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Tags: Kuhn I

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Advance care discussions with young people affected by life-limiting neuromuscular diseases: A systematic literature review and narrative synthesis

End of life care policy in the UK advocates open discussions between health professionals and patients as the end of life approaches. Despite well documented understanding of the progression of life-limiting neuromuscular diseases, the majority of…

Tags: 2017, April 2018 List, Barclay S, Hiscock A, Kuhn I, Neuromuscular Diseases, Neuromuscular Disorders, Terminal Care

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