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Text
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URL Address
<a href="http://doi.org/10.1200/JCO.2014.55.2588" target="_blank" rel="noreferrer">http://doi.org/10.1200/JCO.2014.55.2588</a>
Dublin Core
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Title
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Hope and Persuasion by Physicians During Informed Consent
Publisher
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Journal Of Clinical Oncology
Date
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2014
Creator
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Miller VA; Cousino M; Leek AC; Kodish ED
Description
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PURPOSE: To describe hopeful and persuasive messages communicated by physicians during informed consent for phase I trials and examine whether such communication is associated with physician and parent ratings of the likelihood of benefit, physician and parent ratings of the strength of the physician's recommendation to enroll, parent ratings of control, and parent ratings of perceived pressure. PATIENTS AND METHODS: Participants were children with cancer (n = 85) who were offered a phase I trial along with their parents and physicians. Informed consent conferences (ICCs) were audiotaped and coded for physician communication of hope and persuasion. Parents completed an interview (n = 60), and physicians completed a case-specific questionnaire. RESULTS: The most frequent hopeful statements related to expectations of positive outcomes and provision of options. Physicians failed to mention no treatment and/or palliative care as options in 68% of ICCs and that the disease was incurable in 85% of ICCs. When physicians mentioned no treatment and/or palliative care as options, both physicians and parents rated the physician's strength of recommendation to enroll in the trial lower. CONCLUSION: Hopes and goals other than cure or longer life were infrequently mentioned, and a minority of physicians communicated that the disease was incurable and that no treatment and/or palliative care were options. These findings are of concern, given the low likelihood of medical benefit from phase I trials. Physicians have an important role to play in helping families develop alternative goals when no curative options remain.
2014-09
Identifier
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<a href="http://doi.org/10.1200/JCO.2014.55.2588" target="_blank" rel="noreferrer">10.1200/JCO.2014.55.2588</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2014
Backlog
Cousino M
Journal Article
Journal Of Clinical Oncology
Kodish ED
Leek AC
Miller VA
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/cncr.29354" target="_blank" rel="noreferrer">http://doi.org/10.1002/cncr.29354</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Practical communication guidance to improve phase 1 informed consent conversations and decision-making in pediatric oncology
Publisher
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Cancer
Date
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2015
Subject
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Ethics; patient perspectives; Pediatric oncology; physician communication
Creator
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Johnson LM; Leek AC; Drotar D; Noll RB; Rheingold SR; Kodish ED; Baker JN
Description
An account of the resource
BACKGROUND: It can be difficult to explain pediatric phase 1 oncology trials to families of children with refractory cancer. Parents may misunderstand the information presented to them, and physicians may assume that certain topics are covered in the informed consent document and need not be discussed. Communication models can help to ensure effective discussions. METHODS: Suggestions for improving the informed consent process were first solicited from phase 1 study clinicians via questionnaire. Eight parents who had enrolled their child on a phase 1 pediatric oncology trial were recruited for an advisory group designed to assess the clinicians' suggestions and make additional recommendations for improving informed consent for pediatric phase 1 trials. RESULTS: A phase 1 communication model was designed to incorporate the suggestions of clinicians and families. It focused on educating parents/families about phase 1 trials at specific time points during a child's illness, but specifically at the point of disease recurrence. An informative phase 1 fact sheet that can be distributed to families was also presented. CONCLUSIONS: Families who will be offered information regarding phase 1 clinical trials can first receive a standardized fact sheet explaining the general purpose of these early-phase clinical trials. Parental understanding may be enhanced further when oncologists address key themes, beginning at the time of diagnosis and continuing through important decision points during the child's illness. This model should be prospectively evaluated. Cancer 2015. © 2015 American Cancer Society.
2015-04
Identifier
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<a href="http://doi.org/10.1002/cncr.29354" target="_blank" rel="noreferrer">10.1002/cncr.29354</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2015
Backlog
Baker JN
Cancer
Drotar D
Ethics
Johnson LM
Journal Article
Kodish ED
Leek AC
Noll RB
patient perspectives
Pediatric Oncology
physician communication
Rheingold SR