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Dublin Core
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July 2018 List
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July 2018 List
URL Address
<a href="http://doi.org/10.1089/jpm.2017.0307" target="_blank" rel="noreferrer noopener">http://doi.org/10.1089/jpm.2017.0307</a>
Dublin Core
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Title
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Let's Talk About It: Supporting Family Communication during End-of-Life Care of Pediatric Patients
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Journal of Palliative Medicine
Date
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2018
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Marsac ML; Kindler C; Weiss D; Ragsdale L
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<a href="http://doi.org/10.1089/jpm.2017.0307" target="_blank" rel="noreferrer noopener">10.1089/jpm.2017.0307</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
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BACKGROUND: Communication is key in optimizing medical care when a child is approaching end of life (EOL). Research is yet to establish best practices for how medical teams can guide intrafamily communication (including surviving siblings) when EOL care is underway or anticipated for a pediatric patient. While recommendations regarding how medical teams can facilitate communication between the medical team and the family exist, various barriers may prevent the implementation of these recommendations. OBJECTIVE: This review aims to provide a summary of research-to-date on family and medical provider perceptions of communication during pediatric EOL care. DESIGN: Systematic review. RESULTS: Findings from a review of 65 studies suggest that when a child enters EOL care, many parents try to protect their child and/or themselves by avoiding discussions about death. Despite current recommendations, medical teams often refrain from discussing EOL care with pediatric patients until death is imminent for a variety of reasons (e.g., family factors and discomfort with EOL conversations). Parents consistently report a need for honest complete information, delivered with sensitivity. Pediatric patients often report a preference to be informed of their prognosis, and siblings express a desire to be involved in EOL discussions. CONCLUSIONS: Families may benefit from enhanced communication around EOL planning, both within the family and between the family and medical team. Future research should investigate a potential role for medical teams in supporting intrafamily communication about EOL challenges and should examine how communication between medical teams and families can be facilitated as EOL approaches.
2018
Journal of Palliative Medicine
July 2018 List
Kindler C
Marsac ML
Ragsdale L
Weiss D