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2023 Special Edition 1 - Parent Perspectives List
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2023 SE1 - Parent Perspectives
URL Address
<a href="http://doi.org/10.1111/hex.13227" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1111/hex.13227</a>
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Title
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Shortening and validation of the Patient Engagement In Research Scale (PEIRS) for measuring meaningful patient and family caregiver engagement
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Health Expectations
Date
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2021
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Hamilton CB; Hoens AM; McKinnon AM; McQuitty S; English K; Hawke LD; Li LC
Description
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OBJECTIVE: To shorten the Patient Engagement In Research Scale (PEIRS) to its most essential items and evaluate its measurement properties for assessing the degree of patients' and family caregivers' meaningful engagement as partners in research projects. METHODS: A prospective cross-sectional web-based survey in Canada and the USA, and also paper-based in Canada. Participants were patients or family caregivers who had engaged in research projects within the last 3 years, were ≥17 years old, and communicated in English. Extensive psychometric analyses were conducted. RESULTS: 119 participants: 99 from Canada, 74 female, 51 aged 17-35 years and 50 aged 36-65 years, 60 had post-secondary education, and 74 were Caucasian/white. The original 37-item PEIRS was shortened to 22 items (PEIRS-22), mainly because of low inter-item correlations. PEIRS-22 had a single dominant construct that accounted for 55% of explained variance. Analysis of PEIRS-22 scores revealed the following: (1) acceptable floor and ceiling effects (<15%), (2) internal consistency (ordinal alpha = 0.96), (3) structural validity by fit to a Rasch measurement model, (4) construct validity by moderate correlations with the Public and Patient Engagement Evaluation Tool, (5) good test-retest reliability (ICC(2,1) = 0.86) and (6) interpretability demonstrated by significant differences among PEIRS-22 scores across three levels of global meaningful engagement in research. CONCLUSIONS: The shortened PEIRS is valid and reliable for assessing the degree of meaningful patient and family caregiver engagement in research. It enables standardized assessment of engagement in research across various contexts. PATIENT OR PUBLIC CONTRIBUTION: A researcher-initiated collaboration, patient partners contributed from study conception to manuscript write-up.
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<a href="http://doi.org/10.1111/hex.13227" target="_blank" rel="noreferrer noopener">10.1111/hex.13227</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
2023 SE1 - Parent Perspectives
Adolescent
Caregivers
Cross-sectional Studies
English K
family caregiver
Female
Hamilton CB
Hawke LD
Health Expectations
Hoens AM
Humans
Li LC
McKinnon AM
McQuitty S
patient and public involvement
Patient Participation
patient-oriented research
Prospective Studies
Psychometrics
reliability and validity