Adrenoleukodystrophy
Tags: 2019, Descriptive Research, Guilt, Helplessness Learned, Hospice Care, Human, Individualized Medicine, Interviews, Journal of Nursing, Jui-Chun F, Long Term Care, March 2019 List, Miao-Ju C, Needs Assessment, Parental Attitudes, Peroxisomal Disorders -- Psychosocial Factors, Psychosocial Aspects of Illness, Qualitative Studies, Shu-Yuan L, Su-Fen C, Wei-Wen W U
Parent-Reported Experience Measures of Care for Children with Serious Illnesses: A Scoping Review
Tags: Child, Child Care, Chronic Disease, Systematic Review, Terminal Care, 2022, Ang FJL, Caregiver Support, Childhood Disease, Emergency Care, empowerment, Finkelstein EA, Gandhi M, Health Care Delivery, Health Care Quality, Hospice Care, Hospital care, Hospitalized Child, Human, Long Term Care, Neonatal Intensive Care Unit, November 2022 List, Palliative Therapy, Parental Attitude, patient-reported outcome, Pediatric Critical Care Medicine, Personal Experience, Review, shared decision making
Children's complex health: Maternal experiences of care and decision making
Tags: 2023, Advance Care Planning, Article, Child, Community Health Nursing, coronavirus disease 2019, Decision Making, Female, Godbold R, Human, Journal Of Child Health Care, Long Term Care, May List 2023, Mother, Only Child, Pandemic, Qualitative Research, Thematic Analysis, Voice, VULNERABILITY, Willis E
Current State of Palliative Medical Care for Children at the Regional Level on the Example of the Minsk Region
Tags: 2021, Article, assisted ventilation, Belarus, Child, Halasheuskaya A, Health Belief, Home Care, Hope, Human, June 2022 List, Kashliak O, Lazarchik I, Long Term Care, Only Child, Paediatrics Eastern Europe, Palliative Therapy, Pediatrics, Quality Of Life, relative, Tikhonovets M, Uncertainty, Zaitsev D
Long-Term Ventilation in Children with Medical Complexity: A Challenging Issue
Tags: 2022, Artificial Ventilation, Attanasi M, Caldarelli V, Child, Children, Children With Medical Complexity, Continuous Positive Airway Pressure, Ethics, Fainardi V, Filippo PD, Gallucci M, Grutta SL, Human, invasive ventilation, Long Term Care, Mazza A, miscellaneous named groups, Only Child, Palliative Therapy, Porcaro F, Review, September List 2029, treatment indication, Ullmann N, Ventilators, Mechanical
When a Child Dies in the PICU Despite Ongoing Life Support
Tags: 2018, Butt WW, Child, Clark JD, Death, Dryden-Palmer K, Family, Human, Human Relation, Lewis-Newby M, Long Term Care, March List 2024, Only Child, Palliative Therapy, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Psychology, Resuscitation, Terminal Care, Treatment Outcome, Treatment Withdrawal, Truog RD, Uncertainty
Finnish children who needed long-term home respiratory support had severe sleep-disordered breathing and complex medical backgrounds
Tags: 2024, Acta Paediatrica, acute respiratory failure, adenoid hypertrophy, adenotonsillectomy, Adolescent, angiotensin receptor antagonist/pv [Special Situation for Pharmacovigilance], anxiety, apnea hypopnea index, April List 2024, Article, aspiration pneumonia/co [Complication], Asthma, automatic positive airway pressure, beta 2 adrenergic receptor stimulating agent/ih [Inhalational Drug Administration], beta 2 adrenergic receptor stimulating agent/pv [Special Situation for Pharmacovigilance], beta adrenergic receptor blocking agent/pv [Special Situation for Pharmacovigilance], brain hypoxia, Brain Tumor, cardiovascular agent/pv [Special Situation for Pharmacovigilance], central nervous system disease, central sleep apnea syndrome/th [Therapy], Child, childhood obesity, choana atresia/su [Surgery], Clinical Feature, Clinical Outcome, Cohort Analysis, Comorbidity, Continuous Positive Airway Pressure, Controlled Study, corticosteroid/ih [Inhalational Drug Administration], corticosteroid/pv [Special Situation for Pharmacovigilance], craniofacial malformation, craniofacial surgery, cranioplasty, Data Analysis Software, Demographics, Developmental delay, developmental disorder, diaphragm hernia, dipeptidyl carboxypeptidase inhibitor/pv [Special Situation for Pharmacovigilance], Disease Severity, Down Syndrome, Eskola V, Female, Finn (citizen), Follow Up, Home Care, Human, hypoventilation/th [Therapy], Icd-10, Infant, invasive ventilation, Jarvela M, Katila M, laryngomalacia, Lauhkonen E, Le Fort III osteotomy, Long Term Care, lung hypoplasia, Major Clinical Study, Makinen R, Male, Mandelin P, mask/am [Adverse Device Effect], maxilla hypoplasia/co [Complication], medical device complication/co [Complication], montelukast/pv [Special Situation for Pharmacovigilance], Multidisciplinary team, nasal mask, Neuromuscular Disease, noninvasive positive pressure ventilation, nose obstruction/co [Complication], obstructive sleep apnea/th [Therapy], Only Child, onset age, orthodontic procedure, Palliative Therapy, Pneumonia, Polysomnography, psychological aspect, respiratory care, Respiratory Distress Syndrome, Retrospective Study, Saarenpaa-Heikkila O, skin irritation/co [Complication], Sleep Apnea Syndromes, Sleep Apnea Syndromes/th [Therapy], sleep disorder/co [Complication], Sleep Disorders, SPSS version 28.00, steroid/pv [Special Situation for Pharmacovigilance], Tonsillectomy, tonsillotomy, Tracheostomy, treatment duration, University Hospital