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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
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URL Address
<a href="http://doi.org/10.12968/ijpn.2014.20.5.211" target="_blank" rel="noreferrer">http://doi.org/10.12968/ijpn.2014.20.5.211</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Euthanasia for children and young people?
Publisher
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International Journal Of Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
adolescent; Child; Humans; Young Adult; Great Britain; Euthanasia; Europe
Creator
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Kelly D
Description
An account of the resource
In February 2014 the Belgian parliament voted to extend the existing euthanasia law to cover children under the age of 18. The law sanctions euthanasia for children with terminal or incurable conditions who are near death, suffering 'constant and unbearable pain', and whose parents and health professionals agree with the decision. The child also has to be interviewed by a psychologist or psychiatrist to ascertain and certify their 'capacity of discernment'.
2014-05
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.12968/ijpn.2014.20.5.211" target="_blank" rel="noreferrer">10.12968/ijpn.2014.20.5.211</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Adolescent
Backlog
Child
Europe
Euthanasia
Great Britain
Humans
International Journal of Palliative Nursing
Journal Article
Kelly D
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.11124/jbisrir-2013-630" target="_blank" rel="noreferrer">http://doi.org/10.11124/jbisrir-2013-630</a>
<a href="http://www.joannabriggslibrary.org/jbilibrary/index.php/jbisrir/article/view/630" target="_blank" rel="noreferrer">http://www.joannabriggslibrary.org/jbilibrary/index.php/jbisrir/article/view/630</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Factors influencing the provision of End of Life care for adolescents and young adults with advanced cancer: a scoping review protocol
Publisher
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The Jbi Database Of Systematic Reviews And Implementation Reports
Date
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2013
Creator
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Edwards D; Carrier Judith Angela Kathryn; Gillen E; Hawker C; Sutton J; Kelly D
Identifier
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<a href="http://doi.org/10.11124/jbisrir-2013-630" target="_blank" rel="noreferrer">10.11124/jbisrir-2013-630</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
Description
An account of the resource
2013-08
2013
Backlog
Carrier Judith Angela Kathryn
Edwards D
Gillen E
Hawker C
Journal Article
Kelly D
Sutton J
The Jbi Database Of Systematic Reviews And Implementation Reports
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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March 2023 List
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March List 2023
URL Address
<a href="http://doi.org/10.12968/ijpn.2023.29.1.3" target="_blank" rel="noreferrer noopener"> http://doi.org/10.12968/ijpn.2023.29.1.3</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The Scream: The Emotional Dimensions of Nursing in Children's Palliative Care
Publisher
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International Journal of Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Nursing; Palliative Therapy; Child; Child; editorial; Female; Human; human experiment; Male; Only Child; Palliative Care
Creator
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Kelly D; Brimble M
Identifier
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<a href="http://doi.org/10.12968/ijpn.2023.29.1.3" target="_blank" rel="noreferrer noopener">10.12968/ijpn.2023.29.1.3</a>
Description
An account of the resource
When working on an ethnographic study into communication between children and health professionals about their cancer, the researcher witnessed an event that seemed to capture the often-invisible emotional challenges associated with such work (Bryan et al, 2019).
A child was observed being terrified of a dressing change around her central venous line and was refusing to let anyone touch it. As various people tried to persuade her to allow access, she started to scream and did so continuously for several minutes. Her refusal was firm, and the procedure proved impossible to undertake on this occasion. The child's response was jarring to the professionals involved and seemed to symbolise the often-silent distress of children who are undergoing cancer treatment. The researcher witnessed attempts by the mother and various professionals to try and persuade the child to let them complete the task. In the end, their sense of frustration was matched only by the child's determination not to co-operate. The emotional dimension of the work of these nurses was suddenly brought into sharp focus, as they responded to what became a challenging and unexpected situation. [...]
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Brimble M
Child
Editorial
Female
Human
Human Experiment
International Journal of Palliative Nursing
Kelly D
Male
March List 2023
Nursing
Only Child
Palliative Care
Palliative Therapy
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/adc.2009.163931" target="_blank" rel="noreferrer">http://doi.org/10.1136/adc.2009.163931</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Transition to adult services for children and young people with palliative care needs: a systematic review
Publisher
An entity responsible for making the resource available
Archives Of Disease In Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Humans; Young Adult; adolescent; Palliative Care/organization & administration; Models; Continuity of Patient Care/organization & administration; Adolescent Health Services/organization & administration; Delivery of Health Care/organization & administration; Organizational; Evidence-Based Medicine/methods; Health Services Research/methods/standards
Creator
An entity primarily responsible for making the resource
Doug M; Adi Y; Williams J; Paul M; Kelly D; Petchey R; Carter YH
Description
An account of the resource
OBJECTIVE: To evaluate the evidence on the transition process from child to adult services for young people with palliative care needs. DESIGN: Systematic review. SETTING: Child and adult services and interface between healthcare providers. PATIENTS: Young people aged 13-24 years with palliative care conditions in the process of transition. MAIN OUTCOME MEASURES: Young people and their families' experiences of transition, the process of transition between services and its impact on continuity of care and models of good practice. RESULTS: 92 studies included. Papers on transition services were of variable quality when applied to palliative care contexts. Most focussed on common life-threatening and life-limiting conditions. No standardised transition program identified and most guidelines used to develop transition services were not evidence-based. Most studies on transition programs were predominantly condition-specific (eg, cystic fibrosis (CF), cancer) services. CF services offered high-quality transition with the most robust empirical evaluation. There were differing condition-dependent viewpoints on when transition should occur but agreement on major principles guiding transition planning and probable barriers. There was evidence of poor continuity between child and adult providers with most originating from within child settings. CONCLUSIONS: Palliative care was not, in itself, a useful concept for locating transition-related evidence. It is not possible to evaluate the merits of the various transition models for palliative care contexts, or their effects on continuity of care, as there are no long-term outcome data to measure their effectiveness. Use of validated outcome measures would facilitate research and service development.
Identifier
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<a href="http://doi.org/10.1136/adc.2009.163931" target="_blank" rel="noreferrer">10.1136/adc.2009.163931</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Adi Y
Adolescent
Adolescent Health Services/organization & administration
Archives of Disease in Childhood
Backlog
Carter YH
Continuity Of Patient Care/organization & Administration
Delivery of Health Care/organization & administration
Doug M
Evidence-Based Medicine/methods
Health Services Research/methods/standards
Humans
Journal Article
Kelly D
Models
Organizational
Palliative Care/organization & Administration
Paul M
Petchey R
Williams J
Young Adult