Objectives: Children with Progressive Life Shortening
Illnesses (PLSIs) are children whose lives are shrouded
with uncertainty as they live with conditions for which
cure, and often even effective treatments, is not available.
Background: Children are receptive to complementary therapies such as music, massage, and distraction for symptom management. Reiki therapy is ideal for children; particularly those receiving palliative care because it is a gentle, light touch…
Objectives: As a follow-up to a study conducted in 2002,
our objective was to obtain an accurate description of
programs that provided specialized pediatric palliative
care (PPC) in 2012 and the children who received it;
explore changes in the…
Difficult family conversations are a challenge for even the most seasoned clinicians. Teaching the skills of successful communication between providers, family members, and patients is a vital component of medical education. However,…
Background: The majority of children die in pediatric
hospitals after a decision to withhold or withdraw
life sustaining interventions. Tensions and conflicts
at the end of life (EOL) are not rare in pediatric
Objective: To investigate how…
Objective: To explore pediatric emergency medicine
healthcare providers’ perspectives regarding their
role in pediatric palliative care.
Methodology: A qualitative study was conducted at the
CHU Sainte-Justine from January to April 2016.…
The foundational principle of palliative care is to provide comfort, ameliorate symptoms, and offer emotional support when death is inevitable. Advance care planning (ACP) elicits patients' goals for the future. One important result of an ACP…
Describe the role of pediatric palliative care
consultation in the neonatal intensive care unit
Describe parent experiences with a pediatric palliative
care consultation in the NICU and implications
for practice and…
Define a collaborative model between pediatric palliative care teams and child psychiatry.
Demonstrate knowledge of psychotropic medication use in children with advanced illness.
Recognize when the involvement of child psychiatry is…
Objectives * Compare purposeful and non-purposeful continuing bonds between one and two years post-death. * Compare comforting and discomforting effects of continuing bonds between one and two years post-death. Original Research Background.…
Understand reasons a bereaved parent chooses to
return to the hospital for a memorial service.
Identify elements of a hospital memorial service
that parents identify as most beneficial.
Original Research Background. 77% of…
•Describe steps to take before starting the procedure to ensure comfort for the patient and family.
•Identify likely symptoms during and after the extubation and their management.
•Describe ways to support family and staff during and after…
Identify the core category for parents of a seriously ill child about the decision making process at the hospital.
Identify parents' preferences when they have to make a decision on behalf of their seriously ill child.
Describe how and when individuals with cystic
fibrosis learn about prognosis with a life-limiting
disease, specifically its progressive nature and
the median life expectancy.
Describe the emotional impact of initial communication
Parents who experience the loss of a child have unique and valuable insights into the grief journey and can help health care providers identify key components intrinsic to the development, implementation, and maintenance of a comprehensive…
Describe categories of need faced by parents and
patients in pediatric palliative care.
Describe unmet needs faced by parents and patients
in pediatric palliative care.
322 Schedule with Abstracts Vol. 51 No. 2 February 2016
Summarize the current state of our understanding
of spiritual needs of children facing lifethreatening
Learn basic skills for being a spiritual generalist
and how to begin exploring spiritual needs of
•Explore their own personal struggles and be able to list five barriers frequently cited when considering advance care planning (ACP) for children with complex chronic conditions who cannot communicate their wishes.
•Apply newly acquired…
Understand the role of pediatric palliative care in
Identify further opportunities for do-not-resuscitate
(DNR) research and analysis of advanced
care planning in pediatrics.
Original Research Background.…
Describe different methods of palliative care education,
including simulation-based education and
Delineate differences between pediatric fellow
self-assessment data and external reviewer data
Identify the diagnoses and death rate found in an
outpatient pediatric palliative care clinic.
Describe the technology and community supports
used by children with medical complexity and
Original Research Background.…
Emergency medicine (EM) residents perceive palliative care (PC) skills as important and want training, yet there is a general lack of formal PC training in EM residency programs. A clearer definition of the PC educational needs of EM…
Identify 3 core aspects of development unique to
patients with autism spectrum disorders (ASD).
Describe how developmental differences impact
symptom assessment and pain behaviors in children
with ASD who also have a serious illness.
Propose pediatric program design or expansion
based on newly acquired skills of defining a
desirable and functional scope that aligns with
health system’s missions and values and identifies
areas of potential growth and…
Outline the current state of education and clinical
training of adult hospice and palliative medicine
(HPM) fellows in pediatric palliative care
Compare responses between adult HPM fellowship
and pediatric rotation directors…
Reflect on current neonatal intensive care practice
for the seriously ill and or dying neonate.
Explore the role of the primary palliative care
Discuss palliative educational goals for intensive
Explain the rationale for a full-time physician as a
member of a home hospice team.
Describe the outcomes of an effort to put physicians
on home hospice teams.
Describe barriers to implementation.
Vol. 51 No. 2 February 2016 Schedule…
Determine feasibility of a communication skills
training (CST) to prepare pediatric intensivists
for communicating bad news and assessing goals
of care in the pediatric intensive care unit
Describe the impact of CST on…
Describe patterns of medical care provided to patients
with cystic fibrosis (CF) around the end of
Explore the roles a pediatric palliative care
consultation service serves for patients with CF
who ultimately die from their…
Describe the history, epidemiology, and role of
perinatal palliative care.
Examine the impact of perinatal palliative care on
neonatal outcomes at the University of
Explore the potential benefits of perinatal palliative
Distinguish between the ‘‘best interest standard’’
and ‘‘the harm principle’’ in the evaluation of familial
medical decision making in pediatrics and
analyze the strengths and weaknesses of each.
Identify key legal cases in pediatrics…
Children at end of life often experience multiple complex chronic conditions with more than 50% of children reportedly having two or more conditions. These complex chronic conditions are unlikely to occur in an entirely uniform manner in…
In 2010, California launched Partners for Children (PFC), a pediatric palliative care pilot program offering hospice-like services for children eligible for full-scope Medicaid delivered concurrently with curative care, regardless of the…
The hospital is a place full of distress and questions about the meaning of life. The death of a child can cause a spiritual struggle and crisis. Therefore, it is necessary for health care providers in the neonatal intensive care unit (NICU)…
Specialized pediatric palliative care (PPC) services have become more common in urban pediatric hospital settings, although little is known about palliative care specialist involvement.
The objective of this study was to compare…
The need for children's palliative care (CPC) globally is unknown. To understand the scope of the need and to advocate to meet it, more accurate estimates are needed.
The objective of this study was to create an accurate global…
Context: Specialized pediatric palliative care (PPC) services have become more common in urban pediatric hospital settings, although little is known about palliative care specialist involvement.Objectives: The objective of this study was to compare…
Objective: To explore pediatric emergency medicine healthcare providers' perspectives regarding their role in pediatric palliative care. Methodology: A qualitative study was conducted at the CHU Sainte-Justine from January to April 2016. Four…
Pediatric palliative care (PPC) is a relatively new but rapidly expanding specialty area with a variety of models of care provision. Identification and validation of quality indicators specific to PPC is essential to accurately monitor and assess the…
Objective: To determine the characteristics of pediatric palliative care (PPC) patients' emergency department (ED) visits. Methods: This was a five-year retrospective chart review in a tertiary care pediatric university-affiliated hospital. Patients…