1
40
15
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Title
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2023 Special Edition 5 - Low Resource Setting List
Text
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2023 SE5 - Low Resource Setting
URL Address
<a href="http://doi.org/10.1136/archdischild-2023-rcpch.53" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1136/archdischild-2023-rcpch.53</a>
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An innovative hybrid palliative care fellowship program: empowering pediatricians and enhancing care for children in resource-limited settings
Publisher
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Archives of Disease in Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
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child; Canada; Palliative Care; pediatrics; Bangladesh; controlled study; female; human; major clinical study; male; child health; palliative therapy; total quality management; India; pediatrician; skill; clinical examination; conference abstract; Philippines; learning; rotation; leadership; teaching; rigor; career; mentor; running; resource limited setting; Southeast Asia
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Palat G; Doherty M; Brown S; Shah A
Description
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Objective To describe the development and implementation of a 1-year 'Hybrid' Pediatric Palliative Care (PPC) Fellowship, which includes both clinical and online learning to train paediatricians as specialists and leaders in paediatric palliative care in South and Southeast Asia. Methods Globally, 97% of children needing palliative care (PC) live in low- or middle-income countries, where access is often very limited. In India, less than 1% of the 1.6 million children needing PC can access these services. Building capacity and training opportunities for paediatricians are essential to improve access to PC in these settings. The Hybrid fellowship was developed through the existing partnership between Two Worlds Cancer Collaboration, Canada and the Hyderabad Centre for Palliative Care to train paediatricians as specialists and leaders in paediatric palliative care in South and Southeast Asia. A team of PPC experts developed the fellowship after a rigorous review of relevant literature and educational materials, incorporating their experiences running PPC traditional (in-person) fellowship programs in both high and lowerresourced settings. Results The fellowship includes formal teaching, clinical rotations, mentorship, regular assessments of trainees, and a scholarly project. Teaching includes 100 hours of weekly online classes, with a focus on case-based learning and leadership skills. Mandatory 4 months of clinical rotations in PC includes 2 months in the regional centre of PPC excellence in Hyderabad, India. Trainees' progression towards program competencies is assessed through written and observed standardised clinical examinations. A mentorship program provides additional support, which continues beyond the fellowship through an early career mentorship group. As a part of research and quality improvement (QI) training, fellows complete a scholarly project with support and supervision from experienced research mentors. More than 30 regional and international PPC experts contribute to the program as faculty. Since 2021, 6 paediatricians have completed the 'Hybrid' fellowship, from India (2), Bangladesh (1), and the Philippines (3), with 3 fellows currently in training. Graduated fellows have become regional and national leaders in PPC, developing new PPC programs, and implementing new PPC training in their home country. The program successfully sought endorsement from the Royal College of Paediatrics and Child Health (UK), which has strengthened the program's rigor and quality. Conclusion A 1-year Hybrid PPC Fellowship, which trains pediatricians to become specialists and champions of PPC, is an innovative model that can successfully build PPC capacity in resource-limited settings and increase access to PPC for children with life-limiting illnesses.
Identifier
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<a href="http://doi.org/10.1136/archdischild-2023-rcpch.53" target="_blank" rel="noreferrer noopener">10.1136/archdischild-2023-rcpch.53</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
2023 SE5 - Low Resource Setting
Archives of Disease in Childhood
Bangladesh
Brown S
Canada
career
Child
Child Health
clinical examination
conference abstract
Controlled Study
Doherty M
Female
Human
India
Leadership
Learning
Major Clinical Study
Male
mentor
Palat G
Palliative Care
Palliative Therapy
Pediatrician
Pediatrics
Philippines
resource limited setting
rigor
Rotation
running
Shah A
Skill
Southeast Asia
Teaching
Total Quality Management
-
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December 2022 List
Text
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December List 2022
URL Address
<a href="http://doi.org/10.1002/pbc.29952" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1002/pbc.29952</a>
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Development of a Global Palliative Care Program
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Pediatric Blood and Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
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World Health Organization; capacity building; child; conference abstract; development; education; female; hospice; human; human experiment; leadership; male; needs assessment; palliative therapy
Creator
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McNeil M; Garcia X; Salek M; Baker J
Description
An account of the resource
Background and Aims: Disparities in access to pediatric palliative care (PPC) and pain management remain an under-addressed global health issue, especially in low- and middle-income countries (LMICs). Although integration of palliative care (PC) is currently considered a quality standard in children with cancer, very few hospitals, countries and regions have achieved this standard. The St Jude Global Palliative Care Program was created to define the current state of PC in underserved communities worldwide and drive collaborative interventions with our global partners to relieve the suffering of patients and families facing the challenges of pediatric cancer. We describe the program's developmental processes and the challenges and success. Method(s): The St Jude Global Palliative Care program was established in 2018 under the leadership of an interdisciplinary team of experts in PPC. It has been developed through 4 fundamental pillars: Research, Education, Capacity Building, and Advocacy. Activities in these areas have been developed in each of the WHO regions. Result(s): From December 2018 to March 2022, the St Jude Global Palliative Care Transversal program has developed 16 educational projects, 7 advocacy activities, 4 projects in capacity building and 4 large research studies. These activities have been conducted in 99 countries from 5 continents. Collaborative work with World Health Organization (WHO), Pan American Health Organization (PAHO), International Children's Palliative Care Network (ICPCN), and the Worldwide Hospice Palliative Care Alliance (WHPCA) has been essential for developing activities. The program has developed a provider network of 1,280 members from every continent of the world. Conclusion(s): The development of regional activities based on a needs assessment is essential to promote the development and prioritization of PPC according to their locoregional needs and resources. We are currently in the process of developing a global PPC strategic plan that we will share at the SIOP meeting.
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<a href="http://doi.org/10.1002/pbc.29952" target="_blank" rel="noreferrer noopener">10.1002/pbc.29952</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Baker J
capacity building
Child
conference abstract
December List 2022
development
Education
Female
Garcia X
Hospice
Human
Human Experiment
Leadership
Male
McNeil M
Needs Assessment
Palliative Therapy
Pediatric Blood and Cancer
Salek M
World Health Organization
-
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May 2021 List
Text
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Citation List Month
May 2021 List
URL Address
<a href="http://doi.org/10.12968/ijpn.2021.27.1.37" target="_blank" rel="noreferrer noopener">http://doi.org/10.12968/ijpn.2021.27.1.37</a>
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Developing a nursing dependency scoring tool for children's palliative care: the impact on hospice care
Publisher
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International Journal of Palliative Nursing
Date
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2021
Subject
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Allocation; Bed Occupancy; Complex health needs; England; Hospice and Palliative Care Nursing; Hospice Care/organization & administration; Hospices; Humans; Leadership; Nursing Models; Needs Assessment; Palliative Care/organization & administration; Resource Allocation; Respite Care/organization & administration; Technology dependence
Creator
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Tatterton M; Martin C; Moore C; Walker C
Description
An account of the resource
BACKGROUND: Occupancy is commonly used to measure bed management in hospices. However, the increasing complexity of children and young people and growing dependence on technology mean that this is no longer effective. AIM: To develop a dependency tool that enables the hospice to safely and effectively manage the use of beds for planned short breaks (respite care), preserving capacity for children requiring symptom management and end-of-life care. METHODS: A comprehensive literature review and existing tools were used to inform the development of the Martin House Dependency Tool Framework. Training was provided to staff and the tool was piloted before applying it across the hospice caseload. FINDINGS: The tool has been used on 431 children (93.1% of caseload). The tool enabled consistency of assessment and more effective management of resources, due to a contemporaneous understanding of the clinical needs of those on the caseload. CONCLUSION: The tool has enabled consistent and transparent assessment of children, improving safety, effectiveness and responsiveness, and the management of the workforce and resources.
Identifier
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<a href="http://doi.org/10.12968/ijpn.2021.27.1.37" target="_blank" rel="noreferrer noopener">10.12968/ijpn.2021.27.1.37</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Allocation
Bed Occupancy
Complex health needs
England
Hospice And Palliative Care Nursing
Hospice Care/organization & administration
Hospices
Humans
International Journal of Palliative Nursing
Leadership
Martin C
May 2021 List
Moore C
Needs Assessment
Nursing Models
Palliative Care/organization & Administration
Resource Allocation
Respite Care/organization & administration
Tatterton M
Technology dependence
Walker C
-
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April 2020 List
Text
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Citation List Month
April 2020 List
URL Address
<a href="https://pediatrics.aappublications.org/content/142/1_MeetingAbstract/649" target="_blank" rel="noreferrer noopener">https://pediatrics.aappublications.org/content/142/1_MeetingAbstract/649</a>
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Introduction of triggers for palliative care consultation improve utilization and and satisfaction within a level 4 NICU
Publisher
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Pediatrics
Date
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2018
Subject
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awareness; conference abstract; controlled study; human; infant; leadership; medical record review; needs assessment; nurse; palliative therapy; patient referral; physician; practice guideline; satisfaction
Creator
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Nguyen L T; Spear M L
Description
An account of the resource
The use of a palliative care guideline in infants remains controversial in the NICU community. Triggers are only intermittently utilized within the NICU setting. Most NICUs implement strategies for near-death care, but few have guidelines for those with medically complex conditions that have potential in progressing towards death. It may be helpful to utilize written criteria for palliative care consultation (PCC) for patients who can benefit from early referral. Thus, our specific aim is to increase the number of PCCs within our level 4 NICU by 20% by the end of December 2016. Our global aim is to improve the care of the medically complex infant in need of multidisciplinary management, which includes palliative care services provided by our palliative care team (named CORE team). The need for a list of triggers was found after distributing a needs assessment survey amongst bedside nurses, nurse practioners, fellows, and attendings. The list was adapted from Caitlin and Carter (2002), and development included input from NICU leadership. The list was posted in the physician workrooms (Figure 1). Bi-monthly reminders were sent out to the NICU fellows on service to review their team's census, identify those who met criteria for PCC, and were encouraged to discuss these patients and their indications for PCC during daily multidisciplinary rounds. After 6 months, a post implementation survey was distributed. Medical chart review of each NICU admission since January 2014 was done to assess which patients met criteria for PCC, how many received a PCC, and the number of days between date of admission and the initial consultation. Prior to implementation, of those who qualified for PCC, 26% received consultation. After implementation, the percentage increased to 46%. The post implementation survey found an increase in understanding the CORE team's role in the NICU, knowing when to consult, and awareness of a positive difference within the NICU since utilizing their services more frequently (Figure 2a). Lastly, the time until initial consultation decreased from approximately two months to one week (Figure 2b). We achieved our goal of increasing the number of PCC. The listed triggers helped establish prompt and proactive referral to the palliative care team at our institution. Not only can a written guideline increase awareness of a palliative care team's role within a NICU, but it also enhances the satisfaction amongst providers of the care they are giving. Next steps include involving the CORE team during weekly multidisciplinary rounds, as well as developing a strategy for those who can benefit from CORE team within 24 hours or overnight. We speculate that utilization of palliative care within the NICU can help guide revision of treatment goals, and provide continuity of care and support to families in need of resources.
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
April 2020 List
Awareness
conference abstract
Controlled Study
Human
Infant
Leadership
Medical Record Review
Needs Assessment
Nguyen L T
Nurse
Palliative Therapy
Patient Referral
Pediatrics
Physician
Practice Guideline
Satisfaction
Spear M L
-
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Title
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2019 Developing World List
Text
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Citation List Month
Developing World 2019 List
URL Address
<a href="http://doi.org/10.1200/jgo.18.36900" target="_blank" rel="noreferrer noopener">http://doi.org/10.1200/jgo.18.36900</a>
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The integration of palliative care in Dr Congo "a Model of Sustainability": A field study
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Journal of Global Oncology
Date
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2018
Subject
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analgesia; capacity building; caregiver; child; conference abstract; Congo; Congolese (Kinshasa); doctor nurse relation; female; field study; home care; human; leadership; major clinical study; male; organization; palliative therapy; practice guideline; primary health care; sensitization; training; Uganda; volunteer
Creator
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Mubeneshayi Kananga A
Description
An account of the resource
Background and context: In DR Congo, many cancer patients in the terminal phase of their condition have minimal access to palliative care. There is a combined effect of poverty, the deteriorationofthe health system and the absenceof a well-defined national policyonpalliative care. Patients are for the most part abandoned to the care of inexperienced family members. Driven by the fact that the number of palliative patients has been increasing steadily over the past five years, the Palliafamilli association and its partners have taken leadership in the fight for palliative care. The major issue that blocks palliative care in RD Congo is the lack of knowledge about palliative care both in the population and even in health professionals. Most patients are treated at home with strong family involvement in many aspects of care. Aim(s): To promote good health practices at the community level and equip them with the knowledge and means to prevent their health problems, with a focus on palliative care and to contribute to the implementation of the Strategy for Strengthening the Health SystemofDRCongo by facilitating a program of access to palliative care for the entire Congolese population. Strategy/Tactics: During the last7years,wehave organized conferences, congresses, various training sessions on pain management, sensitization activities, capacity building courses and advocacy activities within the Ministry of Health for national palliative care guidelines. Program/Policy process: The organization of two International Congress of Palliative Care in Kinshasa in April 2013 (550 participants) and September 2015 (700 participants) Training of 3 health professionals on the palliative approach in Uganda (2013) Participation at the Second Francophone Palliative Care Congress in Montreal 2013 A palliative care training course at the University of Kinshasa in 2015 (115 participants) The organization of the International Colloquium of Pediatric Palliative Care in Kinshasa in 2015 Participation in the 4th International Francophone Congress of Palliative Care in Geneva (2017) Participating in the drafting of national guidelines for palliative care within the Ministry of Health (2017) Capacity building for two members of PalliaFamilli thanks to the scholarship offered by the UICC. What was learned: In DR Congo, palliative care and pain relief require a cross-cutting approach, as resources are limited, many people are in need of care, and there are few nurses and doctors empowered to provide care. An effective approach is to involve community or volunteer caregivers supervised by health professionals, and Palliafamilli is successful due in its mul-tidisciplinary and multisectoral approach, with adaptation to cultural, social and economic specificities and its integration with existing health systems, focusing on primary health care and community and home care.
Identifier
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<a href="http://doi.org/10.1200/jgo.18.36900" target="_blank" rel="noreferrer noopener">10.1200/jgo.18.36900</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Analgesia
capacity building
Caregiver
Child
conference abstract
Congo
Congolese (Kinshasa)
Developing World 2019 List
doctor nurse relation
Female
field study
Home Care
Human
Journal of Global Oncology
Leadership
Major Clinical Study
Male
Mubeneshayi Kananga A
Organization
Palliative Therapy
Practice Guideline
Primary Health Care
sensitization
Training
uganda
Volunteer
-
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Title
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October 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2019 List
URL Address
<a href="http://doi.org/10.1089/jpm.2019.0164" target="_blank" rel="noreferrer noopener">http://doi.org/10.1089/jpm.2019.0164</a>
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Attempting to Define Clinical Productivity Metrics among Pediatric Palliative Care Services at Academic Children's Hospitals
Publisher
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Journal of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
United States; article; child; female; human; male; palliative therapy; pediatric palliative care; clinical article; human tissue; program development; billing and coding; burnout; clinical productivity; convenience sample; leadership; productivity; sustainability; workload
Creator
An entity primarily responsible for making the resource
Mahoney D P; Brook I; Fossa M; Kang T
Description
An account of the resource
Introduction: Pediatric palliative care (PPC) programs have grown in size and number at academic children's hospitals in the United States for the past 20 years. Little is known about the relationships between program workforce staffing, billing and coding practices, clinical service requirements for billing providers, and sustainability of program models for billing providers. Method(s): The authors contacted a convenience sample of 10 PPC program leaders at academic children's hospitals in the United States. Program leaders were asked to provide information about billing provider full-time equivalent (FTE) staffing, billing and coding practices, and productivity metrics for a three-month period, from January 1 to March 31, 2017. Result(s): Ten programs participated in the convenience sample survey, and seven provided information about billing and coding practices. For the seven programs that provided evaluation and management data, calculated estimate of mean work Relative Value Unit (wRVU) production per 1.0 FTE per year was 1626. Calculated estimate of consultations per 1.0 FTE per month was 15. Calculated estimate of total clinical encounters per 1.0 FTE per month was 70. Conclusion(s): The relationships between PPC billing provider productivity and clinical workload are complex and vary widely among a convenience sample of academic PPC programs. Given the high burnout rates in the field, efforts should be made to more clearly define these relationships to promote sustainability of both billing and nonbilling PPC providers.
Identifier
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<a href="http://doi.org/10.1089/jpm.2019.0164" target="_blank" rel="noreferrer noopener">10.1089/jpm.2019.0164</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Article
billing and coding
Brook I
Burnout
Child
Clinical Article
clinical productivity
Convenience Sample
Female
Fossa M
Human
Human Tissue
Journal of Palliative Medicine
Kang T
Leadership
Mahoney D P
Male
October 2019 List
Palliative Therapy
Pediatric Palliative Care
productivity
Program Development
sustainability
United States
workload
-
Dublin Core
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Title
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August 2018 List
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Text
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Citation List Month
August 2018 List
URL Address
<a href="http://doi.org/10.1177/0269216318769196" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0269216318769196</a>
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Qualitative evaluation of the impact of a paediatric palliative care family support volunteering project
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
human; child; female; male; palliative therapy; controlled study; major clinical study; conference abstract; sibling; quality of life; human experiment; semi structured interview; skill; volunteer; staff; questionnaire; qualitative analysis; gardening; housekeeping; leadership; shopping
Creator
An entity primarily responsible for making the resource
Scott R; Chambers L; McNamara K
Description
An account of the resource
Background: Families caring for a child with a life limiting condition not only provide 24 hour complex care but also must care for siblings and cope with everyday tasks. Research suggests families could benefit from 'domestic support' (Fraser et al, 2015). This abstract reports on a qualitative evaluation of the second phase of a pilot project offering volunteer home support to such families. Three pilot sites were involved including voluntary and NHS community children's palliative care (CPC) teams. Method: Qualitative questionnaires were completed by families, staff, volunteers and strategic leaders before and after the pilot, followed by small number of semi-structured interviews to explore experiences in more depth. Results: Volunteers provided a range of support including, housework, gardening, shopping homework with siblings and taking siblings to and from school. Sixty volunteers were recruited and 62 families matched with volunteers. As a result of volunteer support, 100% of families reported improvement in quality of life, 95% feeling less stressed and more able to cope with 65% feeling less isolated. All volunteers (100%) felt valued, 84% increased skills and confidence and 92% wished to continue volunteering. The project enabled pilot sites to extend the range of support offered and increased organisational capacity. Volunteers enriched the organisation and brought new ideas and impetus. Volunteers were able to respond quickly and appropriately in crisis situations. Challenges identified included some families feeling that the offer of volunteer help implied that they were not coping, volunteers ' availability not always matching families preferred times and allowing enough time for planning and set up. A set of online resources were developed as part of the project. These include guidance on planning and implementation in different settings are now freely available. Conclusion: This evaluation suggests that families benefit greatly from volunteer support in the home and may be of value to other CPC services considering how too extend their support to families. A subsequent evaluation, with reflections on sustainability replicability is underway.
Identifier
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<a href="http://doi.org/10.1177/0269216318769196" target="_blank" rel="noreferrer noopener">10.1177/0269216318769196</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
August 2018 List
Chambers L
Child
conference abstract
Controlled Study
Female
gardening
housekeeping
Human
Human Experiment
Leadership
Major Clinical Study
Male
McNamara K
Palliative Medicine
Palliative Therapy
Qualitative Analysis
Quality Of Life
Questionnaire
Scott R
Semi Structured Interview
shopping
Sibling
Skill
Staff
Volunteer
-
Dublin Core
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Title
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July 2018 List
Text
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Citation List Month
July 2018 List
URL Address
<a href="http://doi.org/10.1007/s40615-016-0224-1" target="_blank" rel="noreferrer noopener">http://doi.org/10.1007/s40615-016-0224-1</a>
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Nursing Unit Environment Associated with Provision of Language Services in Pediatric Hospices
Publisher
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Journal of Racial & Ethnic Health Disparities
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Creator
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Lindley LC; Held ML; Henley KM; Miller KA; Pedziwol KE; Rumley LE
Identifier
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<a href="http://doi.org/10.1007/s40615-016-0224-1" target="_blank" rel="noreferrer noopener">10.1007/s40615-016-0224-1</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Description
An account of the resource
Background Provision of language services in pediatric hospice enables nurses to communicate effectively with patients who have limited English proficiency. Language barriers contribute to ethnic disparities in health care. While language service use corresponds with improved patient comprehension of illness and care options, we lack an understanding of how the nurse work environment affects the provision of these services.
Methods Data were obtained from the 2007 National Home and Hospice Care Survey and included a study sample of 1251 pediatric hospice agencies. Variable selection was guided by structural contingency theory, which posits that organizational effectiveness is dependent upon how well an organization’s structure relates to its context. Using multivariate logistic regression, we analyzed the extent to which nursing unit environment predicted provision of translation services and interpreter services.
2017
Communication Barriers
Held ML
Henley KM
Hospice And Palliative Care Nursing
Hospice Care/og Organization & Administration
Hospice Care/sn Statistics & Numerical Data
Humans
Journal of Racial & Ethnic Health Disparities
July 2018 List
Leadership
Lindley LC
Miller KA
Nurses
Organizational Culture
Patient Safety
Pediatric Nursing
Pedziwol KE
Rumley LE
Translating
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1300/j457v01n01_02" target="_blank" rel="noreferrer">http://doi.org/10.1300/j457v01n01_02</a>
Dublin Core
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Title
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Setting an agenda for social work in end-of-life and palliative care: an overview of leadership and organizational initiatives
Publisher
An entity responsible for making the resource available
Journal of Social Work in End-of-Life & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Humans; Leadership; Cooperative Behavior; Interdisciplinary Communication; Organizational Innovation; Palliative Care/organization & administration; Terminal Care/organization & administration; Social Work/organization & administration
Creator
An entity primarily responsible for making the resource
Christ GH; Blacker S
Description
An account of the resource
This article describes leadership efforts within social work to promote, enhance, and shape the future of social work practice, education, and research in end-of-life and palliative care. The background and outcomes of the Project on Death in America, Open Society Institute's Social Work Leadership Development Award Program, and the 2002 Social Work Leadership Summit on End-of-Life and Palliative Care are reviewed.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1300/j457v01n01_02" target="_blank" rel="noreferrer">10.1300/j457v01n01_02</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Backlog
Blacker S
Christ GH
Cooperative Behavior
Humans
Interdisciplinary Communication
Journal Article
Journal of Social Work in End-of-Life & Palliative Care
Leadership
Organizational Innovation
Palliative Care/organization & Administration
Social Work/organization & administration
Terminal Care/organization & Administration
-
Dublin Core
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Title
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PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.5737/1181912x1511520" target="_blank" rel="noreferrer">http://doi.org/10.5737/1181912x1511520</a>
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Title
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Do we have the power to create our own future as oncology nurses?
Publisher
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Canadian Oncology Nursing Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Female; Humans; Male; Leadership; Nurse's Role; Sex Factors; Power (Psychology); Students; Nursing; Oncologic Nursing; Societies; Nursing/psychology
Creator
An entity primarily responsible for making the resource
Steele R
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.5737/1181912x1511520" target="_blank" rel="noreferrer">10.5737/1181912x1511520</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Backlog
Canadian Oncology Nursing Journal
Female
Humans
Journal Article
Leadership
Male
Nurse's Role
Nursing
Nursing/psychology
Oncologic Nursing
Power (psychology)
Sex Factors
Societies
Steele R
Students
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/01445442-200201000-00006" target="_blank" rel="noreferrer">http://doi.org/10.1097/01445442-200201000-00006</a>
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Title
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Palliative care: rapid redesign to support systemwide quality improvement
Publisher
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Journal For Healthcare Quality
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Humans; Leadership; Length of Stay; Program Development; Outcome Assessment (Health Care); Patient Satisfaction; Hospitals; Catholicism; Palliative Care/organization & administration; Family/psychology; Midwestern United States; Hospice Care/standards; Hospital Restructuring; Institutional Management Teams; Multi-Institutional Systems/organization & administration; Multi-Institutional Systems/standards; Palliative Care/standards; Practice Guidelines as Topic; Religious/organization & administration; Religious/standards; Total Quality Management/organization & administration
Creator
An entity primarily responsible for making the resource
Thomas MB; Quinn C
Description
An account of the resource
Large-scale change techniques and rapid redesign methodologies were used to improve the quality of care delivered to patients at the end of life in a large, multihospital healthcare delivery system. By bringing key stakeholders from across the system together at a symposium to formulate the vision and critical criteria for palliative care programs, as well as to develop a flexible set of design tools, each region in the system could respond to the unique needs of its own community. Hospice length of stay for the system improved by 100% in the year after the systemwide symposium.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01445442-200201000-00006" target="_blank" rel="noreferrer">10.1097/01445442-200201000-00006</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Backlog
Catholicism
Family/psychology
Hospice Care/standards
Hospital Restructuring
Hospitals
Humans
Institutional Management Teams
Journal Article
Journal For Healthcare Quality
Leadership
Length Of Stay
Midwestern United States
Multi-Institutional Systems/organization & administration
Multi-Institutional Systems/standards
Outcome Assessment (health Care)
Palliative Care/organization & Administration
Palliative Care/standards
Patient Satisfaction
Practice Guidelines As Topic
Program Development
Quinn C
Religious/organization & administration
Religious/standards
Thomas MB
Total Quality Management/organization & administration
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.5737/1181912x113118122" target="_blank" rel="noreferrer">http://doi.org/10.5737/1181912x113118122</a>
Dublin Core
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Title
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Weaving for the future: using rulers and roses
Publisher
An entity responsible for making the resource available
Canadian Oncology Nursing Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Humans; Leadership; Nurse's Role; Organizational Objectives; Evidence-Based Medicine; Forecasting; Models; Administration; Nursing; Nursing Process; Biomedical; Nursing Research/organization &; Oncologic Nursing/education/organization &; Technology Assessment
Creator
An entity primarily responsible for making the resource
Davies B
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.5737/1181912x113118122" target="_blank" rel="noreferrer">10.5737/1181912x113118122</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2001
2001
Administration
Backlog
Biomedical
Canadian Oncology Nursing Journal
Davies B
Evidence-based Medicine
Forecasting
Humans
Journal Article
Leadership
Models
Nurse's Role
Nursing
Nursing Process
Nursing Research/organization &
Oncologic Nursing/education/organization &
Organizational Objectives
Technology Assessment
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=10848367" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=10848367</a>
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Title
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Reviewing audit: barriers and facilitating factors for effective clinical audit
Publisher
An entity responsible for making the resource available
Quality In Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2000
Subject
The topic of the resource
Physician-Patient Relations; Great Britain; Medical Staff; Leadership; Physician's Role; Interprofessional Relations; Patient Satisfaction; Quality of Health Care; Job Satisfaction; Hospitals; MEDLINE; Family Practice; Primary Health Care; Non-U.S. Gov't; Comparative Study; Evaluation Studies; retrospective studies; Databases; Hospital; Support; General; Attitude of Health Personnel; Nursing Audit; Bibliographic; Medical Audit/standards; Medical Records/standards; Partnership Practice
Creator
An entity primarily responsible for making the resource
Johnston G; Crombie IK; Davies HT; Alder EM; Millard A
Description
An account of the resource
OBJECTIVE: To review the literature on the benefits and disadvantages of clinical and medical audit, and to assess the main facilitators and barriers to conducting the audit process. DESIGN: A comprehensive literature review was undertaken through a thorough review of Medline and CINAHL databases using the keywords of "audit", "audit of audits", and "evaluation of audits" and a handsearch of the indexes of relevant journals for key papers. RESULTS: Findings from 93 publications were reviewed. These ranged from single case studies of individual audit projects through retrospective reviews of departmental audit programmes to studies of interface projects between primary and secondary care. The studies reviewed incorporated the experiences of a wide variety of clinicians, from medical consultants to professionals allied to medicine and from those involved in unidisciplinary and multidisciplinary ventures. Perceived benefits of audit included improved communication among colleagues and other professional groups, improved patient care, increased professional satisfaction, and better administration. Some disadvantages of audit were perceived as diminished clinical ownership, fear of litigation, hierarchical and territorial suspicions, and professional isolation. The main barriers to clinical audit can be classified under five main headings. These are lack of resources, lack of expertise or advice in project design and analysis, problems between groups and group members, lack of an overall plan for audit, and organisational impediments. Key facilitating factors to audit were also identified: they included modern medical records systems, effective training, dedicated staff, protected time, structured programmes, and a shared dialogue between purchasers and providers. CONCLUSIONS: Clinical audit can be a valuable assistance to any programme which aims to improve the quality of health care and its delivery. Yet without a coherent strategy aimed at nurturing effective audits, valuable opportunities will be lost. Paying careful attention to the professional attitudes highlighted in this review may help audit to deliver on some of its promise.
2000
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2000
Alder EM
Attitude Of Health Personnel
Backlog
Bibliographic
Comparative Study
Crombie IK
Databases
Davies HT
Evaluation Studies
Family Practice
General
Great Britain
Hospital
Hospitals
Interprofessional Relations
Job Satisfaction
Johnston G
Journal Article
Leadership
Medical Audit/standards
Medical Records/standards
Medical Staff
Medline
Millard A
Non-U.S. Gov't
Nursing Audit
Partnership Practice
Patient Satisfaction
Physician-patient Relations
Physician's Role
Primary Health Care
Quality In Health Care
Quality Of Health Care
Retrospective Studies
Support
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Succession Planning In Children's Palliative Care Services
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Palliative Therapy; Board Of Trustees; Child; Education; Family; Hospice; Human; Human Experiment; Humanism; Humanities; Humans; Intelligence; Leadership; Only Child; Organization; Palliative Care; Retirement; Skill; Staff; Work
Creator
An entity primarily responsible for making the resource
Dickson G
Description
An account of the resource
The children's palliative care sector requires a specific set of knowledge and skills in its workforce. Maintaining high levels of competence and leadership can be challenging if staff move out of the sector, retire or several key people leave. Succession planning can been described as: "any effort designed to ensure the continued effective performance of an organisation by making provision for the development, replacement, and strategic application of key people over time." 1 We produced a guidance document which signposts organisations towards actions to take in building a sustainable workforce. Succession planning done successfully will promote continuity in leadership positions, increased retention and loyalty of staff. The guidance document helps provider organisations identify the risks to the organisation and the challenges facing them in future planning - then suggests some solutions. This Guide was produced with contributions from experts with a national and international perspective, including human resources professionals, higher education and statutory services. It was shared with all leaders in the sector including Chief Executives of Children's Hospice and Palliative Care organisations and put on the Together for Short Lives website The Guide was well received with good feedback from within the sector. Suggestions to activate included: * Gathering workforce intelligence for the whole workforce, including age, job descriptions and skills required * Match competence levels to job roles to identify gaps and strengths * Identify key posts and leadership positions * Explore creative solutions; e.g. partial retirement * Invest in time for Boards of trustees to discuss the plan and identify risks to their organisations These activities will ensure children's palliative care organisations will continue to deliver the best care and support to children and families so they continue to make the most of their precious time together.
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Board Of Trustees
Child
Dickson G
Education
Family
Hospice
Human
Human Experiment
Humanism
Humanities
Humans
Intelligence
Leadership
May 2017 List
Only Child
Organization
Palliative Care
Palliative Medicine
Palliative Therapy
Retirement
Skill
Staff
Work
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2016 List
URL Address
<a href="http://www.resuscitationjournal.com/article/S0300-9572(16)00012-5/fulltext" target="_blank" rel="noreferrer">http://www.resuscitationjournal.com/article/S0300-9572(16)00012-5/fulltext</a>
Dublin Core
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Title
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A Survey Of Key Opinion Leaders On Ethical Resuscitation Practices In 31 European Countries.
Publisher
An entity responsible for making the resource available
Resuscitation
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Adult; Cardioulmonary Resuscitation/ethics; Child; Child Preschool; Ethics Medical; Europe; Female; Heart Arrest/therapy; Humans; Leadership; Linear Models; Male; Surveys And Questionnaires; Terminal Care/ethics
Bioethics; Cardiac Arrest; Emergency Care; End-of-life Care; Resuscitation
Creator
An entity primarily responsible for making the resource
Mentzelopoulos SD; Bossaert L; Raffay V; Askitopoulou H; Perkins GD; Greif R; Haywood K; Van de Voorde P; Xanthos T
Description
An account of the resource
BACKGROUND:
Europe is a patchwork of 47 countries with legal, cultural, religious, and economic differences. A prior study suggested variation in ethical resuscitation/end-of-life practices across Europe. This study aimed to determine whether this variation has evolved, and whether the application of ethical practices is associated with emergency care organisation.
METHODS:
A questionnaire covering four domains of resuscitation ethics was developed based on consensus: (A) Approaches to end-of-life care and family presence during cardiopulmonary resuscitation; (B) Determinants of access to best resuscitation and post-resuscitation care; (C) Diagnosis of death and organ donation (D) Emergency care organisation. The questionnaire was sent to representatives of 32 countries. Responses to 4-choice or 2-choice questions pertained to local legislation and common practice. Positive responses were graded by 1 and negative responses by 0; grades were reconfirmed/corrected by respondents from 31/32 countries (97%). For each resuscitation/end-of-life practice a subcomponent score was calculated by grades' summation. Subcomponent scores' summation resulted in domain total scores.
RESULTS:
Data from 31 countries were analysed. Domains A, B, and D total scores exhibited substantial variation (respective total score ranges, 1-41, 0-19 and 9-32), suggesting variable interpretation and application of bioethical principles, and particularly of autonomy. Linear regression revealed a significant association between domain A and D total scores (adjusted r(2)=0.42, P<0.001).
CONCLUSIONS:
According to key experts, ethical practices and emergency care still vary across Europe. There is need for harmonised legislation, and improved, education-based interpretation/application of bioethical principles. Better application of ethical practices may be associated with improved emergency care organisation.
Copyright © 2016 Elsevier Ireland Ltd. All rights reserved.
Identifier
An unambiguous reference to the resource within a given context
DOI: <a href="https://doi.org/10.1016/j.resuscitation.2015.12.010" target="_blank" rel="noreferrer">10.1016/j.resuscitation.2015.12.010</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adult
Askitopoulou H
Bioethics
Bossaert L
Cardiac Arrest
Cardioulmonary Resuscitation/ethics
Child
Child Preschool
December 2016 List
Emergency Care
End-of-life Care
Ethics Medical
Europe
Female
Greif R
Haywood K
Heart Arrest/therapy
Humans
Leadership
Linear Models
Male
Mentzelopoulos SD
Perkins GD
Raffay V
Resuscitation
Surveys And Questionnaires
Terminal Care/ethics
Van de Voorde P
Xanthos T