1 40 1 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource September 2022 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month September 2022 List URL Address <a href="http://doi.org/10.3390/children9060830" target="_blank" rel="noreferrer noopener">http://doi.org/10.3390/children9060830</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Age-Appropriate Advance Care Planning in Children Diagnosed with a Life-Limiting Condition: A Systematic Review Publisher An entity responsible for making the resource available Children Date A point or period of time associated with an event in the lifecycle of the resource 2022 Subject The topic of the resource Palliative care; Advance care planning; Adolescents; Young adults; Age-appropriateness; Life-limiting condition Creator An entity primarily responsible for making the resource Brunetta J; Fahner J; Legemaat M; van den Bergh E; Krommenhoek K; Prinsze K; Kars M; Michiels E Description An account of the resource Pediatric advance care planning (pACP) is an important strategy to support patient-centered care. It is known to be difficult, yet paramount, to involve the child in pACP while adjusting treatment to age and the corresponding stage of development. This systematic review was aimed to evaluate the age appropriateness of pACP interventions by assessing their characteristics, content, and evidence. CINAHL, Embase and MEDLINE were searched from 1 January 1998 to 31 August 2020 in order to identify peer-reviewed articles containing strategies and tools to facilitate pACP in both children (0-18 years) with life-limiting conditions and their families. An assessment of quality was performed using Cochrane tools and COREQ. The full protocol is available as PROSPERO CRD42020152243. Thirty-one articles describing 18 unique pACP tools were included. Most tools were developed for adolescents and young adults. In most cases, the interventions tried to assess the child's and family's preferences concerning their current and future hopes, wishes, and goals of the care. This was aimed to enhance communication about these preferences between children, their families, and health-care providers and to improve engagement in pACP. The relevance of an age-appropriate approach was mentioned in most articles, but this was mainly implicit. Seven articles implemented age-appropriate elements. Six factors influencing age appropriateness were identified. Tools to support pACP integrated age-appropriate elements to a very limited extent. They mainly focused on adolescents. The involvement of children of all ages may need a more comprehensive approach. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.3390/children9060830" target="_blank" rel="noreferrer noopener">10.3390/children9060830</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2022 Adolescents Advance Care Planning Age-appropriateness Brunetta J Children (Basel) Fahner J Kars M Krommenhoek K Legemaat M Life-limiting Condition Michiels E Palliative Care Prinsze K September 2022 List van den Bergh E Young Adults