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40
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Dublin Core
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October 2022 List
Text
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October 2022 List
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<a href="http://doi.org/10.1016/j.pedn.2021.12.004">http://doi.org/10.1016/j.pedn.2021.12.004</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
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When and how do Healthcare Professionals Introduce Specialist Palliative Care to the Families of Children with Life-Threatening Conditions in Taiwan? A Qualitative Study
Publisher
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Journal of Pediatric Nursing
Date
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2022
Subject
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Child; Death; Delivery of Health Care; Humans; Infant; Newborn Palliative Care; Qualitative Research; Taiwan
Creator
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Lin SC; Chang KL; Huang MC
Description
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BACKGROUND: Specialist palliative care (SPC) is often needed to manage complex or refractory problems in children with life-threatening conditions during end-of-life. This study explores the perceptions of healthcare professionals (HPs) to determine the triggers leading to and experiences with introducing SPC among families of children with life-threatening conditions. METHODS: A secondary analysis of 13 semi-structured interviews with HPs conducted from September 2019-June 2020 was carried out in a pediatric ward and a neonatal and pediatric intensive care unit in Taiwan. A thematic analysis was conducted. Competence Theory was used to guide the research questions and the interpretive framework. FINDINGS: Seven nurses, four pediatricians, one psychologist, and one respiratory therapist were interviewed. The need for shared knowledge regarding wishes for care and end-of-life decision-making were found to be the indicators for introducing SPC, along with having a fear of causing harm to the family-professional relationship and the patient. HPs value harmony in the form of clarifying misconceptions, building trust, and holding the moral bottom line. The theme of 'seeking the competent self' encompasses the values and expectations related to improving skills and creating a sense of fulfillment as HPs achieve good quality care. DISCUSSION: Discussions about SPC facilitate better communication and decision-making. Careful attention should be paid to the needs related to clarifying misconceptions and protecting the child's right to life when SPC is suggested. APPLICATION TO PRACTICE: Communication, empathy, and conflict resolution training may be helpful with developing HP competencies related to introducing SPC.
Identifier
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<a href="http://doi.org/10.1016/j.pedn.2021.12.004">10.1016/j.pedn.2021.12.004</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Chang KL
Child
Death
Delivery of Health Care
Huang MC
Humans
Infant
Journal of Pediatric Nursing
Lin SC
Newborn Palliative Care
October 2022 List
Qualitative Research
Taiwan
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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April 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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April 2021 List
URL Address
<a href="http://doi.org/10.1017/S1478951520001455" target="_blank" rel="noreferrer noopener">http://doi.org/10.1017/S1478951520001455</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Impact of palliative care on end-of-life care and place of death in children, adolescents, and young adults with life-limiting conditions: A systematic review
Publisher
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Palliative & Supportive Care
Date
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2021
Subject
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Adolescent; Child; Systematic review; Palliative care; impact; Young adult
Creator
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Lin SC; Huang MC; Yasmara D; Wuu HL
Description
An account of the resource
OBJECTIVE: To determine the impact of palliative care (PC) on end-of-life (EoL) care and the place of death (PoD) in children, adolescents, and young adults with life-limiting conditions. METHOD(S): Eight online databases (PubMed, Medline, EMBASE, Cochrane Library, CINAHL, Airiti, GARUDA Garba Rujukan Digital, and OpenGrey) from 2010 to February 5, 2020 were searched for studies investigating EoL care and the PoD for pediatric patients receiving and not receiving PC. RESULT(S): Of the 6,468 citations identified, 14 cohort studies and one case series were included. An evidence base of mainly adequate- and strong-quality studies shows that inpatient hospital PC, either with or without the provision of home and community PC, was found to be associated with a decrease in intensive care use and high-intensity EoL care. Conflicting evidence was found for the association between PC and hospital admissions, length of stay in hospital, resuscitation at the time of death, and the proportion of hospital and home deaths. SIGNIFICANCE OF RESULTS: Current evidence suggests that specialist, multidisciplinary involvement, and continuity of PC are required to reduce the intensity of EoL care. Careful attention should be paid to the need for a longer length of stay in a medical setting late in life, and earlier EoL care discussion should take place with patients/caregivers, especially in regard to attempting resuscitation in toddlers, adolescents, and the young adult population. A lack of robust evidence has identified a gap in rigorous multisite prospective studies utilizing data collection.
Identifier
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<a href="http://doi.org/10.1017/S1478951520001455" target="_blank" rel="noreferrer noopener">10.1017/S1478951520001455</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Adolescent
April 2021 List
Child
Huang MC
Impact
Lin SC
Palliative & Supportive Care
Palliative Care
Systematic Review
Wuu HL
Yasmara D
Young Adult