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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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URL Address
<a href="http://doi.org/10.1038/sj.jp.7211755" target="_blank" rel="noreferrer">http://doi.org/10.1038/sj.jp.7211755</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Infant end-of-life care: the parents' perspective
Publisher
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Journal Of Perinatology
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
location of death
Creator
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Brosig CL; Pierucci RL; Kupst MJ; Leuthner SR
Description
An account of the resource
Objective:The purpose of this study was to identify factors important to parents in their infant's end-of-life care.Study Design:Participants were parents (n=19 families) whose infant (less than 1 year old) had died. Parents completed the Revised Grief Experience Inventory (RGEI) and a semi-structured interview regarding their infant's end-of-life care. Interviews were rated using the Post-Death Adaptation Scale (PDAS).Results:Parents scored significantly lower than the normative sample on the RGEI, and PDAS scores suggested that these parents were adapting positively. Parent interviews identified the aspects of care that were important to parents: honesty, empowered decision-making, parental care, environment, faith/trust in nursing care, physicians bearing witness and support from other hospital care providers.Conclusions:Results of this study suggest that parents can effectively cope following the death of an infant and the medical staff can do much to improve the end-of-life care for infants and their families.Journal of Perinatology advance online publication, 19 April 2007; doi:10.1038/sj.jp.7211755.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1038/sj.jp.7211755" target="_blank" rel="noreferrer">10.1038/sj.jp.7211755</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Backlog
Brosig CL
Journal Article
Journal Of Perinatology
Kupst MJ
Leuthner SR
Location Of Death
Pierucci RL
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/jpepsy/jsm079" target="_blank" rel="noreferrer">http://doi.org/10.1093/jpepsy/jsm079</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Single parents of children with chronic illness: an understudied phenomenon
Publisher
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Journal of Pediatric Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Creator
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Brown RT; Wiener L; Kupst MJ; Brennan T; Behrman R; Compas BE; David ET; Fairclough D; Friebert S; Katz E; Kazak AE; Madan-Swain A; Mansfield N; Mullins L; Noll R; Patenaude AF; Phipps S; Sahler OJ; Sourkes B; Zeltzer L
Description
An account of the resource
OBJECTIVE: To examine the chronic illness literature and evaluate the impact on single parenting and children and adolescents with chronic illness. METHODS: We conducted literature reviews of relevant research pertaining to single-parent families on PubMed, Medline, and PsychINFO and also surveyed pertinent book chapters and all of the articles from the Journal of Pediatric Psychology since 1987 for articles, specifically examining the potential associations of single (lone) parenting versus two-parent households on children's psychosocial functioning and the impact of the child's illness on caregiver functioning. RESULTS: While the literature has examined and discussed the stressors associated with parenting a child with an illness, including the impact of illness on finances, family roles, and caregiver burden, few studies have examined single parents of children and adolescents with chronic illnesses and related stressors stemming from being a lone caregiver. CONCLUSIONS: There is a dearth of studies examining the association between lone parenting and psychosocial functioning among children and adolescents with chronic illnesses. Specific questions necessitating future investigation are summarized and recommendations are made for future research in this important area of inquiry.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1093/jpepsy/jsm079" target="_blank" rel="noreferrer">10.1093/jpepsy/jsm079</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Backlog
Behrman R
Brennan T
Brown RT
Compas BE
David ET
Fairclough D
Friebert S
Journal Article
Journal of Pediatric Psychology
Katz E
Kazak AE
Kupst MJ
Madan-Swain A
Mansfield N
Mullins L
Noll R
Patenaude AF
Phipps S
Sahler OJ
Sourkes B
Wiener L
Zeltzer L
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/jpepsy/jsi012" target="_blank" rel="noreferrer">http://doi.org/10.1093/jpepsy/jsi012</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Psychosocial functioning in pediatric cancer
Publisher
An entity responsible for making the resource available
Journal of Pediatric Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
PedPal Lit; Adaptation; and multi-institutional cooperation will aid future pediatric psycho-oncology investigators.; and special risk populations. Methodological challenges; appropriate methodology; coping and adjustment; improving methodology; late effects; procedural pain; psyc hosocial researchers will be better able to conduct longitudinal studies not only of adjustment and its predictors but also of the impact of the emerging medical treatments and interventions to ameliorate late effects of treatment. Additional funding; Psychological Child Communication Cost of Illness Family/psychology Humans Neoplasms/; psychological distress; Social Behavior%X OBJECTIVE: To describe the emergence of pediatric psycho-oncology and to summarize research on psychosocial aspects of childhood cancer and survivorship. METHODS: To review research into illness communication and informed consent; subsets of more vulnerable patients and family members exist. Factors predicting positive and negative coping have been identified. CONCLUSIONS: As the numbers of pediatric cancer survivors increase; therapy Pain/psychology Psychology Sick Role Social Adjustment
Creator
An entity primarily responsible for making the resource
Patenaude AF; Kupst MJ
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1093/jpepsy/jsi012" target="_blank" rel="noreferrer">10.1093/jpepsy/jsi012</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Adaptation
and multi-institutional cooperation will aid future pediatric psycho-oncology investigators.
and special risk populations. Methodological challenges
appropriate methodology
Backlog
coping and adjustment
improving methodology
Journal Article
Journal of Pediatric Psychology
Kupst MJ
late effects
Patenaude AF
PedPal Lit
procedural pain
psyc hosocial researchers will be better able to conduct longitudinal studies not only of adjustment and its predictors but also of the impact of the emerging medical treatments and interventions to ameliorate late effects of treatment. Additional funding
Psychological Child Communication Cost of Illness Family/psychology Humans Neoplasms/
Psychological Distress
Social Behavior%X OBJECTIVE: To describe the emergence of pediatric psycho-oncology and to summarize research on psychosocial aspects of childhood cancer and survivorship. METHODS: To review research into illness communication and informed consent
subsets of more vulnerable patients and family members exist. Factors predicting positive and negative coping have been identified. CONCLUSIONS: As the numbers of pediatric cancer survivors increase
therapy Pain/psychology Psychology Sick Role Social Adjustment