1
40
1
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
May 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2021 List
URL Address
<a href="http://doi.org/10.1111/ped.14660" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/ped.14660</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Inborn Errors of Metabolism in Pediatric Palliative Care
Publisher
An entity responsible for making the resource available
Pediatrics International
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
childhood; life-limiting diseases; metabolic diseases; pediatric palliative care; symptom assessment
Creator
An entity primarily responsible for making the resource
Harputluoglu N; Kose M; Yilmaz U; Celik T
Description
An account of the resource
BACKGROUND: In parallel with the increase in the number of children with life-limiting or threatening diseases, the need and right of pediatric palliative care also increases. In this study, it was aimed to examine the metabolic diseases, evaluate the symptoms and review the needs in children who were admitted to the pediatric palliative care service. METHOD(S): Following the approval of the local ethics committee (18/7/2019-107), the computer records of patients hospitalized in the pediatric palliative care service between 01.12.2018-01.6.2019 were reviewed retrospectively. Dr Behcet Uz Children's Hospital is a tertiary hospital and pediatric palliative care has 1 year experience. RESULT(S): In the study period, there were 101 patients who were hospitalized in the pediatric palliative care service. Eighteen patients (19.7%) diagnosed with inborn errors of metabolism were included in the study. The average age was 3.2 +/- 2.1 (0-8) years. Although it could not be shown statistically, the duration of hospitalization of patients with congenital malformation was long. CONCLUSION(S): Pediatric palliative care provides the best care with the control of various symptoms in neurodegenerative congenital metabolic diseases that do not have treatment or treatment, but progressive symptoms cannot be prevented. Copyright This article is protected by copyright. All rights reserved.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/ped.14660" target="_blank" rel="noreferrer noopener">10.1111/ped.14660</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Çelik T
childhood
Harputluoglu N
Kose M
Life-limiting Diseases
May 2021 List
Metabolic Diseases
Pediatric Palliative Care
Pediatrics International
Symptom Assessment
Yilmaz U