1
40
2
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1046/j.1442-200X.2003.01668.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1442-200X.2003.01668.x</a>
<a href="http://onlinelibrary.wiley.com/doi/10.1046/j.1442-200X.2003.01668.x/abstract" target="_blank" rel="noreferrer">http://onlinelibrary.wiley.com/doi/10.1046/j.1442-200X.2003.01668.x/abstract</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Analysis of the circumstances at the end of life in children with cancer: Symptoms, suffering and acceptance
Publisher
An entity responsible for making the resource available
Pediatrics International
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
adolescent; Child; Female; Humans; infant; Male; Death; Adult; social support; childhood cancer; Preschool; Oncology at EOL; Neoplasms/psychology; Brain Neoplasms/therapy; dying; Terminal Care; Leukemia/therapy; Lymphoma/therapy; Neoplasms/therapy; palliative terminal care; psychological support; symptoms and suffering
Creator
An entity primarily responsible for making the resource
Hongo T; Watanabe C; Okada S; Inoue N; Yajima S; Fujii Yuji; Ohzeki T
Description
An account of the resource
AbstractBackground: In an effort to improve the quality of life of children with cancer, this study analyzes the signs and symptoms at the end of life in such children. It is hoped that these data will contribute to the development of appropriate programs to address the challenges faced by these children. Procedure: Between 1994 and 2000, 28 children died after treatment for cancer at Hamamatsu University Hospital, Japan. The circumstances, signs and symptoms at the end of life of these children were analyzed through their medical records. Results: Of the 28 children, the underlying diseases were leukemia/lymphoma (LL group; n=11), brain tumors (BT group; n=7), and other solid tumors (OST group; n=10). Records showed poor appetite (100%), dyspnea (82.1%), pain (75.0%), fatigue (71.4%), nausea/vomiting (57.1%), constipation (46.4%) and diarrhea (21.4%) among these children. Anxiety was reported in 53.6% of the entire group of 28 children; however, no child in the BT group manifested anxiety. However, disturbance of consciousness was reported in all children in the BT group, which was significantly greater than in the other groups. Awareness, fear or acceptance of the imminence of his/her own death as indicated by verbal expression was reported in nine children (32.1%). Conclusions: Using the data obtained in the present study, we describe situations faced in the terminal care of children. It is important to address the problems revealed by this analysis in order to achieve improvements in both the physical and psychological care of children with terminal cancer.
2003-02
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1046/j.1442-200X.2003.01668.x" target="_blank" rel="noreferrer">10.1046/j.1442-200X.2003.01668.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Adolescent
Adult
Backlog
Brain Neoplasms/therapy
Child
Childhood Cancer
Death
Dying
Female
Fujii Yuji
Hongo T
Humans
Infant
Inoue N
Journal Article
Leukemia/therapy
Lymphoma/therapy
Male
Neoplasms/psychology
Neoplasms/therapy
Ohzeki T
Okada S
Oncology at EOL
palliative terminal care
Pediatrics International
Preschool
psychological support
Social Support
symptoms and suffering
Terminal Care
Watanabe C
Yajima S
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2019 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1111/ecc.12879" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/ecc.12879</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Burden of treatment in the face of childhood cancer: A quantitative study using medical records of deceased children
Publisher
An entity responsible for making the resource available
European Journal of Cancer Care (Engl)
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Adaptation; Adolescent; burden of treatment; Central Nervous System Neoplasms/therapy; Child; Death; family; Female; Hospitalization; Humans; Infant; inpatient stays; Length of Stay; leukaemia; Leukemia/therapy; Male; Medical Records; Neoplasms/*therapy; Newborn; paediatric oncology; place of death; Preschool; Psychological; Retrospective Studies; Switzerland; Terminal Care
Creator
An entity primarily responsible for making the resource
Rost M; Wangmo T; Rakic M; Acheson E; Rischewski J; Hengartner H; Kuhne T; Elger B S
Description
An account of the resource
Lived experiences of childhood cancer patients and their families have been described as interrupted and as a loss of normal life. Apart from symptoms due to the cancer disease, families continuously experience burden of treatment. Since coping capacities are unique to each individual, we captured variables that offer objective measures of treatment burden, with a particular focus on the disruptive effects of treatment on families' lives. Our sample was comprised by 193 children that died of cancer. Medical records were extracted retrospectively. Quantitative data were statistically analysed with respect to variables related to treatment burden. Deceased children with cancer and their families faced a significant burden of treatment. Results revealed that deceased leukaemia patients had a higher number of inpatient stays, spent more time in the hospital both during their illness and during the last month of their life, and were more likely to die in the hospital when compared to deceased patients with CNS neoplasms and with other diagnoses. Our findings highlight the disruptive effects of treatment that are likely to have a great impact on families' daily life, that go beyond exclusively focusing on side effects, and that needs to be taken into account by the treating staff.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/ecc.12879" target="_blank" rel="noreferrer noopener">10.1111/ecc.12879</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Acheson E
Adaptation
Adolescent
burden of treatment
Central Nervous System Neoplasms/therapy
Child
Death
Elger B S
European Journal of Cancer Care (Engl)
Family
Female
Hengartner H
Hospitalization
Humans
Infant
inpatient stays
Kuhne T
Length Of Stay
leukaemia
Leukemia/therapy
Male
Medical Records
Neoplasms/*therapy
Newborn
Oncology 2019 List
Paediatric oncology
Place Of Death
Preschool
Psychological
Rakic M
Retrospective Studies
Rischewski J
Rost M
Switzerland
Terminal Care
Wangmo T