Good practices that address continuity during transition from child to adult care: synthesis of the evidence
Child; Humans; Family; Adult; Research Design; adolescent; Models; Adolescent Transitions; PST - ppublish; Organizational; Adolescent Health Services/organization & administration/standards; AID - 10.1111/j.1365-2214.2004.00440.x [doi]; AID - CCH440 [pii]; Child Health Services/organization & administration/standards; Continuity of Patient Care/organization & administration/standards; CRDT- 2004/08/24 05:00; Delivery of Health Care/organization & administration/standards; EDAT- 2004/08/24 05:00; Health Services/standards; MHDA- 2005/02/04 09:00; Quality of Health Care/organization & administration/standards
BACKGROUND: Effective transition to adult services is required by an increasing number of children with ongoing needs. AIM: To identify practices that promote continuity at transition between child and adult services. METHODS: Systematic examination of the evidence from two search strategies yielding 5319 items. RESULTS: Only three of the 126 appraised items had strong external validity. A large range of different practices, which focused on the service, the young person and the family, were identified. Practices within the service addressed structural, process and outcome components. CONCLUSION: Four transition models are proposed for testing.
2004
While A; Forbes A; Ullman R; Lewis S; Mathes L; Griffiths P
Child: Care, Health And Development
2004
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1111/j.1365-2214.2004.00440.x" target="_blank" rel="noreferrer">10.1111/j.1365-2214.2004.00440.x</a>
Survival rates among children with severe neurologic disabilities
Child; Female; Humans; Male; Survival Rate; Adult; Enteral Nutrition; adolescent; Preschool; infant; Nervous System Diseases/mortality; disabled children; Skilled Nursing Facilities; Cerebral Palsy/mortality; Institutionalized; Mental Retardation
BACKGROUND: This study was done to determine survival rates in subpopulations of severely neurologically disabled children who reside in pediatric skilled nursing facilities and to compare these survival rates with those in previously published studies. METHODS: Data were collected at three pediatric skilled nursing facilities over the 1986 to 1996 decade. The total study population numbered 447. We studied in detail six groups of the most severely disabled children and correlated their survival rates with clinical parameters and the presence of other significant diseases. RESULTS: The survival rates in our six groups of severely disabled children were significantly better than those previously reported. In group 1, our 8-year survival rate was 66%, as compared with 5% in the previous study. In group 2, our 8-year survival rate was 89%, versus 22% in the previous study. We obtained better survival rates in all six groups studied, irrespective of the analysis including children less than 1 year old, between 1 year and 15 years old, or more than 15 years old. The most significant determinant for reduced survival was the presence of other significant diseases. Those with other significant diseases had a 10-year survival rate of 45%, whereas those who were relatively healthy had a survival rate of 90%. Patients who received gastrostomy tube feedings had a better 10-year survival rate than those fed by nasogastric tube (78% vs 41%). This difference was independent of the presence of other significant medical diseases. CONCLUSIONS: Our results show substantially better survival rates than those previously reported. These improved results are most likely related to much more intense medical management of severely disabled children in skilled nursing facilities than at home or in other residential settings. Our study also showed a significantly better survival rate for those fed by gastrostomy tube as compared with nasogastric tube.
1998
Plioplys AV; Kasnicka I; Lewis S; Moller D
Southern Medical Journal
1998
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1097/00007611-199802000-00009" target="_blank" rel="noreferrer">10.1097/00007611-199802000-00009</a>