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40
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Dublin Core
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Title
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August 2020 List
Text
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August 2020 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2020.04.085" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2020.04.085</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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"We Feel Like We Are in the Dark": A Population Level Qualitative Study of the Training and Support Needs of Hospice Nurses Caring for Children and Families in the Community (RP417)
Publisher
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Journal of Pain and Symptom Management
Date
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2020
Subject
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qualitative study; training; support needs; hospice nurses
Creator
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Porter A; Kiefer A; Gattas M; Baker J; Kaye E
Description
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Objectives: * Describe the evidence from a growing body of literature demonstrating the dearth of pediatric-focused training and resources for community hospice nurses, as well as the lack of comfort of community hospice nurses with providing pediatric care. * Characterize the pediatric-specific training and support needs of hospice nurses who provide care to children and families in the community. * Describe the innovative ideas proposed by study participants for development of pediatric-specific resources and training opportunities for community hospice nurses. Importance: Approximately 500,000 children suffer from serious illness annually, with 50,000 children dying each year. Many of these children and families are eligible for provision of community-based hospice care, yet few organizations offer formal pediatric services. Recent population level data demonstrate that hospice nurses lack training, experience, and comfort in provision of care to children in the community; however, the specific educational preferences and supportive needs of hospice nurses is not well understood. Objective(s): To investigate and describe the pediatric-specific training and support needs of hospice nurses providing care to children and families in the community. Method(s): From a population-level cohort of 551 hospice nurses who completed a comprehensive quantitative survey, an exploratory cohort of 40 hospice nurses were selected using purposive sampling to stratify participants into sub-cohorts based on prior self-reported levels of comfort with pediatric hospice provision. Semi-structured interviews were conducted, with subsequent inductive codebook development. Constant comparative analysis was performed across transcripts using MAXQDA software. Result(s): The majority of hospice nurses described insufficient training to care for children with serious illness. Nurses imagine an ideal training experience to involve in-person learning with prioritization of specific topics, including symptom management, medications/dosing, pediatric-specific equipment, concurrent care, anticipatory guidance on disease trajectories and end of life, supporting families, and staff resilience. Barriers to realizing training experiences include lack of awareness of available resources, training opportunities, and mentorship/networking across the pediatric palliative care landscape, as well as stigma against pediatric hospice and palliative care. Conclusion(s): Community hospice nurses express an urgent need for improvements in pediatric-specific resources and training opportunities. Importantly, they offer robust visions for improving training paradigms and available resources. Impact: These data offer opportunities for collaborative development and investigation of educational programs and policies to improve the provision of community-based pediatric hospice for children, families, and nurses. Copyright © 2020
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2020.04.085" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2020.04.085</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
August 2020 List
Baker J
Gattas M
hospice nurses
Journal of Pain and Symptom Management
Kaye E
Kiefer A
Porter A
Qualitative Study
support needs
Training
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
December 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2019 List
URL Address
<a href="http://doi.org/10.1097/01.ccm.0000551170.37983.db" target="_blank" rel="noreferrer noopener">http://doi.org/10.1097/01.ccm.0000551170.37983.db</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Palliative care integration in pediatric cardiac intensive care units: A novel champion-based model
Publisher
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Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
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child; comorbidity; conceptual framework; conceptual model; conference abstract; consensus; coronary care unit; feasibility study; heart development; heart disease; hospitalization; human; morbidity; outcome assessment; palliative therapy; prognosis; rotation; simulation; total quality management
Creator
An entity primarily responsible for making the resource
Moynihan K; Kaye E; Bailey V; Wolfe J; Thiagarajan R; Snaman J
Description
An account of the resource
Learning Objectives: Integration of pediatric palliative care (PPC) into the management of children with serious illness and their families is widely endorsed by international organizations and experts in the field as standard of care. However, timely referral to, and integration of PPC into the traditionally cure-orientated Cardiac Intensive Care Unit (CICU) remains variable. Despite significant declines in mortality for children with cardiac disease, key challenges confront the pediatric CICU community with regards to prognostication and discussion of goals of care. In the context of significant comorbidities and technological dependence, lengthy hospitalizations and recurrent admissions as well as interventions risking significant morbidity, these patients and families would benefit from PPC involvement across the illness trajectory. Methods: We propose a novel, conceptual framework for palliative care integration into the CICU using expert consensus and literature review. Results: The model utilizes CICU-based, interdisciplinary "champions". Pediatric Palliative Care Champions (PPCCs) would be identified from within the CICU team and receive additional training through PPC courses and rotations with sub-specialty PPC services. PPCCs would perform 3 primary roles. First, their clinical role as a liaison aims to strengthen provision of primary palliative care in daily CICU practice and improve utilization of sub-specialty PPC by encouraging earlier involvement in more complex patients' management. Second, PPCCs will lead educational and communication training of CICU staff including simulation sessions, focused on eliciting preferences, discussing prognosis, providing difficult news, assessing hopes and worries, and making goal-based recommendations. Third, PPCCs will be integral in CICU operational aspects and quality improvement initiatives including the development of CICU protocols and standard operating procedures to enhance the provision of high quality care at the end of life. Conclusions: This novel conceptual model for integration of PPC into CICUs is designed for adaptability in the context of cultural, financial, personnel, and logistic needs and constraints unique to each institution. While the PPCC framework offers several unique advantages over other care models, barriers to implementation are anticipated. Further research is needed to investigate the feasibility, acceptability, and potential efficacy of this model on standard outcome measures as well as patient- and parent-reported metrics.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01.ccm.0000551170.37983.db" target="_blank" rel="noreferrer noopener">10.1097/01.ccm.0000551170.37983.db</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Bailey V
Child
Comorbidity
Conceptual Framework
conceptual model
conference abstract
Consensus
coronary care unit
Critical Care Medicine
December 2019 List
Feasibility Study
heart development
heart disease
Hospitalization
Human
Kaye E
Morbidity
Moynihan K
outcome assessment
Palliative Therapy
Prognosis
Rotation
Simulation
Snaman J
Thiagarajan R
Total Quality Management
Wolfe J