1
40
7
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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October 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2019 List
URL Address
<a href="http://doi.org/10.1177/0269216319867214" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0269216319867214</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Use of time in people with a life-limiting illness: A longitudinal cohort feasibility pilot study
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
adult; article; child; cohort analysis; female; human; male; palliative therapy; controlled study; clinical article; palliative care; quality of life; caregiver; feasibility study; outpatient; accelerometry; acceptability; Australia; burden; cohort study; European Quality of Life 5 Dimensions Questionnaire; Feasibility; Karnofsky Performance Status; multimedia; numeric rating scale; pilot study; recall; time-use
Creator
An entity primarily responsible for making the resource
Jones T A; Olds T S; Currow D C; Williams M T
Description
An account of the resource
Background: To date, time-use studies in palliative care have been limited to exploration of time commitments of caregivers. Understanding time-use in people with a life-limiting illness might provide insight into disease progression, symptom management and quality of life. Aim(s): To determine the feasibility of a repeated-measures, time-use study in people with a life-limiting illness, and their primary caregivers, and to explore associations between time-use and perceived quality of life. Design(s): An observational repeated-measures feasibility pilot study. A priori criteria were established for study uptake (70%), retention (80%) and study value/burden (7 Numerical Rating Scale 0-10). Burden and value of the study, use of time (Multimedia Activity Recall for Children and Adults with adjunctive accelerometry) and quality of life data (EuroQol-5 Dimension-5-Level Health Questionnaire and Australia-modified Karnofsky Performance Status scale) were assessed at time-points across five consecutive months. Setting/participants: People living with a life-limiting illness and caregivers recruited from Southern Adelaide Palliative Services outpatient clinics. Result(s): A total of 10 participants (2 caregivers and 8 people with a life-limiting illness) enrolled in the study. All but one of the criteria thresholds was met: 66% of participants who consented to be screened were enrolled in the study, 80% of enrolled participants (n = 8) completed all assessments (two participants died during the study) and mean Numerical Rating Scale scores for acceptable burden and value of the study exceeded the criteria thresholds at every time-point. Conclusion(s): A repeated-measures time-use study design is feasible and was not unduly burdensome for caregivers and people living with a life-limiting illness. Copyright © The Author(s) 2019.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/0269216319867214" target="_blank" rel="noreferrer noopener">10.1177/0269216319867214</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
accelerometry
acceptability
Adult
Article
Australia
burden
Caregiver
Child
Clinical Article
Cohort Analysis
cohort study
Controlled Study
Currow D C
European Quality of Life 5 Dimensions Questionnaire
Feasibility
Feasibility Study
Female
Human
Jones T A
Karnofsky Performance Status
Male
multimedia
numeric rating scale
October 2019 List
Olds T S
Outpatient
Palliative Care
Palliative Medicine
Palliative Therapy
Pilot Study
Quality Of Life
Recall
time-use
Williams M T
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2006.0125" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2006.0125</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Validation of the palliative performance scale in the acute tertiary care hospital setting
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Female; Humans; Male; Prognosis; Prospective Studies; Middle Aged; Disease Progression; Survival Analysis; Activities of Daily Living; Karnofsky Performance Status; Proportional Hazards Models; Palliative Care/methods; North Carolina; Critical Illness/classification; Terminally Ill/classification
Creator
An entity primarily responsible for making the resource
Olajide O; Hanson L; Usher BM; Qaqish BF; Schwartz R; Bernard S
Description
An account of the resource
BACKGROUND: Physicians are often asked to prognosticate patient survival. However, prediction of survival is difficult, particularly with critically ill and dying patients within the hospitals. The Palliative Performance Scale (PPS) was designed to assess functional status and measure progressive decline in palliative care patients, yet it has not been validated within hospital health care settings. OBJECTIVE: This study explores the application of the PPS for its predictive ability related to length of survival. Other variables examined were correlates of symptom distress in a tertiary academic setting. METHODS: Patients were assigned a score on the PPS ranging from 0% to 100% at initial consultation. Standardized symptom assessments were carried out daily, and survival was determined by medical record review and search of the National Death Index. RESULTS: Of 261 patients seen since January 2002, 157 had cancer and 104 had other diagnoses. PPS scores ranged from 10% to 80% with 92% of the scores between 10% and 40%. Survival ranged from 0 to 30 months, with a median of 9 days. By 90 days, 83% of patients had died. Proportional hazards regression estimates showed that a 10% decrement in PPS score was associated with a hazard ratio of 1.65 (95% confidence interval [CI]: 1.42-1.92). Proportional odds regression models showed that a lower PPS was significantly associated with higher levels of dyspnea. CONCLUSION: The PPS correlated well with length of survival and with select symptom distress scores. We consider it to be a useful tool in predicting outcomes for palliative care patients.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2006.0125" target="_blank" rel="noreferrer">10.1089/jpm.2006.0125</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Activities of Daily Living
Backlog
Bernard S
Critical Illness/classification
Disease Progression
Female
Hanson L
Humans
Journal Article
Journal of Palliative Medicine
Karnofsky Performance Status
Male
Middle Aged
North Carolina
Olajide O
Palliative Care/methods
Prognosis
Proportional Hazards Models
Prospective Studies
Qaqish BF
Schwartz R
Survival Analysis
Terminally Ill/classification
Usher BM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2005.8.492" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2005.8.492</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Prognostication in hospice care: can the palliative performance scale help?
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Female; Humans; Male; United States; Palliative Care; Terminal Care; Prognosis; Aged; Middle Aged; Length of Stay; Survival Analysis; Karnofsky Performance Status; 80 and over; retrospective studies; hospice care; Diagnosis-Related Groups
Creator
An entity primarily responsible for making the resource
Head B; Ritchie CS; Smoot TM
Description
An account of the resource
BACKGROUND: Accurate prognostication of the trajectory of an illness provides multiple benefits in end-of-life care. Prognostic information facilitates more realistic decision making regarding ongoing treatment, fosters risk-benefit considerations of specific interventions, and contributes to appropriate utilization of health care services. OBJECTIVE: The Palliative Performance Scale (PPS) has been used as a tool for measurement of functional status in palliative care. This study explores the application of the PPS as a tool for projecting length of stay until death or discharge in a home-based hospice program. METHODS: Records of 396 patients admitted to a large community-based hospice program between January 1, 2001, and March 31, 2001, were reviewed. PPS scores were evaluated for their predictive ability related to length of hospice survival and consideration for hospice discharge. Other variables analyzed included diagnosis, presence of comorbidities, and age. RESULTS: PPS scores were associated with length of survival. Negative-change scores were predictive of patient decline toward death, while stable PPS ratings over time resulted in discharge consideration. The tool as used by this hospice was not highly discriminating between the 30% to 40% scores or the 50% to 70% scores. CONCLUSION: The PPS scores are associated with patient length of survival in a hospice program and can be used in evaluating hospice appropriateness.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2005.8.492" target="_blank" rel="noreferrer">10.1089/jpm.2005.8.492</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
80 And Over
Aged
Backlog
Diagnosis-Related Groups
Female
Head B
Hospice Care
Humans
Journal Article
Journal of Palliative Medicine
Karnofsky Performance Status
Length Of Stay
Male
Middle Aged
Palliative Care
Prognosis
Retrospective Studies
Ritchie CS
Smoot TM
Survival Analysis
Terminal Care
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0885-3924(02)00407-4" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0885-3924(02)00407-4</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Validation of the palliative performance scale for inpatients admitted to a palliative care unit in Sydney, Australia
Publisher
An entity responsible for making the resource available
Journal Of Pain And Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Humans; Length of Stay; Survival Analysis; Australia; Karnofsky Performance Status; Palliative Care/standards
Creator
An entity primarily responsible for making the resource
Virik K; Glare P
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0885-3924(02)00407-4" target="_blank" rel="noreferrer">10.1016/s0885-3924(02)00407-4</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2002
2002
Australia
Backlog
Glare P
Humans
Journal Article
Journal of Pain and Symptom Management
Karnofsky Performance Status
Length Of Stay
Palliative Care/standards
Survival Analysis
Virik K
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/0959-8049(94)90182-1" target="_blank" rel="noreferrer">http://doi.org/10.1016/0959-8049(94)90182-1</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The Memorial Symptom Assessment Scale: an instrument for the evaluation of symptom prevalence, characteristics and distress
Publisher
An entity responsible for making the resource available
European Journal Of Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
1994
Subject
The topic of the resource
Female; Humans; Male; Pain Measurement; Adult; Prevalence; Aged; Middle Aged; Reproducibility of Results; Analysis of Variance; Karnofsky Performance Status; 80 and over; Psychological; Stress; Neoplasms/complications; quality of life; Severity of Illness Index
Creator
An entity primarily responsible for making the resource
Portenoy RK; Thaler HT; Kornblith AB; Lepore JM; Friedlander-Klar H; Kiyasu E; Sobel K; Coyle N; Kemeny N; Norton L; et al
Description
An account of the resource
The Memorial Symptom Assessment Scale (MSAS) is a new patient-rated instrument that was developed to provide multidimensional information about a diverse group of common symptoms. This study evaluated the reliability and validity of the MSAS in the cancer population. Randomly selected inpatients and outpatients (n = 246) with prostate, colon, breast or ovarian cancer were assessed using the MSAS and a battery of measures that independently evaluate phenomena related to quality of life. Symptom prevalence in the 218 evaluable patients ranged from 73.9% for lack of energy to 10.6% for difficulty swallowing. Based on a content analysis, three symptoms were deleted and two were added; the revised scale evaluates 32 physical and psychological symptoms. A factor analysis of variance yielded two factors that distinguished three major symptom groups and several subgroups. The major groups comprised psychological symptoms (PSYCH), high prevalence physical symptoms (PHYS H), and low prevalence physical symptoms (PHYS L). Internal consistency was high in the PHYS H and PSYCH groups (Cronback alpha coefficients of 0.88 and 0.83, respectively), and moderate in the PHYS L group (alpha = 0.58). Although the severity, frequency and distress dimensions were highly intercorrelated, canonical correlations and other analyses demonstrated that multidimensional assessment (frequency and distress) augments information about the impact of symptoms. High correlations with clinical status and quality of life measures support the validity of the MSAS and indicate the utility of several subscale scores, including PSYCH, PHYS, and a brief Global Distress Index. The MSAS is a reliable and valid instrument for the assessment of symptom prevalence, characteristics and distress. It provides a method for comprehensive symptom assessment that may be useful when information about symptoms is desirable, such as clinical trials that incorporate quality of life measures or studies of symptom epidemiology.
1994
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/0959-8049(94)90182-1" target="_blank" rel="noreferrer">10.1016/0959-8049(94)90182-1</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1994
80 And Over
Adult
Aged
Analysis of Variance
Backlog
Coyle N
et al
European Journal Of Cancer
Female
Friedlander-Klar H
Humans
Journal Article
Karnofsky Performance Status
Kemeny N
Kiyasu E
Kornblith AB
Lepore JM
Male
Middle Aged
Neoplasms/complications
Norton L
Pain Measurement
Portenoy RK
Prevalence
Psychological
Quality Of Life
Reproducibility of Results
Severity Of Illness Index
Sobel K
Stress
Thaler HT
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=7582177" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=7582177</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1995
Subject
The topic of the resource
Female; Male; Palliative Care; Adult; Aged; Reproducibility of Results; Predictive Value of Tests; Karnofsky Performance Status; 80 and over; Non-U.S. Gov't; Comparative Study; Human; quality of life; Support; Middle Age; Questionnaires; Neoplasms/psychology/therapy
Creator
An entity primarily responsible for making the resource
Cohen SR; Mount BM; Strobel MG; Bui F
Description
An account of the resource
This is the first report on the McGill Quality of Life Questionnaire (MQOL), a questionnaire relevant to all phases of the disease trajectory for people with a life-threatening illness. This questionnaire differs from most others in three ways: the existential domain is measured; the physical domain is important but not predominant; positive contributions to quality of life are measured. This study was conducted in a palliative care setting. Principal components analysis suggests four subscales: physical symptoms, psychological symptoms, outlook on life, and meaningful existence. Construct validity of the subscales is demonstrated through the pattern of correlations with the items from the Spitzer Quality of Life Index. The importance of measuring the existential domain is highlighted by the finding that, of all the MQOL subscales and Spitzer items, only the meaningful existence subscale correlated significantly with a single item scale rating overall quality of life.
1995
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1995
80 And Over
Adult
Aged
Backlog
Bui F
Cohen SR
Comparative Study
Female
Human
Journal Article
Karnofsky Performance Status
Male
Middle Age
Mount BM
Neoplasms/psychology/therapy
Non-U.S. Gov't
Palliative Care
Palliative Medicine
Predictive Value of Tests
Quality Of Life
Questionnaires
Reproducibility of Results
Strobel MG
Support
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Oncology
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2017 List
URL Address
<a href="http://doi.org/10.1111/apa.13338" target="_blank" rel="noreferrer">http://doi.org/10.1111/apa.13338</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Metronomic therapy can increase quality of life during paediatric palliative cancer care, but careful patient selection is essential
Publisher
An entity responsible for making the resource available
Acta Paediatrica
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Neoplasms/dt [drug Therapy]; Palliative Care; Patient Selection; Quality Of Life; Administration; Child; Female; Humans; Karnofsky Performance Status; Male; Metronomic; Neoplasms/mo [mortality]; Prospective Studies
Creator
An entity primarily responsible for making the resource
Porkholm M; Toiviainen-Salo S; Seuri R; Lonnqvist T; Vepsalainen K; Saarinen-Pihkala UM; Pentikainen V; Kivivuori SM
Description
An account of the resource
AIM: Children with refractory or high-risk malignancies frequently suffer from poor quality of life during palliative care. This study explored the effect of metronomic drug administration on survival and quality of life in paediatric patients with various refractory or high-risk tumours. METHODS: We treated 17 patients with a maintenance therapy that consisted of metronomic thalidomide, etoposide and celecoxib. The endpoints of the study were overall and progression-free survival, changes in the Karnofsky-Lansky scores from baseline to the end of the study therapy and radiological responses. RESULTS: The median overall survival after the start of the study therapy was 6.2 months (range 2.0-57.7), and the six-, 12- and 24-month survival rates were 59%, 18% and 18%, respectively. The median progression-free survival was 3.2 months (range 0.3-17.8). The Karnofsky-Lansky scores increased significantly during the study therapy (p = 0.02), with 35% of the patients having a transient improvement in their clinical status. Radiologically, one partial response and two disease stabilisations were encountered. Grade III-V adverse events occurred in 76% of the patients. CONCLUSION: Metronomic therapy may increase the quality of life during palliative care for childhood cancer, but requires careful patient selection to minimise the risk of serious adverse events. Copyright _2016 Foundation Acta Paediatrica. Published by John Wiley & Sons Ltd.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/apa.13338" target="_blank" rel="noreferrer">10.1111/apa.13338</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Acta Paediatrica
Administration
Child
Female
Humans
Karnofsky Performance Status
Kivivuori SM
Lonnqvist T
Male
Metronomic
Neoplasms/dt [drug Therapy]
Neoplasms/mo [mortality]
Oncology 2017 List
Palliative Care
Patient Selection
Pentikainen V
Porkholm M
Prospective Studies
Quality Of Life
Saarinen-Pihkala UM
Seuri R
Toiviainen-Salo S
Vepsalainen K