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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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URL Address
<a href="http://doi.org/10.1177/1043454205281682" target="_blank" rel="noreferrer">http://doi.org/10.1177/1043454205281682</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Having a Child Diagnosed With Cancer: An Assessment of Values From the Mother's Viewpoint
Publisher
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Journal Of Pediatric Oncology Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
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PedPal Lit
Creator
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Ward-Smith P; Kirk S; Hetherington M; Hubble CL
Description
An account of the resource
The purpose of this qualitative study was to explore the mother's experience of having a child diagnosed with cancer. Semistructured interview questions, focused specifically on values, provided the foundation for the study. Each of the 9 participants was a mother of a child diagnosed with cancer 30 days prior to participation. Subsequent data were collected from each participant 6 months after the original interview. Using a phenomenological approach for data collection and analyses, themes were uncovered from each interview data set. The initial interviews identified 3 themes: (1) problems accessing the health care system, (2) challenges of family dynamics, and (3) support structures. Each theme persisted in the second interview, with an additional theme, (4) future plans, uncovered. Data from this study may provide guidance for health care professionals who provide care to these children and their families. The importance of maintaining communication and keeping promises cannot be overstated.
2005
Identifier
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<a href="http://doi.org/10.1177/1043454205281682" target="_blank" rel="noreferrer">10.1177/1043454205281682</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Backlog
Hetherington M
Hubble CL
Journal Article
Journal Of Pediatric Oncology Nursing
Kirk S
PedPal Lit
Ward-Smith P
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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URL Address
<a href="http://doi.org/10.1111/j.1365-2648.2005.03522.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2648.2005.03522.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Parent or nurse? The experience of being the parent of a technology-dependent child
Publisher
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Journal Of Advanced Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
PedPal Lit
Creator
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Kirk S; Glendinning C; Callery P
Identifier
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<a href="http://doi.org/10.1111/j.1365-2648.2005.03522.x" target="_blank" rel="noreferrer">10.1111/j.1365-2648.2005.03522.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Backlog
Callery P
Glendinning C
Journal Article
Journal Of Advanced Nursing
Kirk S
PedPal Lit
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1367493508088552" target="_blank" rel="noreferrer">http://doi.org/10.1177/1367493508088552</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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What we know (and do not know) about raising children with complex continuing care needs
Publisher
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Journal Of Child Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
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Humans; patient care team; Home Nursing; Parents; disabled children; Health Services Needs and Demand; social support; Life Support Care; Pediatric Nursing; Child Care; Cost of Illness; Long-Term Care; Healthcare Disparities; Special
Creator
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Carnevale FA; Rehm RS; Kirk S; McKeever P
Identifier
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<a href="http://doi.org/10.1177/1367493508088552" target="_blank" rel="noreferrer">10.1177/1367493508088552</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2008-03
2008
Backlog
Carnevale FA
Child Care
Cost Of Illness
Disabled Children
Health Services Needs And Demand
Healthcare Disparities
Home Nursing
Humans
Journal Article
Journal Of Child Health Care
Kirk S
Life Support Care
Long-Term Care
McKeever P
Parents
Patient Care Team
Pediatric Nursing
Rehm RS
Social Support
Special
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216313507626" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216313507626</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Hospice support and the transition to adult services and adulthood for young people with life-limiting conditions and their families: A qualitative study
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Creator
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Kirk S; Fraser C
Description
An account of the resource
Background:Transition to adult services and adulthood is now a prospect for young people with life-limiting conditions requiring palliative care. Little is known about their transition experiences or how children's hospices can support a young adult population during/following transition.Aims:(1) To examine how young people with life-limiting conditions and their parents experience transition. (2) To identify families' and hospice staff's perceptions of family support needs during transition. (3) To identify the implications for children's hospices.Design:Qualitative study using in-depth, semi-structured interviews. Analysis used a grounded theory approach.Setting/participants:A total of 39 participants recruited from one children's hospice in the United Kingdom.Results:Transition planning was absent or poorly coordinated; for most families, there were no equivalent adult health/social services. Consequently, it was a time of uncertainty and anxiety for families. Moving to a young adult unit was a positive experience for young people as the building/support model recognised their adult status. However, they had unmet needs for emotional support and accessing information/services to realise their aspirations. Parents had unmet emotional needs and were unclear of support available once their children reached adulthood. Staff identified training needs in relation to working with adults, providing emotional support and acting as an advocate/key worker.Conclusions:Providing an appropriate building is only one aspect of developing support for young adults. A different model of support is needed, one which promotes young people's independence and provides emotional support while continuing to support parents and siblings. Hospices could play a role in transition support and coordination.
2013-10
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/0269216313507626" target="_blank" rel="noreferrer">10.1177/0269216313507626</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
Backlog
Fraser C
Journal Article
Kirk S
Palliative Medicine