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Text
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<a href="http://doi.org/10.1093/jjco/hyu077" target="_blank" rel="noreferrer">http://doi.org/10.1093/jjco/hyu077</a>
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Title
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Barriers of Healthcare Providers Against End-of-life Discussions with Pediatric Cancer Patients
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Japanese Journal Of Clinical Oncology
Date
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2014
Subject
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pediatric cancer; barrier; end-of-life discussion; qualitative study
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Yoshida S; Shimizu K; Kobayashi M; Inoguchi H; Oshima Y; Dotani C
Description
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OBJECTIVE: End-of-life discussions with patients can be one of the most difficult and stressful tasks for the oncologist. However, little is known about the discussions that healthcare providers have with patients in such situations and the difficulties they face. The primary end points of this study were to describe the contents of end-of-life discussion in the pediatric setting and the barriers to end-of-life discussion for pediatric patients, as perceived by pediatric healthcare providers. METHODS: Participants were 10 healthcare providers. Semi-structured interviews were conducted, and the KJ method was performed to analyze the data. RESULTS: We found 23 barriers against end-of-life discussion with pediatric cancer patients. These barriers were classified as follows: healthcare provider factors, patient factors, parent factors and institutional or cultural factors. In addition to barriers found in previous studies, some unique barriers were uncovered such as, 'Lack of confidence to face the patient after the discussion', 'Uncertain responsibility for treatment decision-making' and 'No compelling reason to discuss'. Healthcare providers actively discussed the purpose of treatment and the patients' wishes and concerns; however, they were reluctant to deal with the patients' own impending death and their estimated prognosis. CONCLUSIONS: End-of-life discussion with pediatric patients differs from that with adult patients. Further studies are required to analyze pediatric cases associated with end-of-life discussion and carefully discuss its adequacy, pros and cons.
2014-08
Identifier
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<a href="http://doi.org/10.1093/jjco/hyu077" target="_blank" rel="noreferrer">10.1093/jjco/hyu077</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2014
Backlog
barrier
Dotani C
end-of-life discussion
Inoguchi H
Japanese Journal Of Clinical Oncology
Journal Article
Kobayashi M
Oshima Y
Pediatric Cancer
Qualitative Study
Shimizu K
Yoshida S
-
Dublin Core
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Oncology
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Oncology 2017 List
URL Address
<a href="http://doi.org/10.1017/s1478951516001115" target="_blank" rel="noreferrer">http://doi.org/10.1017/s1478951516001115</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Effect of a group intervention for children and their parents who have cancer
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Palliative And Supportive Care
Date
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2017
Creator
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Kobayashi M; Heiney SP; Osawa K; Ozawa M; Matsushima E
Description
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OBJECTIVE: Although support programs for children whose parents have cancer have been described and evaluated, formal research has not been conducted to document outcomes. We adapted a group intervention called CLIMB(R), originally developed in the United States, and implemented it in Tokyo, Japan, for school-aged children and their parents with cancer. The purpose of this exploratory pilot study was to examine the feasibility, acceptability, and impact of the Japanese version of the CLIMB(R) Program on children's stress and parents' quality of life and psychosocial distress. METHODS: We enrolled children and parents in six waves of replicate sets for the six-week group intervention. A total of 24 parents (23 mothers and 1 father) diagnosed with cancer and 38 school-aged children (27 girls and 11 boys) participated in our study. Intervention fidelity, including parent and child satisfaction with the program, was examined. The impact of the program was analyzed using a quasiexperimental within-subject design comparing pre- and posttest assessments of children and parents in separate analyses. RESULTS: Both children and parents experienced high levels of satisfaction with the program. Children's posttraumatic stress symptoms related to a parent's illness decreased after the intervention as measured by the Posttraumatic Stress Disorder-Reaction Index. No difference was found in children's psychosocial stress. The Functional Assessment of Chronic Illness Therapy scores indicated that parents' quality of life improved after the intervention in all domains except for physical well-being. However, no differences were found in parents' psychological distress and posttraumatic stress symptoms. SIGNIFICANCE OF RESULTS: Our results suggest that the group intervention using the CLIMB(R) Program relieved children's posttraumatic stress symptoms and improved parents' quality of life. The intervention proved the feasibility of delivering the program using manuals and training. Further research is needed to provide more substantiation for the benefits of the program.
Identifier
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<a href="http://doi.org/10.1017/s1478951516001115" target="_blank" rel="noreferrer">10.1017/s1478951516001115</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Heiney SP
Kobayashi M
Matsushima E
Oncology 2017 List
Osawa K
Ozawa M
Palliative And Supportive Care