1
40
1
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
June 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2020 List
URL Address
<a href="http://doi.org/10.1080/17482631.2020.1756686" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/17482631.2020.1756686</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Consulting with a folk deity before making decisions: spiritual practices in parents facing end-of-life decisions for their child on life support with brain stem dysfunction
Publisher
An entity responsible for making the resource available
International Journal of Qualitative Studies on Health and Well-being
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
brain stem dysfunction; decision making; end-of-life; parents; qualitative; Spiritual practices
Creator
An entity primarily responsible for making the resource
Lin S C; Huang M C
Description
An account of the resource
Background: Adolescents with brain stem dysfunction may undergo many invasive treatments, and parents are often faced with making the decision to withdraw treatment. However, in the face of their child's death, the spiritual practices of parents dealing with end-of-life decision-making remain under investigated.Purpose: This study explores the spiritual practices in parents making end-of-life decisions for adolescents on life support with brain stem dysfunction.Method: A descriptive phenomenological study was conducted through in-depth interviews with three parents of two adolescents in Taiwan. Data were analysed using Colaizzi's seven-step protocol.Results: Three main themes emerged: (1) faith during decision-making, (2) struggles during decision-making, (3) transformation during decision-making. The findings indicate that "transforming the nature of hope" is the essence of the experience.Conclusion: Family-centred care, gaining insight into parental spiritual practices, and developing culturally-appropriate care are recommended.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/17482631.2020.1756686" target="_blank" rel="noreferrer noopener">10.1080/17482631.2020.1756686</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
brain stem dysfunction
Decision Making
end-of-life
Huang M C
International Journal Of Qualitative Studies On Health And Well-being
June 2020 List
Lin S C
Parents
Qualitative
Spiritual practices