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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
April 2024 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April List 2024
URL Address
<a href="http://doi.org/10.1016/j.semperi.2023.151870" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.semperi.2023.151870</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The most painful estrangement: Death at birth
Publisher
An entity responsible for making the resource available
Seminars in Perinatology
Date
A point or period of time associated with an event in the lifecycle of the resource
2024
Subject
The topic of the resource
article; human; social support; palliative therapy; coping; mourning; stillbirth; guilt; depression; emotion; identity; suicide; posttraumatic stress disorder; personal experience; bereavement; avoidance behavior; emotional stress; child death; prevalence; decision making; family history; regret; emotional support; lactation; sadness; fear; continuing education; sorrow; community care; stigma; spontaneous abortion; self concept; shame; loneliness; alienation; complicated grief/dt [Drug Therapy]; family stress; naltrexone/dt [Drug Therapy]; rage; social bonding; traffic accident
Creator
An entity primarily responsible for making the resource
Cacciatore J
Description
An account of the resource
More than two million babies a year die during or before birth around the world, evoking grief that is traumatic. Because the psychological, physical, social, and emotional ramifications of grief following a baby's death are so enduring and intense, social support is essential to helping families cope. In particular, emotional acts of caring and judicious use of language are crucial, avoiding the use of the terms that belittle the value of the baby's life and the importance of the baby as part of a family history. Traumatic grief informed continuing education can aid providers in increasing sensitivity to the needs of grieving families and minimize additional trauma and suffering in the aftermath of such loss.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.semperi.2023.151870" target="_blank" rel="noreferrer noopener">10.1016/j.semperi.2023.151870</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2024
alienation
April List 2024
Article
avoidance behavior
Bereavement
Cacciatore J
Child Death
community care
complicated grief/dt [Drug Therapy]
continuing education
Coping
Decision Making
Depression
Emotion
Emotional Stress
emotional support
family history
Family Stress
Fear
Guilt
Human
Identity
lactation
Loneliness
mourning
naltrexone/dt [Drug Therapy]
Palliative Therapy
Personal Experience
PostTraumatic Stress Disorder
Prevalence
rage
regret
Sadness
Self Concept
Seminars in Perinatology
shame
social bonding
Social Support
sorrow
spontaneous abortion
Stigma
Stillbirth
Suicide
traffic accident
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
October 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October List 2023
URL Address
<a href="http://doi.org/10.1542/hpeds.2023-007225" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1542/hpeds.2023-007225</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The Butterfly Effect: Supporting Pediatric Trainee Bereavement Through a Condolence Card Project
Publisher
An entity responsible for making the resource available
Hospital Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Bereavement; article; human; death; pediatrics; clinical practice; grief; terminal care; dying; wellbeing; comfort; resident; human relation; pediatrician; bereavement; medical education; frustration; coping behavior; work environment; posthumous care; anger; bereavement support; medical student; catharsis; gesture; loneliness
Creator
An entity primarily responsible for making the resource
Rabinowitz DG; Korus RE; Eastland SL; Bloomhardt HM
Description
An account of the resource
As medical students and residents, we have all grappled with patient death and dying at some point in our training. These experiences often remain with us, informing our clinical practice, our personal wellbeing, and the ways in which we build relationships with patients and families. One memory, among many, inspired our work to bolster and reform trainee bereavement practices. On Monday, I walked into the hospital apprehensively. I was nearing the end of a month-long rotation in the medical-surgical ICU, my first experience caring for critically ill children during residency. I heard the news from my coresident: my patient had died on Sunday. Although it was not unexpected, it still hurt all the same. It was 5:50 am when I rounded the hospital corner and approached his old room. As I peeked inside, my heart sank. Just 3 days ago, this room was full of people and things and sounds;...
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/hpeds.2023-007225" target="_blank" rel="noreferrer noopener">10.1542/hpeds.2023-007225</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Anger
Article
Bereavement
Bereavement Support
Bloomhardt HM
catharsis
Clinical Practice
Comfort
Coping Behavior
Death
Dying
Eastland SL
frustration
gesture
Grief
Hospital Pediatrics
Human
Human Relation
Korus RE
Loneliness
Medical Education
medical student
October List 2027
Pediatrician
Pediatrics
Posthumous Care
Rabinowitz DG
Resident
Terminal Care
Wellbeing
work environment
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/jpepsy/jsn017" target="_blank" rel="noreferrer">http://doi.org/10.1093/jpepsy/jsn017</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Psychosocial functioning in youth with glycogen storage disease type I
Publisher
An entity responsible for making the resource available
Journal of Pediatric Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Florida; Family Health; Case-Control Studies; quality of life; adolescent; Preschool; Adaptation; Psychological; Adolescent Transitions; Parents/psychology; Diabetes Mellitus/psychology; Glycogen Storage Disease Type I/psychology; Loneliness
Creator
An entity primarily responsible for making the resource
Storch E; Keeley M; Merlo L; Jacob M; Correia C; Weinstein D
Description
An account of the resource
OBJECTIVE: To assess the quality of life and psychosocial functioning among pediatric patients with Glycogen Storage Disease (GSD) types Ia and Ib. METHODS: Thirty-one youth with GSD types Ia and Ib and 42 healthy controls participated. Quality of life ratings from the GSD types Ia and Ib sample were compared with a previously reported clinical comparison sample. Children completed measures of quality of life, loneliness, family functioning, and sibling relationship quality (e.g., warmth, conflict). Parents completed measures of parental distress, parenting stress, child adaptive behavior, and child emotional and behavioral functioning. RESULTS: Quality of life was generally lower in youth with GSD relative to healthy controls but similar to those with a chronic illness. Children with GSD were rated as having more internalizing symptoms, social problems, and lower independent functioning relative to healthy controls. Parents reported greater distress and parenting stress relative to healthy controls. CONCLUSIONS: The presence of GSD types Ia and Ib are associated with reduced quality of life and independent functioning, and elevated levels of internalizing distress and parental stress relative to healthy peers. Relative to their children, parents generally reported that their child was more impaired, which suggests the need for multiple informants during assessment and active parental involvement during psychological treatment. These points should be kept in mind when assessing and treating youth with this disease and their families as psychological interventions that target areas of concern (e.g., adherence, coping with having a chronic disease) may be helpful for improving child and family outcomes.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1093/jpepsy/jsn017" target="_blank" rel="noreferrer">10.1093/jpepsy/jsn017</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Adaptation
Adolescent
Adolescent Transitions
Adult
Backlog
Case-Control Studies
Child
Correia C
Diabetes Mellitus/psychology
Family Health
Female
Florida
Glycogen Storage Disease Type I/psychology
Humans
Jacob M
Journal Article
Journal of Pediatric Psychology
Keeley M
Loneliness
Male
Merlo L
Parents/psychology
Preschool
Psychological
Quality Of Life
Storch E
Weinstein D
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Oncology
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2017 List
URL Address
<a href="http://doi.org/10.1080/07481187.2016.1198942" target="_blank" rel="noreferrer">http://doi.org/10.1080/07481187.2016.1198942</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The suffering in silence of older parents whose child died of cancer: A qualitative study
Publisher
An entity responsible for making the resource available
Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Aged; Aged 80 and over; Attitude to Death; Female Grief; Grounded Theory; Guilt; Humans; Life Change Events; Loneliness; Male; Middle Aged; Neoplasms/psychology; Parents/psychology; Qualitative Research Stress Psychological
Creator
An entity primarily responsible for making the resource
Van Humbeeck L; Dillen L; Piers R; Grypdonck M; Van Den Noortgate N
Description
An account of the resource
As life expectancy grows, the death of an adult child becomes a highly prevalent problem for older adults. The present study is based on nine interviews and explores the experience of parents (≥70 years) outliving an adult child. The bereaved parents described some silencing processes constraining their expression of grief. When an adult dies, the social support system nearly automatically directs its care towards the bereaved nuclear family. Parental grief at old age is therefore often not recognized and/or acknowledged. Health care providers should be sensitive to the silent grief of older parents both in geriatric and oncology care settings.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/07481187.2016.1198942" target="_blank" rel="noreferrer">10.1080/07481187.2016.1198942</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Aged
Aged 80 And Over
Attitude To Death
Critical Care Medicine
Dillen L
Female Grief
Grounded Theory
Grypdonck M
Guilt
Humans
Life Change Events
Loneliness
Male
Middle Aged
Neoplasms/psychology
Oncology 2017 List
Parents/psychology
Piers R
Qualitative Research Stress Psychological
Van Den Noortgate N
Van Humbeeck L