1
40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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April 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April List 2023
URL Address
<a href="http://doi.org/10.1016/j.jpedsurg.2023.02.009" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.jpedsurg.2023.02.009</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Ethical Considerations in Critically Ill Neonatal and Pediatric Patients
Publisher
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Journal of Pediatric Surgery
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Ethics; Palliative care; Infant Newborn; Communication; Critical Illness; Critical care; Congenital diaphragmatic hernia
Creator
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Harting MT; Munson D; Linebarger J; Hirshberg E; Gow KW; Malek MM; Robbins AJ; Turnbull J
Description
An account of the resource
Summary The care of critically ill neonates and pediatric patients can be particularly emotionally and ethically challenging. Emerging evidence suggests that we can improve the patient, family, and care team experience in the critical care setting through a better understanding and application of ethical frameworks and communication strategies. We conducted a multidisciplinary panel session at the American Academy of Pediatrics National Conference and Exhibition in the fall of 2022 wherein we explored a myriad of ethical and communication considerations in this unique patient population, with congenital diaphragmatic hernia (CDH) as the congenital anomaly/disease framework. In this review, we will cover state of the art topics in ethics, communication, and palliative care including basic terminology, communication strategies such as trauma-informed communication, establishing/evolving goals of care, futility, medically inappropriate treatment, ethical frameworks, parental discretion, establishing milestones, internal/external intentions, and re-direction of care. These topics will be helpful to many specialties who are involved in the care of critically ill neonates and children including maternal fetal medicine, pediatrics, neonatology, pediatric critical care, palliative care, and pediatric surgery, along with the pediatric surgical subspecialties. We use a theoretical CDH case as an example and include the live audience responses from the interactive session. This primer provides overarching educational principles, as well as practical communication concepts, that can cultivate compassionate multidisciplinary teams, equipped to optimize family-centered, evidence-based compassionate communication and care.
Identifier
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<a href="http://doi.org/10.1016/j.jpedsurg.2023.02.009" target="_blank" rel="noreferrer noopener">10.1016/j.jpedsurg.2023.02.009</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
April List 2023
Communication
Congenital diaphragmatic hernia
Critical Care
Critical Illness
Ethics
Gow KW
Harting MT
Hirshberg E
Infant Newborn
Journal Of Pediatric Surgery
Linebarger J
Malek MM
Munson D
Palliative Care
Robbins AJ
Turnbull J
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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May 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2021 List
URL Address
<a href="http://doi.org/10.1038/s41372-021-00966-2" target="_blank" rel="noreferrer noopener">http://doi.org/10.1038/s41372-021-00966-2</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Outcomes following perinatal palliative care consultation: a retrospective review
Publisher
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Journal of Perinatology.
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
paediatrics; palliative care; perinatal; quality of life
Creator
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Tucker MH; Ellis K; Linebarger J
Description
An account of the resource
Objective: To inform clinical practice by describing a model of perinatal palliative care delivery within a fully staffed fetal health center (FHC) inside a freestanding children's hospital. Study design: The team conducted a retrospective chart review of the palliative care team (PaCT) database from FHC's inception in 2010 to 31 December, 2018, and surveyed the FHC neonatologists. Result(s): PaCT consults in the FHC increased from 1 in 2010 to 102 in 2018. PaCT met 430 mothers for prenatal consultation. Of the 390 live-born infants, 172 died; 48 received comfort care only from birth; and 19 survived to discharge home with hospice. At the time of review, PaCT still follows 109 children met prenatally. PaCT discharged 96 patients that no longer required PaCT services. Conclusion(s): PaCT provides an integral service within the FHC as evidenced by the increasing volume of consultations, variety of care provided and perceived value by FHC neonatologists. Copyright © 2021, The Author(s), under exclusive licence to Springer Nature America, Inc. part of Springer Nature.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1038/s41372-021-00966-2" target="_blank" rel="noreferrer noopener">10.1038/s41372-021-00966-2</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Ellis K
Journal of Perinatology.
Linebarger J
May 2021 List
Paediatrics
Palliative Care
Perinatal
Quality Of Life
Tucker MH
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2017 List
URL Address
<a href="http://pediatrics.aappublications.org/content/early/2016/10/06/peds.2016-0791" target="_blank" rel="noreferrer">http://pediatrics.aappublications.org/content/early/2016/10/06/peds.2016-0791</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The AAP Resilience in the Face of Grief and Loss Curriculum
Publisher
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Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Creator
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Serwint JR; Bostwick S; Burke AE; Church A; Gogo A; Hofkosh D; King M; Linebarger J; McCabe ME; Moon M; Osta A; Rana DT; Sahler OJ; Smith K; Rivera F; Baldwin CD
Description
An account of the resource
A career in pediatrics can bring great joy and satisfaction. It can also be challenging and lead some providers to manifest burnout and depression. A curriculum designed to help pediatric health providers acquire resilience and adaptive skills may be a key element in transforming times of anxiety and grief into rewarding professional experiences. The need for this curriculum was identified by the American Academy of Pediatrics Section on Medical Students, Residents and Fellowship Trainees. A working group of educators developed this curriculum to address the professional attitudes, knowledge, and skills essential to thrive despite the many stressors inevitable in clinical care. Fourteen modules incorporating adult learning theory were developed. The first 2 sections of the curriculum address the knowledge and skills to approach disclosure of life-altering diagnoses, and the second 2 sections focus on the provider’s responses to difficult patient care experiences and their needs to develop strategies to maintain their own well-being. This curriculum addresses the intellectual and emotional characteristics patient care medical professionals need to provide high-quality, compassionate care while also addressing active and intentional ways to maintain personal wellness and resilience.
Identifier
An unambiguous reference to the resource within a given context
<a class="aap-doi-text" href="https://doi.org/10.1542/peds.2016-0791">10.1542/peds.2016-0791</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Subject
The topic of the resource
Adaptation Psychological;
Adult;
Attitude of Health Personnel;
Attitude to Death;
Burnout Professional/prevention & control;
Clinical Competence;
Curriculum;
Education Medical, Graduate/methods;
Female;
Grief;
Humans;
Internship and Residency/methods;
Male;
Pediatrics/education;
Societies Medical;
United States
2016
Adaptation Psychological
Adult
Attitude Of Health Personnel
Attitude To Death
August 2017 List
Baldwin CD
Bostwick S
Burke AE
Burnout Professional/prevention & Control
Church A
Clinical Competence
Curriculum
Education Medical Graduate/methods
Female
Gogo A
Grief
Hofkosh D
Humans
Internship And Residency/metho
King M
Linebarger J
McCabe ME
Moon M
Osta A
Pediatrics
Rana DT
Rivera F
Sahler OJ
Serwint JR
Smith K