1 40 3 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource February 2022 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month February 2022 List URL Address <a href="http://doi.org/10.1177/02692163211068997" target="_blank" rel="noreferrer noopener">http://doi.org/​10.1177/02692163211068997</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Communication strategies and persuasion as core components of shared decision-making for children with life-limiting conditions: A multiple case study Publisher An entity responsible for making the resource available Palliative Medicine Date A point or period of time associated with an event in the lifecycle of the resource 2021 Subject The topic of the resource adolescent; Child; family; palliative care; decision-making; preschool; qualitative research; longitudinal studies Creator An entity primarily responsible for making the resource Popejoy E; Almack K; Manning JC; Johnston B; Pollock K Description An account of the resource BACKGROUND: Families and professionals caring for children with life-limiting conditions face difficult healthcare decisions. Shared decision-making is promoted in many countries, however little is known about factors influencing these processes. AIM: To explore the communication strategies used in shared decision-making for children with life-limiting conditions. DESIGN: A longitudinal, qualitative, multiple-case study. Cases were centred around the child and parent/carer(s). Most cases also included professionals or extended family members. Data from interviews, observations and medical notes were re-storied for each case into a narrative case summary. These were subject to comparative thematic analysis using NVivo11. SETTING/PARTICIPANTS: Eleven cases recruited from three tertiary hospitals in England. 23 participants were interviewed (46 interviews). Cases were followed for up to 12 months between December 2015 and January 2017. 72 observations were conducted and the medical notes of nine children reviewed. FINDINGS: Strategies present during shared decision-making were underpinned by moral work. Professionals presented options they believed were in the child's best interests, emphasising their preference. Options were often presented in advance of being necessary to prevent harm, therefore professionals permitted delay to treatment. Persuasion was utilised over time when professionals felt the treatment was becoming more urgent and when families felt it would not promote the child's psychosocial wellbeing. CONCLUSIONS: Communication strategies in shared decision-making are underpinned by moral work. Professionals should be aware of the models of shared decision-making which include such communication strategies. Open discussions regarding individuals' moral reasoning may assist the process of shared decision-making. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1177/02692163211068997" target="_blank" rel="noreferrer noopener">10.1177/02692163211068997</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2021 Adolescent Almack K Child Decision-making Family February 2022 List Johnston B Longitudinal Studies Manning JC Palliative Care Palliative Medicine Pollock K Popejoy E Preschool Qualitative Research Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month February 2017 List Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Life Transitions Of Adolescents And Young Adults With Life-limiting Conditions Publisher An entity responsible for making the resource available International Journal Of Palliative Nursing Date A point or period of time associated with an event in the lifecycle of the resource 2016 Subject The topic of the resource Adolescents; Life-limiting Conditions; Life Transitions; Young Adults Creator An entity primarily responsible for making the resource Johnston B; Jindal-Snape D; Pringle J Description An account of the resource AIMS: A systematic review was conducted to appraise and classify evidence related to the life transitions of adolescents and young adults with life-limiting conditions. METHODS: The databases searched were MEDLINE, CINAHL, PsycINFO, CancerLit, and AMED. Methodological quality was assessed using an established tool and the final articles included in the study were rated as moderate to high quality. Articles were then assessed based on the insight that they provided into life transitions for adolescents and young adults. RESULTS: Eighteen studies were included in the final review, with two major life transitions identified as pertinent: 'illness transition' and 'developmental transition'. These concurrent transitions were found to be relevant to adolescents and young adults with life-limiting conditions, generating complex needs. Sub-themes within the transitions were also identified. Furthermore, the illness transition was found to also impact significant others, namely family members, having physical, mental and emotional health implications and requiring them to make adaptations. CONCLUSIONS: Future research is needed to focus on adolescent and young adult perspectives to bring further insight into these key transitions, since such perspectives are currently underrepresented. Attention to the impact of the illness on the whole family would be useful to expand findings from this review. Identifier An unambiguous reference to the resource within a given context 10.12968/ijpn.2016.22.12.608 Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2016 Adolescents February 2017 List International Journal of Palliative Nursing Jindal-Snape D Johnston B Life Transitions Life-limiting Conditions Pringle J Young Adults Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month June 2017 List URL Address <a class="epub-doi" href="https://doi.org/10.1111/cch.12461">https://doi.org/10.1111/cch.12461</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Decision-making And Future Planning For Children With Life-limiting Conditions: A Qualitative Systematic Review And Thematic Synthesis Publisher An entity responsible for making the resource available Child: Care, Health And Development Date A point or period of time associated with an event in the lifecycle of the resource 2017 Subject The topic of the resource Decision-making; Life-limiting Illness; Systematic Review Creator An entity primarily responsible for making the resource Popejoy E; Pollock K; Almack K; Manning J; Johnston B Description An account of the resource Background In the last decade, the number of children with life-limiting and life-threatening conditions in England has almost doubled, and it is estimated that worldwide, there are 1.2 million children with palliative care needs. Families and professionals caring for children with life-limiting conditions are likely to face a number of difficult treatment decisions and develop plans for future care over the course of the child's life, but little is known about the process by which these decisions and plans are made. Methods The purpose of this review is to synthesize findings from qualitative research that has investigated decision-making and future planning for children with life-limiting conditions. A systematic search of six online databases was conducted and identified 887 papers for review; five papers were selected for inclusion, using predefined criteria. Reference list searching and contacting authors identified a further four papers for inclusion. Results Results sections of the papers were coded and synthesized into themes. Nineteen descriptive themes were identified, and these were further synthesized into four analytical themes. Analytical themes were 'decision factors', 'family factors', 'relational factors' and 'system factors'. Conclusions Review findings indicate that decision-making and future planning is difficult and needs to be individualized for each family. However, deficits in understanding the dynamic, relational and contextual aspects of decision-making remain and require further research. Identifier An unambiguous reference to the resource within a given context <a class="epub-doi" href="https://doi.org/10.1111/cch.12461">10.1111/cch.12461</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2017 Almack K Child: Care Child: Care, Health and Development Decision Making Health and Development Johnston B June 2017 List life-limiting illness Manning J Pollock K Popejoy E Systematic Review