1 40 3 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource August 2022 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month August 2022 List URL Address <a href="http://doi.org/10.1370/afm.2822" target="_blank" rel="noreferrer noopener">http://doi.org/​10.1370/afm.2822</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource A Mother's Tears: Contemplating Black Grief Publisher An entity responsible for making the resource available Annals of Family Medicine Date A point or period of time associated with an event in the lifecycle of the resource 2022 Subject The topic of the resource grief; African American health; community/public health; parental loss; systemic racism Creator An entity primarily responsible for making the resource Johnson KA Description An account of the resource As we have traversed the last 2 years of the COVID-19 pandemic juxtaposed against an increased awakening to the realities of racial inequities in society and health care, the grief of Black individuals and communities has largely been underrecognized. This reflective essay explores the grief experience of Blacks in the wake of continual losses and acknowledges the impact of racism in these losses. I speak from my experiences as a Black mother, survivor of sibling loss, and pediatric palliative care pediatrician to examine this complex issue and what the medical community can do to stand with Black patients and families in their grief experience. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1370/afm.2822" target="_blank" rel="noreferrer noopener">10.1370/afm.2822</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2022 African American health Annals Of Family Medicine August 2022 List community/public health Grief Johnson KA parental loss systemic racism Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource December 2021 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month December 2021 List URL Address <a href="http://doi.org/10.1542/peds.2021-049968" target="_blank" rel="noreferrer noopener">http://doi.org/​10.1542/peds.2021-049968</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Changing Pediatric Hospice and Palliative Care Through Medicaid Partnerships Publisher An entity responsible for making the resource available Pediatrics Date A point or period of time associated with an event in the lifecycle of the resource 2021 Subject The topic of the resource Hospice; Medicaid; Palliative care; Palliative Medicine; Pediatrics Creator An entity primarily responsible for making the resource Johnson KA; Morvant A; James K; Lindley LC Description An account of the resource Since its inception in 2010, the Concurrent Care for Children Provision of the Affordable Care Act has enabled seriously ill pediatric patients and their families to access comprehensive, supportive hospice services while simultaneously receiving ongoing treatment-directed therapies. Although this groundbreaking federal legislation has resulted in improvements in care for vulnerable pediatric patients, the implementation of the law has varied from state to state through Medicaid programming. The pediatric professional community is called to consider how Medicaid services can more effectively be delivered by leveraging legislative mandates and collaborative relationships between clinicians, Medicaid administrators, and policy makers. In this article, we examine ways concurrent care has been executed in 3 different states and how key stakeholders in care for children with serious illness advocated to ensure effective implementation of the legislation. The lessons learned in working with state Medicaid programs are applicable to any advocacy issue impacting children and families . Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1542/peds.2021-049968" target="_blank" rel="noreferrer noopener">10.1542/peds.2021-049968</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2021 December 2021 List Hospice James K Johnson KA Lindley LC Medicaid Morvant A Palliative Care Palliative Medicine Pediatrics Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource February 2025 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month February List 2025 URL Address <a href="http://doi.org/10.1016/j.jpainsymman.2024.09.021" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.jpainsymman.2024.09.021</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Racism in Pediatric Serious Illness and Palliative Care: A Scoping Review of Qualitative Research Publisher An entity responsible for making the resource available Journal of Pain and Symptom Management Date A point or period of time associated with an event in the lifecycle of the resource 2024 Creator An entity primarily responsible for making the resource Karbeah JM; Murray CR; Nakamura C; Brahmbhatt H; Cattaneo E; Frye Hailey; SE; Kavalieratos D; Johnson KA Description An account of the resource Context: Racial disparities in health outcomes have historically impacted Black and Native American children with serious illness, yet little is known about how racism shapes the healthcare experiences of these families. To improve care experiences for this population, we must understand the myriad of ways that racism may impact their experiences with serious illness. Objectives: 1) To assess the extent to which the experiences of Black and Native American families have been captured in existing serious illness and palliative care literature and 2) explore how experiences of racism uniquely impact this population. Methods: We conducted a scoping review and qualitative meta-synthesis of peer-reviewed articles from 1980 to 2022 that included Black and/or Native American parents' or caregivers' experiences of serious illness care. We abstracted study characteristics, and forms of racism mentioned. Results: Searches yielded 2762 articles, of which six were reviewed based on inclusion criteria. Three key themes emerged from the literature on the experiences of Black families navigating pediatric serious illness that highlight how parents navigate their future after a serious illness diagnosis; how relationships and support networks change after diagnosis; and the challenges associated with navigating grief and suffering after a diagnosis. Institutionalized racism and interpersonal racism were the most identified forms of racism experienced by Black families. None of the articles identified included Native American families. Conclusion: Our findings highlight the pressing need for further qualitative research to explore the lived experiences of racially minoritized families-especially studies focusing on the experiences of Native American families. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1016/j.jpainsymman.2024.09.021" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2024.09.021</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2024 Brahmbhatt H Cattaneo E February List 2025 Frye Hailey Johnson KA Journal of Pain and Symptom Management Karbeah JM Kavalieratos D Murray CR Nakamura C SE