1
40
22
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Title
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2023 Special Edition 4 - Parent Perspectives List
Text
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2023 SE4 - Parent Perspectives
URL Address
<a href="http://doi.org/10.1111/jocn.15368" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1111/jocn.15368</a>
Dublin Core
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Title
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The views and experiences of fathers regarding their young child's intellectual and developmental disability diagnosis: Findings from a qualitative study.
Publisher
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Journal of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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Humans; Child; Child, Preschool; Female; Male; Middle Aged; Adult; Qualitative Research; Attitude of Health Personnel; Developmental Disabilities/di [Diagnosis]; Intellectual Disability/di [Diagnosis]; *Fathers/px [Psychology]; *Intellectual Disability/px [Psychology]; *Developmental Disabilities/px [Psychology]
Creator
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Marsh, Lynne; Brown, Michael; McCann, Edward
Description
An account of the resource
AIMS AND OBJECTIVES: To report the views and experiences of fathers following their child's diagnosis of an intellectual and developmental disability (IDD)., BACKGROUND: There is a growing interest in understanding the experiences of fathers of children with IDD given the transformation of the structural change of fathers' roles within the family and wider society., DESIGN: A qualitative design was used to elicit the view and experiences of fathers., METHODS: A total of ten Irish fathers participated in face-to-face interviews. The data were thematically analysed. The COREQ guidelines for reporting qualitative studies were used in the development of this paper., RESULTS: The key themes that emerged were (a) the confirmation of the child's diagnosis (b) the impact of the diagnosis and (c) father's motivation to participate in disability research., CONCLUSIONS: This study informs and develops a further understanding of the international evidence base of fathers receiving a confirmation of a child's diagnosis of an intellectual and developmental disability, the impact of the diagnosis on fathers and their motivation to share their stories to add to the disability research. Health and social care practitioners have important contributions to make in meeting the needs of fathers. There are specific areas to consider in terms of practice, education and research that require further attention and development to ensure fathers' distinct needs regarding their child's diagnosis of IDD are known and responded to effectively., RELEVANCE TO CLINICAL PRACTICE: This study highlights that when the child's disability is confirmed, fathers experience a diverse range of mixed emotions. Health and social care practitioners including nurses need to be aware of the impact of the diagnosis upon fathers. There is scope to develop the knowledge, skills and confidence of health and social care practitioners regarding the experiences of fathers and how they can further support fathers and their families during the critical time of a disability disclosure. Copyright © 2020 The Authors. Journal of Clinical Nursing published by John Wiley & Sons Ltd.
Identifier
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<a href="http://doi.org/10.1111/jocn.15368" target="_blank" rel="noreferrer noopener">10.1111/jocn.15368</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
*Developmental Disabilities/px [Psychology]
*Fathers/px [Psychology]
*Intellectual Disability/px [Psychology]
2020
2023 SE4 - Parent Perspectives
Adult
Attitude Of Health Personnel
Brown, Michael
Child
Child, Preschool
Developmental Disabilities/di [Diagnosis]
Female
Humans
Intellectual Disability/di [Diagnosis]
Journal of Clinical Nursing
Male
Marsh, Lynne
McCann, Edward
Middle Aged
Qualitative Research
-
Dublin Core
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Title
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2023 Special Edition 4 - Parent Perspectives List
Text
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Citation List Month
2023 SE4 - Parent Perspectives
URL Address
<a href="http://doi.org/10.1111/j.1365-2702.2010.03523.x" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1111/j.1365-2702.2010.03523.x</a>
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Title
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Development and implementation of a bereavement follow-up intervention for grieving fathers: an action research.
Publisher
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Journal of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Humans; Male; Health Services Research; Finland; Program Development; *Bereavement; *Fathers/px [Psychology]; *Social Support; Evidence-Based Nursing
Creator
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Aho, Anna L; Astedt-Kurki, Paivi; Tarkka, Marja-Terttu; Kaunonen, Marja
Description
An account of the resource
AIMS AND OBJECTIVES: The aim is to present the development and implementation of a bereavement follow-up intervention for grieving fathers. The development and implementation process and components of the intervention are presented., BACKGROUND: There is a lack of research into fathers' grief and bereavement support for them after the death of a child. Promotion of evidence-based nursing requires transparent development and implementation of nursing interventions and models to be able to repeat, evaluate their effectiveness and redevelop them., DESIGN: Phases of action research were used when developing and implementing the intervention., METHODS: Results of the baseline study of father's grief and social support, the study of current bereavement support and the literature review were combined using triangulation., RESULTS: In this action research, the development of a bereavement follow-up intervention for grieving fathers began with the planning phase that included a baseline study about fathers' grief and social support, a study of current bereavement support systems in Finnish university hospitals and a systematic review of literature on the topic area and collaboration with a panel of experts. The developed bereavement follow-up intervention included three complementary components: support package, peer supporters' contact and health care personnel's contact. Implementation of the intervention included the development of a programme to be used in nursing practice, intervention training for programme implementers and intervention implementation., CONCLUSIONS: Developing and implementing an intervention is a complex, demanding and long-term process. The planning required theoretical knowledge as well as understanding the experiences of fathers, nursing practice and collaboration with those who implemented the intervention., RELEVANCE TO CLINICAL PRACTICE: New information about the fathers' grief and bereavement follow-up support is described. The model developed is evidence-based and can be applied in nursing care where grieving fathers and families are met. Copyright © 2010 Blackwell Publishing Ltd.
Identifier
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<a href="http://doi.org/10.1111/j.1365-2702.2010.03523.x" target="_blank" rel="noreferrer noopener">10.1111/j.1365-2702.2010.03523.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
*Bereavement
*Fathers/px [Psychology]
*Social Support
2011
2023 SE4 - Parent Perspectives
Aho, Anna L
Astedt-Kurki, Paivi
Evidence-Based Nursing
Finland
Health Services Research
Humans
Journal of Clinical Nursing
Kaunonen, Marja
Male
Program Development
Tarkka, Marja-Terttu
-
Dublin Core
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September 2023 List
Text
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Citation List Month
September List 2023
URL Address
<a href="http://doi.org/10.1111/jocn.16465%5C"> http://doi.org/10.1111/jocn.16465\</a>"
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Title
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Culturally and linguistically diverse men's experiences of support following perinatal death: A qualitative study
Publisher
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Journal of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
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Men; Descriptive Statistics; Human; Thematic Analysis; Male; Qualitative Studies; Australia; Perinatal Death; Bereavement; Comparative Studies; Psychosocial Factors; Support, Psychosocial; Communities; Coping; Cultural Diversity; Family Centered Care; Health Personnel; Leaders; Life Experiences; Linguistics; Public Policy; Self-Advocacy; Semi-Structured Interview; Stigma
Creator
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Pearson T; Obst K; Due Cl
Description
An account of the resource
Aims and objectives: To explore culturally and linguistically diverse men's experiences of support after perinatal death, including barriers and facilitators to support and how healthcare providers, systems and policies can best support families. Background: Many groups of culturally and linguistically diverse families in Australia are at higher risk of experiencing perinatal death. Culturally sensitive bereavement services are essential; however, there has been no previous research specifically examining culturally and linguistically diverse men's experiences of support following perinatal death. Design: Individual semi-structured interviews were completed with healthcare providers, community leaders and culturally and linguistically diverse men who had experienced a perinatal death in Australia (n = 16). Data were analysed using Thematic Analysis and COREQ guidelines were followed. Results: Men's need for support following perinatal death was associated with stigma, and shaped by culturally-relevant religion and ritual, and connection to community and family. Significant barriers to men seeking and gaining support included challenges with self-advocacy and navigating the woman-centred nature of perinatal care in Australia. Conclusions: Culturally and linguistically diverse men's specific needs should be included in the development of policy and practice surrounding perinatal death. While perinatal bereavement care guidelines acknowledge the importance of culturally informed care following perinatal death, there remains a lack of culturally specific supports available, particularly for culturally and linguistically diverse men. Relevance to clinical practice: Specific recommendations from this research include increasing community liaison officers or cultural consultants in hospitals and support organisations; providing culturally and linguistically diverse support groups; adopting family-centred and father-inclusive language in all perinatal death support services and ensuring clear communication and targeted assistance for culturally and linguistically diverse men to self-advocate for their baby and access to support. Patient or public contribution: This study came out of consultation with community members and member checking of results was conducted to ensure adequate representation of participants' views.
Identifier
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<a href="http://doi.org/10.1111/jocn.16465%5C">10.1111/jocn.16465\</a>"
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Australia
Bereavement
Communities
Comparative Studies
Coping
Cultural Diversity
Descriptive Statistics
Due Cl
Family Centered Care
Health Personnel
Human
Journal of Clinical Nursing
Leaders
Life Experiences
Linguistics
Male
Men
Obst K
Pearson T
Perinatal Death
Psychosocial Factors
Public Policy
Qualitative Studies
Self-Advocacy
Semi-Structured Interview
September List 2049
Stigma
Support, Psychosocial
Thematic Analysis
-
Dublin Core
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Title
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Special Edition #2 2022 List
Text
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Special Edition #2
URL Address
<a href="http://doi.org/10.1111/jocn.15542" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/jocn.15542</a>
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Title
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Death of an Infant: Accessing the Voices of Bereaved Mothers to Create Healing
Publisher
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Journal of Clinical Nursing
Date
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2020
Subject
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Bereavement; Coping; Death and Dying; Infant; Nursing; Qualitative Study; Women’s Health
Creator
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Hawthorne DM; Joyner R; Gaucher E; Liehr P
Description
An account of the resource
AIMS AND OBJECTIVES: To describe the health challenge for mothers whose infants have died and approaches and resources they used to manage the loss. BACKGROUND: The death of an infant is a devastating experience for families. Bereaved mothers have higher rates of mental distress, loneliness and isolation. While some learn to cope, others remain consumed by grief, unable to function, with persistent affective, cognitive, and physical symptoms. DESIGN: Qualitative design guided by Story Theory. METHODS: In-depth, semi-structured interviews were conducted with mothers 13 to 36 months after the death of their infant. Looking at the present, past, and future mothers were asked to describe the health challenge of losing an infant and approaches used to manage the loss. The COREQ checklist was used. RESULTS: These mothers' experiences were captured in six main themes: "Painful aloneness," "Blemished identity," "Burden of being misunderstood," "Being with and being heard," "Being present and building a future," and "Finding meaning in the tragedy." In sharing their stories, mothers identified positive and negative encounters with healthcare professionals following the death of their infant. CONCLUSION: After losing an infant, mothers experience an array of challenges as they move forward. They describe their approaches used to manage the loss. This included a need to be heard, feel supported, and find meaning in the loss as they try to build a new future. Their stories express a need for health care encounters to be healing, allowing mothers to feel cared for and supported on their unique journeys toward a new sense of wellbeing. RELEVANCE TO CLINICAL PRACTICE: In sharing their stories what matters most to these mothers having lost an infant emerged. The study findings can be used to guide nursing practice, incorporated into healthcare providers bereavement training, increase knowledge and build effective communication skills.
Identifier
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<a href="http://doi.org/10.1111/jocn.15542" target="_blank" rel="noreferrer noopener">10.1111/jocn.15542</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
2022 Special Edition 2 - Parent Perspectives
Bereavement
Coping
Death and Dying
Gaucher E
Hawthorne DM
Infant
Journal of Clinical Nursing
Joyner R
Liehr P
Nursing
Qualitative Study
Women’s Health
-
Text
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Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/jocn.12634" target="_blank" rel="noreferrer">http://doi.org/10.1111/jocn.12634</a>
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The challenge to health professionals when carers resist truth telling at the end of life: a qualitative secondary analysis
Publisher
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Journal Of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
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end of life; informal carer; Qualitative; renal; staff challenges; truth telling
Creator
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Noble H; Price JE; Porter S
Description
An account of the resource
AIMS AND OBJECTIVES: To draw out the similar complexities faced by staff around truth-telling in a children's and adult population and to interrogate the dilemmas faced by staff when informal carers act to block truth-telling. BACKGROUND: Policy encourages normalisation of death, but carers may act to protect or prevent the patient from being told the truth. Little is known about the impact on staff. DESIGN: Secondary analysis of data using a supra-analysis design to identify commonality of experiences. METHODS: Secondary 'supra-analysis' was used to transcend the focus of two primary studies in the UK, which examined staff perspectives in a palliative children's and a palliative adult setting, respectively. The analysis examined new theoretical questions relating to the commonality of issues independently derived in each primary study. Both primary studies used focus groups. Existing empirical data were analysed thematically and compared across the studies. RESULTS: Staff reported a hiding of the truth by carers and sustained use of activities aimed at prolonging life. Carers frequently ignored the advance of end of life, and divergence between staff and carer approaches to truth-telling challenged professionals. Not being truthful with patients had a deleterious effect on staff, causing anger and feelings of incompetence. CONCLUSIONS: Both children's and adult specialist palliative care staff found themselves caught in a dilemma, subject to policies that promoted openness in planning for death and informal carers who often prevented them from being truthful with patients about terminal prognosis. This dilemma had adverse psychological effects upon many staff. RELEVANCE TO CLINICAL PRACTICE: There remains a powerful death-denying culture in many societies, and carers of dying patients may prevent staff from being truthful with their patients. The current situation is not ideal, and open discussion of this problem is the essential first step in finding a solution.
2014-05
Identifier
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<a href="http://doi.org/10.1111/jocn.12634" target="_blank" rel="noreferrer">10.1111/jocn.12634</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Backlog
End Of Life
informal carer
Journal Article
Journal of Clinical Nursing
Noble H
Porter S
Price JE
Qualitative
renal
staff challenges
truth telling
-
Text
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Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2702.2007.01943.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2702.2007.01943.x</a>
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Title
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The experiences of Chinese family members of terminally ill patients - a qualitative study
Publisher
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Journal Of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Female; Humans; Male; Grief; Adult; Questionnaires; Aged; Middle Aged; Professional-Family Relations; Health Services Needs and Demand; Qualitative Research; Nursing Methodology Research; Health Education; Nursing Staff; Practice; adolescent; 80 and over; Adaptation; Psychological; Attitudes; Health Knowledge; social support; Anger; Attitude to Death/ethnology; Hong Kong; Hospital/psychology; Nurse's Role/psychology; Attitude to Health/ethnology; Family/ethnology; Palliative Care/organization & administration/psychology
Creator
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Wong MS; Chan SW
Description
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AIM: To describe and understand the experiences of Chinese family members of terminally ill patients during the end of life process in a palliative care unit. BACKGROUND: Palliative care aims to provide care to dying patients and their family members. Skillful interventions are necessary to help family members cope with the impending death of the patient and maintain their emotional equilibrium. Hence, it is important to understand the experiences of family members of palliative care. DESIGN: A phenomenological study was conducted. Data were collected by semi-structured interviews. We interviewed a purposive sample of 20 family members of terminally ill patients in a palliative care unit in Hong Kong. The data were analysed following Colaizzi's phenomenological methodology. RESULTS: Family members experienced anticipatory grief, with reactions that included anger, unease, sadness and helplessness. This was particularly acute when the patient was first admitted to the palliative care unit. However, the family members quickly accepted the reality and committed themselves to the care of the patient, seeking informational and emotional support from the nurses. The families wanted to be assured that the patient had been offered good care and suffered no pain. It was considered important to be with the patient during the dying process. CONCLUSION: This study demonstrated that Chinese family members were committed to the care of the patients in the palliative care unit. Cultural beliefs played a part in influencing family emotions and concerns. RELEVANCE TO CLINICAL PRACTICE: This study offers a direction for family interventions that acknowledge the reactions of family members to the admission of a patient to a palliative care unit. It highlights that families need active informational and emotional support from nurses.
2007
Identifier
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<a href="http://doi.org/10.1111/j.1365-2702.2007.01943.x" target="_blank" rel="noreferrer">10.1111/j.1365-2702.2007.01943.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
80 And Over
Adaptation
Adolescent
Adult
Aged
Anger
Attitude To Death/ethnology
Attitude to Health/ethnology
Attitudes
Backlog
Chan SW
Family/ethnology
Female
Grief
Health Education
Health Knowledge
Health Services Needs And Demand
Hong Kong
Hospital/psychology
Humans
Journal Article
Journal of Clinical Nursing
Male
Middle Aged
Nurse's Role/psychology
Nursing Methodology Research
Nursing Staff
Palliative Care/organization & administration/psychology
Practice
Professional-family Relations
Psychological
Qualitative Research
Questionnaires
Social Support
Wong MS
-
Text
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Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2702.2007.02007.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2702.2007.02007.x</a>
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Title
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Investigating factors associate to nurses' attitudes towards perinatal bereavement care
Publisher
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Journal Of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
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Attitude; Nurses; bereavement; perinatal
Creator
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Chan MF; Lou Feng-lan; Arthur DG; Cao Feng-lin; Wu LH; Li P; Sagara-Rosemeyer M; Chung L; Lui Li
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<a href="http://doi.org/10.1111/j.1365-2702.2007.02007.x" target="_blank" rel="noreferrer">10.1111/j.1365-2702.2007.02007.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2008
2008
Arthur DG
Attitude
Backlog
Bereavement
Cao Feng-lin
Chan MF
Chung L
Journal Article
Journal of Clinical Nursing
Li P
Lou Feng-lan
Lui Li
Nurses
Perinatal
Sagara-Rosemeyer M
Wu LH
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2702.2009.03158.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2702.2009.03158.x</a>
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Patient perceptions of helpful communication in the context of advanced cancer
Publisher
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Journal Of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Creator
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Stajduhar KI; Thorne SE; McGuinnes L; Kim-Sing C
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<a href="http://doi.org/10.1111/j.1365-2702.2009.03158.x" target="_blank" rel="noreferrer">10.1111/j.1365-2702.2009.03158.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2010
2010
Backlog
Journal Article
Journal of Clinical Nursing
Kim-Sing C
McGuinnes L
Stajduhar KI
Thorne SE
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2702.2009.02935.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2702.2009.02935.x</a>
<a href="http://dx.doi.org/10.1111/j.1365-2702.2009.02935.x" target="_blank" rel="noreferrer">http://dx.doi.org/10.1111/j.1365-2702.2009.02935.x</a>
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Hospice nurses and genetics: implications for end-of-life care
Publisher
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Journal Of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
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Longitudinal Studies
Creator
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Metcalfe A; Pumphrey R; Clifford C
Identifier
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<a href="http://doi.org/10.1111/j.1365-2702.2009.02935.x" target="_blank" rel="noreferrer">10.1111/j.1365-2702.2009.02935.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2010
2010
Backlog
Clifford C
Journal Article
Journal of Clinical Nursing
Longitudinal Studies
Metcalfe A
Pumphrey R
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2702.2004.00973.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2702.2004.00973.x</a>
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Title
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Telling tales: a qualitative exploration of how children's nurses interpret work with unaccompanied hospitalized children
Publisher
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Journal Of Clinical Nursing
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2005
Subject
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Attitudes; PedPal Lit; AdultAttitude of Health Personnel Child Child; Hospital/organization & administration/psychology Parents/education/psychology Pediatric Nursing/organization & administration Qualitative Research Questionnaires%X AIMS AND OBJECTIVES: To explore how qualified children's nurses define; Hospitalized/psychology Communication England Female Grief Health Knowledge; Practice HumansLoneliness Male Middle Aged NarrationNurse's Role Nurse-Patient Relations Nursing Methodology ResearchNursing Staff
Creator
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Livesley J
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<a href="http://doi.org/10.1111/j.1365-2702.2004.00973.x" target="_blank" rel="noreferrer">10.1111/j.1365-2702.2004.00973.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
AdultAttitude of Health Personnel Child Child
Attitudes
Backlog
Hospital/organization & administration/psychology Parents/education/psychology Pediatric Nursing/organization & administration Qualitative Research Questionnaires%X AIMS AND OBJECTIVES: To explore how qualified children's nurses define
Hospitalized/psychology Communication England Female Grief Health Knowledge
Journal Article
Journal of Clinical Nursing
Livesley J
PedPal Lit
Practice HumansLoneliness Male Middle Aged NarrationNurse's Role Nurse-Patient Relations Nursing Methodology ResearchNursing Staff
-
Text
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<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16390525" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16390525</a>
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Title
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Consultation with children in hospital: children, parents' and nurses' perspectives
Publisher
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Journal Of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; England; Parent-Child Relations; Questionnaires; Communication; Hospitals; Comprehension; Nursing Staff; Pediatric; Interviews; PedPal Lit; Parents/psychology; decision making; Attitude of Health Personnel; Patient Participation; Nurse-Patient Relations; Nurse's Role; Hospital/psychology; Hospitalized/psychology
Creator
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Coyne I
Description
An account of the resource
AIMS AND OBJECTIVES: To explore children's, parents' and nurses' views on participation in care in the healthcare setting. BACKGROUND: Children have a right to be consulted and involved in their care. DESIGN: The grounded theory method was used and data were collected through in-depth interviews, questionnaires and observation. Sample consisted of 11 children, 10 parents and 12 nurses from four paediatric wards in two hospitals in England. RESULTS: Parents felt that children should be involved in the decision-making process thereby enhancing and promoting children's self-esteem and positive self-regard, which would consequently enhance their overall welfare. Likewise, children expressed the need for consultation and information so that they could understand their illness; be involved in their care, and prepare themselves for procedures. However, children's own opinions and views were underused and they had varying experiences of being consulted about their care and treatment. Nurses appeared to hold varying and discrepant views on the involvement of children in decisions and for some nurses, the child's involvement seemed to be dependent on the child's cognitive maturity and being defined as a rational subject. CONCLUSION: Health professionals' communication behaviour may reflect recognition of children's cognitive abilities rather than their competence to understand. The fact that children's nurses appeared to make decisions about involving children in decision making in the absence of a reliable framework was a significant finding and highlights a real problem in the current climate. RELEVANCE TO CLINICAL PRACTICE: Nurses faced with workforce pressures may encounter considerable challenges to facilitating children's involvement in decisions about their care. Hence it is imperative that nurses' examine the basis of their decisions and use more explicit criteria for determining children's involvement.
2006
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Type
The nature or genre of the resource
Journal Article
2006
Attitude Of Health Personnel
Backlog
Child
Communication
Comprehension
Coyne I
Decision Making
England
Hospital/psychology
Hospitalized/psychology
Hospitals
Humans
Interviews
Journal Article
Journal of Clinical Nursing
Nurse-patient Relations
Nurse's Role
Nursing Staff
Parent-child Relations
Parents/psychology
Patient Participation
Pediatric
PedPal Lit
Questionnaires
-
Text
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URL Address
<a href="http://doi.org/10.1046/j.1365-2702.2002.00611.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1365-2702.2002.00611.x</a>
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Title
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Mothers' experience of social support following the death of a child
Publisher
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Journal Of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
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Child; Female; Humans; Male; Grief; Adult; Data Collection; Interpersonal Relations; Mother-Child Relations; Questionnaires; Attitude to Death; Nurse's Role; Finland; Preschool; Adaptation; Psychological; Mothers/psychology; social support
Creator
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Laakso H; Paunonen-Ilmonen M
Description
An account of the resource
1. This study aimed at analysing the grief and coping of mothers whose child had died under the age of 7 years. The paper describes the social support received as experienced by mothers. 2. Data were collected using a survey (n=91) and interviews (n=50) with mothers who had lost their child at least 1 year previously. The questionnaire contained questions concerning background characteristics, the Hogan Grief Reaction Checklist and open-ended questions. Survey data were analysed using a two-way analysis of variance, Wilcoxon test, cross-tabulation and content analysis. Interview data were analysed using inductive content analysis. 3. Findings showed that the spouse, children, grandparents, next of kin, friends and colleagues were the main sources of support. 4. Support consisted of emotional support, informational and instrumental support, and consolation and caring. Informational support consisted of advice and guidance from the mother's own mother or fellow sufferers. Instrumental support consisted of assistance with practical issues. Negative support manifested itself in unwarranted interference by relatives in the family's affairs or breaking up of friendships. 5. Mothers expected professional practitioners to provide honest information about the dying child's illness and practical arrangements after the child's death, and to keep up hope as long as the child was alive. 6. The care facility was also expected to maintain contact with the family after the child's death.
2002
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<a href="http://doi.org/10.1046/j.1365-2702.2002.00611.x" target="_blank" rel="noreferrer">10.1046/j.1365-2702.2002.00611.x</a>
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Type
The nature or genre of the resource
Journal Article
2002
Adaptation
Adult
Attitude To Death
Backlog
Child
Data Collection
Female
Finland
Grief
Humans
Interpersonal Relations
Journal Article
Journal of Clinical Nursing
Laakso H
Male
Mother-child Relations
Mothers/psychology
Nurse's Role
Paunonen-Ilmonen M
Preschool
Psychological
Questionnaires
Social Support
-
Text
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URL Address
<a href="http://doi.org/10.1046/j.1365-2702.2002.00623.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1365-2702.2002.00623.x</a>
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Exploring multi-agency working in services to disabled children with complex healthcare needs and their families
Publisher
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Journal Of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Child; Humans; Great Britain; Cooperative Behavior; Interprofessional Relations; Family Health; Models; social support; Continuity of Patient Care/organization & administration; Organizational; Home Care Services/organization & administration; Child Health Services/organization & administration; Disabled Children/rehabilitation; Health Policy/legislation & jurisprudence; Health Services Accessibility/organization & administration; Needs Assessment/organization & administration; Patient Care Team/organization & administration; Social Work/organization & administration
Creator
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Watson D; Townsley R; Abbott D
Description
An account of the resource
Children with complex healthcare needs typically require technical and/or medical equipment in the home. This growing group of children and families need support that crosses agency and professional boundaries, necessitating effective multi-agency working. There are many examples of multi-agency working around the United Kingdom (UK), some specifically designed to meet the needs of children with complex healthcare needs and their families. Recent legislation and policy statements have highlighted the importance of joint planning and working. Currently no research exists that examines the impact of these initiatives on disabled children with complex healthcare needs and their families. The "Working Together" project is an ongoing research study based at the Norah Fry Research Centre, University of Bristol, Bristol, UK. The project aims to explore the impact of multi-agency work on children with complex healthcare needs and their families. This paper examines the literature on barriers to disabled children and the need for multi-agency working. It also considers the concept of multi-agency working and how different approaches to working together might be perceived by children and families.
2002
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<a href="http://doi.org/10.1046/j.1365-2702.2002.00623.x" target="_blank" rel="noreferrer">10.1046/j.1365-2702.2002.00623.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Abbott D
Backlog
Child
Child Health Services/organization & administration
Continuity Of Patient Care/organization & Administration
Cooperative Behavior
Disabled Children/rehabilitation
Family Health
Great Britain
Health Policy/legislation & jurisprudence
Health Services Accessibility/organization & administration
Home Care Services/organization & administration
Humans
Interprofessional Relations
Journal Article
Journal of Clinical Nursing
Models
Needs Assessment/organization & administration
Organizational
Patient Care Team/organization & administration
Social Support
Social Work/organization & administration
Townsley R
Watson D
-
Text
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URL Address
<a href="http://doi.org/10.1046/j.1365-2702.2003.00781.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1365-2702.2003.00781.x</a>
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Title
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Providing a seamless service for children with life-limiting illness: experiences and recommendations of professional staff at the Diana Princess of Wales Children's Community Service
Publisher
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Journal Of Clinical Nursing
Date
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2003
Subject
The topic of the resource
Child; Humans; England; Communication; Longitudinal Studies; Continuity of Patient Care; Nursing Evaluation Research; Staff Development; disabled children; Child Health Services/organization & administration; Catastrophic Illness/nursing; Community Health Nursing/education/organization & administration; Community Networks/organization & administration
Creator
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Danvers L; Freshwater D; Cheater F; Wilson A
Description
An account of the resource
The Diana Children's Community Teams (DCCTs), a new nurse-led service funded by the Department of Health, were established to provide care in the community as an alternative to hospital for children with life-threatening/life-limiting illnesses and their families. This paper presents selected findings highlighting the professionals' experiences which formed part of the evaluation of the Diana, Princess of Wales Children's Community Service in Leicester, Leicestershire and Rutland. The Diana Service in Leicestershire attempts to encompass both parental empowerment and interagency collaboration. By working in partnership with the children and their families, the team provides an integrated and multiprofessional community-based service. This paper particularly concentrates on the perceptions and recommendations from the Diana team itself. Three independently managed Community Nursing Services existed in Leicestershire prior to the Diana teams; a Paediatric Macmillan Service, a Children's Community Nursing Service and a Respite Service. The Leicestershire DCCT integrated the three nursing services into a single team. This team has moved away from a traditional uniprofessional service structure by encompassing a wider team of multiprofessionals, including a cultural link worker, an occupational therapist, a physiotherapist, a play specialist and a team of trained counsellors, working in partnership to provide a quality service for families. * The evaluation, which used a longitudinal multimethod process analysis based on an action research framework, suggests that children with complex and life-limiting illnesses and their families benefit greatly from an effective seamless service. This paper recommends a framework of care that may be relevant to other teams of children's community services across the country. This service has been judged by the impact it has had on the families who use it and the professionals employed within it.
2003
Identifier
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<a href="http://doi.org/10.1046/j.1365-2702.2003.00781.x" target="_blank" rel="noreferrer">10.1046/j.1365-2702.2003.00781.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Backlog
Catastrophic Illness/nursing
Cheater F
Child
Child Health Services/organization & administration
Communication
Community Health Nursing/education/organization & administration
Community Networks/organization & administration
Continuity Of Patient Care
Danvers L
Disabled Children
England
Freshwater D
Humans
Journal Article
Journal of Clinical Nursing
Longitudinal Studies
Nursing Evaluation Research
Staff Development
Wilson A
-
Text
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URL Address
<a href="http://doi.org/10.1046/j.1365-2702.2003.00866.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1365-2702.2003.00866.x</a>
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Title
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Advanced home care: Patients opinions on quality compared with those of family members
Publisher
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Journal Of Clinical Nursing
Date
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2004
Creator
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Larsson B; Larsson G; Carlson SR
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<a href="http://doi.org/10.1046/j.1365-2702.2003.00866.x" target="_blank" rel="noreferrer">10.1046/j.1365-2702.2003.00866.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2004
2004
Backlog
Carlson SR
Journal Article
Journal of Clinical Nursing
Larsson B
Larsson G
-
Text
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Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2702.2001.00538.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2702.2001.00538.x</a>
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Title
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Support as a crucial predictor of good compliance of adolescents with a chronic disease
Publisher
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Journal Of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Female; Humans; Male; Physician-Patient Relations; Interpersonal Relations; Logistic Models; Questionnaires; Nurse-Patient Relations; Finland; Predictive Value of Tests; Motivation; adolescent; Arthritis; Family/psychology; Adolescent Transitions; social support; Adolescent Behavior/psychology; Diabetes Mellitus; Chronic Disease/psychology/therapy; Adolescent Psychology/statistics & numerical data; Asthma/prevention & control/psychology; Epilepsy/prevention & control/psychology; Juvenile Rheumatoid/prevention & control/psychology; Patient Compliance/psychology/statistics & numerical data; Type 1/prevention & control/psychology
Creator
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Kyngas H; Rissanen M
Description
An account of the resource
The purpose of this study was to describe the factors that predict compliance among adolescents with a chronic illness. The data were collected by questionnaires from adolescents with asthma, epilepsy, juvenile rheumatoid arthritis (JRA) and insulin-dependent diabetes mellitus (IDDM). Groups of 300 adolescents with these illnesses were selected from the Finnish Social Insurance Institution's register, giving a total study series of 1200 individuals. The final response percentage was 88% (n = 1061). The data were analysed with the SPSS software. Logistic regression was used to indicate the predictors of good compliance. The compliance of adolescents with a chronic disease was predicted on the basis of support from parents, nurses, physicians and friends, as well as motivation, energy and willpower. The most powerful predictor was support from nurses. The likelihood of adolescents supported by nurses complying with health regimens was 7.28-fold compared to the adolescents who did not receive support from nurses. The next powerful predictor was energy and willpower. Adolescents who had the energy and willpower to take care of themselves complied with health regimens with a 6.69-fold likelihood compared to the adolescents who did not have energy and willpower. Adolescents who had good motivation were 5.28 times more likely to comply than the adolescents who did not have motivation. Support from parents, physicians and friends similarly predicted good compliance with health regimens.
2001
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2702.2001.00538.x" target="_blank" rel="noreferrer">10.1111/j.1365-2702.2001.00538.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2001
Adolescent
Adolescent Behavior/psychology
Adolescent Psychology/statistics & numerical data
Adolescent Transitions
Arthritis
Asthma/prevention & control/psychology
Backlog
Chronic Disease/psychology/therapy
Diabetes Mellitus
Epilepsy/prevention & control/psychology
Family/psychology
Female
Finland
Humans
Interpersonal Relations
Journal Article
Journal of Clinical Nursing
Juvenile Rheumatoid/prevention & control/psychology
Kyngas H
Logistic Models
Male
Motivation
Nurse-patient Relations
Patient Compliance/psychology/statistics & numerical data
Physician-patient Relations
Predictive Value of Tests
Questionnaires
Rissanen M
Social Support
Type 1/prevention & control/psychology
-
Text
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URL Address
<a href="http://doi.org/10.1111/j.1365-2702.2012.04179.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2702.2012.04179.x</a>
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Title
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Tracking the route to sustainability: a service evaluation tool for an advance care planning model developed for community palliative care services.
Publisher
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Journal Of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Subject
The topic of the resource
Humans; Terminal Care; Advance Directives; Victoria; Qualitative Research; Health Services Research; Nursing Staff; advance care planning; DNAR; Palliative Care; Organizational; Models; Community Health Services; Program Evaluation/mt [Methods]; Community Health Services/og [Organization & Administration]
Creator
An entity primarily responsible for making the resource
Blackford J; Street A
Description
An account of the resource
AIMS AND OBJECTIVES: The study aim was to develop a service evaluation tool for an advance care planning model implemented in community palliative care., BACKGROUND: Internationally, advance care planning programmes usually measure success by completion rate of advance directives or plans. This outcome measure provides little information to assist nurse managers to embed advance care planning into usual care and measure their performance and quality over time. An evaluation tool was developed to address this need in Australian community palliative care services., DESIGN: Multisite action research approach., METHODS: Three community palliative care services located in Victoria, Australia, participated. Qualitative and quantitative data collection strategies were used to develop the Advance Care Planning-Service Evaluation Tool., RESULTS: The Advance Care Planning-Service Evaluation Tool identified advance care planning progress over time across three stages of Establishment, Consolidation and Sustainability within previously established Model domains of governance, documentation, practice, education, quality improvement and community engagement. The tool was used by nurses either as a peer-assessment or self-assessment tool that assisted services to track their implementation progress as well as plan further change strategies., CONCLUSION: The Advance Care Planning-Service Evaluation Tool was useful to nurse managers in community palliative care. It provided a clear outline of service progress, level of achievement and provided clear direction for planning future changes., RELEVANCE TO CLINICAL PRACTICE: The Advance Care Planning-Service Evaluation Tool enables nurses in community palliative care to monitor, evaluate and plan quality improvement of their advance care planning model to improve end-of-life care. As the tool describes generic healthcare processes, there is potential transferability of the tool to other types of services.Copyright © 2012 Blackwell Publishing Ltd.
Identifier
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<a href="http://doi.org/10.1111/j.1365-2702.2012.04179.x" target="_blank" rel="noreferrer">10.1111/j.1365-2702.2012.04179.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
Advance Care Planning
Advance Directives
Backlog
Blackford J
Community Health Services
Community Health Services/og [Organization & Administration]
DNAR
Health Services Research
Humans
Journal Article
Journal of Clinical Nursing
Models
Nursing Staff
Organizational
Palliative Care
Program Evaluation/mt [Methods]
Qualitative Research
Street A
Terminal Care
Victoria
-
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Title
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February 2018 List
Text
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Citation List Month
February 2018 List
URL Address
<a href="http://doi.org/10.1111/jocn.13941" target="_blank" rel="noreferrer">http://doi.org/10.1111/jocn.13941</a>
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The role of hospice in the transition from hospital to home for technology-dependent children-A qualitative study
Publisher
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Journal Of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Child; Hospices; Only Child
Creator
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Price J; McCloskey S; Brazil K
Description
An account of the resource
Aims and objectives To report parent and professional perspectives of step-down care in assisting the transition from hospital to home, within one children's hospice in a constituent country of the United Kingdom. Background In recent years, increasing numbers of children-dependent on long term assisted ventilation have been noted. Meeting the complex physical, emotional and social needs of the child and family is challenging. Many of these children spend extended periods in hospital even when medically stable. Design This was a qualitative study using an inductive, semantic analytic approach within a realist epistemology. Methods Data collection was carried out in 2013. Interviews took place with parents ( n = 5) and focus groups with professionals ( n = 26) who had experience of step-down care. Results Multiple benefits of step-down in the hospice were clear. Both sets of accounts suggested that for children and families life was 'on hold' in hospital. Hospice was considered a home-like environment where the child and family could 'live again'. Parents reflected that, in hospice they were 'living, not existing' while professionals highlighted hospice as nurturing and empowering the whole family, promoting the child's development while safely meeting their clinical needs. Conclusions and relevance to clinical practice The study highlights a number of crucial benefits to the child and family both in the immediate and longer terms. The collective perspectives therefore endorse hospice as a potential viable choice for these children and their families during the always difficult, usually protracted transition from hospital to home.
Identifier
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<a href="http://doi.org/10.1111/jocn.13941" target="_blank" rel="noreferrer">10.1111/jocn.13941</a>
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2018
Brazil K
Child
February 2018 List
Hospices
Journal of Clinical Nursing
McCloskey S
Only Child
Price J
-
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Title
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January 2018 List
Text
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Citation List Month
January 2018 List
URL Address
<a href="http://doi.org/10.1111/jocn.13624" target="_blank" rel="noreferrer">http://doi.org/10.1111/jocn.13624</a>
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Title
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Intensive care bereavement practices across New Zealand and Australian intensive care units: a qualitative content analysis
Publisher
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Journal of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Bereavement; Critical Care Nursing; Practice Patterns Nurses'; Adult; Australia; bereavement; Child; Death; dying; end-of-life care; Family; Female; Humans; Intensive Care; Intensive Care Units; Internet; Male; New Zealand; nursing role; Patient-Centered Care; Surveys and Questionnaires
Creator
An entity primarily responsible for making the resource
Coombs M; Mitchell M; James S; Wetzig K
Description
An account of the resource
BACKGROUND: End-of-life and bereavement care is an important consideration in intensive care. This study describes the type of bereavement care provided in intensive care units across Australia and New Zealand. DESIGN: Inductive qualitative content analysis was conducted on free-text responses to a web-based survey exploring unit-based bereavement practice distributed to nurse managers in 229 intensive care units in New Zealand and Australia. RESULTS: A total of 153 (67%) surveys were returned with 68 respondents making free-text responses. Respondents were mainly Australian (n = 54, 85.3%), from the public sector (n = 51, 75%) and holding Nurse Unit Managers/Charge Nurse roles (n = 39, 52.9%). From the 124 free-text responses, a total of 187 individual codes were identified focussing on bereavement care practices (n = 145, 77.5%), educational provision to support staff (n = 15, 8%) and organisational challenges (n = 27, 14.4%). Bereavement care practices described use of memory boxes, cultural specificity, annual memorial services and use of community support services. Educational provision identified local in-service programmes, and national bereavement courses for specialist bereavement nurse coordinators. Organisational challenges focussed on lack of funding, especially for provision of bereavement follow-up. CONCLUSIONS: This is the first Australasian-wide survey, and one of the few international studies, describing bereavement practices within intensive care, an important aspect of nursing practice. However, with funding for new bereavement services and education for staff lacking, there are continued challenges in developing bereavement care. Given knowledge about the impact of these areas of care on bereaved family members, this requires review. RELEVANCE TO CLINICAL PRACTICE: Nurses remain committed to supporting bereaved families during and following death in intensive care. With limited resource to support bereavement care, intensive care nurses undertake a range of bereavement care practices at time of death, and after death through family bereavement follow-up.
Identifier
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<a href="http://doi.org/10.1111/jocn.13624" target="_blank" rel="noreferrer">10.1111/jocn.13624</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Adult
Australia
Bereavement
Child
Coombs M
Critical Care Nursing
Death
Dying
End-of-life Care
Family
Female
Humans
Intensive Care
Intensive Care Units
Internet
James S
January 2018 List
Journal of Clinical Nursing
Male
Mitchell M
New Zealand
nursing role
Patient-centered Care
Practice Patterns Nurses'
Surveys And Questionnaires
Wetzig K
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2017 List
Notes
<p>1365-2702<br />Tseng, Ying-Fen<br />Cheng, Hsiu-Rong<br />Chen, Yu-Ping<br />Yang, Shu-Fei<br />Cheng, Pi-Tzu<br />Journal Article<br />England<br />J Clin Nurs. 2017 Sep 7. doi: 10.1111/jocn.14059.</p>
URL Address
<a href="http://onlinelibrary.wiley.com/doi/10.1111/jocn.14059/abstract" target="_blank" rel="noreferrer">http://onlinelibrary.wiley.com/doi/10.1111/jocn.14059/abstract</a>
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Title
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Grief reactions of couples to perinatal loss: a one-year prospective follow-up
Publisher
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Journal of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
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Gee; Grief; Marital Relationship; Miscarriage; Parents; Perinatal Loss; Social Support; Stillbirth
Creator
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Tseng YF; Cheng HR; Chen YP; Yang SF; Cheng PT
Description
An account of the resource
BACKGROUND: Perinatal losses are traumatic events in the lives of families and can have serious long-term consequences for the psychological health of parents and any subsequent children. DESIGN: A prospective follow-up study. METHODS: We recruited, at a teaching hospital in southern Taiwan, a convenience sample of 30 couples whose babies either miscarried or were stillborn. At one month (T1), three months (T2), six months (T3), and one year (T4) after the pregnancy loss, all participants completed four questionnaires. To analyze the changing status of their grief and its related factors, we used a Generalized Estimating Equation (GEE) to account for correlations between repeated observations. RESULTS: Post-bereavement grief levels fell over the four time-points. Mothers reported feeling more grief than did the fathers. Couples with a history of infertility, no religious beliefs, or no living children before the loss felt more grief from a perinatal miscarriage or stillbirth. Furthermore, couples reported more grief if their marital satisfaction level was low, if their socioemotional support from their in-laws was low, or if they had never participated in a ritual for their deceased baby. CONCLUSIONS: Three months post-loss is the crucial period for bereaved parents after a perinatal loss. Being a parent, having no previous living children, and low-level socioemotional support from the mother's parents-in-law are significant high-risk factors for a high level of grief one year after perinatal death. RELEVANCE TO CLINICAL PRACTICE: We recommend that health professionals increase their ability to identify the factors that psychologically affect post-loss grief. Active post-loss follow-up programs should focus on these factors to offer specific support and counselling. This article is protected by copyright. All rights reserved.
Identifier
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<a href="https://doi.org/10.1111/jocn.14059" target="_blank" rel="noreferrer">10.1111/jocn.14059</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Chen YP
Cheng HR
Cheng PT
Gee
Grief
Journal of Clinical Nursing
Marital Relationship
Miscarriage
November 2017 List
Parents
Perinatal Loss
Social Support
Stillbirth
Tseng YF
Yang SF
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2017 List
URL Address
http://ezproxy.library.ubc.ca/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=psyh&AN=2017-41949-001&site=ehost-live&scope=site
Notes
<p>Faculty of Health, Social Care and Education, Kingston University and St George's, University London, Kingston upon Thames, United Kingdom. Other Publishers: Blackwell Publishing. Release Date: 20170921. Publication Type: Journal (0100), Peer Reviewed Journal (0110). Format Covered: Electronic. Language: English. Major Descriptor: No terms assigned. Classification: Health & Mental Health Treatment & Prevention (3300). Publication History: Accepted Date: Jun 22, 2017. Copyright Statement: John Wiley & Sons Ltd. 2017.</p>
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Title
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The role of hospice in the transition from hospital to home for technology‐dependent children—a qualitative study
Publisher
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Journal of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
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2017; Children; Discharge Planning; Hospital; No Terms Assigned; Technology
Creator
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Price Jayne; McCloskey Sharon; Brazil Kevin
Description
An account of the resource
Aims and objectives To report parent and professional perspectives of step‐down care in assisting the transition from hospital to home, within one children's hospice in a constituent country of the United Kingdom. Background In recent years, increasing numbers of children‐dependent on long term assisted ventilation have been noted. Meeting the complex physical, emotional and social needs of the child and family is challenging. Many of these children spend extended periods in hospital even when medically stable. Design This was a qualitative study using an inductive, semantic analytic approach within a realist epistemology. Methods Data collection was carried out in 2013. Interviews took place with parents (n = 5) and focus groups with professionals (n = 26) who had experience of step‐down care. Results Multiple benefits of step‐down in the hospice were clear. Both sets of accounts suggested that for children and families life was 'on hold' in hospital. Hospice was considered a home‐like environment where the child and family could 'live again'. Parents reflected that, in hospice they were 'living, not existing' while professionals highlighted hospice as nurturing and empowering the whole family, promoting the child's development while safely meeting their clinical needs. Conclusions and relevance to clinical practice The study highlights a number of crucial benefits to the child and family both in the immediate and longer terms. The collective perspectives therefore endorse hospice as a potential viable choice for these children and their families during the always difficult, usually protracted transition from hospital to home. (PsycINFO Database Record (c) 2017 APA, all rights reserved)
Identifier
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10.1111/jocn.13941
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Brazil Kevin
Children
Discharge Planning
Hospital
Journal of Clinical Nursing
McCloskey Sharon
November 2017 List
Price Jayne
Technology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
July 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The Experiences Of Families Living With The Anticipatory Loss Of A School-age Child With Spinal Muscular Atrophy – The Parents’ Perspectives
Publisher
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Journal Of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Adult; Child; Female; Grief; Humans; Interviews As Topic; Male; Middle Aged; Muscular Atrophy Spinal/nursing; Muscular Atrophy Spinal/psychology; Nurse's Role; Parents/psychology; Taiwan
Anticipatory Loss; School-age Children; Spinal Muscular Atrophy
Creator
An entity primarily responsible for making the resource
Yang
Description
An account of the resource
Aims and objectives
To probe into parents’ anticipatory loss of school-age children with Type I or II spinal muscular atrophy.
Background
Spinal muscular atrophy is a rare disorder that causes death. Children die early due to either gradual atrophy or an infection of the lungs. Therefore, family members experience anticipatory loss, which causes grief before the actual loss. Family members feel physically and mentally exhausted, which results in a family crisis. Therefore, it is important to explore their experiences related to anticipatory loss to assist with the adjustment of the families to their circumstances.
Design
This study applied a phenomenology method and purposive sampling.
Participants
The 19 parents who participated in this study were referred to us by two medical centers in Taiwan. Their average age was 32–49 years.
Methods
Using in-depth interviews, this study explored parents’ anticipatory loss. The interviews were recorded and transcribed. Meanings were extracted using Giorgi analysis, and precision was assessed according to Guba and Lincoln, which was treated as the evaluation standard.
Results
Four themes were identified from the parents’ interviews. The themes included enduring the helplessness and pressure of care, suffering due to the child's rare and unknown condition, loss of hope and a reinforcement of the parent–child attachment, and avoiding the pressure of death and enriching the child's life.
Conclusions
The research findings help nurses identify anticipatory loss among parents of school-age children with type I or II spinal muscular atrophy. They enhance health professionals’ understanding of the panic that occurs in the society surrounding the families, family members’ dynamic relationships, and the families’ demands for care.
Relevance to clinical practice
In an attempt to providing intersubjective empathy and support with family having a child with type I and II SMA, nurses may recognize relevant family reactions and enhancing their hope and parent-child attachment. Encourage family members and child go beyond the pressure of death and create customized care plans meeting families’ emotional and medical needs.
Identifier
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DOI: 10.1111/jocn.13312
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adult
Anticipatory Loss
Child
Female
Grief
Humans
Interviews As Topic
Journal of Clinical Nursing
July 2016 List
Male
Middle Aged
Muscular Atrophy Spinal/nursing
Muscular Atrophy Spinal/psychology
Nurse's Role
Parents/psychology
School-age Children
Spinal Muscular Atrophy
Taiwan
Yang