1
40
2
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Text
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<a href="http://doi.org/10.1016/j.pedn.2014.01.008" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.pedn.2014.01.008</a>
Dublin Core
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Title
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Parental uncertainty in illness: managing uncertainty surrounding an "orphan" illness
Publisher
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Journal Of Pediatric Nursing
Date
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2014
Creator
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Kerr AM; Haas SM
Description
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Parents of children with complex chronic illnesses experience substantial uncertainty that is heightened when the condition is an "orphan" illness not belonging to one medical specialty. The current study explores uncertainty experienced by parents of children with "orphan" illnesses requiring multidisciplinary care. METHOD: Participant-observations over 13 months (n=200) were combined with questionnaire data (n=55) to assess parental uncertainty at a multidisciplinary pediatric clinic. RESULTS: Five unique types of uncertainty emerged from a grounded analysis (Glaser & Strauss, 1967), revealing 11 interrelated uncertainties these parents experience. Findings can help providers understand parents' uncertainty and assist in family-centered decision-making.
2014-10
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.pedn.2014.01.008" target="_blank" rel="noreferrer">10.1016/j.pedn.2014.01.008</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2014
Backlog
Haas SM
Journal Article
Journal of Pediatric Nursing
Kerr AM
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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February 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2019 List
URL Address
<a href="http://doi.org/10.1080/10410236.2017.1399508" target="_blank" rel="noreferrer noopener"> http://doi.o
rg/10.1080/10410236.2017.1399508</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Communication and the Appraisal of Uncertainty: Exploring Parents' Communication with Credible Authorities in the Context of Chronic Childhood Illness
Publisher
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Health communication
Date
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2019
Subject
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semi structured interview; terminal care; diagnostic error; human; article; child; female; male; diagnosis; childhood; clinical article; uncertainty; congenital blood vessel malformation
Creator
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Kerr AM; Harrington NG; Scott AM
Description
An account of the resource
Individuals with chronic illnesses must manage long-term uncertainty as they cope with the ways the illness influences their lives. In the context of pediatric illnesses, parents must manage uncertainty during the diagnosis and treatment of their child's illness. It is common for children with complex chronic illnesses to see multiple specialists for the treatment of their condition. While previous research has explored parents' uncertainty during a child's diagnosis and during end-of-life care, less is known about these experiences when the child is referred to a team of specialists for treatment. The aim of the current study was to explore how specialists, as credible authorities, influence parents' uncertainty during parents' first visit to a multidisciplinary clinic for the care of their child's complex chronic illness. Data were collected through semi-structured interviews with 29 parents after their child's first visit to a vascular anomaly clinic at a large Midwestern children's hospital. The results suggest parents' communication with credible authorities facilitates effective uncertainty management primarily through the mechanism of uncertainty reappraisal. The results also suggest that specialists, as credible authorities, are a key mechanism in the appraisal of uncertainty for conditions that are often misdiagnosed and mismanaged.
Identifier
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<a href="http://doi.org/10.1080/10410236.2017.1399508" target="_blank" rel="noreferrer noopener">10.1080/10410236.2017.1399508</a>
2019
Article
Child
childhood
Clinical Article
congenital blood vessel malformation
Diagnosis
Diagnostic Error
February 2019 List
Female
Harrington NG
Health Communication
Human
Kerr AM
Male
Scott AM
Semi Structured Interview
Terminal Care
Uncertainty