1
40
2
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.108.3.653" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.108.3.653</a>
<a href="http://pediatrics.aappublications.org/content/108/3/653" target="_blank" rel="noreferrer">http://pediatrics.aappublications.org/content/108/3/653</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
End-of-Life Care for Neonates and Infants: The Experience and Effects of a Palliative Care Consultation Service
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Palliative Care; infant; Infants; Terminal Illness; end-of-life care; Death and Dying
Creator
An entity primarily responsible for making the resource
Pierucci R; Kirby RS; Leuthner SR
Description
An account of the resource
Objective. Neonates and infants have the highest death rate in the pediatric population, yet there is a paucity of data about their end-of-life care and whether a palliative care service can have an impact on that care. The objective of this study was to describe end-of-life care for infants, including analysis of palliative care consultations conducted in this population. We hypothesized that the palliative care consultations performed had an impact on the infants' end-of-life care. Design. A retrospective chart review using the “End of Life Chart Review” from the Center to Improve Care for the Dying was conducted. The participants were the patients at Children's Hospital of Wisconsin who died at <1 year of age during the 4-year period between January 1, 1994, and December 31, 1997. The patients' place of death, medical interventions performed, and emotionally supportive services provided to families were analyzed. Results. Among the 196 deaths during the study period, 25 (13%) of these infants and families had palliative care consultations. The rate of consultations increased from 5% of the infant deaths in 1994 to 38% of the infant deaths in 1997. Infants of families that received consultations had fewer days in intensive care units, blood draws, central lines, feeding tubes, vasopressor and paralytic drug use, mechanical ventilation, cardiopulmonary resuscitation, and x-rays, and the families had more frequent referrals for chaplains and social services than families that did not have palliative care consultations. Conclusions. This study describes the end-of-life care that infants and their families received. Fewer medical procedures were performed, and more supportive services were provided to infants and families that had a palliative care consultation. This suggests that palliative care consultation may enhance end-of-life care for newborns.
2001-09
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.108.3.653" target="_blank" rel="noreferrer">10.1542/peds.108.3.653</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2001
Backlog
Death and Dying
End-of-life Care
Infant
Infants
Journal Article
Kirby RS
Leuthner SR
Palliative Care
Pediatrics
Pierucci R
Terminal Illness
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/109662104773709396" target="_blank" rel="noreferrer">http://doi.org/10.1089/109662104773709396</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Where infants die: examination of place of death and hospice/home health care options in the state of Wisconsin
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Humans; infant; Infant Mortality; Death Certificates; Non-U.S. Gov't; Research Support; infant; Newborn; Premature; cause of death; location of death; Terminal Care/methods; Hospice Care/utilization; Abnormalities/mortality; Brain/mortality; Home Care Services/utilization; Hypoxia-Ischemia; Infant Care/methods; Wisconsin/epidemiology
Creator
An entity primarily responsible for making the resource
Leuthner SR; Boldt AM; Kirby RS
Description
An account of the resource
Infants (less than 1 year of age) have the highest death rates in the pediatric population, yet there is little published on hospice utilization for infant home deaths. We sought to describe: (1) where infants with a predisposing life-threatening condition are dying, (2) agency services available to dying infants and their families, and (3) utilization of these services for infants within the state of Wisconsin. We collected information from death certificates for infants whose cause of death was either congenital anomaly or condition of the perinatal period, such as hypoxic ischemic encephalopathy or prematurity. In addition, we surveyed all hospice and home health agencies in Wisconsin to determine their ability to serve and whether they were utilized for this same population. During 1992-1996 in Wisconsin, state records indicate that 2591 infants died: congenital anomalies or conditions of the perinatal period resulted in 1538 (60%) of these deaths. Of the 508 infant deaths from congenital anomalies, 46 (9%) occurred at home. Of the 1030 deaths from conditions of the perinatal period, 16 (1.5%) occurred at home. Only 36 (40%) of the 91 hospice/home health agencies that responded to our survey provided services to the pediatric population between 1992-1996. During this time, only 11 agencies provided care for 20 infant home deaths, comprising 32% of infant home deaths reported to the state in that same time period. In comparison to adults and older children, we found a low home death rate for infants with a life-threatening condition. To clarify these findings, we discuss barriers to infant home death.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/109662104773709396" target="_blank" rel="noreferrer">10.1089/109662104773709396</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Abnormalities/mortality
Backlog
Boldt AM
Brain/mortality
Cause Of Death
Death Certificates
Home Care Services/utilization
Hospice Care/utilization
Humans
Hypoxia-ischemia
Infant
Infant Care/methods
Infant Mortality
Journal Article
Journal of Palliative Medicine
Kirby RS
Leuthner SR
Location Of Death
Newborn
Non-U.S. Gov't
Premature
Research Support
Terminal Care/methods
Wisconsin/epidemiology