Browse Items · Pediatric Palliative Care Library

A charter for the rights of the dying child

2014-05

Tags: 2014, Backlog, Benini F, Child, Child Advocacy, Humans, Journal Article, Lancet, Orzalesi M, Terminal Care, Terminally Ill, Vecchi R

A population-based nationwide study of parents' perceptions of a questionnaire on their child's death due to cancer.

A proposed nationwide postal questionnaire to Swedish parents who had lost a child due to cancer between 1992 and 1997 was denied approval by the local ethics committee. However, a pilot study to assess the harm and benefit of the questionnaire was…

Asking parents unaskable questions

2004

Tags: 2004, Attitude To Death, Backlog, Bereavement, Biomedical and Behavioral Research, Burnell RH, Child, Data Collection, Death and Euthanasia, Ethics, Humans, Interviews As Topic, Journal Article, Lancet, O'Keefe M, Parents/psychology, Questionnaires, Research, Sweden

Care for dying patients.

1997

Tags: 1997, Advance Care Planning, Advance Directives, Backlog, Communication, Decision Making, DNAR, Emanuel EJ, Euthanasia, Family, Humans, Journal Article, Lancet, Palliative Care, Passive, Physician-patient Relations, Physicians, Terminal Care, Withholding Treatment

Challenge of pain in the cognitively impaired

2000

Tags: 2000, Abu-Saad HH, Backlog, Cognition Disorders/physiopathology, Cold/adverse effects, Down Syndrome/physiopathology, Human, Journal Article, Lancet, Pain Measurement, Pain/etiology/physiopathology, Reaction Time

Child death in high-income countries

Reductions in child mortality in high-income settings have been substantial over recent decades, although variations remain between and within countries. A three-part Series outlines the epidemiology of child mortality and a standardised approach to…

Tags: 2014, Backlog, Cause Of Death, Child, Child Mortality, Developed Countries, Early Diagnosis, Fraser J, Humans, Journal Article, Lancet, Perinatal Care, Petrou S, Primary Prevention, Sidebotham P

Comparison of continuous subcutaneous and intravenous hydromorphone infusions for management of cancer pain

To compare the safety and efficacy of subcutaneous and intravenous infusion of opioid analgesics, a randomised, double-blind, crossover trial was carried out in inpatients. 15 patients with severe cancer pain received two 48 h infusions of…

Comparison of places and policies for terminal care

Patients receiving different types of adequate care for fatal neoplasms were compared by an assessment of their mood and opinions. 78% had spoken of dying, and, although 56% had some unhappiness and anxiety, many were not distressed. Most aspects of…

Tags: 1979, Backlog, Hinton J, Journal Article, Lancet

Diphosphonates in the treatment of myositis ossificans

Effect of palliative oxygen versus room air in relief of breathlessness in patients with refractory dyspnoea: a double-blind, randomised controlled trial

BACKGROUND: Palliative oxygen therapy is widely used for treatment of dyspnoea in individuals with life-limiting illness who are ineligible for long-term oxygen therapy. We assessed the effectiveness of oxygen compared with room air delivered by…

Euthanasia in Europe

2001

Tags: 2001, Backlog, Belgium, Bernheim JL, Death and Euthanasia, Empirical Approach, Euthanasia/statistics & numerical data, Humans, Journal Article, Lancet, Netherlands, Paternalism, Psychological, Stress

Helping a child to live whilst dying

Hot flushes

Almost every woman and some men will encounter hot flushes during their lifetime. Despite the prevalence of the symptoms, the pathophysiology of hot flushes remains unknown. A decline in hormone concentrations might lead to alterations in brain…

Tags: 2002, Backlog, Female, Hayes D, Hot Flashes/epidemiology/physiopathology/therapy, Human, Isaacs C, Journal Article, Lancet, Lopez JF, Non-U.S. Gov't, Smith Y, Stearns V, Support, Ullmer L

Improving end-of-life care for children

2007

Tags: 2007, Backlog, Child, Health Services Needs And Demand, Hospice Care, Humans, Infant, Intensive Care Units, Journal Article, Lancet, Palliative Care/organization & Administration, Pediatric/utilization, Preschool

Local analgesic effect of endogenous opioid peptides

Opioids produce analgesia by interacting with local opioid receptors in peripheral inflamed tissue. This study investigated whether endogenous ligands of these receptors are present in synovia and whether such opioid peptides can inhibit pain by…

Medical end-of-life decisions in neonates and infants in Flanders

2005

Tags: 2005, 48.9-64.0). Lethal drugs were administered in 15 cases among 117 early neonatal deaths and in two cases among 77 later deaths (13%vs 3%, 70.1-85.5) of the 121 physicians thought that their professional duty sometimes includes the prevention of unnecessary suffering by hastening death and 69 (58%, 95% CI 70.4-82.4) of the 253 deaths studied, Active/psychology/statistics & numerical data Female Humans Infant Infant, and such a decision was made in 14 3 cases (57%, Attitude of Health Personnel Belgium, Backlog, Bilsen J, Cools F, Decision Making, Deliens L, Euthanasia, Journal Article, Lancet, Mortier F, Newborn Male Pain/therapy Palliative Care/statistics & numerical data Physicians/, Non-U.S. Gov't, p=0.018). The attitude study showed that 95 (79%, PedPal Lit, Provoost V, psychology Questionnaires Research Support, Ramet J, Vandenplas Y, Withholding Treatment/statistics & Numerical Data

Mortality in parents after death of a child in Denmark: A nationwide follow-up study.

BACKGROUND: Little is known about the effect of parental bereavement on physical health. We investigated whether the death of a child increased mortality in parents. METHODS: We undertook a follow-up study based on national registers. From 1980 to…

Neuropathic pain: aetiology, symptoms, mechanisms, and management

We highlight current theories about peripheral neuropathic pain and show that progress in management is contingent on targeting treatment not at the aetiological factors or the symptoms but at the mechanisms that operate to produce the symptoms. This…

Tags: 1999, Backlog, Humans, Journal Article, Lancet, Mannion RJ, Pain Threshold/physiology, Pain/drug therapy/etiology/physiopathology, Peripheral Nerves/physiopathology, Peripheral Nervous System Diseases/drug therapy/etiology/physiopathology, Woolf CJ

Paediatric ethics: a repudiation of the Groningen protocol

Tags: 2008, December 2017 List, Decision Making, Ethics Clinical, Euthanasia/es [ethics], Humans, Infant Newborn, Infanticide/es [ethics], Kodish E, Lancet, Netherlands, Withholding Treatment/es [ethics]

Paediatric palliative care: Challenges and emerging ideas.

Paediatric palliative care is an emerging subspecialty that focuses on achieving the best possible quality of life for children with life-threatening conditions and their families. To achieve this goal, the individuals working in this field need to:…

Tags: 2007, Backlog, Journal Article, Lancet, Liben S, Longitudinal Studies, Papadatou D, Wolfe J

Palliative care: more than one chance to get it right

2014-07

Tags: 2014, Backlog, Critical Pathways, Great Britain, Health Priorities, Humans, Journal Article, Lancet, Palliative Care, Quality Of Health Care

Procedural sedation and analgesia in children

Procedural sedation and analgesia for children--the use of sedative, analgesic, or dissociative drugs to relieve anxiety and pain associated with diagnostic and therapeutic procedures--is now widely practised by a diverse group of specialists outside…

Tags: 2006, Analgesia/classification, Analgesics/administration & dosage/classification/pharmacology, Backlog, Child, Conscious Sedation/classification, dosage/classification/pharmacology, Green SM, Health Status, Humans, Hypnotics and Sedatives/administration &, Infant, Journal Article, Krauss B, Lancet, Pediatrics/standards, PedPal Lit, Practice Guidelines, Preschool

Research in children: ethical and scientific aspects

Research into care at the end of life