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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2020 Developing World List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Developing World 2020 List
URL Address
<a href="http://doi.org/10.1200/jco.2020.38.15_suppl.e19002" target="_blank" rel="noreferrer noopener">http://doi.org/10.1200/jco.2020.38.15_suppl.e19002</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Pediatric cancer care in Armenia: The results of a qualitative analysis
Publisher
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Journal of Clinical Oncology. Conference
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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pediatrics; cancer; qualitative analysis; Armenia
Creator
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Hovhannisyan S; Papyan R; Sargsyan L; Danielyan S; Vagharshakyan L; Avagyan A A; Hoveyan J; Tamamyan G
Description
An account of the resource
Background: In Armenia the incidence of pediatric cancer accounts for around 80-100 cases per year. This qualitative study was conducted in 2018 to evaluate the needs and challenges in a provision of pediatric cancer care in Armenia. Comparative qualitative study was conducted in 2020 to evaluate the progress in the field. Method(s): Qualitative research methods were incorporated to evaluate the achievements, needs and challenges in a provision of childhood cancer care in Armenia. Semistructured in-depth interviews were conducted with selected study participants including pediatric oncologist/hematologists, pediatric surgeons, who also treat cancer patients, and radiation oncologists. Purposive sampling technique and qualitative conventional content analysis methods were used. Result(s): Data collected in January 2020 has shown significant improvements in the field of pediatric oncology in Armenia. In the 2018 study, some of the major issues included lack of centralized pediatric cancer care, pediatric cancer registry, palliative care center, possibility of providing highdose methotrexate, limited nursing training, multidisciplinary team approaches and use of central catheters. Within two years, majority of these problems were solved or are in the process. In 2019 all 3 pediatric oncology and hematology units were merged and the Pediatric Cancer and Blood Disorders of Armenia was created; with the support from charitable foundations all children with cancer receive free medical and psychosocial coverage; a 25 year data has been collected from all the possible sites, the first pediatric cancer palliative care is under construction, 4 multidisciplinary cancer teams were created, pediatric oncology and hematology fellowship was created at the Yerevan State Medical University to prepare for the first time "pediatric oncologist-hematologist" as a one profession. The existing major problems include very limited provision of pediatric cancer medications by the government, as well as lack of the official registration of the number of essential drugs included in the WHO list. Conclusion(s):Twinning programs, multidisciplinary team discussions with international experts, improvement in availability of several resources, professional development of the staff are major tools for the progress of pediatric oncology in Armenia. Poor provision and official registration of anti-neoplastic medications by the government still remain a major obstacle.
Identifier
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<a href="http://doi.org/10.1200/jco.2020.38.15_suppl.e19002" target="_blank" rel="noreferrer noopener">10.1200/jco.2020.38.15_suppl.e19002</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Armenia
Avagyan A A
Cancer
Danielyan S
Developing World 2020 List
Hoveyan J
Hovhannisyan S
Journal of Clinical Oncology. Conference
Papyan R
Pediatrics
Qualitative Analysis
Sargsyan L
Tamamyan G
Vagharshakyan L
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2019 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1200/JCO.2018.36.34_suppl.81" target="_blank" rel="noreferrer noopener">http://doi.org/10.1200/JCO.2018.36.34_suppl.81</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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A simple system for symptom assessment in pediatric palliative care patients with cancer: A preliminary report
Publisher
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Journal of Clinical Oncology. Conference
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
anorexia; caregiver; child; conference abstract; controlled study; fatigue; female; health care quality; human; insomnia; irritability; loss of appetite; major clinical study; male; malignant neoplasm; nervousness; pain; palliative therapy; symptom assessment
Creator
An entity primarily responsible for making the resource
Madden K; Charone M; Dibaj S; Mills S; Williams J L; Liu D; Bruera E
Description
An account of the resource
Background: Systematic symptom assessment is not a standard of care in children with cancer. Many well-known symptom assessment tools are lengthy or difficult to integrate into a daily pediatric palliative care practice. We created a series of brief and simple questions to be systematically given to children and their caregivers. The primary objective was to determine the percentage of eligible children and caregivers exposed to the questions that were able to complete the assessment. Secondary objectives included documenting the symptom burden at time of consultation, evaluating the level of agreement in symptom reporting between children and caregivers, as well as between children/caregivers and the referring medical team. Method(s): A series of systematic questions were presented to all caregivers (if present) and children who were 7 years of age or older at time of initial consultation with pediatric palliative care. Result(s): 122 consecutive children and caregivers were given the survey. 107/108 (99%) of eligible caregivers and 83/97 (86%) of eligible children successfully completed the survey. Lack of appetite (child - 72/83, 87%; caregiver - 89/107, 83%) and pain (child - 71/83, 86%; caregiver - 86/107, 80%) were the most commonly reported symptoms. Caregivers reported irritability (p = 0.005) and nervousness (p < 0.0001) more frequently than children. Referring medical teams significantly under-diagnosed psychological and other less clinically evident symptoms such as anorexia, fatigue, and insomnia (p < 0.0001). Conclusion(s): Our series of questions is easy to complete by children and caregivers. Systematic symptom assessment of children with cancer needs to become a true standard of care.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1200/JCO.2018.36.34_suppl.81" target="_blank" rel="noreferrer noopener">10.1200/JCO.2018.36.34_suppl.81</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Anorexia
Bruera E
Caregiver
Charone M
Child
conference abstract
Controlled Study
Dibaj S
Fatigue
Female
Health Care Quality
Human
insomnia
Irritability
Journal of Clinical Oncology. Conference
Liu D
Loss Of Appetite
Madden K
Major Clinical Study
Male
Malignant Neoplasm
Mills S
nervousness
Oncology 2019 List
Pain
Palliative Therapy
Symptom Assessment
Williams J L
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
May 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2019 List
URL Address
<a href="http://doi.org/10.1016/j.jpeds.2018.12.064" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpeds.2018.12.064</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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End-of-Life Decisions 20 Years after EURONIC: Neonatologists' Self-Reported Practices, Attitudes, and Treatment Choices in Germany, Switzerland, and Austria
Publisher
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Journal of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
human; female; male; infant; major clinical study; quality of life; article; controlled study; drug withdrawal; neonatal intensive care unit; neonatologist; questionnaire; artificial ventilation; Internet; prematurity; ethical decision making; Austria; extremely low birth weight; Germany; Switzerland
Creator
An entity primarily responsible for making the resource
Schneider, K.; Metze, B.; Buhrer, C.; Cuttini, M.; Garten, L.
Identifier
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<a href="http://doi.org/10.1016/j.jpeds.2018.12.064">10.1016/j.jpeds.2018.12.064</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Description
An account of the resource
Objective: To assess changes in attitudes of neonatologists regarding the care of extremely preterm infants and parental involvement over the last 20 years. Study design: Internet-based survey (2016) involving 170 tertiary neonatal intensive care units in Austria, Switzerland, and Germany using the European Project on Parents' Information and Ethical Decision Making in Neonatal Intensive Care Units questionnaire (German edition) with minor modifications to the original survey from 1996 to 1997.
2018
Adolescent
Adult
Advanced Cancer
anxiety
Bradford M
cancer pain
Cancer Patient
Child
conference abstract
Controlled Study
Disease Course
Female
Human
Journal of Clinical Oncology. Conference
Lau N
Major Clinical Study
Male
May 2019 List
Nausea
Palliative Therapy
Pediatric Quality of Life Inventory
Quality Of Life
Randomized Controlled Trial
Rosenberg AR
Scott S
Secondary Analysis
Speech
Steineck A
stress management
Yi-Frazier J P
Young Adult