1 40 3 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource 2019 Oncology List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month Oncology 2019 List URL Address <a href="http://doi.org/10.1089/jayao.2019.0015" target="_blank" rel="noreferrer noopener">http://doi.org/​10.1089/jayao.2019.0015</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource "It Could Have Been Me": An Interpretive Phenomenological Analysis of Health Care Providers' Experiences Caring for Adolescents and Young Adults with Terminal Cancer Publisher An entity responsible for making the resource available Journal of adolescent and young adult oncology. Date A point or period of time associated with an event in the lifecycle of the resource 2019 Subject The topic of the resource adult; article; Canada; clinician; controlled study; health care delivery; health care personnel; human; nurse; semi structured interview; terminal care; uncertainty; wellbeing; young adult Creator An entity primarily responsible for making the resource Tutelman P R; Drake E K; Urquhart R Description An account of the resource Purpose: Adolescents and young adults (AYAs) with terminal cancer are a marginalized population with unique medical and psychosocial needs. AYAs commonly report challenges with their health care experiences, however, little is known about the experiences of the health care providers (HCPs) who deliver this specialized care. The purpose of the current study was to understand HCPs' experiences caring for AYAs with terminal cancer. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1089/jayao.2019.0015" target="_blank" rel="noreferrer noopener">10.1089/jayao.2019.0015</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2019 Adult Article Canada Clinician Controlled Study Drake E K Health Care Delivery Health Care Personnel Human Journal of adolescent and young adult oncology. Nurse Oncology 2019 List Semi Structured Interview Terminal Care Tutelman P R Uncertainty Urquhart R Wellbeing Young Adult Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource 2019 Oncology List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month Oncology 2019 List URL Address <a href="http://doi.org/10.1089/jayao.2019.0084" target="_blank" rel="noreferrer noopener">http://doi.org/​10.1089/jayao.2019.0084</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource End-of-Life Communication Needs for Adolescents and Young Adults with Cancer: Recommendations for Research and Practice Publisher An entity responsible for making the resource available Journal of adolescent and young adult oncology. Date A point or period of time associated with an event in the lifecycle of the resource 2019 Subject The topic of the resource adolescent; adult; article; controlled study; conversation; face cancer; human; narrative; pain; palliative therapy; terminal care; young adult Creator An entity primarily responsible for making the resource Sansom-Daly U M; Wakefield C E; Patterson P; Cohn R J; Rosenberg A R; Wiener L; Fardell J E Description An account of the resource A growing evidence base highlights the negative impact of poor psychosocial care at end-of-life. Adolescents and young adults (AYAs) 15-39 years of age with cancer face unique medical and psychosocial challenges that make them especially vulnerable when treatment is not successful. Although the importance of age-appropriate medical and psychosocial care is internationally recognized for AYAs across the cancer trajectory, there is little guidance on best-practice care and communication practices with AYAs as they approach the end-of-life. We conducted a narrative review and found evidence points to the potential benefits of introducing palliative care teams early in the care trajectory. Research undertaken to date emphasizes the importance of exploring AYAs' preferences around end-of-life issues in a repeated, consistent manner, and highlighted that AYAs may have strong preferences on a range of issues such as being able to stay in their own home, being comfortable and free from pain, and expressing their wishes to loved ones. We highlight a number of best-practice recommendations to guide clinicians around the critical elements of when, who, what, and how end-of-life conversations may be best facilitated with AYAs. Gaps in the evidence base remain, including research focusing on better understanding barriers and facilitators to timely, age-appropriate end-of-life communication for AYAs with different diagnoses, where discordance between AYA-parent preferences exists, and when AYAs die at home versus in hospital. We have proposed a new model to support clinicians and researchers to better conceptualize how interacting individual, familial, and sociocultural factors impact end-of-life communication with AYAs in clinical settings. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1089/jayao.2019.0084" target="_blank" rel="noreferrer noopener">10.1089/jayao.2019.0084</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2019 Adolescent Adult Article Cohn R J Controlled Study Conversation face cancer Fardell J E Human Journal of adolescent and young adult oncology. Narrative Oncology 2019 List Pain Palliative Therapy Patterson P Rosenberg A R Sansom-Daly U M Terminal Care Wakefield C E Wiener L Young Adult Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource 2019 Oncology List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month Oncology 2019 List URL Address <a href="http://doi.org/10.1089/jayao.2018.0154" target="_blank" rel="noreferrer noopener">http://doi.org/​10.1089/jayao.2018.0154</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource An Exploratory Study into the Experience of Health Care Professionals Caring for Adolescents and Young Adults with Incurable Cancer Publisher An entity responsible for making the resource available Journal of adolescent and young adult oncology. Date A point or period of time associated with an event in the lifecycle of the resource 2019 Subject The topic of the resource adolescent; adult; article; Australia; cancer center; challenges; enablers; exploratory research; health care personnel; health care professionals; human; incurable disease; multidisciplinary; semi structured interview; young adult Creator An entity primarily responsible for making the resource Berger I; Thompson K; Joubert L Description An account of the resource Adolescents and young adults 15 to 25 years of age with incurable cancer are a unique patient group. There is growing evidence of the emotionally taxing nature of this work, yet limited understanding of the health care professional experience across professional disciplines. This exploratory study, comprising in-depth semistructured interviews, undertaken at a major cancer center in Melbourne, Australia, describes the challenges facing health care professionals and the factors enabling them to deliver care with greater confidence. The findings provide a platform for further research with key recommendations to enhance the delivery of care to young people with a life-limiting cancer diagnosis. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1089/jayao.2018.0154" target="_blank" rel="noreferrer noopener">10.1089/jayao.2018.0154</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2019 Adolescent Adult Article Australia Berger I cancer center challenges enablers Exploratory Research Health Care Personnel Health care professionals Human incurable disease Joubert L Journal of adolescent and young adult oncology. multidisciplinary Oncology 2019 List Semi Structured Interview Thompson K Young Adult