Uncertainty and coping in fathers of children with cancer
Fathers; coping
1996
Sterken DJ
Journal Of Pediatric Oncology Nursing
1996
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1016/s1043-4542(96)90059-4" target="_blank" rel="noreferrer">10.1016/s1043-4542(96)90059-4</a>
Crisis intervention strategies when caring for families of children with cancer
Child; Humans; Adult; Professional-Family Relations; Patient Care Planning; Family/psychology; Intervention; Interventions; Parent caregivers; Nursing Assessment/methods; Crisis Intervention/methods; Neoplasms/nursing/psychology
A diagnosis of childhood cancer is an unexpected life event that often precipitates a situational crisis for all family members. Required cancer treatments and other ongoing stressors for both child and family will significantly disrupt the family's equilibrium and well-being. An increasingly important role of the pediatric oncology nurse is to facilitate crisis intervention strategies that help families adjust to the psychosocial stresses associated with childhood cancer, yet many nurses have little or no training in crisis theory and/or crisis intervention strategies. This article reviews family crisis theories and outlines crisis intervention strategies that are appropriate for the family of a child with cancer.
2000
Hendricks-Ferguson VL
Journal Of Pediatric Oncology Nursing
2000
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1177/104345420001700102" target="_blank" rel="noreferrer">10.1177/104345420001700102</a>
Choices and control: parental experiences in pediatric terminal home care
Child; Humans; Choice Behavior; Internal-External Control; Reproducibility of Results; Observer Variation; adolescent; Preschool; Adaptation; Psychological; Parents/psychology; location of death; Home Care Services/statistics & numerical data; Caregivers/psychology/statistics & numerical data; Interviews/methods; Terminal Care/psychology/statistics & numerical data
During the past decade, palliative care at home has become an alternative option to hospital care for terminally ill children. This study describes the experience of caring for a dying child at home from a parent's perspective. A qualitative research design was used to conduct and analyze data. Nonstandardized, focused interviews were conducted with 10 families. Thematic content analysis assisted in deriving themes from the transcripts of the interviews. "Choice and control" was the major theme that linked all the other concepts, and it appeared to be fundamental to parental coping strategies. Most parents were willing to take responsibility for the nursing care of their child, including administration of intravenous medication. The patient's home was the overwhelming choice of parents for delivery of terminal care, with most parents perceiving it as their child's choice also.
Vickers JL; Carlisle C
Journal Of Pediatric Oncology Nursing
2000
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1177/104345420001700103" target="_blank" rel="noreferrer">10.1177/104345420001700103</a>
Hospice care for children: past, present, and future
Child; Humans; Health Services Research; Forecasting; adolescent; Preschool; infant; mortality; administration/statistics &; Child Health Services/organization &; Home Care Services/organization &; Hospices/organization &; numerical data/trends
Of the 100,000 children who die each year in the United States, close to 15,000 children could benefit from hospice/home care services. This article describes the concept of pediatric hospice care, reviews the Martinson study that was conducted in the 1970s, gives a chronological report on some institutions that provide hospice care for children in the United States and other parts of the world, and discusses the future of pediatric hospice care.
1993
Martinson IM
Journal Of Pediatric Oncology Nursing
1993
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1177/104345429301000304" target="_blank" rel="noreferrer">10.1177/104345429301000304</a>
Fathers of children with cancer: A descriptive study of their stressors and coping strategies
Fathers; coping
1994
Cayse LN
Journal Of Pediatric Oncology Nursing
1994
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1177/104345429401100304" target="_blank" rel="noreferrer">10.1177/104345429401100304</a>
Distress among hospitalized pediatric cancer patients modified by pet therapy intervention to improve quality of life
Urbanski BL; Lazenby M
Journal Of Pediatric Oncology Nursing
2012
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1177/1043454212455697" target="_blank" rel="noreferrer">10.1177/1043454212455697</a>
Improving the Quality of End-of-Life Care in Pediatric Oncology Patients Through the Early Implementation of Palliative Care
Providing end-of-life care to children with cancer is most ideally achieved by initiating palliative care at the time of diagnosis, advocating for supportive care throughout the treatment trajectory, and implementing hospice care during the terminal phase. The guiding principles behind offering palliative care to pediatric oncology patients are the prioritization of providing holistic care and management of disease-based symptoms. Pediatric hematology-oncology nurses and clinicians have a unique responsibility to support the patient and family unit and foster a sense of hope, while also preparing the family for the prognosis and a challenging treatment trajectory that could result in the child's death. In order to alleviate potential suffering the child may experience, there needs to be an emphasis on supportive care and symptom management. There are barriers to implementing palliative care for children with cancer, including the need to clarify the palliative care philosophy, parental acknowledgement and acceptance of a child's disease and uncertain future, nursing awareness of services, perception of availability, and a shortage of research guidance. It is important for nurses and clinicians to have a clear understanding of the fundamentals of palliative and end-of-life care for pediatric oncology patients to receive the best care possible.
Ranallo L
Journal Of Pediatric Oncology Nursing
2017
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1177/1043454217713451" target="_blank" rel="noreferrer">10.1177/1043454217713451</a>
Human suffering: the need for relationship-based research in pediatric end-of-life care
Interpersonal Relations; Neoplasms/co [complications]; Nursing Research/og [organization & Administration]; Oncology Nursing/og [organization & Administration]; Pediatric Nursing/og [organization & Administration]; Psychology; Stress; Terminal Care; Adaptation; Child; Health Services Needs And Demand; Humans; Psychological; Psychological/et [etiology]; Psychological/nu [nursing]; Psychological/px [psychology]; Quality Of Life; Sick Role; Social Support; Spirituality; Stress; Terminal Care/og [organization & Administration]; Terminal Care/px [psychology]
Children living with and dying from advanced cancer and their families experience significant suffering. The cure of disease and the relief of suffering are dual moral obligations of our professions. To relieve suffering, health care providers must understand the multiple dimensions of the person who suffers and the complex set of relationships within the natural and the clinical social networks. Pediatric oncology research must include appropriately designed studies with sound methodology and measurement strategies to test and refine theories that account for the link between human relationships and the relief of suffering. Studies should assess as many theoretical models as possible, including the social network, perceptions of support, and provider-recipient interactions; their physical, emotional, behavioral, and spiritual concomitants; and their impact on medical decision making and health outcomes. Future directions in pediatric end-of-life care research must also include evaluating social and spiritual interventions developed on the basis of solid hypotheses regarding the positive and negative influences of interpersonal dynamics on the processes that mediate between suffering and well-being. [References: 29]
Kane JR; Hellsten MB; Coldsmith A
Journal Of Pediatric Oncology Nursing
2004
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1177/1043454204264393" target="_blank" rel="noreferrer">10.1177/1043454204264393</a>
End-Of-Life Research as a Priority for Pediatric Oncology
Neoplasms; Nursing Research/og [organization & Administration]; Oncology Nursing/og [organization & Administration]; Pediatric Nursing/og [organization & Administration]; Terminal Care/og [organization & Administration]; Adaptation; Attitude To Death; Child; Decision Making; Family/px [psychology]; Grief; Health Priorities/og [organization & Administration]; Humans; Needs Assessment; Neoplasms/nu [nursing]; Neoplasms/px [psychology]; Psychological; Psychology; Social Support; Survivors/px [psychology]; Terminal Care/px [psychology]
Approximately 2,200 children and adolescents die a cancer-related death each year in the United States; of these, almost 90% will die while experiencing 2 to 8 troubling symptoms. With improved symptom control and end-of-life care, these patients might suffer less before they die and their survivors might experience fewer or less intense adverse physical and mental conditions secondary to their bereavement. The focus of this article is on five key areas related to end of life where research is critically needed; (a) the characteristics of cancer-related death and the profiles of survivorship in bereaved family members and health care providers, (b) the trajectory of dying in children and adolescents and a comparison of care delivery preferred by the family and that actually delivered, (c) end-of-life decision making, (d) the financial costs of a child or adolescent dying a cancer-related death and associated policy making, and (e) outcomes of symptom-directed or bereavement interventions. Knowing the characteristics of cancer-related deaths in children and adolescents will help researchers and clinicians develop and test effective interventions related to symptom management, decision making, and availability of care delivery models that match the dying child's needs and preferences. Such interventions could also contribute to the highest quality and cost-effective care being provided to the bereaved survivors. [References: 26]
Hinds PS; Pritchard M; Harper J
Journal Of Pediatric Oncology Nursing
2004
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1177/1043454204264386" target="_blank" rel="noreferrer noopener">10.1177/1043454204264386</a>
End of life in pediatric oncology: how clinical practice leads to research
Biomedical Research; Evidence-based Medicine; Oncology Nursing/td [trends]; Pediatrics/td [trends]; Child; Humans; Research Design
In pediatric oncology nursing, and across practice disciplines in general, clinical research serves as the cornerstone for improving patient care. Historically, advances made in the care and cure of childhood cancer have stemmed directly from clinical research. The developments of new research questions are varied in their origin--some questions are based on previous work that leads logically to the next question, some are based on a clinical problem that requires more immediate attention, and then there are those that arise from an individual clinical experience. This last category provides clinicians with a poignant reason to search for answers on how to provide the most optimal care for all future patients. As the number of advanced practice nurses in pediatric oncology increases, there is the likelihood of an increased pursuit of clinical research. This article describes how one clinician's experience with dying children resulted in the pursuit of answers to clinical research questions. By reflecting on clinical practice and incorporating our practice in the development of research questions, we can improve the quality of care provided to all children with cancer. Copyright 2002 by Association of Pediatric Oncology Nurses
Pritchard M; Davies B
Journal Of Pediatric Oncology Nursing
2002
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1053/jpon.2002.127226" target="_blank" rel="noreferrer noopener">10.1053/jpon.2002.127226</a>
Cultural Influences in Pediatric Cancer from Diagnosis to Cure/End of Life
Adaptation; Caregivers/px [psychology]; Cultural Characteristics; Neoplasms/px [psychology]; Patients/px [psychology]; Survivors/px [psychology]; Adolescent; Adult; Child; Humans; Infant; Middle Aged; Newborn; Preschool; Psychological
OBJECTIVE: To review the literature on cultural factors influencing clinical care and family management of pediatric cancer. METHODS: A literature review including 72 articles related to cultural issues in pediatric cancer was conducted. Information was organized around several clinically driven themes. RESULTS: Cultural factors influenced many aspects of the cancer experience including illness representations, reaction to diagnosis, illness disclosure patterns, complementary and alternative medicine use, management of medical procedures, coping strategies, and end of life issues. CONCLUSION: Increased awareness of cultural factors is needed to improve clinical care and reduce health disparities. Specific strategies to approach cultural differences are provided to enhance patient and family care from diagnosis to cure/end of life.
Gray WN; Szulczewski LJ; Regan SMP; Williams JA; Pai AL
Journal Of Pediatric Oncology Nursing
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1177/1043454214529022" target="_blank" rel="noreferrer noopener">10.1177/1043454214529022</a>
An Online Educational Program Improves Pediatric Oncology Nurses' Knowledge, Attitudes, and Spiritual Care Competence
Computer-assisted Instruction/mt [methods]; Neoplasms/nu [nursing]; Nurse's Role; Oncology Nursing/ed [education]; Pediatric Nursing/ed [education]; Spiritual Therapies/nu [nursing]; Adult; Attitudes; Child; Female; Health Knowledge; Humans; Male; Practice; Prospective Studies
This study evaluated the potential impact of an online spiritual care educational program on pediatric nurses' attitudes toward and knowledge of spiritual care and their competence to provide spiritual care to children with cancer at the end of life. It was hypothesized that the intervention would increase nurses' positive attitudes toward and knowledge of spiritual care and increase nurses' level of perceived spiritual care competence. A positive correlation was expected between change in nurses' perceived attitudes toward and knowledge of spiritual care and change in nurses' perceived spiritual care competence. A prospective, longitudinal design was employed, and analyses included one-way repeated-measures analysis of variance, linear regression, and partial correlation. Statistically significant differences were found in nurses' attitudes toward and knowledge of spiritual care and nurses' perceived spiritual care competence. There was a positive relationship between change scores in nurses' attitudes toward and knowledge of spiritual care and nurses' spiritual care competence. Online spiritual care educational programs may exert a lasting impact on nurses' attitudes toward and knowledge of spiritual care and their competence to provide spiritual care to children with cancer at the end of life. Additional studies are required to evaluate the direct effects of educational interventions patient outcomes.
Petersen CL; Callahan MF; McCarthy DO; Hughes RG; White-Traut R; Bansal NK
Journal Of Pediatric Oncology Nursing
2017
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1177/1043454216646542" target="_blank" rel="noreferrer">10.1177/1043454216646542</a>