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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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URL Address
<a href="http://doi.org/10.1001/jama.2009.109" target="_blank" rel="noreferrer">http://doi.org/10.1001/jama.2009.109</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Referring a patient and family to high-quality palliative care at the close of life: "We met a new personality... with this level of compassion and empathy"
Publisher
An entity responsible for making the resource available
Journal Of The American Medical Association
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Humans; Male; Middle Aged; Family Relations; Hospices; Quality of Health Care; Primary Health Care; patient care team; referral and consultation; empathy; Neoplasms; Palliative Care/standards; social support
Creator
An entity primarily responsible for making the resource
Teno JM; Connor SR
Description
An account of the resource
Palliative care services are increasingly available to primary care physicians for both expert consultations and services to seriously ill patients. The United States now has more than 1400 hospital-based palliative care teams and more than 4700 hospice programs. We use an illustrative case of a palliative care hospitalization and intervention for a middle-aged man with severe pain from spinal metastases to discuss 4 key questions that a primary care physician faces in caring for the seriously ill patient with difficult symptom management: (1) Should I refer a patient to a hospital-based palliative care team or to hospice services for difficult symptom management? (2) If the patient is referred to a hospital-based palliative care team, what should I, as the primary care physician, expect? (3) When should I refer to hospice services a patient initially referred to a hospital-based palliative care team? and (4) How can I choose a hospice program that will provide competent, coordinated, and compassionate patient- and family-centered care? Primary care physicians now may choose among hospice programs, and the programs may vary in their quality of care. Validated tools to measure patient and family perceptions of the quality of hospice care are now available but progress in defining and measuring the quality of hospice care is still needed before actionable information will be available to guide the choice of hospice programs for physicians and consumers.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/jama.2009.109" target="_blank" rel="noreferrer">10.1001/jama.2009.109</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Backlog
Connor SR
Empathy
Family Relations
Hospices
Humans
Journal Article
Journal Of The American Medical Association
Male
Middle Aged
Neoplasms
Palliative Care/standards
Patient Care Team
Primary Health Care
Quality Of Health Care
Referral And Consultation
Social Support
Teno JM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/jama.297.24.2725" target="_blank" rel="noreferrer">http://doi.org/10.1001/jama.297.24.2725</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Shifting place of death among children with complex chronic conditions in the United States, 1989-2003
Publisher
An entity responsible for making the resource available
Journal Of The American Medical Association
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Child; Female; Humans; infant; Male; Attitude to Death; adolescent; Preschool; infant; Newborn; retrospective studies; United States/epidemiology; Chronic Disease/mortality; Hospitals/statistics & numerical data; Palliative Care/statistics & numerical data; Residence Characteristics/statistics & numerical data; Terminally Ill/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Feudtner C; Feinstein JA; Satchell M; Zhao H; Kang T
Description
An account of the resource
CONTEXT: The place where children with complex chronic conditions are dying may be shifting toward residential homes due to the evolving epidemiology of life-threatening childhood conditions, advances in home-based medical technology, and changes in attitudes about pediatric palliative care and hospice services. OBJECTIVES: To determine whether pediatric deaths attributed to complex chronic conditions are increasingly occurring in the home and to assess race and ethnicity disparities in the location of death. DESIGN, SETTING, AND PARTICIPANTS: Retrospective national-level case series drawn from the National Center for Health Statistics' Multiple Cause of Death Files spanning 1989-2003. Participants included all deceased individuals aged 19 years or younger with a complex chronic condition excluding injury and noncomplex chronic conditions (as classified by International Classification of Diseases, Ninth Revision or International Classification of Diseases, Tenth Revision). MAIN OUTCOME MEASURE: Place where death occurred. RESULTS: Among the 22.1% of deaths (198 160 of 896 509 total deaths) attributed to a complex chronic condition between 1989 and 2003, the percentage of individuals dying at home increased significantly (P<.001) over time for infants (aged <1 year) (4.9% in 1989 and 7.3% in 2003); 1- to 9-year-olds (17.9% and 30.7%); and for 10- to 19-year-olds (18.4% and 32.2%). Adjusting for decedent characteristics, the odds of dying at home increased significantly each year (odds ratio, 1.04; 95% confidence interval, 1.03-1.04) and were reduced among both black and Hispanic decedents (odds ratio, 0.50; 95% confidence interval, 0.48-0.52 and odds ratio, 0.52; 95% confidence interval, 0.50-0.54, respectively) compared with white decedents. CONCLUSIONS: Children who die with underlying complex chronic conditions increasingly are dying at home. Racial and ethnic disparities regarding place of death may represent important limitations and opportunities for improvement in the current systems of pediatric chronic and palliative care.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/jama.297.24.2725" target="_blank" rel="noreferrer">10.1001/jama.297.24.2725</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Adolescent
Attitude To Death
Backlog
Child
Chronic Disease/mortality
Feinstein JA
Female
Feudtner C
Hospitals/statistics & numerical data
Humans
Infant
Journal Article
Journal Of The American Medical Association
Kang T
Male
Newborn
Palliative Care/statistics & Numerical Data
Preschool
Residence Characteristics/statistics & numerical data
Retrospective Studies
Satchell M
Terminally Ill/statistics & numerical data
United States/epidemiology
Zhao H
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/jama.286.15.1897" target="_blank" rel="noreferrer">http://doi.org/10.1001/jama.286.15.1897</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Narrative medicine. A model for empathy, reflection, profession, and trust
Publisher
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Journal Of The American Medical Association
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Physicians; Qualitative Research; Health; methods; medicine; narrative
Creator
An entity primarily responsible for making the resource
Charon R
Description
An account of the resource
The effective practice of medicine requires narrative competence, that is, the ability to acknowledge, absorb, interpret, and act on the stories and plights of others. Medicine practiced with narrative competence, called narrative medicine, is proposed as a model for humane and effective medical practice. Adopting methods such as close reading of literature and reflective writing allows narrative medicine to examine and illuminate 4 of medicine's central narrative situations: physician and patient, physician and self, physician and colleagues, and physicians and society. With narrative competence, physicians can reach and join their patients in illness, recognize their own personal journeys through medicine, acknowledge kinship with and duties toward other health care professionals, and inaugurate consequential discourse with the public about health care. By bridging the divides that separate physicians from patients, themselves, colleagues, and society, narrative medicine offers fresh opportunities for respectful, empathic, and nourishing medical care.
2001
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/jama.286.15.1897" target="_blank" rel="noreferrer">10.1001/jama.286.15.1897</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2001
Backlog
Charon R
Health
Journal Article
Journal Of The American Medical Association
Medicine
Methods
Narrative
Physicians
Qualitative Research
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11074760" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11074760</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Palliative and hospice care needed for children with life-threatening conditions
Publisher
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Journal Of The American Medical Association
Date
A point or period of time associated with an event in the lifecycle of the resource
2000
Subject
The topic of the resource
Child; United States; Practice Guidelines; Human; Pediatrics/standards; Hospice Care/standards; Palliative Care/standards
Creator
An entity primarily responsible for making the resource
Stephenson J
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2000
2000
Backlog
Child
Hospice Care/standards
Human
Journal Article
Journal Of The American Medical Association
Palliative Care/standards
Pediatrics/standards
Practice Guidelines
Stephenson J
United States