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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1186/1471-2431-4-1" target="_blank" rel="noreferrer">http://doi.org/10.1186/1471-2431-4-1</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Caregiving process and caregiver burden: conceptual models to guide research and practice.
Publisher
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Bmc Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
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Child; Humans; Longitudinal Studies; Non-U.S. Gov't; Research Support; Adaptation; Psychological; Caregivers/psychology; Models; Parents/psychology; Psychological; Stress; disabled children
Creator
An entity primarily responsible for making the resource
Raina P; O'Donnell ME; Schwellnus H; Rosenbaum P; King G; Brehaut J; Russell D; Swinton M; King S; Wong M; Walter SD; Wood E
Description
An account of the resource
BACKGROUND: Parental care for a child with a developmental disability is an enormous responsibility, one that can far exceed that of typical parental care. While most parents adapt well to the situation of caring for a child with a disability, some do not. To understand parents' adaptations to their children's disabilities, the complex nature of stress processes must be accounted for and the constructs and factors that play a role in the caregiving must be considered. DISCUSSION: Evidence suggests that there is considerable variation in how caregivers adapt to their caregiving demands. Many studies have sought to qualify the association between caregiving and health outcomes of the caregivers. Contextual factors such as SES, child factors such as child behaviour problems and severity of disability, intra-psychic factors such as mastery and self-esteem, coping strategies and social supports have all been associated with psychological and/or physical outcome or parents or primary caregivers. In reviewing these issues, the literature appears to be limited by the use of traditional analytic approaches which examine the relationship between a factor and an outcome. It is clear, however, that changes to single factors, as represented in these studies, occur very rarely even in the experimental context. The literature has also been limited by lack of reliance on specific theoretical frameworks. SUMMARY: This conceptual paper documents the state of current knowledge and explores the current theoretical frameworks that have been used to describe the caregiving process from two diverse fields, pediatrics and geriatrics. Integration of these models into one comprehensive model suitable for this population of children with disabilities and their caregivers is proposed. This model may guide future research in this area.
2004-01
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/1471-2431-4-1" target="_blank" rel="noreferrer">10.1186/1471-2431-4-1</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adaptation
Backlog
Bmc Pediatrics
Brehaut J
Caregivers/psychology
Child
Disabled Children
Humans
Journal Article
King G
King S
Longitudinal Studies
Models
Non-U.S. Gov't
O'Donnell ME
Parents/psychology
Psychological
Raina P
Research Support
Rosenbaum P
Russell D
Schwellnus H
Stress
Swinton M
Walter SD
Wong M
Wood E
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1207/s15326888chc3301_3" target="_blank" rel="noreferrer">http://doi.org/10.1207/s15326888chc3301_3</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Evaluating health services delivery to children with chronic conditions and their families: development of a refined measures of processes of care (MPOC-20)
Publisher
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Child Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Cohen 2006 BMC HSR Refs
Creator
An entity primarily responsible for making the resource
King S; Rosenbaum P; King G
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1207/s15326888chc3301_3" target="_blank" rel="noreferrer">10.1207/s15326888chc3301_3</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2004
2004
Backlog
Child Health Care
Cohen 2006 BMC HSR Refs
Journal Article
King G
King S
Rosenbaum P