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Text
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Citation List Month
June 2016 List
Dublin Core
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Title
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New Resources For Pediatric Palliative Care
Publisher
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Jama
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
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Associations; Palliative Care; Families & Family Life; Pediatrics; Children's Health
End Of Life; Pediatrics
Creator
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Julie A Jacob
Description
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The National Institute of Nursing Research (NINR) has developed pediatric palliative care informational materials for families of children with serious illnesses (http://1.usa.gov/1rHZs45). The fact sheet, family stories, and resource card highlighting support services are designed to assist families of seriously ill pediatric patients with palliative care planning and decision making. Suggestions and insights from families of children with serious illness were taken into consideration when the materials were developed. The materials complement information provided by the NINR’s existing Palliative Care: Conversations Matter campaign, which includes an overview of palliative care services, as well as related tips and resources for clinicians. “Palliative care is often associated with end of life, making it difficult for patients and their families—and even health care providers—to start conversations around the subject,” said NINR Director Patricia A. Grady, RN, PhD, in a statement. We hope these materials will improve patient and family understanding of pediatric palliative care and facilitate discussion with health care teams.”
The fact sheet, resource card, and family stories can be accessed in English and Spanish on the NINR’s Palliative Care: Conversations Matter campaign website
Identifier
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doi:10.1001/jama.2016.7255
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Associations
Children's Health
End Of Life
Families & Family Life
JAMA
Julie A Jacob
June 2016 List
Palliative Care
Pediatrics